No content found
Please log in to your account to view your subscribed posts.
| Directory | Topics | Posts | Last Post | |||||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
|
ICN Announcements
Read the latest announcements about the Interstitial Cystitis Network here. From new site additions to newsletter releases, this is the place to get the latest ICN news!
Topics: 1,842
Posts: 9,039
|
1,842 | 9,039 |
|
|||||||||||||||
|
Sub-Forums:
| ||||||||||||||||||
| Patient Stories | ||||||||||||||||||
|
Chronic Infection - Fungal/Bacterial
There is considerable debate and discussion about the role of chronic infection in IC. Whether you are a fan of Dr. Fuzzy or Dr. Malone-Lee, please feel free to share your story here.
Topics: 5
Posts: 65
Last Post:
Could IC be caused by Chronic Infection?
|
5 | 65 |
|
|||||||||||||||
|
Elmiron / Eye Discussions
Researchers at the Emory Eye Center have discovered maculopathy in SOME patients with IC who have taken Elmiron for long periods of time. Share your story here.
Topics: 26
Posts: 267
Last Post:
ELMIRON AND beyond
|
26 | 267 |
|
|||||||||||||||
|
Introduce yourself and share your story
Share Your Interstitial Cystitis Story Here. When did it start for you? How did it begin?? What interstitial cystitis treatments worked for you?
Topics: 6,745
Posts: 46,416
Last Post:
IC possibly from medication
|
6,745 | 46,416 |
|
|||||||||||||||
|
Pain Care Challenges (Share Your Story!)
With pain care now greatly limited, we're collecting stories from patients who are struggling to find pain care and/or who are treated with disrespect. Please tell us your story!
Topics: 43
Posts: 236
Last Post:
Has anyone tried Cysta-q?
|
43 | 236 |
|
|||||||||||||||
|
Newly Diagnosed With Interstitial Cystitis
Introduce Yourself and share your interstitial cystitis story here!
Topics: 7,180
Posts: 56,652
Last Post:
Does it make sense to get a Cystoscopy?
|
7,180 | 56,652 |
|
|||||||||||||||
|
IC Success Stories
Share your Interstitial Cystitis Success Story Here
Topics: 1,201
Posts: 12,829
Last Post:
Maderna covid vaccine reactions
|
1,201 | 12,829 |
|
|||||||||||||||
|
IC Veterans (5+ years living with IC)
This forum is for patients who have been living with IC for more than five years, who have wisdom to share but who also need support and encouragement
Topics: 34
Posts: 180
|
34 | 180 |
|
|||||||||||||||
|
Men with Interstitial Cystitis
Are you a newly diagnosed man? Meet others here!
Topics: 480
Posts: 3,519
Last Post:
Ejaculation = flare
|
480 | 3,519 |
|
|||||||||||||||
|
My Interstitial Cystitis Is In Remission!
Yes, remission happens and happens often for interstitial cystitis patients. If you're in remission, please share your story and success tips here!
Topics: 418
Posts: 5,029
Last Post:
On the healing path and some poetry
|
418 | 5,029 |
|
|||||||||||||||
| Diagnostic Methods For Interstitial Cystitis | ||||||||||||||||||
|
General Diagnostic Questions
Ask questions about the diagnosis of IC, PFD and pelvic pain here!
Topics: 3,160
Posts: 19,096
Last Post:
diagnosis of Ehlers Danlos
|
3,160 | 19,096 |
|
|||||||||||||||
|
Sub-Forums:
| ||||||||||||||||||
|
Not Diagnosed Yet with Interstitial Cystitis?
Do you suspect you have interstitial cystitis but haven't been diagnosed yet? Post here!
Topics: 2,587
Posts: 19,014
|
2,587 | 19,014 |
|
|||||||||||||||
|
Topics: 4,121
Posts: 31,657
|
4,121 | 31,657 |
by ICGamer
Yesterday, 11:56 PM
|
|||||||||||||||
| Treatment Options | ||||||||||||||||||
|
Medical Marijuana and CBD
Share your experience using medical marijuana and/or CBD oil to relieve your symptoms.
Topics: 14
Posts: 160
Last Post:
Travelling with CBD
|
14 | 160 |
|
|||||||||||||||
|
Oral Medications
Oral medications are usually the first treatment options suggested for patients with mild to moderate bladder symptoms and/or pain.
Topics: 6,354
Posts: 40,628
Last Post:
Birth control question
|
6,354 | 40,628 |
|
|||||||||||||||
|
Sub-Forums:
| ||||||||||||||||||
|
Bladder Instillation Therapy
Bladder instillations are often performed for mild, moderate and, in some cases, severe IC.
