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Interstitial Cystitis Network Patient Support Forum

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Directory Topics Posts Last Post
ICN Announcements
Read the latest announcements about the Interstitial Cystitis Network here. From new site additions to newsletter releases, this is the place to get the latest ICN news!
Topics: 1,839 Posts: 9,038
Last Post: How are you coping?
1,839 9,038
How are you coping?
Jill's Journal (324/4,157)
Patient Stories
Chronic Infection - Fungal/Bacterial
There is considerable debate and discussion about the role of chronic infection in IC. Whether you are a fan of Dr. Fuzzy or Dr. Malone-Lee, please feel free to share your story here.
Topics: 2 Posts: 49
2 49
Elmiron / Eye Discussions
Researchers at the Emory Eye Center have discovered maculopathy in SOME patients with IC who have taken Elmiron for long periods of time. Share your story here.
Topics: 17 Posts: 197
17 197
What eye tests do I need?
Introduce yourself and share your story
Share Your Interstitial Cystitis Story Here. When did it start for you? How did it begin?? What interstitial cystitis treatments worked for you?
Topics: 6,725 Posts: 46,315
6,725 46,315
Question from newbie
Pain Care Challenges (Share Your Story!)
With pain care now greatly limited, we're collecting stories from patients who are struggling to find pain care and/or who are treated with disrespect. Please tell us your story!
Topics: 40 Posts: 209
40 209
Newly Diagnosed With Interstitial Cystitis
Introduce Yourself and share your interstitial cystitis story here!
Topics: 7,178 Posts: 56,641
7,178 56,641
ICN posting guidelines
IC Success Stories
Share your Interstitial Cystitis Success Story Here
Topics: 1,194 Posts: 12,798
1,194 12,798
One year anniversary
IC Veterans (5+ years living with IC)
This forum is for patients who have been living with IC for more than five years, who have wisdom to share but who also need support and encouragement
Topics: 31 Posts: 147
31 147
Men with Interstitial Cystitis
Are you a newly diagnosed man? Meet others here!
Topics: 476 Posts: 3,496
Last Post: My Symptoms
476 3,496
My Symptoms
by nishanh
My Interstitial Cystitis Is In Remission!
Yes, remission happens and happens often for interstitial cystitis patients. If you're in remission, please share your story and success tips here!
Topics: 416 Posts: 5,022
416 5,022
Diagnostic Methods For Interstitial Cystitis
General Diagnostic Questions
Ask questions about the diagnosis of IC, PFD and pelvic pain here!
Topics: 3,155 Posts: 19,090
3,155 19,090
B12 and feeling better...
Not Diagnosed Yet with Interstitial Cystitis?
Do you suspect you have interstitial cystitis but haven't been diagnosed yet? Post here!
Topics: 2,583 Posts: 18,974
Last Post: Possible IC
2,583 18,974
Possible IC
Topics: 4,115 Posts: 31,630
Last Post: BPS without OAB?
4,115 31,630
BPS without OAB?
Treatment Options
Medical Marijuana and CBD
Share your experience using medical marijuana and/or CBD oil to relieve your symptoms.
Topics: 14 Posts: 157
Last Post: Rolling my CBD
14 157
Rolling my CBD
by Chatime
Oral Medications
Oral medications are usually the first treatment options suggested for patients with mild to moderate bladder symptoms and/or pain.
Topics: 6,343 Posts: 40,600
Last Post: Pepsid Flare?
6,343 40,600
Pepsid Flare?
Bladder Instillation Therapy
Bladder instillations are often performed for mild, moderate and, in some cases, severe IC.
Topics: 2,196 Posts: 16,024
2,196 16,024
L. Thomas
First Instillation...
Topics: 1,307 Posts: 9,396
Last Post: Valium?
1,307 9,396
Topics: 1,867 Posts: 14,868
1,867 14,868
T.E.N.S Therapy (224/1,382)
Nerve Blocks (103/629)
Surgical Interventions
Surgery is only considered after a patient has tried all of the other traditional therapies and is reserved for the most severe cases.
Topics: 1,087 Posts: 13,366
1,087 13,366
Understanding this forum
by Sammy77
Bladder Removal (622/8,613)
Nerve Ablation (24/258)
Experimental or Controversial Treatments
Experimental therapies for interstitial cystitis (IC/PBS) are those currently being explored in research studies around the world. Their clinical trial results may not be available or are the result of a smaller, less credible study. We've included antibiotics in this discussion area because the role of bacteria in IC remains controversial at best. We have little conclusive evidence that IC is bacterial in nature.
Topics: 3,451 Posts: 28,321
Last Post: Botox - first time
3,451 28,321
Botox - first time
Alternative Therapies (1,442/10,588)
Cyclosporine (60/919)
Botox (297/2,568)
Other Treatments (955/6,411)
The IC Diet
General Diet Questions
Ask questions about diet and interstitial cystitis IC/PBS here!
Topics: 6,617 Posts: 46,044
6,617 46,044
Oil of oregano and Neem
IC Diet: Recipes
Share your favorite IC friendly recipes and menu ideas here!
Topics: 1,315 Posts: 3,203
1,315 3,203
Main Dishes (149/492)
Casseroles (12/51)
Salads and Soups (80/212)
Desserts (152/394)
Hot Drinks (83/406)
Cold Drinks (81/286)
Cookies & Candy (50/190)
Cocktails (3/27)
Topics: 62 Posts: 190
62 190
Breakfast (7/29)
Dinner (4/13)
Lunch (4/28)
Holidays (12/91)
Self-Help For Interstitial Cystitis
PMS, Perimenopause, Menopause
Are you struggling with hormonal changes?? Are they bothering your bladder?? Need to vent about your body changing?? Do it here!
Topics: 291 Posts: 1,931
291 1,931
Topics: 186 Posts: 1,122
186 1,122
Depression & Anxiety
Discuss your thoughts and concerns about depression and anxiety here.
Topics: 1,229 Posts: 12,398
1,229 12,398
Topics: 586 Posts: 4,557
586 4,557
Topics: 477 Posts: 3,588
477 3,588
Managing Interstitial Cystitis Flares
Pain Management For Interstitial Cystitis
Discuss pain management strategies here!
Topics: 2,759 Posts: 23,717
2,759 23,717
Help! I'm in an interstitial cystitis flare!
Are you in a flare? Need support? Post here!
Topics: 3,785 Posts: 28,712
3,785 28,712
Flare Coping Strategies For Interstitial Cystitis
Please share your best interstitial cystitis flare coping strategies here! This is NOT to post questions about treatments, therapies or managing flares. We JUST want to hear great techniques for handling flares!
Topics: 646 Posts: 5,722
646 5,722
Related Conditions to Interstitial Cystitis
IC & Other Related Conditions
Research has demonstrated a clear connection between IC, IBS, vulvodynia, prostatodynia and other related conditions. Discuss them here!
Topics: 4,415 Posts: 30,953
4,415 30,953
Fibromyalgia (92/604)
Vulvodynia (940/6,881)
Dry Eyes/Dry Mouth (141/906)
Fungal Infections (339/2,762)
Other Related Conditions (1,884/13,821)
Pregnancy and Parenting With Interstitial Cystitis
Topics: 1,213 Posts: 6,834
1,213 6,834
Can IC cause miscarriage?
I'm Pregnant! (691/6,376)
Infertility (63/397)
Parenting with IC
When a mother or wife develops IC, it can often impact how she feels about her abilities in those roles. Talk about it here!
Topics: 481 Posts: 4,111
481 4,111
Health Insurance & Disability Benefits
Health Insurance
Is this a can of worms or what?? Ask questions or discuss any issues you might have with your health insurance coverage
Topics: 34 Posts: 140
34 140
Does MediCal cover Elmiron?
Topics: 272 Posts: 1,629
272 1,629
Social Security Disability Q&A
Are you considering applying disability insurance? In the Appeals process? Post your questions here.
Topics: 805 Posts: 5,904
805 5,904
Social Life - Family, Friends, Dating
Topics: 222 Posts: 1,667
222 1,667
Dating with IC (48/361)
Topics: 1,406 Posts: 12,691
1,406 12,691
What do you think causes Interstitial Cystitis?
While research hasn't found one specific cause of interstitial cystitis, there are several strong opinions out there. What do you think about the cause of IC? Any ideas? Debate them here!
Topics: 401 Posts: 3,879
401 3,879
Atypical Cause of IC Symptoms?

