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ICN Announcements
Read the latest announcements about the Interstitial Cystitis Network here. From new site additions to newsletter releases, this is the place to get the latest ICN news!
Topics: 1,847
Posts: 9,042
Last Post:
Blood Pressure Medicine and IC
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Chronic Infection - Fungal/Bacterial
There is considerable debate and discussion about the role of chronic infection in IC. Whether you are a fan of Dr. Fuzzy or Dr. Malone-Lee, please feel free to share your story here.
Topics: 12
Posts: 115
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12 | 115 |
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Elmiron / Eye Discussions
Researchers at the Emory Eye Center have discovered maculopathy in SOME patients with IC who have taken Elmiron for long periods of time. Share your story here.
Topics: 29
Posts: 287
Last Post:
First cases going to trial in September
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29 | 287 |
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Introduce yourself and share your story
Share Your Interstitial Cystitis Story Here. When did it start for you? How did it begin?? What interstitial cystitis treatments worked for you?
Topics: 6,825
Posts: 46,744
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6,825 | 46,744 |
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Pain Care Challenges (Share Your Story!)
With pain care now greatly limited, we're collecting stories from patients who are struggling to find pain care and/or who are treated with disrespect. Please tell us your story!
Topics: 57
Posts: 312
Last Post:
Pain relief
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57 | 312 |
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Newly Diagnosed With Interstitial Cystitis
Introduce Yourself and share your interstitial cystitis story here!
Topics: 7,192
Posts: 56,691
Last Post:
New here and have questions
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7,192 | 56,691 |
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IC Success Stories
Share your Interstitial Cystitis Success Story Here
Topics: 1,204
Posts: 12,868
Last Post:
Claritin versus Benadryl?
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1,204 | 12,868 |
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IC Veterans (5+ years living with IC)
This forum is for patients who have been living with IC for more than five years, who have wisdom to share but who also need support and encouragement
Topics: 40
Posts: 207
Last Post:
Question
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40 | 207 |
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Men with Interstitial Cystitis
Are you a newly diagnosed man? Meet others here!
Topics: 488
Posts: 3,558
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488 | 3,558 |
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My Interstitial Cystitis Is In Remission!
Yes, remission happens and happens often for interstitial cystitis patients. If you're in remission, please share your story and success tips here!
Topics: 421
Posts: 5,043
Last Post:
Physical Therapy was my answer!
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421 | 5,043 |
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| Diagnostic Methods For Interstitial Cystitis | ||||||||||||||||||
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General Diagnostic Questions
Ask questions about the diagnosis of IC, PFD and pelvic pain here!
Topics: 3,171
Posts: 19,106
Last Post:
Sjögren's syndrome and Pulmonary fibrosis
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3,171 | 19,106 |
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Not Diagnosed Yet with Interstitial Cystitis?
Do you suspect you have interstitial cystitis but haven't been diagnosed yet? Post here!
Topics: 2,594
Posts: 19,138
Last Post:
IC or something else? 39 year old male
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2,594 | 19,138 |
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Topics: 4,136
Posts: 31,719
Last Post:
Protein in urine
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4,136 | 31,719 |
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| Treatment Options | ||||||||||||||||||
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Medical Marijuana and CBD
Share your experience using medical marijuana and/or CBD oil to relieve your symptoms.
Topics: 15
Posts: 166
Last Post:
Vaginal Estradiol for Bladder
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15 | 166 |
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Oral Medications
Oral medications are usually the first treatment options suggested for patients with mild to moderate bladder symptoms and/or pain.
Topics: 6,373
Posts: 40,680
Last Post:
Myrbetriq for overactive bladder
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6,373 | 40,680 |
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Bladder Instillation Therapy
Bladder instillations are often performed for mild, moderate and, in some cases, severe IC.
Topics: 2,210
Posts: 16,049
Last Post:
Botox injection
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2,210 | 16,049 |
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Topics: 1,312
Posts: 9,419
Last Post:
Botox for Pelvic Floor Dysfunction
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Topics: 1,870
Posts: 14,876
Last Post:
Interstim vs TENS
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1,870 | 14,876 |
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Surgical Interventions
Surgery is only considered after a patient has tried all of the other traditional therapies and is reserved for the most severe cases.
Topics: 1,091
Posts: 13,405
Last Post:
High Blood Pressure Medications
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1,091 | 13,405 |
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Experimental or Controversial Treatments
Experimental therapies for interstitial cystitis (IC/PBS) are those currently being explored in research studies around the world. Their clinical trial results may not be available or are the result of a smaller, less credible study. We've included antibiotics in this discussion area because the role of bacteria in IC remains controversial at best. We have little conclusive evidence that IC is bacterial in nature.
Topics: 3,458
Posts: 28,343
Last Post:
Different statins-different results
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3,458 | 28,343 |
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| The IC Diet | ||||||||||||||||||
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General Diet Questions
Ask questions about diet and interstitial cystitis IC/PBS here!
Topics: 6,640
Posts: 46,176
Last Post:
Rubbing Alcohol
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6,640 | 46,176 |
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IC Diet: Recipes
Share your favorite IC friendly recipes and menu ideas here!
Topics: 1,321
Posts: 3,229
Last Post:
Green Smoothie-Spinach Avocado Raspberry
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1,321 | 3,229 |
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Topics: 62
Posts: 195
Last Post:
Start with Chicken
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| Self-Help For Interstitial Cystitis | ||||||||||||||||||
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PMS, Perimenopause, Menopause
Are you struggling with hormonal changes?? Are they bothering your bladder?? Need to vent about your body changing?? Do it here!
