No announcement yet.

Interstitial Cystitis Network Patient Support Forum

  • Filter
  • Time
  • Answered
  • Show
  • New Topics
Clear All
new posts
No content found
Show More
  • Filter
  • Time
  • Show
  • New Topics
Clear All
new posts
Please log in to your account to view your subscribed posts.
Directory Topics Posts Last Post
ICN Announcements
Read the latest announcements about the Interstitial Cystitis Network here. From new site additions to newsletter releases, this is the place to get the latest ICN news!
Topics: 1,847 Posts: 9,042
1,847 9,042
Jill's Journal (325/4,160)
Patient Stories
Chronic Infection - Fungal/Bacterial
There is considerable debate and discussion about the role of chronic infection in IC. Whether you are a fan of Dr. Fuzzy or Dr. Malone-Lee, please feel free to share your story here.
Topics: 11 Posts: 112
11 112
Elmiron / Eye Discussions
Researchers at the Emory Eye Center have discovered maculopathy in SOME patients with IC who have taken Elmiron for long periods of time. Share your story here.
Topics: 29 Posts: 287
29 287
Introduce yourself and share your story
Share Your Interstitial Cystitis Story Here. When did it start for you? How did it begin?? What interstitial cystitis treatments worked for you?
Topics: 6,814 Posts: 46,716
6,814 46,716
by echloe
Pain Care Challenges (Share Your Story!)
With pain care now greatly limited, we're collecting stories from patients who are struggling to find pain care and/or who are treated with disrespect. Please tell us your story!
Topics: 57 Posts: 311
Last Post: Estrogen Therapy
57 311
Newly Diagnosed With Interstitial Cystitis
Introduce Yourself and share your interstitial cystitis story here!
Topics: 7,191 Posts: 56,690
Last Post: Cystoprotek
7,191 56,690
IC Success Stories
Share your Interstitial Cystitis Success Story Here
Topics: 1,204 Posts: 12,866
1,204 12,866
IC Veterans (5+ years living with IC)
This forum is for patients who have been living with IC for more than five years, who have wisdom to share but who also need support and encouragement
Topics: 39 Posts: 206
39 206
Men with Interstitial Cystitis
Are you a newly diagnosed man? Meet others here!
Topics: 488 Posts: 3,558
488 3,558
My Interstitial Cystitis Is In Remission!
Yes, remission happens and happens often for interstitial cystitis patients. If you're in remission, please share your story and success tips here!
Topics: 420 Posts: 5,039
420 5,039
Diagnostic Methods For Interstitial Cystitis
General Diagnostic Questions
Ask questions about the diagnosis of IC, PFD and pelvic pain here!
Topics: 3,170 Posts: 19,105
Last Post: Yeast
3,170 19,105
Not Diagnosed Yet with Interstitial Cystitis?
Do you suspect you have interstitial cystitis but haven't been diagnosed yet? Post here!
Topics: 2,594 Posts: 19,136
2,594 19,136
Topics: 4,136 Posts: 31,717
Last Post: Weight Gain
4,136 31,717
Treatment Options
Medical Marijuana and CBD
Share your experience using medical marijuana and/or CBD oil to relieve your symptoms.
Topics: 15 Posts: 166
15 166
Oral Medications
Oral medications are usually the first treatment options suggested for patients with mild to moderate bladder symptoms and/or pain.
Topics: 6,372 Posts: 40,678
6,372 40,678
Bladder Instillation Therapy
Bladder instillations are often performed for mild, moderate and, in some cases, severe IC.
Topics: 2,210 Posts: 16,049
Last Post: Botox injection
2,210 16,049
Topics: 1,312 Posts: 9,418
1,312 9,418
Topics: 1,870 Posts: 14,876
Last Post: Interstim vs TENS
1,870 14,876
T.E.N.S Therapy (224/1,382)
Nerve Blocks (103/629)
Surgical Interventions
Surgery is only considered after a patient has tried all of the other traditional therapies and is reserved for the most severe cases.
Topics: 1,091 Posts: 13,403
1,091 13,403
Bladder Removal (624/8,637)
Nerve Ablation (24/258)
Experimental or Controversial Treatments
Experimental therapies for interstitial cystitis (IC/PBS) are those currently being explored in research studies around the world. Their clinical trial results may not be available or are the result of a smaller, less credible study. We've included antibiotics in this discussion area because the role of bacteria in IC remains controversial at best. We have little conclusive evidence that IC is bacterial in nature.
Topics: 3,458 Posts: 28,342
3,458 28,342
Alternative Therapies (1,444/10,593)
Cyclosporine (60/919)
Botox (298/2,570)
Other Treatments (958/6,422)
The IC Diet
General Diet Questions
Ask questions about diet and interstitial cystitis IC/PBS here!
Topics: 6,639 Posts: 46,173
6,639 46,173
IC Diet: Recipes
Share your favorite IC friendly recipes and menu ideas here!
Topics: 1,321 Posts: 3,228
1,321 3,228
Main Dishes (151/499)
Casseroles (12/55)
Salads and Soups (80/214)
Desserts (152/394)
Hot Drinks (84/412)
Cold Drinks (81/286)
Cookies & Candy (50/190)
Cocktails (3/27)
Topics: 62 Posts: 195
Last Post: Start with Chicken
62 195
Breakfast (7/32)
Dinner (4/15)
Lunch (4/28)
Holidays (12/91)
Self-Help For Interstitial Cystitis
PMS, Perimenopause, Menopause
Are you struggling with hormonal changes?? Are they bothering your bladder?? Need to vent about your body changing?? Do it here!
Topics: 297 Posts: 1,948
297 1,948
by bhonas
Topics: 187 Posts: 1,125
187 1,125
Depression & Anxiety
Discuss your thoughts and concerns about depression and anxiety here.
Topics: 1,235 Posts: 12,423
1,235 12,423
Topics: 591 Posts: 4,571
591 4,571
Topics: 480 Posts: 3,603
480 3,603
Managing Interstitial Cystitis Flares
Pain Management For Interstitial Cystitis
Discuss pain management strategies here!
Topics: 2,763 Posts: 23,734
2,763 23,734
Help! I'm in an interstitial cystitis flare!
Are you in a flare? Need support? Post here!
Topics: 3,807 Posts: 28,810
3,807 28,810
Flare Coping Strategies For Interstitial Cystitis
Please share your best interstitial cystitis flare coping strategies here! This is NOT to post questions about treatments, therapies or managing flares. We JUST want to hear great techniques for handling flares!
Topics: 650 Posts: 5,755
650 5,755
Related Conditions to Interstitial Cystitis
IC & Other Related Conditions
Research has demonstrated a clear connection between IC, IBS, vulvodynia, prostatodynia and other related conditions. Discuss them here!
Topics: 4,430 Posts: 30,994
4,430 30,994
Fibromyalgia (92/604)
Vulvodynia (942/6,885)
Dry Eyes/Dry Mouth (141/906)
Fungal Infections (339/2,766)
Other Related Conditions (1,890/13,840)
Pregnancy and Parenting With Interstitial Cystitis
Topics: 1,217 Posts: 6,842
1,217 6,842
I'm Pregnant! (694/6,384)
Infertility (63/397)
Parenting with IC
When a mother or wife develops IC, it can often impact how she feels about her abilities in those roles. Talk about it here!
Topics: 481 Posts: 4,111
481 4,111
Health Insurance & Disability Benefits
Health Insurance
Is this a can of worms or what?? Ask questions or discuss any issues you might have with your health insurance coverage
Topics: 34 Posts: 141
34 141
Topics: 272 Posts: 1,629
272 1,629
Social Security Disability Q&A
Are you considering applying disability insurance? In the Appeals process? Post your questions here.
Topics: 805 Posts: 5,904
805 5,904
Social Life - Family, Friends, Dating
Topics: 223 Posts: 1,669
223 1,669
Dating with IC (49/363)
Topics: 1,409 Posts: 12,695
Last Post: Zinc
1,409 12,695
What do you think causes Interstitial Cystitis?
While research hasn't found one specific cause of interstitial cystitis, there are several strong opinions out there. What do you think about the cause of IC? Any ideas? Debate them here!
Topics: 402 Posts: 3,888
Last Post: Bed Wetting?
402 3,888

