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Directory Topics Posts Last Post
ICN Announcements
Read the latest announcements about the Interstitial Cystitis Network here. From new site additions to newsletter releases, this is the place to get the latest ICN news!
Topics: 1,840 Posts: 9,039
Last Post: How are you coping?
1,840 9,039
ICNDonna
Sub-Forums:
Jill's Journal (324/4,157)
Patient Stories
Chronic Infection - Fungal/Bacterial
There is considerable debate and discussion about the role of chronic infection in IC. Whether you are a fan of Dr. Fuzzy or Dr. Malone-Lee, please feel free to share your story here.
Topics: 4 Posts: 57
4 57
ICNDonna
Elmiron / Eye Discussions
Researchers at the Emory Eye Center have discovered maculopathy in SOME patients with IC who have taken Elmiron for long periods of time. Share your story here.
Topics: 21 Posts: 232
21 232
Introduce yourself and share your story
Share Your Interstitial Cystitis Story Here. When did it start for you? How did it begin?? What interstitial cystitis treatments worked for you?
Topics: 6,735 Posts: 46,378
Last Post: What is going on??
6,735 46,378
Midgetsammi
Pain Care Challenges (Share Your Story!)
With pain care now greatly limited, we're collecting stories from patients who are struggling to find pain care and/or who are treated with disrespect. Please tell us your story!
Topics: 43 Posts: 233
43 233
GPat
by GPat
Newly Diagnosed With Interstitial Cystitis
Introduce Yourself and share your interstitial cystitis story here!
Topics: 7,178 Posts: 56,648
7,178 56,648
ICNDonna
IC Success Stories
Share your Interstitial Cystitis Success Story Here
Topics: 1,196 Posts: 12,811
1,196 12,811
IC Veterans (5+ years living with IC)
This forum is for patients who have been living with IC for more than five years, who have wisdom to share but who also need support and encouragement
Topics: 34 Posts: 173
Last Post: Valium
34 173
ICNDonna
Men with Interstitial Cystitis
Are you a newly diagnosed man? Meet others here!
Topics: 478 Posts: 3,510
478 3,510
My Interstitial Cystitis Is In Remission!
Yes, remission happens and happens often for interstitial cystitis patients. If you're in remission, please share your story and success tips here!
Topics: 418 Posts: 5,029
418 5,029
Diagnostic Methods For Interstitial Cystitis
General Diagnostic Questions
Ask questions about the diagnosis of IC, PFD and pelvic pain here!
Topics: 3,157 Posts: 19,091
3,157 19,091
ICNDonna
Sub-Forums:
Not Diagnosed Yet with Interstitial Cystitis?
Do you suspect you have interstitial cystitis but haven't been diagnosed yet? Post here!
Topics: 2,586 Posts: 18,990
2,586 18,990
Topics: 4,117 Posts: 31,649
4,117 31,649
ICNDonna
Treatment Options
Medical Marijuana and CBD
Share your experience using medical marijuana and/or CBD oil to relieve your symptoms.
Topics: 14 Posts: 160
Last Post: Travelling with CBD
14 160
MoralPhoebe
Oral Medications
Oral medications are usually the first treatment options suggested for patients with mild to moderate bladder symptoms and/or pain.
Topics: 6,352 Posts: 40,624
6,352 40,624
icnmgrjill
Sub-Forums:
Bladder Instillation Therapy
Bladder instillations are often performed for mild, moderate and, in some cases, severe IC.
Topics: 2,199 Posts: 16,032
2,199 16,032
ICNDonna
Sub-Forums:
Topics: 1,308 Posts: 9,399
1,308 9,399
ICNDonna
Topics: 1,868 Posts: 14,870
1,868 14,870
Sub-Forums:
T.E.N.S Therapy (224/1,382)
Nerve Blocks (103/629)
Surgical Interventions
Surgery is only considered after a patient has tried all of the other traditional therapies and is reserved for the most severe cases.
Topics: 1,087 Posts: 13,375
1,087 13,375
Sub-Forums:
Bladder Removal (622/8,615)
Nerve Ablation (24/258)
Experimental or Controversial Treatments
Experimental therapies for interstitial cystitis (IC/PBS) are those currently being explored in research studies around the world. Their clinical trial results may not be available or are the result of a smaller, less credible study. We've included antibiotics in this discussion area because the role of bacteria in IC remains controversial at best. We have little conclusive evidence that IC is bacterial in nature.
Topics: 3,453 Posts: 28,328
Last Post: Diclofenac sodium
3,453 28,328
ICNDonna
Sub-Forums:
Alternative Therapies (1,442/10,588)
Cyclosporine (60/919)
Botox (298/2,570)
Other Treatments (956/6,415)
The IC Diet
General Diet Questions
Ask questions about diet and interstitial cystitis IC/PBS here!
Topics: 6,621 Posts: 46,068
Last Post: fried?
6,621 46,068
ICNDonna
Sub-Forums:
IC Diet: Recipes
Share your favorite IC friendly recipes and menu ideas here!
Topics: 1,315 Posts: 3,204
1,315 3,204
Sub-Forums:
Main Dishes (149/492)
Casseroles (12/51)
Salads and Soups (80/212)
Desserts (152/394)
Hot Drinks (83/407)
Cold Drinks (81/286)
Cookies & Candy (50/190)
Cocktails (3/27)
Topics: 62 Posts: 193
Last Post: Veggie Smoothies
62 193
Cal-m
by Cal-m
Sub-Forums:
Breakfast (7/32)
Dinner (4/13)
Lunch (4/28)
Holidays (12/91)
Self-Help For Interstitial Cystitis
PMS, Perimenopause, Menopause
Are you struggling with hormonal changes?? Are they bothering your bladder?? Need to vent about your body changing?? Do it here!
Topics: 292 Posts: 1,937
292 1,937
Topics: 187 Posts: 1,125
187 1,125
Depression & Anxiety
Discuss your thoughts and concerns about depression and anxiety here.
Topics: 1,229 Posts: 12,403
1,229 12,403
Topics: 586 Posts: 4,558
586 4,558
Topics: 478 Posts: 3,592
Last Post: Swimming
478 3,592
ICNDonna
Managing Interstitial Cystitis Flares
Pain Management For Interstitial Cystitis
Discuss pain management strategies here!
Topics: 2,759 Posts: 23,717
2,759 23,717
Help! I'm in an interstitial cystitis flare!
Are you in a flare? Need support? Post here!
Topics: 3,791 Posts: 28,731
3,791 28,731
Flare Coping Strategies For Interstitial Cystitis
Please share your best interstitial cystitis flare coping strategies here! This is NOT to post questions about treatments, therapies or managing flares. We JUST want to hear great techniques for handling flares!
Topics: 647 Posts: 5,725
647 5,725
Related Conditions to Interstitial Cystitis
IC & Other Related Conditions
Research has demonstrated a clear connection between IC, IBS, vulvodynia, prostatodynia and other related conditions. Discuss them here!
Topics: 4,416 Posts: 30,957
4,416 30,957
ICNDonna
Sub-Forums:
Fibromyalgia (92/604)
Vulvodynia (940/6,881)
Dry Eyes/Dry Mouth (141/906)
Fungal Infections (339/2,762)
Other Related Conditions (1,884/13,821)
Pregnancy and Parenting With Interstitial Cystitis
Topics: 1,213 Posts: 6,834
1,213 6,834
ICNDonna
Sub-Forums:
I'm Pregnant! (691/6,376)
Infertility (63/397)
Parenting with IC
When a mother or wife develops IC, it can often impact how she feels about her abilities in those roles. Talk about it here!
Topics: 481 Posts: 4,111
481 4,111
Health Insurance & Disability Benefits
Health Insurance
Is this a can of worms or what?? Ask questions or discuss any issues you might have with your health insurance coverage
Topics: 34 Posts: 141
34 141
Pillowfight
Sub-Forums:
Topics: 272 Posts: 1,629
272 1,629
Sub-Forums:
Social Security Disability Q&A
Are you considering applying disability insurance? In the Appeals process? Post your questions here.
Topics: 805 Posts: 5,904
805 5,904
Social Life - Family, Friends, Dating
Topics: 222 Posts: 1,667
222 1,667
Sub-Forums:
Dating with IC (48/361)
Topics: 1,406 Posts: 12,691
1,406 12,691
Sub-Forums:
GREAT DEBATES
What do you think causes Interstitial Cystitis?
While research hasn't found one specific cause of interstitial cystitis, there are several strong opinions out there. What do you think about the cause of IC? Any ideas? Debate them here!
Topics: 401 Posts: 3,880
401 3,880
jmill8
by jmill8

