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Directory Topics Posts Last Post
ICN Announcements
Read the latest announcements about the Interstitial Cystitis Network here. From new site additions to newsletter releases, this is the place to get the latest ICN news!
Topics: 1,836 Posts: 9,034
1,836 9,034
Sub-Forums:
Jill's Journal (324/4,157)
Patient Stories
Chronic Infection - Fungal/Bacterial
There is considerable debate and discussion about the role of chronic infection in IC. Whether you are a fan of Dr. Fuzzy or Dr. Malone-Lee, please feel free to share your story here.
Topics: 1 Posts: 39
1 39
Elmiron / Eye Discussions
Researchers at the Emory Eye Center have discovered maculopathy in SOME patients with IC who have taken Elmiron for long periods of time. Share your story here.
Topics: 14 Posts: 167
14 167
Introduce yourself and share your story
Share Your Interstitial Cystitis Story Here. When did it start for you? How did it begin?? What interstitial cystitis treatments worked for you?
Topics: 6,713 Posts: 46,220
6,713 46,220
Pain Care Challenges (Share Your Story!)
With pain care now greatly limited, we're collecting stories from patients who are struggling to find pain care and/or who are treated with disrespect. Please tell us your story!
Topics: 38 Posts: 201
38 201
Newly Diagnosed With Interstitial Cystitis
Introduce Yourself and share your interstitial cystitis story here!
Topics: 7,177 Posts: 56,622
7,177 56,622
IC Success Stories
Share your Interstitial Cystitis Success Story Here
Topics: 1,192 Posts: 12,787
1,192 12,787
IC Veterans (5+ years living with IC)
This forum is for patients who have been living with IC for more than five years, who have wisdom to share but who also need support and encouragement
Topics: 29 Posts: 136
29 136
Men with Interstitial Cystitis
Are you a newly diagnosed man? Meet others here!
Topics: 475 Posts: 3,492
475 3,492
My Interstitial Cystitis Is In Remission!
Yes, remission happens and happens often for interstitial cystitis patients. If you're in remission, please share your story and success tips here!
Topics: 416 Posts: 5,021
416 5,021
Diagnostic Methods For Interstitial Cystitis
General Diagnostic Questions
Ask questions about the diagnosis of IC, PFD and pelvic pain here!
Topics: 3,154 Posts: 19,086
3,154 19,086
Sub-Forums:
Not Diagnosed Yet with Interstitial Cystitis?
Do you suspect you have interstitial cystitis but haven't been diagnosed yet? Post here!
Topics: 2,580 Posts: 18,965
2,580 18,965
Topics: 4,113 Posts: 31,623
4,113 31,623
Treatment Options
Medical Marijuana and CBD
Share your experience using medical marijuana and/or CBD oil to relieve your symptoms.
Topics: 13 Posts: 152
13 152
Oral Medications
Oral medications are usually the first treatment options suggested for patients with mild to moderate bladder symptoms and/or pain.
Topics: 6,334 Posts: 40,570
6,334 40,570
Sub-Forums:
Bladder Instillation Therapy
Bladder instillations are often performed for mild, moderate and, in some cases, severe IC.
Topics: 2,195 Posts: 16,014
2,195 16,014
Sub-Forums:
Topics: 1,306 Posts: 9,391
1,306 9,391
Topics: 1,867 Posts: 14,868
1,867 14,868
Sub-Forums:
T.E.N.S Therapy (224/1,382)
Nerve Blocks (103/629)
Surgical Interventions
Surgery is only considered after a patient has tried all of the other traditional therapies and is reserved for the most severe cases.
Topics: 1,087 Posts: 13,364
1,087 13,364
Sub-Forums:
Bladder Removal (622/8,611)
Nerve Ablation (24/258)
Experimental or Controversial Treatments
Experimental therapies for interstitial cystitis (IC/PBS) are those currently being explored in research studies around the world. Their clinical trial results may not be available or are the result of a smaller, less credible study. We've included antibiotics in this discussion area because the role of bacteria in IC remains controversial at best. We have little conclusive evidence that IC is bacterial in nature.
