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Directory Topics Posts Last Post
ICN Announcements
Read the latest announcements about the Interstitial Cystitis Network here. From new site additions to newsletter releases, this is the place to get the latest ICN news!
Topics: 1,842 Posts: 9,039
1,842 9,039
Sub-Forums:
Jill's Journal (324/4,157)
Patient Stories
Chronic Infection - Fungal/Bacterial
There is considerable debate and discussion about the role of chronic infection in IC. Whether you are a fan of Dr. Fuzzy or Dr. Malone-Lee, please feel free to share your story here.
Topics: 5 Posts: 65
5 65
Elmiron / Eye Discussions
Researchers at the Emory Eye Center have discovered maculopathy in SOME patients with IC who have taken Elmiron for long periods of time. Share your story here.
Topics: 26 Posts: 267
Last Post: ELMIRON AND beyond
26 267
bigred
by bigred
Introduce yourself and share your story
Share Your Interstitial Cystitis Story Here. When did it start for you? How did it begin?? What interstitial cystitis treatments worked for you?
Topics: 6,745 Posts: 46,416
6,745 46,416
ICNDonna
Pain Care Challenges (Share Your Story!)
With pain care now greatly limited, we're collecting stories from patients who are struggling to find pain care and/or who are treated with disrespect. Please tell us your story!
Topics: 43 Posts: 236
43 236
laura_ess
Newly Diagnosed With Interstitial Cystitis
Introduce Yourself and share your interstitial cystitis story here!
Topics: 7,180 Posts: 56,652
7,180 56,652
IC Success Stories
Share your Interstitial Cystitis Success Story Here
Topics: 1,201 Posts: 12,829
1,201 12,829
IC Veterans (5+ years living with IC)
This forum is for patients who have been living with IC for more than five years, who have wisdom to share but who also need support and encouragement
Topics: 34 Posts: 180
34 180
Men with Interstitial Cystitis
Are you a newly diagnosed man? Meet others here!
Topics: 480 Posts: 3,519
Last Post: Ejaculation = flare
480 3,519
BillB
by BillB
My Interstitial Cystitis Is In Remission!
Yes, remission happens and happens often for interstitial cystitis patients. If you're in remission, please share your story and success tips here!
Topics: 418 Posts: 5,029
418 5,029
Diagnostic Methods For Interstitial Cystitis
General Diagnostic Questions
Ask questions about the diagnosis of IC, PFD and pelvic pain here!
Topics: 3,160 Posts: 19,096
3,160 19,096
Sub-Forums:
Not Diagnosed Yet with Interstitial Cystitis?
Do you suspect you have interstitial cystitis but haven't been diagnosed yet? Post here!
Topics: 2,587 Posts: 19,014
2,587 19,014
Topics: 4,121 Posts: 31,657
4,121 31,657
Treatment Options
Medical Marijuana and CBD
Share your experience using medical marijuana and/or CBD oil to relieve your symptoms.
Topics: 14 Posts: 160
Last Post: Travelling with CBD
14 160
MoralPhoebe
Oral Medications
Oral medications are usually the first treatment options suggested for patients with mild to moderate bladder symptoms and/or pain.
Topics: 6,354 Posts: 40,628
6,354 40,628
ICNDonna
Sub-Forums:
Bladder Instillation Therapy
Bladder instillations are often performed for mild, moderate and, in some cases, severe IC.
Topics: 2,200 Posts: 16,032
2,200 16,032
Sub-Forums:
Topics: 1,309 Posts: 9,403
1,309 9,403
Topics: 1,868 Posts: 14,871
1,868 14,871
Ellesha Park
Sub-Forums:
T.E.N.S Therapy (224/1,382)
Nerve Blocks (103/629)
Surgical Interventions
Surgery is only considered after a patient has tried all of the other traditional therapies and is reserved for the most severe cases.
Topics: 1,089 Posts: 13,386
1,089 13,386
Sub-Forums:
Bladder Removal (623/8,622)
Nerve Ablation (24/258)
Experimental or Controversial Treatments
