Hi all!
First of all, I apologize for using not the correct words in some place, english is not my mother tongue and with medicinal terms I may have to rephrase.
soo I've been struggling with "Bladder issues" for around 8 years now. But no doctor has ever had the...
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ICN Announcements
Read the latest announcements about the Interstitial Cystitis Network here. From new site additions to newsletter releases, this is the place to get the latest ICN news!
Topics: 1,843
Posts: 9,039
Last Post:
New book
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| Patient Stories | ||||||||||||||||||
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Chronic Infection - Fungal/Bacterial
There is considerable debate and discussion about the role of chronic infection in IC. Whether you are a fan of Dr. Fuzzy or Dr. Malone-Lee, please feel free to share your story here.
Topics: 9
Posts: 105
Last Post:
Could IC be caused by Chronic Infection?
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Elmiron / Eye Discussions
Researchers at the Emory Eye Center have discovered maculopathy in SOME patients with IC who have taken Elmiron for long periods of time. Share your story here.
Topics: 28
Posts: 280
Last Post:
Can a flare-up cause chest problems
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Introduce yourself and share your story
Share Your Interstitial Cystitis Story Here. When did it start for you? How did it begin?? What interstitial cystitis treatments worked for you?
Topics: 6,780
Posts: 46,590
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Pain Care Challenges (Share Your Story!)
With pain care now greatly limited, we're collecting stories from patients who are struggling to find pain care and/or who are treated with disrespect. Please tell us your story!
Topics: 53
Posts: 291
Last Post:
8 Month IC Flare
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Newly Diagnosed With Interstitial Cystitis
Introduce Yourself and share your interstitial cystitis story here!
Topics: 7,184
Posts: 56,662
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IC Success Stories
Share your Interstitial Cystitis Success Story Here
Topics: 1,203
Posts: 12,857
Last Post:
Oxytrol patch for overactive bladder
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IC Veterans (5+ years living with IC)
This forum is for patients who have been living with IC for more than five years, who have wisdom to share but who also need support and encouragement
Topics: 38
Posts: 199
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Men with Interstitial Cystitis
Are you a newly diagnosed man? Meet others here!
Topics: 483
Posts: 3,541
Last Post:
Aloe Vera
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My Interstitial Cystitis Is In Remission!
Yes, remission happens and happens often for interstitial cystitis patients. If you're in remission, please share your story and success tips here!
Topics: 418
Posts: 5,030
Last Post:
Hiprex sucesssful results - pain gone!
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| Diagnostic Methods For Interstitial Cystitis | ||||||||||||||||||
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General Diagnostic Questions
Ask questions about the diagnosis of IC, PFD and pelvic pain here!
Topics: 3,168
Posts: 19,099
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3,168 | 19,099 |
by ICNDonna
01-17-2022, 07:37 AM
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Not Diagnosed Yet with Interstitial Cystitis?
Do you suspect you have interstitial cystitis but haven't been diagnosed yet? Post here!
Topics: 2,591
Posts: 19,129
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Topics: 4,133
Posts: 31,708
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Medical Marijuana and CBD
Share your experience using medical marijuana and/or CBD oil to relieve your symptoms.
Topics: 14
Posts: 160
Last Post:
Travelling with CBD
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Oral Medications
Oral medications are usually the first treatment options suggested for patients with mild to moderate bladder symptoms and/or pain.
Topics: 6,362
Posts: 40,657
Last Post:
Uqora
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Bladder Instillation Therapy
Bladder instillations are often performed for mild, moderate and, in some cases, severe IC.
Topics: 2,207
Posts: 16,039
Last Post:
Surgery and heparin installations?
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Topics: 1,311
Posts: 9,409
Last Post:
great video I found about PFD and PT
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Topics: 1,869
Posts: 14,871
Last Post:
Removal of old Interstim leads
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Surgical Interventions
Surgery is only considered after a patient has tried all of the other traditional therapies and is reserved for the most severe cases.
Topics: 1,089
Posts: 13,393
Last Post:
Nothing is helping!!!!!!!!!!
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Experimental or Controversial Treatments
Experimental therapies for interstitial cystitis (IC/PBS) are those currently being explored in research studies around the world. Their clinical trial results may not be available or are the result of a smaller, less credible study. We've included antibiotics in this discussion area because the role of bacteria in IC remains controversial at best. We have little conclusive evidence that IC is bacterial in nature.
Topics: 3,457
Posts: 28,339
Last Post:
LDN (low dose Naltrexone)
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| The IC Diet | ||||||||||||||||||
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General Diet Questions
Ask questions about diet and interstitial cystitis IC/PBS here!
Topics: 6,629
Posts: 46,118
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6,629 | 46,118 |
by ICNDonna
01-09-2022, 07:52 AM
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IC Diet: Recipes
Share your favorite IC friendly recipes and menu ideas here!
