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Interstitial Cystitis Network Patient Support Forum

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Directory Topics Posts Last Post
ICN Announcements
Read the latest announcements about the Interstitial Cystitis Network here. From new site additions to newsletter releases, this is the place to get the latest ICN news!
Topics: 1,840 Posts: 9,039
Last Post: How are you coping?
1,840 9,039
ICNDonna
Sub-Forums:
Jill's Journal (324/4,157)
Patient Stories
Chronic Infection - Fungal/Bacterial
There is considerable debate and discussion about the role of chronic infection in IC. Whether you are a fan of Dr. Fuzzy or Dr. Malone-Lee, please feel free to share your story here.
Topics: 2 Posts: 49
2 49
Elmiron / Eye Discussions
Researchers at the Emory Eye Center have discovered maculopathy in SOME patients with IC who have taken Elmiron for long periods of time. Share your story here.
Topics: 18 Posts: 209
Last Post: Legal pursuit?
18 209
geminime
Introduce yourself and share your story
Share Your Interstitial Cystitis Story Here. When did it start for you? How did it begin?? What interstitial cystitis treatments worked for you?
Topics: 6,728 Posts: 46,338
6,728 46,338
Pain Care Challenges (Share Your Story!)
With pain care now greatly limited, we're collecting stories from patients who are struggling to find pain care and/or who are treated with disrespect. Please tell us your story!
Topics: 42 Posts: 219
42 219
ICNDonna
Newly Diagnosed With Interstitial Cystitis
Introduce Yourself and share your interstitial cystitis story here!
Topics: 7,178 Posts: 56,648
7,178 56,648
ICNDonna
IC Success Stories
Share your Interstitial Cystitis Success Story Here
Topics: 1,195 Posts: 12,807
1,195 12,807
ICNDonna
IC Veterans (5+ years living with IC)
This forum is for patients who have been living with IC for more than five years, who have wisdom to share but who also need support and encouragement
Topics: 32 Posts: 164
32 164
Men with Interstitial Cystitis
Are you a newly diagnosed man? Meet others here!
Topics: 477 Posts: 3,506
Last Post: Frequency
477 3,506
ICNDonna
My Interstitial Cystitis Is In Remission!
Yes, remission happens and happens often for interstitial cystitis patients. If you're in remission, please share your story and success tips here!
Topics: 417 Posts: 5,025
417 5,025
monic433
Diagnostic Methods For Interstitial Cystitis
General Diagnostic Questions
Ask questions about the diagnosis of IC, PFD and pelvic pain here!
Topics: 3,157 Posts: 19,091
3,157 19,091
ICNDonna
Sub-Forums:
Not Diagnosed Yet with Interstitial Cystitis?
Do you suspect you have interstitial cystitis but haven't been diagnosed yet? Post here!
Topics: 2,583 Posts: 18,980
2,583 18,980
Topics: 4,115 Posts: 31,632
Last Post: BPS without OAB?
4,115 31,632
ICNDonna
Treatment Options
Medical Marijuana and CBD
Share your experience using medical marijuana and/or CBD oil to relieve your symptoms.
Topics: 14 Posts: 157
Last Post: Rolling my CBD
14 157
Chatime
by Chatime
Oral Medications
Oral medications are usually the first treatment options suggested for patients with mild to moderate bladder symptoms and/or pain.
Topics: 6,347 Posts: 40,617
6,347 40,617
ICNDonna
Sub-Forums:
Bladder Instillation Therapy
Bladder instillations are often performed for mild, moderate and, in some cases, severe IC.
Topics: 2,197 Posts: 16,027
2,197 16,027
KatrinaE
Sub-Forums:
Topics: 1,307 Posts: 9,397
Last Post: Valium?
1,307 9,397
steelerfan
Topics: 1,868 Posts: 14,870
1,868 14,870
Sub-Forums:
T.E.N.S Therapy (224/1,382)
Nerve Blocks (103/629)
Surgical Interventions
Surgery is only considered after a patient has tried all of the other traditional therapies and is reserved for the most severe cases.
Topics: 1,087 Posts: 13,371
1,087 13,371
neohioic
Sub-Forums:
Bladder Removal (622/8,615)
Nerve Ablation (24/258)
Experimental or Controversial Treatments
Experimental therapies for interstitial cystitis (IC/PBS) are those currently being explored in research studies around the world. Their clinical trial results may not be available or are the result of a smaller, less credible study. We've included antibiotics in this discussion area because the role of bacteria in IC remains controversial at best. We have little conclusive evidence that IC is bacterial in nature.
Topics: 3,452 Posts: 28,326
3,452 28,326
ICNDonna
Sub-Forums:
Alternative Therapies (1,442/10,588)
Cyclosporine (60/919)
Botox (298/2,570)
Other Treatments (955/6,413)
The IC Diet
General Diet Questions
Ask questions about diet and interstitial cystitis IC/PBS here!
Topics: 6,618 Posts: 46,058
Last Post: Vitamins yes or no?
6,618 46,058
Cal-m
by Cal-m
Sub-Forums:
IC Diet: Recipes
Share your favorite IC friendly recipes and menu ideas here!
Topics: 1,315 Posts: 3,204
1,315 3,204
Sub-Forums:
Main Dishes (149/492)
Casseroles (12/51)
Salads and Soups (80/212)
Desserts (152/394)
Hot Drinks (83/407)
Cold Drinks (81/286)
Cookies & Candy (50/190)
Cocktails (3/27)
Topics: 62 Posts: 193
Last Post: Veggie Smoothies
62 193
Cal-m
by Cal-m
Sub-Forums:
Breakfast (7/32)
Dinner (4/13)
Lunch (4/28)
Holidays (12/91)
Self-Help For Interstitial Cystitis
PMS, Perimenopause, Menopause
Are you struggling with hormonal changes?? Are they bothering your bladder?? Need to vent about your body changing?? Do it here!
Topics: 291 Posts: 1,931
291 1,931
Topics: 187 Posts: 1,125
187 1,125
Depression & Anxiety
Discuss your thoughts and concerns about depression and anxiety here.
Topics: 1,229 Posts: 12,401
1,229 12,401
Topics: 586 Posts: 4,558
586 4,558
Topics: 478 Posts: 3,592
Last Post: Swimming
478 3,592
ICNDonna
Managing Interstitial Cystitis Flares
Pain Management For Interstitial Cystitis
Discuss pain management strategies here!
Topics: 2,759 Posts: 23,717
2,759 23,717
Help! I'm in an interstitial cystitis flare!
Are you in a flare? Need support? Post here!
Topics: 3,788 Posts: 28,720
3,788 28,720
Flare Coping Strategies For Interstitial Cystitis
Please share your best interstitial cystitis flare coping strategies here! This is NOT to post questions about treatments, therapies or managing flares. We JUST want to hear great techniques for handling flares!
Topics: 646 Posts: 5,722
646 5,722
Related Conditions to Interstitial Cystitis
IC & Other Related Conditions
Research has demonstrated a clear connection between IC, IBS, vulvodynia, prostatodynia and other related conditions. Discuss them here!
Topics: 4,416 Posts: 30,957
4,416 30,957
ICNDonna
Sub-Forums:
Fibromyalgia (92/604)
Vulvodynia (940/6,881)
Dry Eyes/Dry Mouth (141/906)
Fungal Infections (339/2,762)
Other Related Conditions (1,884/13,821)
Pregnancy and Parenting With Interstitial Cystitis
Topics: 1,213 Posts: 6,834
1,213 6,834
ICNDonna
Sub-Forums:
I'm Pregnant! (691/6,376)
Infertility (63/397)
Parenting with IC
When a mother or wife develops IC, it can often impact how she feels about her abilities in those roles. Talk about it here!
Topics: 481 Posts: 4,111
481 4,111
Health Insurance & Disability Benefits
Health Insurance
Is this a can of worms or what?? Ask questions or discuss any issues you might have with your health insurance coverage
Topics: 34 Posts: 141
34 141
Pillowfight
Sub-Forums:
Topics: 272 Posts: 1,629
272 1,629
Sub-Forums:
Social Security Disability Q&A
Are you considering applying disability insurance? In the Appeals process? Post your questions here.
Topics: 805 Posts: 5,904
805 5,904
Social Life - Family, Friends, Dating
Topics: 222 Posts: 1,667
222 1,667
Sub-Forums:
Dating with IC (48/361)
Topics: 1,406 Posts: 12,691
1,406 12,691
Sub-Forums:
GREAT DEBATES
What do you think causes Interstitial Cystitis?
While research hasn't found one specific cause of interstitial cystitis, there are several strong opinions out there. What do you think about the cause of IC? Any ideas? Debate them here!
Topics: 401 Posts: 3,879
401 3,879
MelindaP