What's Going On

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There are currently 2053 users online. 6 members and 2047 guests.

Most users ever online was 32,261 at 06:00 AM on 08-31-2011.

IC Patient Support Forum - Interstitial Cystitis, Bladder & Pelvic Pain Statistics

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Topics: 82,800   Posts: 625,647   Members: 51,412   Active Members: 95
Welcome to our newest member, Gracie M.

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  • beste
    I am miserable and I cannot take it anymore
    by beste
    Hi everyone,

    I am Beste and I am a 28 years old teacher. For the last 5 years my health in general is deteriorating. I have developed many health issues like tinnitus, migraines, IBS-C, GERD issues like acid reflux etc., GAD, frequent urination, joint pain, neuropathy(burning on the left...
    Today, 01:55 AM
  • myriem
    second part of the month flare: help!!!!
    by myriem
    hello, I am feeling so bad. I am again experiencing the horrible pain with the beginning of the second half of my hormonal cycle. unlike the majority of you, it is not limited to ovulation and before period. it is for 15 days ;( . do you have some ideas to make this less painfull, please? I am in p...
    09-21-2020, 01:27 AM
  • myriem
    distension and biopsy? necessary?
    by myriem
    hello, I am an Algerian women of 52 years. for now 4 months , i have terrible pain in the bladder. Some days are almost ok, but other are just horrible. I went to an urologist (actually many!) and they all wanted to do a cystoscopy. I was very afraid but finally agreed. so I had a cystoscopy. but...
    09-21-2020, 06:40 AM
  • Midgetsammi
    What is going on??
    by Midgetsammi
    Hi guys,

    My first post here! Here's an overview of my journey over the last 9 years, would love to know if anyone has any similar stories/can give me any idea on what is wrong with my body!

    I am a 27 year old female 9 years ago I started to get reoccurring urine infections...
    09-20-2020, 06:58 AM
  • Chazari
    Any Update on Elmiron/Macular Studies?
    by Chazari
    Has there been any update on studies showing the link between Elmiron and Macular Degeneration? My eyes are okay (for now) and I have been taking Elmiron for 20 years. I've reduced my dose to 1 pill per day, 5 days a week in an abundance of caution. Thanks....
    05-09-2019, 02:43 AM

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