A pelvic floor physical therapist told me that my symptom (urgency) might have been caused by Finasteride. She said that she noticed that a number of her male patients took it before developing Painful Bladder Syndrome.
I have been taking Finasteride for about 14 years. Is there anyone...
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ICN Announcements
Read the latest announcements about the Interstitial Cystitis Network here. From new site additions to newsletter releases, this is the place to get the latest ICN news!
Topics: 1,842
Posts: 9,039
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1,842 | 9,039 |
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| Patient Stories | ||||||||||||||||||
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Chronic Infection - Fungal/Bacterial
There is considerable debate and discussion about the role of chronic infection in IC. Whether you are a fan of Dr. Fuzzy or Dr. Malone-Lee, please feel free to share your story here.
Topics: 8
Posts: 82
Last Post:
4 UTIs since end of May 2020
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8 | 82 |
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Elmiron / Eye Discussions
Researchers at the Emory Eye Center have discovered maculopathy in SOME patients with IC who have taken Elmiron for long periods of time. Share your story here.
Topics: 27
Posts: 275
Last Post:
Elmiron and maculopathy
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27 | 275 |
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Introduce yourself and share your story
Share Your Interstitial Cystitis Story Here. When did it start for you? How did it begin?? What interstitial cystitis treatments worked for you?
Topics: 6,762
Posts: 46,482
Last Post:
Covid vaccine flare
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Pain Care Challenges (Share Your Story!)
With pain care now greatly limited, we're collecting stories from patients who are struggling to find pain care and/or who are treated with disrespect. Please tell us your story!
Topics: 47
Posts: 264
Last Post:
Pain after PT
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47 | 264 |
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Newly Diagnosed With Interstitial Cystitis
Introduce Yourself and share your interstitial cystitis story here!
Topics: 7,181
Posts: 56,654
Last Post:
IC and urinary retention
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7,181 | 56,654 |
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IC Success Stories
Share your Interstitial Cystitis Success Story Here
Topics: 1,202
Posts: 12,840
Last Post:
Freedom from frequency and urgency!!!
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1,202 | 12,840 |
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IC Veterans (5+ years living with IC)
This forum is for patients who have been living with IC for more than five years, who have wisdom to share but who also need support and encouragement
Topics: 36
Posts: 189
Last Post:
IC, stress incontinence, and cystocele
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36 | 189 |
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Men with Interstitial Cystitis
Are you a newly diagnosed man? Meet others here!
Topics: 481
Posts: 3,533
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481 | 3,533 |
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My Interstitial Cystitis Is In Remission!
Yes, remission happens and happens often for interstitial cystitis patients. If you're in remission, please share your story and success tips here!
Topics: 418
Posts: 5,030
Last Post:
Hiprex sucesssful results - pain gone!
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418 | 5,030 |
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| Diagnostic Methods For Interstitial Cystitis | ||||||||||||||||||
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General Diagnostic Questions
Ask questions about the diagnosis of IC, PFD and pelvic pain here!
Topics: 3,162
Posts: 19,098
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Not Diagnosed Yet with Interstitial Cystitis?
Do you suspect you have interstitial cystitis but haven't been diagnosed yet? Post here!
Topics: 2,588
Posts: 19,122
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2,588 | 19,122 |
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Topics: 4,127
Posts: 31,683
Last Post:
New and aggravating urethral pain
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| Treatment Options | ||||||||||||||||||
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Medical Marijuana and CBD
Share your experience using medical marijuana and/or CBD oil to relieve your symptoms.
Topics: 14
Posts: 160
Last Post:
Travelling with CBD
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Oral Medications
Oral medications are usually the first treatment options suggested for patients with mild to moderate bladder symptoms and/or pain.
Topics: 6,356
Posts: 40,641
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6,356 | 40,641 |
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Bladder Instillation Therapy
Bladder instillations are often performed for mild, moderate and, in some cases, severe IC.
Topics: 2,201
Posts: 16,032
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Topics: 1,311
Posts: 9,408
Last Post:
Another helpful video with exercises for pfd
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1,311 | 9,408 |
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Topics: 1,868
Posts: 14,871
Last Post:
Electrical Stimulation
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1,868 | 14,871 |
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Surgical Interventions
Surgery is only considered after a patient has tried all of the other traditional therapies and is reserved for the most severe cases.
Topics: 1,089
Posts: 13,390
Last Post:
Facing bladder removal
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1,089 | 13,390 |
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Experimental or Controversial Treatments
Experimental therapies for interstitial cystitis (IC/PBS) are those currently being explored in research studies around the world. Their clinical trial results may not be available or are the result of a smaller, less credible study. We've included antibiotics in this discussion area because the role of bacteria in IC remains controversial at best. We have little conclusive evidence that IC is bacterial in nature.
Topics: 3,455
Posts: 28,333
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| The IC Diet | ||||||||||||||||||
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General Diet Questions
Ask questions about diet and interstitial cystitis IC/PBS here!
Topics: 6,625
Posts: 46,098
Last Post:
Zinc
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6,625 | 46,098 |
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IC Diet: Recipes
Share your favorite IC friendly recipes and menu ideas here!
Topics: 1,318
Posts: 3,208
Last Post:
Bladder safe chicken stock/broth
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Topics: 62
Posts: 195
Last Post:
Start with Chicken
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| Self-Help For Interstitial Cystitis | ||||||||||||||||||
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PMS, Perimenopause, Menopause
Are you struggling with hormonal changes?? Are they bothering your bladder?? Need to vent about your body changing?? Do it here!
