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ICN Announcements
Read the latest announcements about the Interstitial Cystitis Network here. From new site additions to newsletter releases, this is the place to get the latest ICN news!
Topics: 1,847
Posts: 9,042
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| Patient Stories | ||||||||||||||||||
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Chronic Infection - Fungal/Bacterial
There is considerable debate and discussion about the role of chronic infection in IC. Whether you are a fan of Dr. Fuzzy or Dr. Malone-Lee, please feel free to share your story here.
Topics: 13
Posts: 123
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13 | 123 |
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Elmiron / Eye Discussions
Researchers at the Emory Eye Center have discovered maculopathy in SOME patients with IC who have taken Elmiron for long periods of time. Share your story here.
Topics: 30
Posts: 293
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30 | 293 |
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Introduce yourself and share your story
Share Your Interstitial Cystitis Story Here. When did it start for you? How did it begin?? What interstitial cystitis treatments worked for you?
Topics: 6,840
Posts: 46,833
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Pain Care Challenges (Share Your Story!)
With pain care now greatly limited, we're collecting stories from patients who are struggling to find pain care and/or who are treated with disrespect. Please tell us your story!
Topics: 60
Posts: 329
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60 | 329 |
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Newly Diagnosed With Interstitial Cystitis
Introduce Yourself and share your interstitial cystitis story here!
Topics: 7,193
Posts: 56,703
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IC Success Stories
Share your Interstitial Cystitis Success Story Here
Topics: 1,208
Posts: 12,887
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1,208 | 12,887 |
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IC Veterans (5+ years living with IC)
This forum is for patients who have been living with IC for more than five years, who have wisdom to share but who also need support and encouragement
Topics: 41
Posts: 212
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41 | 212 |
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Men with Interstitial Cystitis
Are you a newly diagnosed man? Meet others here!
Topics: 490
Posts: 3,566
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490 | 3,566 |
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My Interstitial Cystitis Is In Remission!
Yes, remission happens and happens often for interstitial cystitis patients. If you're in remission, please share your story and success tips here!
Topics: 421
Posts: 5,046
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421 | 5,046 |
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| Diagnostic Methods For Interstitial Cystitis | ||||||||||||||||||
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General Diagnostic Questions
Ask questions about the diagnosis of IC, PFD and pelvic pain here!
Topics: 3,172
Posts: 19,109
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3,172 | 19,109 |
by magpie92154
05-08-2023, 05:31 AM
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Not Diagnosed Yet with Interstitial Cystitis?
Do you suspect you have interstitial cystitis but haven't been diagnosed yet? Post here!
Topics: 2,595
Posts: 19,143
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2,595 | 19,143 |
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Topics: 4,137
Posts: 31,724
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4,137 | 31,724 |
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Medical Marijuana and CBD
Share your experience using medical marijuana and/or CBD oil to relieve your symptoms.
Topics: 15
Posts: 167
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15 | 167 |
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Oral Medications
Oral medications are usually the first treatment options suggested for patients with mild to moderate bladder symptoms and/or pain.
Topics: 6,378
Posts: 40,684
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6,378 | 40,684 |
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Bladder Instillation Therapy
Bladder instillations are often performed for mild, moderate and, in some cases, severe IC.
Topics: 2,213
Posts: 16,076
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2,213 | 16,076 |
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Topics: 1,312
Posts: 9,419
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Topics: 1,871
Posts: 14,878
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Surgical Interventions
Surgery is only considered after a patient has tried all of the other traditional therapies and is reserved for the most severe cases.
Topics: 1,092
Posts: 13,407
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1,092 | 13,407 |
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Experimental or Controversial Treatments
Experimental therapies for interstitial cystitis (IC/PBS) are those currently being explored in research studies around the world. Their clinical trial results may not be available or are the result of a smaller, less credible study. We've included antibiotics in this discussion area because the role of bacteria in IC remains controversial at best. We have little conclusive evidence that IC is bacterial in nature.
Topics: 3,458
Posts: 28,347
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| The IC Diet | ||||||||||||||||||
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General Diet Questions
Ask questions about diet and interstitial cystitis IC/PBS here!
Topics: 6,641
Posts: 46,183
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IC Diet: Recipes
Share your favorite IC friendly recipes and menu ideas here!
Topics: 1,323
Posts: 3,232
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1,323 | 3,232 |
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Topics: 62
Posts: 195
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| Self-Help For Interstitial Cystitis | ||||||||||||||||||
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PMS, Perimenopause, Menopause
Are you struggling with hormonal changes?? Are they bothering your bladder?? Need to vent about your body changing?? Do it here!
