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Interstitial Cystitis Network Patient Support Forum

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Directory Topics Posts Last Post
ICN Announcements
Read the latest announcements about the Interstitial Cystitis Network here. From new site additions to newsletter releases, this is the place to get the latest ICN news!
Topics: 1,844 Posts: 9,039
1,844 9,039
Jill's Journal (324/4,157)
Patient Stories
Chronic Infection - Fungal/Bacterial
There is considerable debate and discussion about the role of chronic infection in IC. Whether you are a fan of Dr. Fuzzy or Dr. Malone-Lee, please feel free to share your story here.
Topics: 9 Posts: 106
9 106
Elmiron / Eye Discussions
Researchers at the Emory Eye Center have discovered maculopathy in SOME patients with IC who have taken Elmiron for long periods of time. Share your story here.
Topics: 28 Posts: 285
28 285
Introduce yourself and share your story
Share Your Interstitial Cystitis Story Here. When did it start for you? How did it begin?? What interstitial cystitis treatments worked for you?
Topics: 6,783 Posts: 46,609
Last Post: Htcz bladder issues
6,783 46,609
Pain Care Challenges (Share Your Story!)
With pain care now greatly limited, we're collecting stories from patients who are struggling to find pain care and/or who are treated with disrespect. Please tell us your story!
Topics: 56 Posts: 302
56 302
Newly Diagnosed With Interstitial Cystitis
Introduce Yourself and share your interstitial cystitis story here!
Topics: 7,184 Posts: 56,662
7,184 56,662
IC Success Stories
Share your Interstitial Cystitis Success Story Here
Topics: 1,203 Posts: 12,858
Last Post: Paquenil for IC
1,203 12,858
IC Veterans (5+ years living with IC)
This forum is for patients who have been living with IC for more than five years, who have wisdom to share but who also need support and encouragement
Topics: 38 Posts: 199
38 199
Men with Interstitial Cystitis
Are you a newly diagnosed man? Meet others here!
Topics: 484 Posts: 3,543
484 3,543
My Interstitial Cystitis Is In Remission!
Yes, remission happens and happens often for interstitial cystitis patients. If you're in remission, please share your story and success tips here!
Topics: 419 Posts: 5,035
419 5,035
Diagnostic Methods For Interstitial Cystitis
General Diagnostic Questions
Ask questions about the diagnosis of IC, PFD and pelvic pain here!
Topics: 3,169 Posts: 19,099
Last Post: Prolapse question
3,169 19,099
Not Diagnosed Yet with Interstitial Cystitis?
Do you suspect you have interstitial cystitis but haven't been diagnosed yet? Post here!
Topics: 2,591 Posts: 19,129
2,591 19,129
Topics: 4,135 Posts: 31,715
Last Post: Protein in urine
4,135 31,715
Treatment Options
Medical Marijuana and CBD
Share your experience using medical marijuana and/or CBD oil to relieve your symptoms.
Topics: 14 Posts: 160
Last Post: Travelling with CBD
14 160
Oral Medications
Oral medications are usually the first treatment options suggested for patients with mild to moderate bladder symptoms and/or pain.
Topics: 6,369 Posts: 40,667
6,369 40,667
Bladder Instillation Therapy
Bladder instillations are often performed for mild, moderate and, in some cases, severe IC.
Topics: 2,208 Posts: 16,039
Last Post: Supply shortages
2,208 16,039
Topics: 1,311 Posts: 9,409
1,311 9,409
Topics: 1,869 Posts: 14,871
1,869 14,871
T.E.N.S Therapy (224/1,382)
Nerve Blocks (103/629)
Surgical Interventions
Surgery is only considered after a patient has tried all of the other traditional therapies and is reserved for the most severe cases.
Topics: 1,089 Posts: 13,395
1,089 13,395
Bladder Removal (623/8,629)
Nerve Ablation (24/258)
Experimental or Controversial Treatments
Experimental therapies for interstitial cystitis (IC/PBS) are those currently being explored in research studies around the world. Their clinical trial results may not be available or are the result of a smaller, less credible study. We've included antibiotics in this discussion area because the role of bacteria in IC remains controversial at best. We have little conclusive evidence that IC is bacterial in nature.
Topics: 3,457 Posts: 28,339
3,457 28,339
Alternative Therapies (1,443/10,591)
Cyclosporine (60/919)
Botox (298/2,570)
Other Treatments (958/6,421)
The IC Diet
General Diet Questions
Ask questions about diet and interstitial cystitis IC/PBS here!
Topics: 6,631 Posts: 46,125
6,631 46,125
IC Diet: Recipes
Share your favorite IC friendly recipes and menu ideas here!
Topics: 1,321 Posts: 3,215
1,321 3,215
Main Dishes (151/496)
Casseroles (12/55)
Salads and Soups (80/212)
Desserts (152/394)
Hot Drinks (84/409)
Cold Drinks (81/286)
Cookies & Candy (50/190)
Cocktails (3/27)
Topics: 62 Posts: 195
Last Post: Start with Chicken
62 195
Breakfast (7/32)
Dinner (4/15)
Lunch (4/28)
Holidays (12/91)
Self-Help For Interstitial Cystitis
PMS, Perimenopause, Menopause
Are you struggling with hormonal changes?? Are they bothering your bladder?? Need to vent about your body changing?? Do it here!
Topics: 294 Posts: 1,941
Last Post: Advice needed
294 1,941
Topics: 187 Posts: 1,125
187 1,125
Depression & Anxiety
Discuss your thoughts and concerns about depression and anxiety here.
Topics: 1,231 Posts: 12,409
1,231 12,409
Topics: 590 Posts: 4,568
590 4,568
Topics: 480 Posts: 3,601
480 3,601
Managing Interstitial Cystitis Flares
Pain Management For Interstitial Cystitis
Discuss pain management strategies here!
Topics: 2,763 Posts: 23,734
2,763 23,734
Help! I'm in an interstitial cystitis flare!
Are you in a flare? Need support? Post here!
Topics: 3,803 Posts: 28,786
3,803 28,786
Flare Coping Strategies For Interstitial Cystitis
Please share your best interstitial cystitis flare coping strategies here! This is NOT to post questions about treatments, therapies or managing flares. We JUST want to hear great techniques for handling flares!
Topics: 648 Posts: 5,750
648 5,750
Related Conditions to Interstitial Cystitis
IC & Other Related Conditions
Research has demonstrated a clear connection between IC, IBS, vulvodynia, prostatodynia and other related conditions. Discuss them here!
Topics: 4,428 Posts: 30,991
4,428 30,991
by tormod
Fibromyalgia (92/604)
Vulvodynia (942/6,885)
Dry Eyes/Dry Mouth (141/906)
Fungal Infections (339/2,766)
Other Related Conditions (1,889/13,837)
Pregnancy and Parenting With Interstitial Cystitis
Topics: 1,217 Posts: 6,842
1,217 6,842
I'm Pregnant! (694/6,384)
Infertility (63/397)
Parenting with IC
When a mother or wife develops IC, it can often impact how she feels about her abilities in those roles. Talk about it here!
Topics: 481 Posts: 4,111
481 4,111
Health Insurance & Disability Benefits
Health Insurance
Is this a can of worms or what?? Ask questions or discuss any issues you might have with your health insurance coverage
Topics: 34 Posts: 141
34 141
Topics: 272 Posts: 1,629
272 1,629
Social Security Disability Q&A
Are you considering applying disability insurance? In the Appeals process? Post your questions here.
Topics: 805 Posts: 5,904
805 5,904
Social Life - Family, Friends, Dating
Topics: 223 Posts: 1,669
223 1,669
Dating with IC (49/363)
Topics: 1,408 Posts: 12,693
1,408 12,693
What do you think causes Interstitial Cystitis?
While research hasn't found one specific cause of interstitial cystitis, there are several strong opinions out there. What do you think about the cause of IC? Any ideas? Debate them here!
Topics: 402 Posts: 3,885
Last Post: Tms
402 3,885
by Bevity

