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ICN Announcements
Read the latest announcements about the Interstitial Cystitis Network here. From new site additions to newsletter releases, this is the place to get the latest ICN news!
Topics: 1,844
Posts: 9,039
Last Post:
Are these forums helping you?
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1,844 | 9,039 |
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| Patient Stories | ||||||||||||||||||
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Chronic Infection - Fungal/Bacterial
There is considerable debate and discussion about the role of chronic infection in IC. Whether you are a fan of Dr. Fuzzy or Dr. Malone-Lee, please feel free to share your story here.
Topics: 9
Posts: 106
Last Post:
Could IC be caused by Chronic Infection?
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9 | 106 |
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Elmiron / Eye Discussions
Researchers at the Emory Eye Center have discovered maculopathy in SOME patients with IC who have taken Elmiron for long periods of time. Share your story here.
Topics: 28
Posts: 285
Last Post:
Has anyone's eye damage stopped progressing
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28 | 285 |
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Introduce yourself and share your story
Share Your Interstitial Cystitis Story Here. When did it start for you? How did it begin?? What interstitial cystitis treatments worked for you?
Topics: 6,783
Posts: 46,609
Last Post:
Htcz bladder issues
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6,783 | 46,609 |
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Pain Care Challenges (Share Your Story!)
With pain care now greatly limited, we're collecting stories from patients who are struggling to find pain care and/or who are treated with disrespect. Please tell us your story!
Topics: 56
Posts: 302
Last Post:
Pain meds after neck surgery
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56 | 302 |
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Newly Diagnosed With Interstitial Cystitis
Introduce Yourself and share your interstitial cystitis story here!
Topics: 7,184
Posts: 56,662
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7,184 | 56,662 |
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IC Success Stories
Share your Interstitial Cystitis Success Story Here
Topics: 1,203
Posts: 12,858
Last Post:
Paquenil for IC
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1,203 | 12,858 |
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IC Veterans (5+ years living with IC)
This forum is for patients who have been living with IC for more than five years, who have wisdom to share but who also need support and encouragement
Topics: 38
Posts: 199
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38 | 199 |
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Men with Interstitial Cystitis
Are you a newly diagnosed man? Meet others here!
Topics: 484
Posts: 3,543
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484 | 3,543 |
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My Interstitial Cystitis Is In Remission!
Yes, remission happens and happens often for interstitial cystitis patients. If you're in remission, please share your story and success tips here!
Topics: 419
Posts: 5,035
Last Post:
Gluten is the culprit
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419 | 5,035 |
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| Diagnostic Methods For Interstitial Cystitis | ||||||||||||||||||
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General Diagnostic Questions
Ask questions about the diagnosis of IC, PFD and pelvic pain here!
Topics: 3,169
Posts: 19,099
Last Post:
Prolapse question
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3,169 | 19,099 |
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Not Diagnosed Yet with Interstitial Cystitis?
Do you suspect you have interstitial cystitis but haven't been diagnosed yet? Post here!
Topics: 2,591
Posts: 19,129
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2,591 | 19,129 |
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Topics: 4,135
Posts: 31,715
Last Post:
Protein in urine
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4,135 | 31,715 |
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| Treatment Options | ||||||||||||||||||
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Medical Marijuana and CBD
Share your experience using medical marijuana and/or CBD oil to relieve your symptoms.
Topics: 14
Posts: 160
Last Post:
Travelling with CBD
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14 | 160 |
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Oral Medications
Oral medications are usually the first treatment options suggested for patients with mild to moderate bladder symptoms and/or pain.
Topics: 6,369
Posts: 40,667
Last Post:
Prelief with Supplements/Herbs
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6,369 | 40,667 |
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Bladder Instillation Therapy
Bladder instillations are often performed for mild, moderate and, in some cases, severe IC.
Topics: 2,208
Posts: 16,039
Last Post:
Supply shortages
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2,208 | 16,039 |
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Topics: 1,311
Posts: 9,409
Last Post:
great video I found about PFD and PT
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1,311 | 9,409 |
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Topics: 1,869
Posts: 14,871
Last Post:
Removal of old Interstim leads
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1,869 | 14,871 |
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Surgical Interventions
Surgery is only considered after a patient has tried all of the other traditional therapies and is reserved for the most severe cases.
Topics: 1,089
Posts: 13,395
Last Post:
Facing bladder removal
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1,089 | 13,395 |
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Experimental or Controversial Treatments
Experimental therapies for interstitial cystitis (IC/PBS) are those currently being explored in research studies around the world. Their clinical trial results may not be available or are the result of a smaller, less credible study. We've included antibiotics in this discussion area because the role of bacteria in IC remains controversial at best. We have little conclusive evidence that IC is bacterial in nature.
Topics: 3,457
Posts: 28,339
Last Post:
LDN (low dose Naltrexone)
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3,457 | 28,339 |
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| The IC Diet | ||||||||||||||||||
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General Diet Questions
Ask questions about diet and interstitial cystitis IC/PBS here!
Topics: 6,631
Posts: 46,125
Last Post:
Is Potassium Sorbate Safe For Your Body?
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6,631 | 46,125 |
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IC Diet: Recipes
Share your favorite IC friendly recipes and menu ideas here!