Topics: 297
Posts: 1,948
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297 | 1,948 |
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Topics: 187
Posts: 1,125
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187 | 1,125 |
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Depression & Anxiety
Discuss your thoughts and concerns about depression and anxiety here.
Topics: 1,235
Posts: 12,428
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1,235 | 12,428 |
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Topics: 591
Posts: 4,579
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Topics: 483
Posts: 3,608
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483 | 3,608 |
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| Managing Interstitial Cystitis Flares | ||||||||||||||||||
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Pain Management For Interstitial Cystitis
Discuss pain management strategies here!
Topics: 2,764
Posts: 23,736
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2,764 | 23,736 |
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Help! I'm in an interstitial cystitis flare!
Are you in a flare? Need support? Post here!
Topics: 3,814
Posts: 28,843
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3,814 | 28,843 |
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Flare Coping Strategies For Interstitial Cystitis
Please share your best interstitial cystitis flare coping strategies here! This is NOT to post questions about treatments, therapies or managing flares. We JUST want to hear great techniques for handling flares!
Topics: 650
Posts: 5,755
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650 | 5,755 |
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| Related Conditions to Interstitial Cystitis | ||||||||||||||||||
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IC & Other Related Conditions
Research has demonstrated a clear connection between IC, IBS, vulvodynia, prostatodynia and other related conditions. Discuss them here!
Topics: 4,432
Posts: 31,000
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4,432 | 31,000 |
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| Pregnancy and Parenting With Interstitial Cystitis | ||||||||||||||||||
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Topics: 1,218
Posts: 6,843
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1,218 | 6,843 |
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Parenting with IC
When a mother or wife develops IC, it can often impact how she feels about her abilities in those roles. Talk about it here!
Topics: 481
Posts: 4,111
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481 | 4,111 |
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| Health Insurance & Disability Benefits | ||||||||||||||||||
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Health Insurance
Is this a can of worms or what?? Ask questions or discuss any issues you might have with your health insurance coverage
Topics: 34
Posts: 142
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34 | 142 |
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Topics: 272
Posts: 1,629
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Social Security Disability Q&A
Are you considering applying disability insurance? In the Appeals process? Post your questions here.
Topics: 805
Posts: 5,904
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805 | 5,904 |
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| Social Life - Family, Friends, Dating | ||||||||||||||||||
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Topics: 223
Posts: 1,669
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223 | 1,669 |
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Topics: 1,410
Posts: 12,700
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| GREAT DEBATES | ||||||||||||||||||
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What do you think causes Interstitial Cystitis?
While research hasn't found one specific cause of interstitial cystitis, there are several strong opinions out there. What do you think about the cause of IC? Any ideas? Debate them here!
Topics: 402
Posts: 3,888
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402 | 3,888 |
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There are currently 2522 users online. 1 members and 2521 guests.
Most users ever online was 157,401 at 04:30 AM on 12-24-2020.
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Hi, just wanted to check if there is anyone around from Malta or any other mediterranean country suffering from IC. I am going crazy here. No IC treatment or decent doctors. Think gonna order some pills from America. Expensive shipping, but I am ready for almost anything to smoothen up my IC (if it...07-22-2006, 11:45 AM -
Just wondering if anyone has experienced a Crohns diagnosis after taking Elmiron and what helped when they tried to stop taking it. I have been on Elmiron for over 20 years and was diagnosed with Crohns approximately 15 years ago. Although there's no proof of any connection, I feel it's too risky...09-19-2023, 05:09 AM
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Just wondering if anyone has experienced a Crohns diagnosis after taking Elmiron and what helped when they tried to stop taking it. I have been on Elmiron for over 20 years and was diagnosed with Crohns approximately 15 years ago. Although there's no proof of any connection, I feel it's too risky...09-19-2023, 05:09 AM
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When I lived in Georgia my Dr. had it all set up, but the pharmacy he uses doesn't deliver to California and I can't find one that does. Apparently in the SF Bay area self-instillations are so rare the doctors offices don't know how to source it.. Where are you getting your instillation ingredie...09-13-2023, 05:54 AM
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I began having symptoms about two weeks ago. AZO strip tested positive for leukocytes, negative for nitrates. I went to Urgent Care and the NP ordered 7 days of Keflex 500mg twice a day. She ran a culture which was negative for bacteria. I finished the Rx yesterday, but the flare continues. Why does...09-10-2023, 10:05 AM