What's Going On


There are currently 440 users online. 17 members and 423 guests.

Most users ever online was 157,401 at 05:30 AM on 12-24-2020.

IC Patient Support Forum - Interstitial Cystitis, Bladder & Pelvic Pain Statistics


Topics: 83,128   Posts: 627,112   Members: 52,387   Active Members: 88
Welcome to our newest member, KDS.

Our New Book




Latest Topics


  • echloe
    Pillow for neck pain
    by echloe
    Hi, I am looking for a firm pillow the old 1 is 6 months old and I need the change. Can anyone give me some direction, I did see 1 on Facebook Emma pillow the first I had heard about the brand archie the axolotl squishmallow​. Any help is appreciated as there are so many different brands
    Yesterday, 01:37 PM
  • KDS
    What is post fulguration for Hunner's leisons like?
    by KDS
    I have Hunner's leisons. I will be having fulguration soon. Just wondering if others who have had the procedure could let me know how painful and long the recovery is. If I have surgery on Thursday, would I be able to work on Monday? I know I should have asked the doctor when he found them and asked...
    01-23-2023, 10:20 AM
  • Bevity
    Curable App
    by Bevity
    I found the Curable App after a massive flare at the end of 2020. I was desperately looking for help and tried several medications from my doctor and other treatments including medical marijuana. Nothing helped. I knew that the flare had been caused by stress By pure chance I heard a podcast hosted...
    01-23-2023, 04:36 AM