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Directory Topics Posts Last Post
ICN Announcements
Read the latest announcements about the Interstitial Cystitis Network here. From new site additions to newsletter releases, this is the place to get the latest ICN news!
Topics: 1,843 Posts: 9,039
Last Post: New book
1,843 9,039
ICNDonna
Sub-Forums:
Jill's Journal (324/4,157)
Patient Stories
Chronic Infection - Fungal/Bacterial
There is considerable debate and discussion about the role of chronic infection in IC. Whether you are a fan of Dr. Fuzzy or Dr. Malone-Lee, please feel free to share your story here.
Topics: 9 Posts: 102
9 102
Elmiron / Eye Discussions
Researchers at the Emory Eye Center have discovered maculopathy in SOME patients with IC who have taken Elmiron for long periods of time. Share your story here.
Topics: 28 Posts: 280
28 280
Introduce yourself and share your story
Share Your Interstitial Cystitis Story Here. When did it start for you? How did it begin?? What interstitial cystitis treatments worked for you?
Topics: 6,775 Posts: 46,556
6,775 46,556
Pain Care Challenges (Share Your Story!)
With pain care now greatly limited, we're collecting stories from patients who are struggling to find pain care and/or who are treated with disrespect. Please tell us your story!
Topics: 52 Posts: 287
52 287
Newly Diagnosed With Interstitial Cystitis
Introduce Yourself and share your interstitial cystitis story here!
Topics: 7,183 Posts: 56,661
Last Post: Cystoprotek
7,183 56,661
kmonica
by kmonica
IC Success Stories
Share your Interstitial Cystitis Success Story Here
Topics: 1,202 Posts: 12,852
Last Post: Paquenil for IC
1,202 12,852
ICNDonna
IC Veterans (5+ years living with IC)
This forum is for patients who have been living with IC for more than five years, who have wisdom to share but who also need support and encouragement
Topics: 38 Posts: 199
38 199
Men with Interstitial Cystitis
Are you a newly diagnosed man? Meet others here!
Topics: 482 Posts: 3,536
482 3,536
ICNDonna
My Interstitial Cystitis Is In Remission!
Yes, remission happens and happens often for interstitial cystitis patients. If you're in remission, please share your story and success tips here!
Topics: 418 Posts: 5,030
418 5,030
Diagnostic Methods For Interstitial Cystitis
General Diagnostic Questions
Ask questions about the diagnosis of IC, PFD and pelvic pain here!
Topics: 3,167 Posts: 19,099
3,167 19,099
Sub-Forums:
Not Diagnosed Yet with Interstitial Cystitis?
Do you suspect you have interstitial cystitis but haven't been diagnosed yet? Post here!
Topics: 2,588 Posts: 19,122
2,588 19,122
Topics: 4,131 Posts: 31,703
4,131 31,703
Treatment Options
Medical Marijuana and CBD
Share your experience using medical marijuana and/or CBD oil to relieve your symptoms.
Topics: 14 Posts: 160
Last Post: Travelling with CBD
14 160
MoralPhoebe
Oral Medications
Oral medications are usually the first treatment options suggested for patients with mild to moderate bladder symptoms and/or pain.
Topics: 6,360 Posts: 40,656
6,360 40,656
Sub-Forums:
Bladder Instillation Therapy
Bladder instillations are often performed for mild, moderate and, in some cases, severe IC.
Topics: 2,203 Posts: 16,032
2,203 16,032
traveller
Sub-Forums:
Topics: 1,311 Posts: 9,409
1,311 9,409
Topics: 1,869 Posts: 14,871
1,869 14,871
Sub-Forums:
T.E.N.S Therapy (224/1,382)
Nerve Blocks (103/629)
Surgical Interventions
Surgery is only considered after a patient has tried all of the other traditional therapies and is reserved for the most severe cases.
Topics: 1,089 Posts: 13,390
1,089 13,390
ICNDonna
Sub-Forums:
Bladder Removal (623/8,626)
Nerve Ablation (24/258)
Experimental or Controversial Treatments
Experimental therapies for interstitial cystitis (IC/PBS) are those currently being explored in research studies around the world. Their clinical trial results may not be available or are the result of a smaller, less credible study. We've included antibiotics in this discussion area because the role of bacteria in IC remains controversial at best. We have little conclusive evidence that IC is bacterial in nature.
Topics: 3,457 Posts: 28,339
3,457 28,339
ICNDonna
Sub-Forums:
Alternative Therapies (1,443/10,591)
Cyclosporine (60/919)
Botox (298/2,570)
Other Treatments (958/6,421)
The IC Diet
General Diet Questions
Ask questions about diet and interstitial cystitis IC/PBS here!
Topics: 6,627 Posts: 46,113
Last Post: lemon water
6,627 46,113
Foxalive
Sub-Forums:
IC Diet: Recipes
Share your favorite IC friendly recipes and menu ideas here!
Topics: 1,320 Posts: 3,209
1,320 3,209
echloe
by echloe
Sub-Forums:
Main Dishes (151/496)
Casseroles (12/51)
Salads and Soups (80/212)
Desserts (152/394)
Hot Drinks (83/407)
Cold Drinks (81/286)
Cookies & Candy (50/190)
Cocktails (3/27)
Topics: 62 Posts: 195
Last Post: Start with Chicken
62 195
Bladderella
Sub-Forums:
Breakfast (7/32)
Dinner (4/15)
Lunch (4/28)
Holidays (12/91)
Self-Help For Interstitial Cystitis
PMS, Perimenopause, Menopause
Are you struggling with hormonal changes?? Are they bothering your bladder?? Need to vent about your body changing?? Do it here!
Topics: 292 Posts: 1,937
292 1,937
Topics: 187 Posts: 1,125
187 1,125
Depression & Anxiety
Discuss your thoughts and concerns about depression and anxiety here.
Topics: 1,230 Posts: 12,406
Last Post: Nagetive people
1,230 12,406
ICNDonna
Topics: 589 Posts: 4,566
589 4,566
Topics: 480 Posts: 3,598
480 3,598
Managing Interstitial Cystitis Flares
Pain Management For Interstitial Cystitis
Discuss pain management strategies here!
Topics: 2,761 Posts: 23,728
Last Post: CBD really work?
2,761 23,728
green_the_fish
Help! I'm in an interstitial cystitis flare!
Are you in a flare? Need support? Post here!
Topics: 3,796 Posts: 28,751
Last Post: IC on the tongue?
3,796 28,751
philip77
Flare Coping Strategies For Interstitial Cystitis
Please share your best interstitial cystitis flare coping strategies here! This is NOT to post questions about treatments, therapies or managing flares. We JUST want to hear great techniques for handling flares!
Topics: 648 Posts: 5,747
648 5,747
Related Conditions to Interstitial Cystitis
IC & Other Related Conditions
Research has demonstrated a clear connection between IC, IBS, vulvodynia, prostatodynia and other related conditions. Discuss them here!
Topics: 4,426 Posts: 30,985
4,426 30,985
ICNDonna
Sub-Forums:
Fibromyalgia (92/604)
Vulvodynia (942/6,885)
Dry Eyes/Dry Mouth (141/906)
Fungal Infections (339/2,762)
Other Related Conditions (1,888/13,835)
Pregnancy and Parenting With Interstitial Cystitis
Topics: 1,215 Posts: 6,836
1,215 6,836
Sub-Forums:
I'm Pregnant! (692/6,378)
Infertility (63/397)
Parenting with IC
When a mother or wife develops IC, it can often impact how she feels about her abilities in those roles. Talk about it here!
Topics: 481 Posts: 4,111
481 4,111
Health Insurance & Disability Benefits
Health Insurance
Is this a can of worms or what?? Ask questions or discuss any issues you might have with your health insurance coverage
Topics: 34 Posts: 141
34 141
Pillowfight
Sub-Forums:
Topics: 272 Posts: 1,629
272 1,629
Sub-Forums:
Social Security Disability Q&A
Are you considering applying disability insurance? In the Appeals process? Post your questions here.
Topics: 805 Posts: 5,904
805 5,904
Social Life - Family, Friends, Dating
Topics: 223 Posts: 1,669
223 1,669
Sub-Forums:
Dating with IC (49/363)
Topics: 1,407 Posts: 12,693
1,407 12,693
Sub-Forums:
GREAT DEBATES
What do you think causes Interstitial Cystitis?
While research hasn't found one specific cause of interstitial cystitis, there are several strong opinions out there. What do you think about the cause of IC? Any ideas? Debate them here!
Topics: 402 Posts: 3,885
Last Post: Tms
402 3,885
Bevity
Tms
by Bevity