What's Going On

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There are currently 2290 users online. 6 members and 2284 guests.

Most users ever online was 32,261 at 06:00 AM on 08-31-2011.

IC Patient Support Forum - Interstitial Cystitis, Bladder & Pelvic Pain Statistics

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Topics: 82,760   Posts: 625,458   Members: 51,324   Active Members: 102
Welcome to our newest member, Vickihops.

Trending

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  • Hypnogal
    Iron Phosphate beware / Instant Rice may not be so nice.
    by Hypnogal
    I've been flaring badly for the past week... what's new was instant rice. PLAIN
    instant rice but now I see it contains iron. No big deal right? Unless it's
    Ferric Orthophosphate < Oh no, uh... I take a non-acidic multivitamin...what IS
    this stuff? ---------- Did some research....
    Today, 09:47 AM
  • Hypnogal
    Blue Shampoo / Purple Conditioner Flare? Is this even a THING?
    by Hypnogal
    I used a Blue shampoo/conditioner and then my bladder got very ANGRY at me.
    Huh.... or was that the culprit of the flare?
    ---------There is a very NEW and very popular way to tone down brassiness in older
    hair color and that is to use BLUE shampoo and conditioner / I won't mention...
    Today, 04:17 AM
  • KatrinaE
    Please help!! Advice needed
    by KatrinaE
    Hi,
    I recently tried mybetriq for overactive bladder and feel that I had side effects due to another antidepressant I take for pain management-noretriptyline-the two medications can interact. I had some success with the medication but a lot of side effects that seemed to get worse over time-stomach...
    07-06-2020, 10:03 AM
  • Jinny Jean
    Veggie Smoothies
    by Jinny Jean
    Hey guys! Just thought I would share my ideas, wasnt sure where to put this, but here will do

    A little while ago, I was searching on U tube and came across a lady whos screen name is go4diciplineShe has IC or "had" IC and managed to heal herself or go in to remission...
    05-22-2011, 08:15 AM
  • HRJ
    Need desperate help.
    by HRJ
    What are your flare strategies? I’ve had I. For years and was under control. I am taking a med right now that is flaring my bladder. I don’t think I’ve ever had this much pain before. I think I may stop the med. I cant even find a comfortable position to lay in. My mom has come to take care of...
    02-21-2020, 11:44 PM

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