Topics: 1,321
Posts: 3,215
Last Post:
Coffee tips from Cleveland Clinic
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1,321 | 3,215 |
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Topics: 62
Posts: 195
Last Post:
Start with Chicken
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62 | 195 |
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| Self-Help For Interstitial Cystitis | ||||||||||||||||||
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PMS, Perimenopause, Menopause
Are you struggling with hormonal changes?? Are they bothering your bladder?? Need to vent about your body changing?? Do it here!
Topics: 294
Posts: 1,941
Last Post:
Advice needed
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294 | 1,941 |
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Topics: 187
Posts: 1,125
Last Post:
Coping with all that's going on in our world
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187 | 1,125 |
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Depression & Anxiety
Discuss your thoughts and concerns about depression and anxiety here.
Topics: 1,231
Posts: 12,409
Last Post:
Anxiety and flare--ups ruin travel plans
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1,231 | 12,409 |
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Topics: 590
Posts: 4,568
Last Post:
estriol helped with vaginal dryness
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590 | 4,568 |
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Topics: 480
Posts: 3,601
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480 | 3,601 |
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| Managing Interstitial Cystitis Flares | ||||||||||||||||||
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Pain Management For Interstitial Cystitis
Discuss pain management strategies here!
Topics: 2,763
Posts: 23,734
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2,763 | 23,734 |
by ICNDonna
01-08-2022, 05:39 AM
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Help! I'm in an interstitial cystitis flare!
Are you in a flare? Need support? Post here!
Topics: 3,803
Posts: 28,786
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3,803 | 28,786 |
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Flare Coping Strategies For Interstitial Cystitis
Please share your best interstitial cystitis flare coping strategies here! This is NOT to post questions about treatments, therapies or managing flares. We JUST want to hear great techniques for handling flares!
Topics: 648
Posts: 5,750
Last Post:
lower abdominal swelling
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648 | 5,750 |
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| Related Conditions to Interstitial Cystitis | ||||||||||||||||||
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IC & Other Related Conditions
Research has demonstrated a clear connection between IC, IBS, vulvodynia, prostatodynia and other related conditions. Discuss them here!
Topics: 4,428
Posts: 30,991
Last Post:
Eosinophile esophagitis
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4,428 | 30,991 |
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| Pregnancy and Parenting With Interstitial Cystitis | ||||||||||||||||||
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Topics: 1,217
Posts: 6,842
Last Post:
Pregnant and miserable
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1,217 | 6,842 |
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Parenting with IC
When a mother or wife develops IC, it can often impact how she feels about her abilities in those roles. Talk about it here!
Topics: 481
Posts: 4,111
Last Post:
Statistics for our kids getting this?
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481 | 4,111 |
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| Health Insurance & Disability Benefits | ||||||||||||||||||
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Health Insurance
Is this a can of worms or what?? Ask questions or discuss any issues you might have with your health insurance coverage
Topics: 34
Posts: 141
Last Post:
Does MediCal cover Elmiron?
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34 | 141 |
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Topics: 272
Posts: 1,629
Last Post:
This post is for you Donna :-)
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272 | 1,629 |
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Social Security Disability Q&A
Are you considering applying disability insurance? In the Appeals process? Post your questions here.
Topics: 805
Posts: 5,904
Last Post:
Live Disability Application Journey
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805 | 5,904 |
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| Social Life - Family, Friends, Dating | ||||||||||||||||||
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Topics: 223
Posts: 1,669
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223 | 1,669 |
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Topics: 1,408
Posts: 12,693
Last Post:
Wife with severe IC needs Chemotherapy
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1,408 | 12,693 |
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| GREAT DEBATES | ||||||||||||||||||
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What do you think causes Interstitial Cystitis?
While research hasn't found one specific cause of interstitial cystitis, there are several strong opinions out there. What do you think about the cause of IC? Any ideas? Debate them here!
Topics: 402
Posts: 3,885
Last Post:
Tms
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402 | 3,885 | ||||||||||||||||
There are currently 1852 users online. 6 members and 1846 guests.
Most users ever online was 157,401 at 04:30 AM on 12-24-2020.
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Potassium sorbate– sure, potassium sorbate is secure for infant as it’s an organic preservative that comes from extracting the juice from the berry fruit of the mountain ash tree. It's far widely known as an top notch food grade preservative however also works as an antimicrobial factor. Potassium...05-18-2022, 09:53 PM
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It's been over 4 years since I have been able to eat wheat, dairy and sugar. Now that they are back in my diet I would like to be able to stop at some fast food places in my travels again. I use to be able to get a sub made of wheat bread with roast turkey, cuc's, spinach, lettuce, black olives and...05-02-2022, 08:04 AM
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Hi, I love dried fruit and obviously cannot have most of it now. I have noticed that they and a lot of other foods have potassium sorbate as a kind of preservative, like in Mission dried figs. Is this a known IC trigger too? I know "most dried figs" are listed in the problematic column...08-14-2009, 02:04 PM
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Potassium sorbate– sure, potassium sorbate is secure for infant as it’s an organic preservative that comes from extracting the juice from the berry fruit of the mountain ash tree. It's far widely known as an top notch food grade preservative however also works as an antimicrobial factor. Potassium...05-18-2022, 09:53 PM
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If you are finding helpful information on the forums, please post a brief response --- even a simple yes --- or no.
Donna05-08-2022, 07:57 AM -
Hi everyone. I’ve heard a lot about people using Prelief over the years of having IC (although I’ve never personally tried it myself). I don’t find I’m particularly sensitive to foods and stay away from very acid things like alcohol, coffee etc anyways. What I am sensitive to is supplements...05-07-2022, 02:21 PM