What's Going On


There are currently 2390 users online. 10 members and 2380 guests.

Most users ever online was 32,261 at 06:00 AM on 08-31-2011.

IC Patient Support Forum - Interstitial Cystitis, Bladder & Pelvic Pain Statistics


Topics: 82,733   Posts: 625,278   Members: 51,279   Active Members: 112
Welcome to our newest member, Pat Mork.



Latest Topics


  • duck8
    Pepsid Flare?
    by duck8
    My doctor says i have a Mast Cell Syndrome that is exacerbating my other health issues and she's putting me on an H2 and H1 Antihistamine protocol. Due to the recent recall of H2 Antihistamines Axid and Zantac she said the only one she felt was safe for me was Pepsid. Turns out its probably what's...
    05-29-2020, 10:20 AM
  • cowolter
    Question from newbie
    by cowolter
    Hello, I' m Alex.
    I was diagnosed with IC about 2 years ago now. I was wondering how people have been doing with high workout. I have always been a big workout freak, and it seems I start to feel better then start running again or doing one of my higher intensity workouts I end up feeling cramping...
    05-28-2020, 02:57 AM
  • lacy.maree
    Lexapro and other SSRI Effects?
    by lacy.maree
    Hey everyone!
    Today I was prescribed Lexapro for anxiety and depression and was wondering if anyone has any experience with SSRIs- did it trigger bladder pain or other issues for anyone? My bladder is really sensitive to medicines (even ordinary things like birth control or cold medicines send...
    05-26-2020, 07:54 PM

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