Topics: 292
Posts: 1,937
Last Post:
second part of the month flare: help!!!!
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292 | 1,937 |
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Topics: 187
Posts: 1,125
Last Post:
Coping with all that's going on in our world
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187 | 1,125 |
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Depression & Anxiety
Discuss your thoughts and concerns about depression and anxiety here.
Topics: 1,229
Posts: 12,404
Last Post:
Lexapro and other SSRI Effects?
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Topics: 588
Posts: 4,564
Last Post:
Topical Cream for urethral burning
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588 | 4,564 |
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Topics: 479
Posts: 3,595
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479 | 3,595 |
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| Managing Interstitial Cystitis Flares | ||||||||||||||||||
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Pain Management For Interstitial Cystitis
Discuss pain management strategies here!
Topics: 2,760
Posts: 23,722
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2,760 | 23,722 |
by FanneRobby
12-24-2020, 02:02 AM
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Help! I'm in an interstitial cystitis flare!
Are you in a flare? Need support? Post here!
Topics: 3,794
Posts: 28,748
Last Post:
Luvena
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3,794 | 28,748 |
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Flare Coping Strategies For Interstitial Cystitis
Please share your best interstitial cystitis flare coping strategies here! This is NOT to post questions about treatments, therapies or managing flares. We JUST want to hear great techniques for handling flares!
Topics: 648
Posts: 5,747
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648 | 5,747 |
by BillB
02-03-2021, 04:14 PM
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| Related Conditions to Interstitial Cystitis | ||||||||||||||||||
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IC & Other Related Conditions
Research has demonstrated a clear connection between IC, IBS, vulvodynia, prostatodynia and other related conditions. Discuss them here!
Topics: 4,420
Posts: 30,971
Last Post:
Urethral Syndrome-Getting started on help
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4,420 | 30,971 |
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| Pregnancy and Parenting With Interstitial Cystitis | ||||||||||||||||||
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Topics: 1,214
Posts: 6,836
Last Post:
Labour or c section
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1,214 | 6,836 |
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Parenting with IC
When a mother or wife develops IC, it can often impact how she feels about her abilities in those roles. Talk about it here!
Topics: 481
Posts: 4,111
Last Post:
Statistics for our kids getting this?
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481 | 4,111 |
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| Health Insurance & Disability Benefits | ||||||||||||||||||
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Health Insurance
Is this a can of worms or what?? Ask questions or discuss any issues you might have with your health insurance coverage
Topics: 34
Posts: 141
Last Post:
Does MediCal cover Elmiron?
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34 | 141 |
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Topics: 272
Posts: 1,629
Last Post:
This post is for you Donna :-)
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Social Security Disability Q&A
Are you considering applying disability insurance? In the Appeals process? Post your questions here.
Topics: 805
Posts: 5,904
Last Post:
Live Disability Application Journey
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805 | 5,904 |
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Topics: 222
Posts: 1,667
Last Post:
Relationship probably not going to last
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222 | 1,667 |
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Topics: 1,407
Posts: 12,693
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| GREAT DEBATES | ||||||||||||||||||
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What do you think causes Interstitial Cystitis?
While research hasn't found one specific cause of interstitial cystitis, there are several strong opinions out there. What do you think about the cause of IC? Any ideas? Debate them here!
Topics: 401
Posts: 3,884
Last Post:
Accutane
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Most users ever online was 157,401 at 04:30 AM on 12-24-2020.
-
Yesterday, 02:13 PM
-
Yesterday I drove over three hours to see a physical therapist. After my appointment, I went for a hike. I ascended about 2000 feet/600 meters in 1.5 miles/2.5 km in 2 hours and 15 minutes. I am now experiencing a serious flare.
Another possible cause of this flare is the fact that I spent...Yesterday, 08:17 AM -
I took a total of 4 AZO tablets, and it made no difference to my urgency. Azo is supposed to numb the bladder. If my bladder is numb and I still experience urgency, does it make sense that my problem has to do with the muscles near my bladder, and not the bladder itself?Yesterday, 08:10 AM
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Hello Everyone,
I am very new to IC (have not been diagnosed yet) but was wonder if anyone in here has also urinary retention? I do not have the urgency - my symptom seems to be the opposite - I have trouble peeing. I don't feel very often I have to pee, and when I go hardly anything...04-08-2021, 03:35 AM
-
A pelvic floor physical therapist told me that my symptom (urgency) might have been caused by Finasteride. She said that she noticed that a number of her male patients took it before developing Painful Bladder Syndrome.
I have been taking Finasteride for about 14 years. Is there anyone...Yesterday, 02:13 PM -
Yesterday I drove over three hours to see a physical therapist. After my appointment, I went for a hike. I ascended about 2000 feet/600 meters in 1.5 miles/2.5 km in 2 hours and 15 minutes. I am now experiencing a serious flare.
Another possible cause of this flare is the fact that I spent...Yesterday, 08:17 AM -
I took a total of 4 AZO tablets, and it made no difference to my urgency. Azo is supposed to numb the bladder. If my bladder is numb and I still experience urgency, does it make sense that my problem has to do with the muscles near my bladder, and not the bladder itself?Yesterday, 08:10 AM