Experimental therapies for interstitial cystitis (IC/PBS) are those currently being explored in research studies around the world. Their clinical trial results may not be available or are the result of a smaller, less credible study. We've included antibiotics in this discussion area because the role of bacteria in IC remains controversial at best. We have little conclusive evidence that IC is bacterial in nature.
Topics: 3,455 Posts: 28,333
3,455 28,333
Sub-Forums:
Alternative Therapies (1,443/10,591)
Cyclosporine (60/919)
Botox (298/2,570)
Other Treatments (956/6,415)
The IC Diet
General Diet Questions
Ask questions about diet and interstitial cystitis IC/PBS here!
Topics: 6,624 Posts: 46,087
Last Post: protein bars
6,624 46,087
ICNDonna
Sub-Forums:
IC Diet: Recipes
Share your favorite IC friendly recipes and menu ideas here!
Topics: 1,315 Posts: 3,204
1,315 3,204
Sub-Forums:
Main Dishes (149/492)
Casseroles (12/51)
Salads and Soups (80/212)
Desserts (152/394)
Hot Drinks (83/407)
Cold Drinks (81/286)
Cookies & Candy (50/190)
Cocktails (3/27)
Topics: 62 Posts: 193
Last Post: Veggie Smoothies
62 193
Cal-m
by Cal-m
Sub-Forums:
Breakfast (7/32)
Dinner (4/13)
Lunch (4/28)
Holidays (12/91)
Self-Help For Interstitial Cystitis
PMS, Perimenopause, Menopause
Are you struggling with hormonal changes?? Are they bothering your bladder?? Need to vent about your body changing?? Do it here!
Topics: 292 Posts: 1,937
292 1,937
Topics: 187 Posts: 1,125
187 1,125
Depression & Anxiety
Discuss your thoughts and concerns about depression and anxiety here.
Topics: 1,229 Posts: 12,404
1,229 12,404
Topics: 587 Posts: 4,560
587 4,560
Topics: 478 Posts: 3,592
Last Post: Swimming
478 3,592
ICNDonna
Managing Interstitial Cystitis Flares
Pain Management For Interstitial Cystitis
Discuss pain management strategies here!
Topics: 2,760 Posts: 23,722
2,760 23,722
Help! I'm in an interstitial cystitis flare!
Are you in a flare? Need support? Post here!
Topics: 3,793 Posts: 28,744
3,793 28,744
Flare Coping Strategies For Interstitial Cystitis
Please share your best interstitial cystitis flare coping strategies here! This is NOT to post questions about treatments, therapies or managing flares. We JUST want to hear great techniques for handling flares!
Topics: 647 Posts: 5,725
647 5,725
Related Conditions to Interstitial Cystitis
IC & Other Related Conditions
Research has demonstrated a clear connection between IC, IBS, vulvodynia, prostatodynia and other related conditions. Discuss them here!
Topics: 4,419 Posts: 30,961
Last Post: TMJ/TMD and IC?
4,419 30,961
ICNDonna
Sub-Forums:
Fibromyalgia (92/604)
Vulvodynia (942/6,885)
Dry Eyes/Dry Mouth (141/906)
Fungal Infections (339/2,762)
Other Related Conditions (1,884/13,821)
Pregnancy and Parenting With Interstitial Cystitis
Topics: 1,214 Posts: 6,836
Last Post: Labour or c section
1,214 6,836
ICNDonna
Sub-Forums:
I'm Pregnant! (692/6,378)
Infertility (63/397)
Parenting with IC
When a mother or wife develops IC, it can often impact how she feels about her abilities in those roles. Talk about it here!
Topics: 481 Posts: 4,111
481 4,111
Health Insurance & Disability Benefits
Health Insurance
Is this a can of worms or what?? Ask questions or discuss any issues you might have with your health insurance coverage
Topics: 34 Posts: 141
34 141
Pillowfight
Sub-Forums:
Topics: 272 Posts: 1,629
272 1,629
Sub-Forums:
Social Security Disability Q&A
Are you considering applying disability insurance? In the Appeals process? Post your questions here.
Topics: 805 Posts: 5,904
805 5,904
Social Life - Family, Friends, Dating
Topics: 222 Posts: 1,667
222 1,667
Sub-Forums:
Dating with IC (48/361)
Topics: 1,406 Posts: 12,691
1,406 12,691
Sub-Forums:
GREAT DEBATES
What do you think causes Interstitial Cystitis?
While research hasn't found one specific cause of interstitial cystitis, there are several strong opinions out there. What do you think about the cause of IC? Any ideas? Debate them here!
Topics: 401 Posts: 3,884
Last Post: Accutane
401 3,884
ICNDonna