Topics: 1,321
Posts: 3,215
Last Post:
Coffee tips from Cleveland Clinic
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Topics: 62
Posts: 195
Last Post:
Start with Chicken
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| Self-Help For Interstitial Cystitis | ||||||||||||||||||
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PMS, Perimenopause, Menopause
Are you struggling with hormonal changes?? Are they bothering your bladder?? Need to vent about your body changing?? Do it here!
Topics: 294
Posts: 1,941
Last Post:
Advice needed
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Topics: 187
Posts: 1,125
Last Post:
Coping with all that's going on in our world
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Depression & Anxiety
Discuss your thoughts and concerns about depression and anxiety here.
Topics: 1,231
Posts: 12,409
Last Post:
Anxiety and flare--ups ruin travel plans
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Topics: 590
Posts: 4,568
Last Post:
estriol helped with vaginal dryness
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Topics: 480
Posts: 3,601
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| Managing Interstitial Cystitis Flares | ||||||||||||||||||
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Pain Management For Interstitial Cystitis
Discuss pain management strategies here!
Topics: 2,763
Posts: 23,734
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by ICNDonna
01-08-2022, 06:39 AM
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Help! I'm in an interstitial cystitis flare!
Are you in a flare? Need support? Post here!
Topics: 3,800
Posts: 28,766
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3,800 | 28,766 |
by ICNDonna
01-17-2022, 07:25 AM
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Flare Coping Strategies For Interstitial Cystitis
Please share your best interstitial cystitis flare coping strategies here! This is NOT to post questions about treatments, therapies or managing flares. We JUST want to hear great techniques for handling flares!
Topics: 648
Posts: 5,750
Last Post:
lower abdominal swelling
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| Related Conditions to Interstitial Cystitis | ||||||||||||||||||
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IC & Other Related Conditions
Research has demonstrated a clear connection between IC, IBS, vulvodynia, prostatodynia and other related conditions. Discuss them here!
Topics: 4,426
Posts: 30,985
Last Post:
Eosinophile esophagitis
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Topics: 1,215
Posts: 6,836
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Parenting with IC
When a mother or wife develops IC, it can often impact how she feels about her abilities in those roles. Talk about it here!
Topics: 481
Posts: 4,111
Last Post:
Statistics for our kids getting this?
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Health Insurance
Is this a can of worms or what?? Ask questions or discuss any issues you might have with your health insurance coverage
Topics: 34
Posts: 141
Last Post:
Does MediCal cover Elmiron?
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Topics: 272
Posts: 1,629
Last Post:
This post is for you Donna :-)
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Social Security Disability Q&A
Are you considering applying disability insurance? In the Appeals process? Post your questions here.
Topics: 805
Posts: 5,904
Last Post:
Live Disability Application Journey
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Topics: 223
Posts: 1,669
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Topics: 1,408
Posts: 12,693
Last Post:
Wife with severe IC needs Chemotherapy
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| GREAT DEBATES | ||||||||||||||||||
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What do you think causes Interstitial Cystitis?
While research hasn't found one specific cause of interstitial cystitis, there are several strong opinions out there. What do you think about the cause of IC? Any ideas? Debate them here!
Topics: 402
Posts: 3,885
Last Post:
Tms
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There are currently 1557 users online. 8 members and 1549 guests.
Most users ever online was 157,401 at 05:30 AM on 12-24-2020.
Topics: 83,006
Posts: 626,628
Members: 51,897
Active Members: 58
Welcome to our newest member, JudiL.
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by lafloorHi folks -
I'm wondering if any of you who flared from the original COVID vaccines have gotten your booster shots and how you have fared. I'm trying to gauge if a) it's going to put me into a months long flare again and b) getting Pfizer might be a better bet for my bladder or if I should...12-27-2021, 03:05 PM -
by matt009auGday, I’m a 35 year old male who over the last few weeks have been having some urinary issues.
The first instance occurred approximately 3 weeks ago when my wife and I ordered Indian for dinner - that evening I was awoken every hour with a urgent need to urinate. However, by the next...08-06-2021, 04:30 PM -
by BillBI took a total of 4 AZO tablets, and it made no difference to my urgency. Azo is supposed to numb the bladder. If my bladder is numb and I still experience urgency, does it make sense that my problem has to do with the muscles near my bladder, and not the bladder itself?04-09-2021, 09:10 AM
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by LilliaHi all!
First of all, I apologize for using not the correct words in some place, english is not my mother tongue and with medicinal terms I may have to rephrase.
soo I've been struggling with "Bladder issues" for around 8 years now. But no doctor has ever had the...01-18-2022, 10:32 AM -
by DSOPMy wife has severe IC and we just found out that her breast cancer has spread to her liver. Her oncologist wants her to start on anti estrogen therapy with Letrozole but the worst thing that ever happened for her IC was her hysterectomy/oophorectomy. That surgery made her IC much worse. (from 5 worst...01-11-2022, 09:52 AM
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by MelindaPHi everyone. I was wondering if anyone did heparin bladder installations and was advised to stop them before surgery? I have some surgery coming up in a few weeks but I have been doing weekly installations of a heparin and sodium bicarbonate solution. I know heparin can be a blood thinner but since...01-10-2022, 02:01 AM