Topics: 3,450 Posts: 28,315
3,450 28,315
Sub-Forums:
Alternative Therapies (1,442/10,586)
Cyclosporine (60/919)
Botox (297/2,565)
Other Treatments (955/6,411)
The IC Diet
General Diet Questions
Ask questions about diet and interstitial cystitis IC/PBS here!
Topics: 6,613 Posts: 46,008
6,613 46,008
Sub-Forums:
IC Diet: Recipes
Share your favorite IC friendly recipes and menu ideas here!
Topics: 1,315 Posts: 3,203
1,315 3,203
Sub-Forums:
Main Dishes (149/492)
Casseroles (12/51)
Salads and Soups (80/212)
Desserts (152/394)
Hot Drinks (83/406)
Cold Drinks (81/286)
Cookies & Candy (50/190)
Cocktails (3/27)
Topics: 62 Posts: 190
62 190
Sub-Forums:
Breakfast (7/29)
Dinner (4/13)
Lunch (4/28)
Holidays (12/91)
Self-Help For Interstitial Cystitis
PMS, Perimenopause, Menopause
Are you struggling with hormonal changes?? Are they bothering your bladder?? Need to vent about your body changing?? Do it here!
Topics: 290 Posts: 1,925
290 1,925
Topics: 185 Posts: 1,120
185 1,120
Depression & Anxiety
Discuss your thoughts and concerns about depression and anxiety here.
Topics: 1,227 Posts: 12,389
1,227 12,389
Topics: 585 Posts: 4,547
585 4,547
Topics: 476 Posts: 3,586
476 3,586
Managing Interstitial Cystitis Flares
Pain Management For Interstitial Cystitis
Discuss pain management strategies here!
Topics: 2,759 Posts: 23,717
2,759 23,717
Help! I'm in an interstitial cystitis flare!
Are you in a flare? Need support? Post here!
Topics: 3,779 Posts: 28,684
3,779 28,684
Flare Coping Strategies For Interstitial Cystitis
Please share your best interstitial cystitis flare coping strategies here! This is NOT to post questions about treatments, therapies or managing flares. We JUST want to hear great techniques for handling flares!
Topics: 645 Posts: 5,718
645 5,718
Related Conditions to Interstitial Cystitis
IC & Other Related Conditions
Research has demonstrated a clear connection between IC, IBS, vulvodynia, prostatodynia and other related conditions. Discuss them here!
Topics: 4,411 Posts: 30,941
4,411 30,941
Sub-Forums:
Fibromyalgia (92/604)
Vulvodynia (938/6,878)
Dry Eyes/Dry Mouth (141/906)
Fungal Infections (339/2,762)
Other Related Conditions (1,883/13,818)
Pregnancy and Parenting With Interstitial Cystitis
Topics: 1,212 Posts: 6,832
1,212 6,832
Sub-Forums:
I'm Pregnant! (690/6,374)
Infertility (63/397)
Parenting with IC
When a mother or wife develops IC, it can often impact how she feels about her abilities in those roles. Talk about it here!
Topics: 481 Posts: 4,111
481 4,111
Health Insurance & Disability Benefits
Health Insurance
Is this a can of worms or what?? Ask questions or discuss any issues you might have with your health insurance coverage
Topics: 34 Posts: 139
34 139
Sub-Forums:
Topics: 272 Posts: 1,629
272 1,629
Sub-Forums:
Social Security Disability Q&A
Are you considering applying disability insurance? In the Appeals process? Post your questions here.
Topics: 805 Posts: 5,904
805 5,904
Social Life - Family, Friends, Dating
Topics: 221 Posts: 1,664
221 1,664
Sub-Forums:
Dating with IC (47/359)
Topics: 1,406 Posts: 12,691
1,406 12,691
Sub-Forums:
GREAT DEBATES
What do you think causes Interstitial Cystitis?
While research hasn't found one specific cause of interstitial cystitis, there are several strong opinions out there. What do you think about the cause of IC? Any ideas? Debate them here!
Topics: 401 Posts: 3,879
401 3,879

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