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Directory Topics Posts Last Post
Read the latest announcements about the Interstitial Cystitis Network here. From new site additions to newsletter releases, this is the place to get the latest ICN news!
Topics: 1,833 Posts: 9,047
1,833 9,047
Sub-Forums:
Jill's Journal (324/4,170)
Dec 2018 - Please share any problems or bugs you've encountered while trying to use this new, updated software!
Topics: 4 Posts: 9
4 9
Patient Stories
Researchers at the Emory Eye Center have discovered maculopathy in SOME patients with IC who have taken Elmiron for long periods of time. Share your story here.
Topics: 8 Posts: 104
8 104
Share Your Interstitial Cystitis Story Here. When did it start for you? How did it begin?? What interstitial cystitis treatments worked for you?
Topics: 6,678 Posts: 46,093
6,678 46,093
With pain care now greatly limited, we're collecting stories from patients who are struggling to find pain care and/or who are treated with disrespect. Please tell us your story!
Topics: 30 Posts: 143
30 143
Introduce Yourself and share your interstitial cystitis story here!
Topics: 7,174 Posts: 56,696
7,174 56,696
Share your Interstitial Cystitis Success Story Here
Topics: 1,183 Posts: 12,736
1,183 12,736
This forum is for patients who have been living with IC for more than five years, who have wisdom to share but who also need support and encouragement
Topics: 25 Posts: 120
25 120
Are you a newly diagnosed man? Meet others here!
Topics: 469 Posts: 3,469
469 3,469
Yes, remission happens and happens often for interstitial cystitis patients. If you're in remission, please share your story and success tips here!
Topics: 415 Posts: 5,021
415 5,021
Diagnostic Methods For Interstitial Cystitis
Ask questions about the diagnosis of IC, PFD and pelvic pain here!
Topics: 3,143 Posts: 19,116
3,143 19,116
Sub-Forums:
Do you suspect you have interstitial cystitis but haven't been diagnosed yet? Post here!
Topics: 2,572 Posts: 18,956
2,572 18,956
Topics: 4,105 Posts: 31,661
4,105 31,661
Treatment Options
Share your experience using medical marijuana and/or CBD oil to relieve your symptoms.
Topics: 12 Posts: 146
12 146
Oral medications are usually the first treatment options suggested for patients with mild to moderate bladder symptoms and/or pain.
Topics: 6,312 Posts: 40,559
6,312 40,559
Sub-Forums:
Bladder instillations are often performed for mild, moderate and, in some cases, severe IC.
Topics: 2,188 Posts: 16,008
2,188 16,008
Sub-Forums:
Topics: 1,303 Posts: 9,404
1,303 9,404
Topics: 1,864 Posts: 14,865
1,864 14,865
Sub-Forums:
T.E.N.S Therapy (224/1,382)
Nerve Blocks (103/629)
Surgery is only considered after a patient has tried all of the other traditional therapies and is reserved for the most severe cases.
Topics: 1,087 Posts: 13,365
1,087 13,365
Sub-Forums:
Bladder Removal (622/8,607)
Nerve Ablation (24/258)
Experimental therapies for interstitial cystitis (IC/PBS) are those currently being explored in research studies around the world. Their clinical trial results may not be available or are the result of a smaller, less credible study. We've included antibiotics in this discussion area because the role of bacteria in IC remains controversial at best. We have little conclusive evidence that IC is bacterial in nature.
Topics: 3,446 Posts: 28,317
3,446 28,317
Sub-Forums:
Alternative Therapies (1,441/10,595)
Cyclosporine (59/917)
Botox (296/2,554)
Other Treatments (954/6,418)
The IC Diet
Ask questions about diet and interstitial cystitis IC/PBS here!
Topics: 6,595 Posts: 46,111
6,595 46,111
Sub-Forums:
Share your favorite IC friendly recipes and menu ideas here!
Topics: 1,298 Posts: 3,172
1,298 3,172
Sub-Forums:
Main Dishes (149/494)
Casseroles (12/51)
Salads and Soups (79/210)
Desserts (152/394)
Hot Drinks (83/406)
Cold Drinks (65/265)
Cookies & Candy (50/190)
Cocktails (3/27)
Topics: 61 Posts: 188
61 188
Sub-Forums:
Breakfast (6/27)
Dinner (4/13)
Lunch (4/28)
Holidays (12/91)
Self-Help For Interstitial Cystitis
Are you struggling with hormonal changes?? Are they bothering your bladder?? Need to vent about your body changing?? Do it here!
Topics: 286 Posts: 1,889
286 1,889
Topics: 185 Posts: 1,119
185 1,119
Discuss your thoughts and concerns about depression and anxiety here.
Topics: 1,224 Posts: 12,383
1,224 12,383
Topics: 580 Posts: 4,532
580 4,532
Topics: 475 Posts: 3,596
475 3,596
Managing Interstitial Cystitis Flares
Discuss pain management strategies here!
Topics: 2,758 Posts: 23,747
2,758 23,747
Are you in a flare? Need support? Post here!
Topics: 3,758 Posts: 28,610
3,758 28,610
Please share your best interstitial cystitis flare coping strategies here! This is NOT to post questions about treatments, therapies or managing flares. We JUST want to hear great techniques for handling flares!
Topics: 645 Posts: 5,725
645 5,725
Related Conditions to Interstitial Cystitis
Research has demonstrated a clear connection between IC, IBS, vulvodynia, prostatodynia and other related conditions. Discuss them here!
Topics: 4,406 Posts: 30,980
4,406 30,980
Sub-Forums:
Fibromyalgia (92/604)
Vulvodynia (938/6,906)
Dry Eyes/Dry Mouth (141/907)
Fungal Infections (339/2,768)
Other Related Conditions (1,882/13,829)
Pregnancy and Parenting With Interstitial Cystitis
Topics: 1,211 Posts: 6,832
1,211 6,832
Sub-Forums:
I'm Pregnant! (689/6,376)
Infertility (63/395)
When a mother or wife develops IC, it can often impact how she feels about her abilities in those roles. Talk about it here!
Topics: 480 Posts: 4,107
480 4,107
Health Insurance & Disability Benefits
Is this a can of worms or what?? Ask questions or discuss any issues you might have with your health insurance coverage
Topics: 33 Posts: 134
33 134
Sub-Forums:
Topics: 272 Posts: 1,631
272 1,631
Sub-Forums:
Are you considering applying disability insurance? In the Appeals process? Post your questions here.
Topics: 805 Posts: 5,906
805 5,906
Social Life - Family, Friends, Dating
Topics: 221 Posts: 1,664
221 1,664
Sub-Forums:
Dating with IC (47/359)
Topics: 1,403 Posts: 12,705
1,403 12,705
Sub-Forums:
GREAT DEBATES
While research hasn't found one specific cause of interstitial cystitis, there are several strong opinions out there. What do you think about the cause of IC? Any ideas? Debate them here!
Topics: 400 Posts: 3,883
400 3,883

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