Topics: 297
Posts: 1,948
Last Post:
Estrace vs generic estradiol
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297 | 1,948 |
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Topics: 187
Posts: 1,125
Last Post:
Coping with all that's going on in our world
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187 | 1,125 |
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Depression & Anxiety
Discuss your thoughts and concerns about depression and anxiety here.
Topics: 1,235
Posts: 12,423
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1,235 | 12,423 |
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Topics: 591
Posts: 4,571
Last Post:
perimenopause help needed please!
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591 | 4,571 |
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Topics: 481
Posts: 3,604
Last Post:
Pelvic floor therapists/ Mds
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481 | 3,604 |
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| Managing Interstitial Cystitis Flares | ||||||||||||||||||
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Pain Management For Interstitial Cystitis
Discuss pain management strategies here!
Topics: 2,763
Posts: 23,734
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2,763 | 23,734 |
by ICNDonna
01-08-2022, 05:39 AM
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Help! I'm in an interstitial cystitis flare!
Are you in a flare? Need support? Post here!
Topics: 3,809
Posts: 28,815
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3,809 | 28,815 |
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Flare Coping Strategies For Interstitial Cystitis
Please share your best interstitial cystitis flare coping strategies here! This is NOT to post questions about treatments, therapies or managing flares. We JUST want to hear great techniques for handling flares!
Topics: 650
Posts: 5,755
Last Post:
Vitamin C drip IV and having IC
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650 | 5,755 |
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| Related Conditions to Interstitial Cystitis | ||||||||||||||||||
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IC & Other Related Conditions
Research has demonstrated a clear connection between IC, IBS, vulvodynia, prostatodynia and other related conditions. Discuss them here!
Topics: 4,432
Posts: 31,000
Last Post:
Literal pain in the butt
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4,432 | 31,000 |
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| Pregnancy and Parenting With Interstitial Cystitis | ||||||||||||||||||
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Topics: 1,217
Posts: 6,842
Last Post:
Pregnant and miserable
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1,217 | 6,842 |
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Parenting with IC
When a mother or wife develops IC, it can often impact how she feels about her abilities in those roles. Talk about it here!
Topics: 481
Posts: 4,111
Last Post:
Statistics for our kids getting this?
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481 | 4,111 |
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| Health Insurance & Disability Benefits | ||||||||||||||||||
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Health Insurance
Is this a can of worms or what?? Ask questions or discuss any issues you might have with your health insurance coverage
Topics: 34
Posts: 141
Last Post:
Does MediCal cover Elmiron?
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34 | 141 |
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Topics: 272
Posts: 1,629
Last Post:
This post is for you Donna :-)
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272 | 1,629 |
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Social Security Disability Q&A
Are you considering applying disability insurance? In the Appeals process? Post your questions here.
Topics: 805
Posts: 5,904
Last Post:
Live Disability Application Journey
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805 | 5,904 |
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| Social Life - Family, Friends, Dating | ||||||||||||||||||
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Topics: 223
Posts: 1,669
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223 | 1,669 |
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Topics: 1,409
Posts: 12,695
Last Post:
Zinc
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| GREAT DEBATES | ||||||||||||||||||
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What do you think causes Interstitial Cystitis?
While research hasn't found one specific cause of interstitial cystitis, there are several strong opinions out there. What do you think about the cause of IC? Any ideas? Debate them here!
Topics: 402
Posts: 3,888
Last Post:
Bed Wetting?
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402 | 3,888 |
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There are currently 1874 users online. 28 members and 1846 guests.
Most users ever online was 157,401 at 04:30 AM on 12-24-2020.
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I have Hunner's leisons. I will be having fulguration soon. Just wondering if others who have had the procedure could let me know how painful and long the recovery is. If I have surgery on Thursday, would I be able to work on Monday? I know I should have asked the doctor when he found them and asked...01-23-2023, 09:20 AM
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Hello.
I apparently have IC and I also take Diovan for high blood pressure.
I wonder if my blood pressure medications increase my urgency/frequency symptoms. My general doctor says the Diovan has no diuretic effect buy my urologist is not so sure. Is there anyone out...06-30-2011, 01:35 PM -
As a college student who wants to join law enforcement, I understand that there is a polygraph test required to get with an agency. I had a few questions I hope you all could shed some light on for me.
Is there any questions regarding involvement with the police? Back in 2017, my friend's...03-17-2023, 04:35 AM -
In a blender(I have a Nutribullet)
- 1/2 avocado
- 2 cups spinach
- 1 frozen banana(if can tolerate)
- 1-2 cups as desired for consistency unsweetened milk of choice dairy of non dairy
- 1 cup fresh raspberries(if can tolerate)
- 2 medjool dates(Nitrate free) as desired for sweetness
01-05-2020, 04:38 AM -
Just finished an interesting group of studies on the different statins and results. Here is what I learned in a nutshell:
The oldest and most studied is Lovastatin or Mevacor. Mevacor and Pravecol have the lowest rates of muscular problems. Lipitor and Zocor are in the middle and crestor...05-21-2006, 03:06 PM
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As a college student who wants to join law enforcement, I understand that there is a polygraph test required to get with an agency. I had a few questions I hope you all could shed some light on for me.
Is there any questions regarding involvement with the police? Back in 2017, my friend's...03-17-2023, 04:35 AM -
( VAIN) is a condition that describes premalignant histological findings in the vagina characterized by dysplastic changes ,_____________________ This is what I have. One of the options for treatment is
internal topical use of a chemotherapy agent/cream called Fluorouracil (5FU). I know one...03-09-2023, 03:47 AM -
Hi Experienced Forum Members, arrived in Singapore a few months ago...and the most important things such as flat, insurance, employment pass, etc are sorted... now I am looking for a good find out more, reliable dentist for anxious patients.....the whole family shudders by the thought of having to go...03-06-2023, 07:06 PM