Topics: 2,200
Posts: 16,032
Last Post:
Bladder cocktails for urethral pain?
|
2,200 | 16,032 |
|
|||||||||||||||
|
Sub-Forums:
| ||||||||||||||||||
|
Topics: 1,309
Posts: 9,403
Last Post:
Vaginal Trigger point injections
|
1,309 | 9,403 |
|
|||||||||||||||
|
Topics: 1,868
Posts: 14,871
Last Post:
Electrical Stimulation
|
1,868 | 14,871 |
|
|||||||||||||||
|
Sub-Forums:
| ||||||||||||||||||
|
Surgical Interventions
Surgery is only considered after a patient has tried all of the other traditional therapies and is reserved for the most severe cases.
Topics: 1,089
Posts: 13,386
|
1,089 | 13,386 |
|
|||||||||||||||
|
Sub-Forums:
| ||||||||||||||||||
|
Experimental or Controversial Treatments
Experimental therapies for interstitial cystitis (IC/PBS) are those currently being explored in research studies around the world. Their clinical trial results may not be available or are the result of a smaller, less credible study. We've included antibiotics in this discussion area because the role of bacteria in IC remains controversial at best. We have little conclusive evidence that IC is bacterial in nature.
Topics: 3,455
Posts: 28,333
|
3,455 | 28,333 |
|
|||||||||||||||
|
Sub-Forums:
| ||||||||||||||||||
| The IC Diet | ||||||||||||||||||
|
General Diet Questions
Ask questions about diet and interstitial cystitis IC/PBS here!
Topics: 6,624
Posts: 46,087
Last Post:
protein bars
|
6,624 | 46,087 |
|
|||||||||||||||
|
Sub-Forums:
| ||||||||||||||||||
|
IC Diet: Recipes
Share your favorite IC friendly recipes and menu ideas here!
Topics: 1,315
Posts: 3,204
|
1,315 | 3,204 |
|
|||||||||||||||
|
Sub-Forums:
| ||||||||||||||||||
|
Topics: 62
Posts: 193
Last Post:
Veggie Smoothies
|
62 | 193 |
|
|||||||||||||||
|
Sub-Forums:
| ||||||||||||||||||
| Self-Help For Interstitial Cystitis | ||||||||||||||||||
|
PMS, Perimenopause, Menopause
Are you struggling with hormonal changes?? Are they bothering your bladder?? Need to vent about your body changing?? Do it here!
Topics: 292
Posts: 1,937
Last Post:
second part of the month flare: help!!!!
|
292 | 1,937 |
|
|||||||||||||||
|
Topics: 187
Posts: 1,125
Last Post:
Coping with all that's going on in our world
|
187 | 1,125 |
|
|||||||||||||||
|
Depression & Anxiety
Discuss your thoughts and concerns about depression and anxiety here.
Topics: 1,229
Posts: 12,404
Last Post:
Lexapro and other SSRI Effects?
|
1,229 | 12,404 |
|
|||||||||||||||
|
Topics: 587
Posts: 4,560
Last Post:
Relentless pain from Estriol cream
|
587 | 4,560 |
|
|||||||||||||||
|
Topics: 478
Posts: 3,592
Last Post:
Swimming
|
478 | 3,592 | ||||||||||||||||
| Managing Interstitial Cystitis Flares | ||||||||||||||||||
|
Pain Management For Interstitial Cystitis
Discuss pain management strategies here!
Topics: 2,760
Posts: 23,722
|
2,760 | 23,722 |
by FanneRobby
12-24-2020, 03:02 AM
|
|||||||||||||||
|
Help! I'm in an interstitial cystitis flare!
Are you in a flare? Need support? Post here!
Topics: 3,793
Posts: 28,744
Last Post:
Flair mistaken for UTI after long remission
|
3,793 | 28,744 |
|
|||||||||||||||
|
Flare Coping Strategies For Interstitial Cystitis
Please share your best interstitial cystitis flare coping strategies here! This is NOT to post questions about treatments, therapies or managing flares. We JUST want to hear great techniques for handling flares!
Topics: 647
Posts: 5,725
Last Post:
distension and biopsy? necessary?
|
647 | 5,725 |
|
|||||||||||||||
| Related Conditions to Interstitial Cystitis | ||||||||||||||||||
|
IC & Other Related Conditions
Research has demonstrated a clear connection between IC, IBS, vulvodynia, prostatodynia and other related conditions. Discuss them here!