What's Going On


There are currently 1852 users online. 6 members and 1846 guests.

Most users ever online was 157,401 at 04:30 AM on 12-24-2020.

IC Patient Support Forum - Interstitial Cystitis, Bladder & Pelvic Pain Statistics


Topics: 83,035   Posts: 626,730   Members: 51,984   Active Members: 56
Welcome to our newest member, pidegreeinc.

Our New Book




  • ArshineFeed
    Is Potassium Sorbate Safe For Your Body?
    by ArshineFeed
    Potassium sorbate– sure, potassium sorbate is secure for infant as it’s an organic preservative that comes from extracting the juice from the berry fruit of the mountain ash tree. It's far widely known as an top notch food grade preservative however also works as an antimicrobial factor. Potassium...
    05-18-2022, 09:53 PM
  • pskasper
    Subway sandwich shops
    by pskasper
    It's been over 4 years since I have been able to eat wheat, dairy and sugar. Now that they are back in my diet I would like to be able to stop at some fast food places in my travels again. I use to be able to get a sub made of wheat bread with roast turkey, cuc's, spinach, lettuce, black olives and...
    05-02-2022, 08:04 AM
  • siestapixie
    Potassium sorbate as a preservative...?
    by siestapixie
    Hi, I love dried fruit and obviously cannot have most of it now. I have noticed that they and a lot of other foods have potassium sorbate as a kind of preservative, like in Mission dried figs. Is this a known IC trigger too? I know "most dried figs" are listed in the problematic column...
    08-14-2009, 02:04 PM

Latest Topics


  • ArshineFeed
    Is Potassium Sorbate Safe For Your Body?
    by ArshineFeed
    Potassium sorbate– sure, potassium sorbate is secure for infant as it’s an organic preservative that comes from extracting the juice from the berry fruit of the mountain ash tree. It's far widely known as an top notch food grade preservative however also works as an antimicrobial factor. Potassium...
    05-18-2022, 09:53 PM
  • ICNDonna
    Are these forums helping you?
    by ICNDonna
    If you are finding helpful information on the forums, please post a brief response --- even a simple yes --- or no.

    05-08-2022, 07:57 AM
  • megan_joan
    Prelief with Supplements/Herbs
    by megan_joan
    Hi everyone. I’ve heard a lot about people using Prelief over the years of having IC (although I’ve never personally tried it myself). I don’t find I’m particularly sensitive to foods and stay away from very acid things like alcohol, coffee etc anyways. What I am sensitive to is supplements...
    05-07-2022, 02:21 PM