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Directory Topics Posts Last Post
Read the latest announcements about the Interstitial Cystitis Network here. From new site additions to newsletter releases, this is the place to get the latest ICN news!
Topics: 1,833 Posts: 9,034
1,833 9,034
Sub-Forums:
Jill's Journal (324/4,157)
Dec 2018 - Please share any problems or bugs you've encountered while trying to use this new, updated software!
Topics: 4 Posts: 9
4 9
Patient Stories
There is considerable debate and discussion about the role of chronic infection in IC. Whether you are a fan of Dr. Fuzzy or Dr. Malone-Lee, please feel free to share your story here.
Topics: 1 Posts: 8
1 8
Researchers at the Emory Eye Center have discovered maculopathy in SOME patients with IC who have taken Elmiron for long periods of time. Share your story here.
Topics: 10 Posts: 119
10 119
Share Your Interstitial Cystitis Story Here. When did it start for you? How did it begin?? What interstitial cystitis treatments worked for you?
Topics: 6,689 Posts: 46,113
6,689 46,113
With pain care now greatly limited, we're collecting stories from patients who are struggling to find pain care and/or who are treated with disrespect. Please tell us your story!
Topics: 32 Posts: 165
32 165
Introduce Yourself and share your interstitial cystitis story here!
Topics: 7,175 Posts: 56,613
7,175 56,613
Share your Interstitial Cystitis Success Story Here
Topics: 1,191 Posts: 12,771
1,191 12,771
This forum is for patients who have been living with IC for more than five years, who have wisdom to share but who also need support and encouragement
Topics: 25 Posts: 122
25 122
Are you a newly diagnosed man? Meet others here!
Topics: 474 Posts: 3,484
474 3,484
Yes, remission happens and happens often for interstitial cystitis patients. If you're in remission, please share your story and success tips here!
Topics: 415 Posts: 5,016
415 5,016
Diagnostic Methods For Interstitial Cystitis
Ask questions about the diagnosis of IC, PFD and pelvic pain here!
Topics: 3,149 Posts: 19,079
3,149 19,079
Sub-Forums:
Do you suspect you have interstitial cystitis but haven't been diagnosed yet? Post here!
Topics: 2,575 Posts: 18,941
2,575 18,941
Topics: 4,108 Posts: 31,593
4,108 31,593
Treatment Options
Share your experience using medical marijuana and/or CBD oil to relieve your symptoms.
Topics: 13 Posts: 149
13 149
Oral medications are usually the first treatment options suggested for patients with mild to moderate bladder symptoms and/or pain.
Topics: 6,321 Posts: 40,540
6,321 40,540
Sub-Forums:
Bladder instillations are often performed for mild, moderate and, in some cases, severe IC.
Topics: 2,192 Posts: 15,998
2,192 15,998
Sub-Forums:
Topics: 1,303 Posts: 9,387
1,303 9,387
Topics: 1,866 Posts: 14,866
1,866 14,866
Sub-Forums:
T.E.N.S Therapy (224/1,382)
Nerve Blocks (103/629)
Surgery is only considered after a patient has tried all of the other traditional therapies and is reserved for the most severe cases.
Topics: 1,087 Posts: 13,361
1,087 13,361
Sub-Forums:
Bladder Removal (622/8,608)
Nerve Ablation (24/258)
Experimental therapies for interstitial cystitis (IC/PBS) are those currently being explored in research studies around the world. Their clinical trial results may not be available or are the result of a smaller, less credible study. We've included antibiotics in this discussion area because the role of bacteria in IC remains controversial at best. We have little conclusive evidence that IC is bacterial in nature.
Topics: 3,448 Posts: 28,298
3,448 28,298
Sub-Forums:
Alternative Therapies (1,442/10,585)
Cyclosporine (59/917)
Botox (296/2,553)
Other Treatments (955/6,409)
The IC Diet
Ask questions about diet and interstitial cystitis IC/PBS here!
Topics: 6,602 Posts: 45,958
6,602 45,958
Sub-Forums:
Share your favorite IC friendly recipes and menu ideas here!
Topics: 1,299 Posts: 3,172
1,299 3,172
Sub-Forums:
Main Dishes (149/492)
Casseroles (12/51)
Salads and Soups (80/212)
Desserts (152/394)
Hot Drinks (83/406)
Cold Drinks (65/265)
Cookies & Candy (50/190)
Cocktails (3/27)
Topics: 61 Posts: 188
61 188
Sub-Forums:
Breakfast (6/27)
Dinner (4/13)
Lunch (4/28)
Holidays (12/91)
Self-Help For Interstitial Cystitis
Are you struggling with hormonal changes?? Are they bothering your bladder?? Need to vent about your body changing?? Do it here!
Topics: 287 Posts: 1,899
287 1,899
Topics: 185 Posts: 1,116
185 1,116
Discuss your thoughts and concerns about depression and anxiety here.
Topics: 1,225 Posts: 12,379
1,225 12,379
Topics: 584 Posts: 4,543
584 4,543
Topics: 476 Posts: 3,586
476 3,586
Managing Interstitial Cystitis Flares
Discuss pain management strategies here!
Topics: 2,759 Posts: 23,716
2,759 23,716
Are you in a flare? Need support? Post here!
Topics: 3,763 Posts: 28,600
3,763 28,600
Please share your best interstitial cystitis flare coping strategies here! This is NOT to post questions about treatments, therapies or managing flares. We JUST want to hear great techniques for handling flares!
Topics: 645 Posts: 5,718
645 5,718
Related Conditions to Interstitial Cystitis
Research has demonstrated a clear connection between IC, IBS, vulvodynia, prostatodynia and other related conditions. Discuss them here!
Topics: 4,408 Posts: 30,925
4,408 30,925
Sub-Forums:
Fibromyalgia (92/604)
Vulvodynia (938/6,878)
Dry Eyes/Dry Mouth (141/906)
Fungal Infections (339/2,762)
Other Related Conditions (1,883/13,816)
Pregnancy and Parenting With Interstitial Cystitis
Topics: 1,211 Posts: 6,828
1,211 6,828
Sub-Forums:
I'm Pregnant! (689/6,372)
Infertility (63/395)
When a mother or wife develops IC, it can often impact how she feels about her abilities in those roles. Talk about it here!
Topics: 480 Posts: 4,107
480 4,107
Health Insurance & Disability Benefits
Is this a can of worms or what?? Ask questions or discuss any issues you might have with your health insurance coverage
Topics: 33 Posts: 134
33 134
Sub-Forums:
Topics: 272 Posts: 1,629
272 1,629
Sub-Forums:
Are you considering applying disability insurance? In the Appeals process? Post your questions here.
Topics: 805 Posts: 5,904
805 5,904
Social Life - Family, Friends, Dating
Topics: 221 Posts: 1,660
221 1,660
Sub-Forums:
Dating with IC (47/359)
Topics: 1,404 Posts: 12,689
1,404 12,689
Sub-Forums:
GREAT DEBATES
While research hasn't found one specific cause of interstitial cystitis, there are several strong opinions out there. What do you think about the cause of IC? Any ideas? Debate them here!
Topics: 400 Posts: 3,874
400 3,874

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