Topics: 4,419
Posts: 30,961
Last Post:
TMJ/TMD and IC?
|
4,419 | 30,961 |
|
|||||||||||||||
|
Sub-Forums:
| ||||||||||||||||||
| Pregnancy and Parenting With Interstitial Cystitis | ||||||||||||||||||
|
Topics: 1,214
Posts: 6,836
Last Post:
Labour or c section
|
1,214 | 6,836 |
|
|||||||||||||||
|
Sub-Forums:
| ||||||||||||||||||
|
Parenting with IC
When a mother or wife develops IC, it can often impact how she feels about her abilities in those roles. Talk about it here!
Topics: 481
Posts: 4,111
Last Post:
Statistics for our kids getting this?
|
481 | 4,111 |
|
|||||||||||||||
| Health Insurance & Disability Benefits | ||||||||||||||||||
|
Health Insurance
Is this a can of worms or what?? Ask questions or discuss any issues you might have with your health insurance coverage
Topics: 34
Posts: 141
Last Post:
Does MediCal cover Elmiron?
|
34 | 141 |
|
|||||||||||||||
|
Sub-Forums:
| ||||||||||||||||||
|
Topics: 272
Posts: 1,629
Last Post:
This post is for you Donna :-)
|
272 | 1,629 |
|
|||||||||||||||
|
Sub-Forums:
| ||||||||||||||||||
|
Social Security Disability Q&A
Are you considering applying disability insurance? In the Appeals process? Post your questions here.
Topics: 805
Posts: 5,904
Last Post:
Live Disability Application Journey
|
805 | 5,904 |
|
|||||||||||||||
| Social Life - Family, Friends, Dating | ||||||||||||||||||
|
Topics: 222
Posts: 1,667
Last Post:
Relationship probably not going to last
|
222 | 1,667 |
|
|||||||||||||||
|
Sub-Forums:
| ||||||||||||||||||
|
Topics: 1,406
Posts: 12,691
|
1,406 | 12,691 |
|
|||||||||||||||
|
Sub-Forums:
| ||||||||||||||||||
| GREAT DEBATES | ||||||||||||||||||
|
What do you think causes Interstitial Cystitis?
While research hasn't found one specific cause of interstitial cystitis, there are several strong opinions out there. What do you think about the cause of IC? Any ideas? Debate them here!
Topics: 401
Posts: 3,884
Last Post:
Accutane
|
401 | 3,884 | ||||||||||||||||
There are currently 2163 users online. 10 members and 2153 guests.
Most users ever online was 157,401 at 05:30 AM on 12-24-2020.
-
I wanted to ask today if anyone had any tips for discerning between a UTI and an Interstital Cystitis flair up? I went into remission, forgot I had the condition then had a very painful flair which I ended up paying quite a bit for a UTI test and new doctors visit. Does anyone have any tips for discerning...Yesterday, 11:56 PM
-
Wasn't sure where else to put this, so sorry if it is in the wrong category. For some reason my clothes seem to be rubbing me wrong lately, and making my Interstitial Cystitis worse or causing discomfort. What type of pants are suggested/recommended for Interstitial Cystitis ? If I remember correctly,...Yesterday, 11:53 PM
-
I am a man in my mid forties. For the past three weeks I have been feeling a persistent urge to urinate that doesn't go away after urination. There is no pain or blood. I've had an ultrasound of my bladder and prostate. It found that the prostate's "central zone is slightly prominent in size, and...01-18-2021, 12:41 PM
-
I get bad flares that begin soon after I ejaculate. I am single, but I have a strong libido.
Are there others who have this cause of flares? Are there any libido-reducing drugs that I should be aware of? Any tips?Yesterday, 09:30 PM -
I took Elmiron for over 20 ;years. I have terrible eye sight. I have macular degeneration along with blurred vision, can't read without glasses. Can not see anything up close without glasses. Have real problems with low lights. I have glasses for long distance. My eyes are really bad and it...Yesterday, 01:34 PM
-
I wanted to ask today if anyone had any tips for discerning between a UTI and an Interstital Cystitis flair up? I went into remission, forgot I had the condition then had a very painful flair which I ended up paying quite a bit for a UTI test and new doctors visit. Does anyone have any tips for discerning...Yesterday, 11:56 PM
-
Wasn't sure where else to put this, so sorry if it is in the wrong category. For some reason my clothes seem to be rubbing me wrong lately, and making my Interstitial Cystitis worse or causing discomfort. What type of pants are suggested/recommended for Interstitial Cystitis ? If I remember correctly,...Yesterday, 11:53 PM
-
I get bad flares that begin soon after I ejaculate. I am single, but I have a strong libido.
Are there others who have this cause of flares? Are there any libido-reducing drugs that I should be aware of? Any tips?Yesterday, 09:30 PM