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IC Patient Support Forum - Interstitial Cystitis, Bladder & Pelvic Pain Statistics

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Topics: 82,971   Posts: 626,505   Members: 51,816   Active Members: 71
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  • philip77
    Can a flare-up cause chest problems
    by philip77
    Friday September 17th. I bought a Karma: coconut flavored
    water. I looked at the ingredients several times until I was
    Happy with it. here are the ingredients below.


    Ingredients
    Pristine Water, Citric Acid, Cane Sugar, Stevia rebaudiana Leaf Extract, Natural Flavors...
    Yesterday, 12:19 AM
  • philip77
    IC on the tongue?
    by philip77
    I was in the emergency room two days in a row. The first one was when I bent my knees and sat on my legs for about an hour.
    It caused my legs to stretch or spasm. The second time, I was
    having chest pain which was not a heart problem.
    And maybe some of you men can relate to the flare--up...
    Yesterday, 09:49 AM
  • echloe
    Big bite juicer screen clogging
    by echloe
    Does anyone use one of these for making juice and sauces? We had to clean the screen 3 times when processing 40# of tomatoes to fill a stockpot to reduce for canning tomato sauce. It is still way faster than the old way, but just looking if there is some trick to prevent the pulp from clogging the screen....
    09-19-2021, 01:08 PM

Latest Topics

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  • philip77
    IC on the tongue?
    by philip77
    I was in the emergency room two days in a row. The first one was when I bent my knees and sat on my legs for about an hour.
    It caused my legs to stretch or spasm. The second time, I was
    having chest pain which was not a heart problem.
    And maybe some of you men can relate to the flare--up...
    Yesterday, 09:49 AM
  • philip77
    Can a flare-up cause chest problems
    by philip77
    Friday September 17th. I bought a Karma: coconut flavored
    water. I looked at the ingredients several times until I was
    Happy with it. here are the ingredients below.


    Ingredients
    Pristine Water, Citric Acid, Cane Sugar, Stevia rebaudiana Leaf Extract, Natural Flavors...
    Yesterday, 12:19 AM
  • echloe
    Big bite juicer screen clogging
    by echloe
    Does anyone use one of these for making juice and sauces? We had to clean the screen 3 times when processing 40# of tomatoes to fill a stockpot to reduce for canning tomato sauce. It is still way faster than the old way, but just looking if there is some trick to prevent the pulp from clogging the screen....
    09-19-2021, 01:08 PM
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