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Interstitial Cystitis Network Patient Support Forum

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Directory Topics Posts Last Post
Read the latest announcements about the Interstitial Cystitis Network here. From new site additions to newsletter releases, this is the place to get the latest ICN news!
Topics: 1,833 Posts: 9,055
1,833 9,055
Sub-Forums:
Jill's Journal (324/4,178)
Dec 2018 - Please share any problems or bugs you've encountered while trying to use this new, updated software!
Topics: 4 Posts: 9
4 9
Patient Stories
Researchers at the Emory Eye Center have discovered maculopathy in SOME patients with IC who have taken Elmiron for long periods of time. Share your story here.
Topics: 6 Posts: 83
6 83
Share Your Interstitial Cystitis Story Here. When did it start for you? How did it begin?? What interstitial cystitis treatments worked for you?
Topics: 6,664 Posts: 46,215
6,664 46,215
With pain care now greatly limited, we're collecting stories from patients who are struggling to find pain care and/or who are treated with disrespect. Please tell us your story!
Topics: 26 Posts: 122
26 122
Introduce Yourself and share your interstitial cystitis story here!
Topics: 7,173 Posts: 56,996
7,173 56,996
Share your Interstitial Cystitis Success Story Here
Topics: 1,182 Posts: 12,773
1,182 12,773
This forum is for patients who have been living with IC for more than five years, who have wisdom to share but who also need support and encouragement
Topics: 23 Posts: 113
23 113
Are you a newly diagnosed man? Meet others here!
Topics: 469 Posts: 3,488
469 3,488
Yes, remission happens and happens often for interstitial cystitis patients. If you're in remission, please share your story and success tips here!
Topics: 415 Posts: 5,043
415 5,043
Diagnostic Methods For Interstitial Cystitis
Ask questions about the diagnosis of IC, PFD and pelvic pain here!
Topics: 3,137 Posts: 19,371
3,137 19,371
Sub-Forums:
Do you suspect you have interstitial cystitis but haven't been diagnosed yet? Post here!
Topics: 2,572 Posts: 19,047
2,572 19,047
Topics: 4,101 Posts: 31,813
4,101 31,813
Treatment Options
Share your experience using medical marijuana and/or CBD oil to relieve your symptoms.
Topics: 10 Posts: 130
10 130
Oral medications are usually the first treatment options suggested for patients with mild to moderate bladder symptoms and/or pain.
Topics: 6,301 Posts: 40,850
6,301 40,850
Sub-Forums:
Bladder instillations are often performed for mild, moderate and, in some cases, severe IC.
Topics: 2,184 Posts: 16,038
2,184 16,038
Sub-Forums:
Topics: 1,302 Posts: 9,459
1,302 9,459
Topics: 1,864 Posts: 14,877
1,864 14,877
Sub-Forums:
T.E.N.S Therapy (224/1,387)
Nerve Blocks (103/630)
Surgery is only considered after a patient has tried all of the other traditional therapies and is reserved for the most severe cases.
Topics: 1,087 Posts: 13,391
1,087 13,391
Sub-Forums:
Bladder Removal (622/8,607)
Nerve Ablation (24/260)
Experimental therapies for interstitial cystitis (IC/PBS) are those currently being explored in research studies around the world. Their clinical trial results may not be available or are the result of a smaller, less credible study. We've included antibiotics in this discussion area because the role of bacteria in IC remains controversial at best. We have little conclusive evidence that IC is bacterial in nature.
Topics: 3,446 Posts: 28,389
3,446 28,389
Sub-Forums:
Alternative Therapies (1,441/10,622)
Cyclosporine (59/920)
Botox (296/2,555)
Other Treatments (954/6,442)
The IC Diet
Ask questions about diet and interstitial cystitis IC/PBS here!
Topics: 6,587 Posts: 46,393
6,587 46,393
Sub-Forums:
Share your favorite IC friendly recipes and menu ideas here!
Topics: 1,297 Posts: 3,202
1,297 3,202
Sub-Forums:
Main Dishes (149/497)
Casseroles (12/51)
Salads and Soups (79/216)
Desserts (152/396)
Hot Drinks (83/408)
Cold Drinks (65/270)
Cookies & Candy (50/190)
Cocktails (3/27)
Topics: 61 Posts: 194
61 194
Sub-Forums:
Breakfast (6/29)
Dinner (4/14)
Lunch (4/29)
Holidays (12/93)
Self-Help For Interstitial Cystitis
Are you struggling with hormonal changes?? Are they bothering your bladder?? Need to vent about your body changing?? Do it here!
Topics: 284 Posts: 1,901
284 1,901
Topics: 184 Posts: 1,117
184 1,117
Discuss your thoughts and concerns about depression and anxiety here.
Topics: 1,224 Posts: 12,447
1,224 12,447
Topics: 578 Posts: 4,527
578 4,527
Topics: 475 Posts: 3,602
475 3,602
Managing Interstitial Cystitis Flares
Discuss pain management strategies here!
Topics: 2,758 Posts: 23,985
2,758 23,985
Are you in a flare? Need support? Post here!
Topics: 3,750 Posts: 28,693
3,750 28,693
Please share your best interstitial cystitis flare coping strategies here! This is NOT to post questions about treatments, therapies or managing flares. We JUST want to hear great techniques for handling flares!
Topics: 644 Posts: 5,734
644 5,734
Related Conditions to Interstitial Cystitis
Research has demonstrated a clear connection between IC, IBS, vulvodynia, prostatodynia and other related conditions. Discuss them here!
Topics: 4,404 Posts: 31,297
4,404 31,297
Sub-Forums:
Fibromyalgia (92/611)
Vulvodynia (936/7,076)
Dry Eyes/Dry Mouth (141/909)
Fungal Infections (339/2,826)
Other Related Conditions (1,882/13,895)
Pregnancy and Parenting With Interstitial Cystitis
Topics: 1,211 Posts: 6,840
1,211 6,840
Sub-Forums:
I'm Pregnant! (689/6,383)
Infertility (63/396)
When a mother or wife develops IC, it can often impact how she feels about her abilities in those roles. Talk about it here!
Topics: 480 Posts: 4,112
480 4,112
Health Insurance & Disability Benefits
Is this a can of worms or what?? Ask questions or discuss any issues you might have with your health insurance coverage
Topics: 33 Posts: 135
33 135
Sub-Forums:
Topics: 272 Posts: 1,631
272 1,631
Sub-Forums:
Are you considering applying disability insurance? In the Appeals process? Post your questions here.
Topics: 804 Posts: 5,907
804 5,907
Social Life - Family, Friends, Dating
Topics: 221 Posts: 1,675
221 1,675
Sub-Forums:
Dating with IC (47/359)
Topics: 1,403 Posts: 12,749
1,403 12,749
Sub-Forums:
GREAT DEBATES
While research hasn't found one specific cause of interstitial cystitis, there are several strong opinions out there. What do you think about the cause of IC? Any ideas? Debate them here!
Topics: 400 Posts: 3,894
400 3,894

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There are currently 2528 users online. 14 members and 2514 guests.

Most users ever online was 32,261 at 06:00 AM on 08-31-2011.

IC Patient Support Forum - Interstitial Cystitis, Bladder & Pelvic Pain Statistics

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Topics: 82,360   Posts: 627,578   Members: 50,155   Active Members: 251
Welcome to our newest member, TinaH.

Prayers For Donna

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Our Forum Manager, ICNDonna, lost her husband on February 10, 2019. Would you please send her an encouraging note of support. You can email her at: donna@ic-network.com or private message her!

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