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Most users ever online was 157,401 at 05:30 AM on 12-24-2020.

IC Patient Support Forum - Interstitial Cystitis, Bladder & Pelvic Pain Statistics

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Topics: 82,854   Posts: 625,883   Members: 51,537   Active Members: 71
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  • ICGamer
    Discerning between UTI and IC, also question about IC and bladder health
    by ICGamer
    I wanted to ask today if anyone had any tips for discerning between a UTI and an Interstital Cystitis flair up? I went into remission, forgot I had the condition then had a very painful flair which I ended up paying quite a bit for a UTI test and new doctors visit. Does anyone have any tips for discerning...
    Yesterday, 11:56 PM
  • ICGamer
    Clothing options for IC ?
    by ICGamer
    Wasn't sure where else to put this, so sorry if it is in the wrong category. For some reason my clothes seem to be rubbing me wrong lately, and making my Interstitial Cystitis worse or causing discomfort. What type of pants are suggested/recommended for Interstitial Cystitis ? If I remember correctly,...
    Yesterday, 11:53 PM
  • BillB
    I would be thankful for any advice you might have for me.
    by BillB
    I am a man in my mid forties. For the past three weeks I have been feeling a persistent urge to urinate that doesn't go away after urination. There is no pain or blood. I've had an ultrasound of my bladder and prostate. It found that the prostate's "central zone is slightly prominent in size, and...
    01-18-2021, 12:41 PM
  • BillB
    Ejaculation = flare
    by BillB
    I get bad flares that begin soon after I ejaculate. I am single, but I have a strong libido.

    Are there others who have this cause of flares? Are there any libido-reducing drugs that I should be aware of? Any tips?
    Yesterday, 09:30 PM
  • bigred
    ELMIRON AND beyond
    by bigred
    I took Elmiron for over 20 ;years. I have terrible eye sight. I have macular degeneration along with blurred vision, can't read without glasses. Can not see anything up close without glasses. Have real problems with low lights. I have glasses for long distance. My eyes are really bad and it...
    Yesterday, 01:34 PM

Latest Topics

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  • ICGamer
    Discerning between UTI and IC, also question about IC and bladder health
    by ICGamer
    I wanted to ask today if anyone had any tips for discerning between a UTI and an Interstital Cystitis flair up? I went into remission, forgot I had the condition then had a very painful flair which I ended up paying quite a bit for a UTI test and new doctors visit. Does anyone have any tips for discerning...
    Yesterday, 11:56 PM
  • ICGamer
    Clothing options for IC ?
    by ICGamer
    Wasn't sure where else to put this, so sorry if it is in the wrong category. For some reason my clothes seem to be rubbing me wrong lately, and making my Interstitial Cystitis worse or causing discomfort. What type of pants are suggested/recommended for Interstitial Cystitis ? If I remember correctly,...
    Yesterday, 11:53 PM
  • BillB
    Ejaculation = flare
    by BillB
    I get bad flares that begin soon after I ejaculate. I am single, but I have a strong libido.

    Are there others who have this cause of flares? Are there any libido-reducing drugs that I should be aware of? Any tips?
    Yesterday, 09:30 PM
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