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Directory Topics Posts Last Post
Read the latest announcements about the Interstitial Cystitis Network here. From new site additions to newsletter releases, this is the place to get the latest ICN news!
Topics: 1,826 Posts: 9,054
1,826 9,054
Sub-Forums:
Jill's Journal (322/4,177)
Patient Stories
Researchers at the Emory Eye Center have discovered maculopathy in SOME patients with IC who have taken Elmiron for long periods of time. Share your story here.
Topics: 4 Posts: 56
4 56
Share Your Interstitial Cystitis Story Here. When did it start for you? How did it begin?? What interstitial cystitis treatments worked for you?
Topics: 6,632 Posts: 46,038
6,632 46,038
With pain care now greatly limited, we're collecting stories from patients who are struggling to find pain care and/or who are treated with disrespect. Please tell us your story!
Topics: 14 Posts: 55
14 55
Introduce Yourself and share your interstitial cystitis story here!
Topics: 7,168 Posts: 56,947
7,168 56,947
Share your Interstitial Cystitis Success Story Here
Topics: 1,174 Posts: 12,710
1,174 12,710
This forum is for patients who have been living with IC for more than five years, who have wisdom to share but who also need support and encouragement
Topics: 14 Posts: 80
14 80
Are you a newly diagnosed man? Meet others here!
Topics: 463 Posts: 3,469
463 3,469
Yes, remission happens and happens often for interstitial cystitis patients. If you're in remission, please share your story and success tips here!
Topics: 413 Posts: 5,024
413 5,024
Diagnostic Methods For Interstitial Cystitis
Ask questions about the diagnosis of IC, PFD and pelvic pain here!
Topics: 3,123 Posts: 19,366
3,123 19,366
Sub-Forums:
Do you suspect you have interstitial cystitis but haven't been diagnosed yet? Post here!
Topics: 2,569 Posts: 19,032
2,569 19,032
Topics: 4,092 Posts: 31,762
4,092 31,762
Treatment Options
Share your experience using medical marijuana and/or CBD oil to relieve your symptoms.
Topics: 6 Posts: 102
6 102
Oral medications are usually the first treatment options suggested for patients with mild to moderate bladder symptoms and/or pain.
Topics: 6,281 Posts: 40,799
6,281 40,799
Sub-Forums:
Bladder instillations are often performed for mild, moderate and, in some cases, severe IC.
Topics: 2,181 Posts: 16,019
2,181 16,019
Sub-Forums:
Topics: 1,297 Posts: 9,435
1,297 9,435
Topics: 1,864 Posts: 14,867
1,864 14,867
Sub-Forums:
T.E.N.S Therapy (224/1,387)
Nerve Blocks (103/628)
Surgery is only considered after a patient has tried all of the other traditional therapies and is reserved for the most severe cases.
Topics: 1,087 Posts: 13,363
1,087 13,363
Sub-Forums:
Bladder Removal (622/8,584)
Nerve Ablation (24/260)
Experimental therapies for interstitial cystitis (IC/PBS) are those currently being explored in research studies around the world. Their clinical trial results may not be available or are the result of a smaller, less credible study. We've included antibiotics in this discussion area because the role of bacteria in IC remains controversial at best. We have little conclusive evidence that IC is bacterial in nature.
Topics: 3,441 Posts: 28,361
3,441 28,361
Sub-Forums:
Alternative Therapies (1,441/10,611)
Cyclosporine (59/919)
Botox (294/2,544)
Other Treatments (952/6,440)
The IC Diet
Ask questions about diet and interstitial cystitis IC/PBS here!
Topics: 6,570 Posts: 46,331
6,570 46,331
Sub-Forums:
Share your favorite IC friendly recipes and menu ideas here!
Topics: 1,295 Posts: 3,191
1,295 3,191
Sub-Forums:
Main Dishes (149/497)
Casseroles (12/51)
Salads and Soups (79/216)
Desserts (151/393)
Hot Drinks (83/408)
Cold Drinks (64/268)
Cookies & Candy (50/190)
Cocktails (3/27)
Topics: 61 Posts: 194
61 194
Sub-Forums:
Breakfast (6/29)
Dinner (4/14)
Lunch (4/29)
Holidays (12/93)
Self-Help For Interstitial Cystitis
Are you struggling with hormonal changes?? Are they bothering your bladder?? Need to vent about your body changing?? Do it here!
Topics: 283 Posts: 1,895
283 1,895
Topics: 181 Posts: 1,110
181 1,110
Discuss your thoughts and concerns about depression and anxiety here.
Topics: 1,216 Posts: 12,410
1,216 12,410
Topics: 575 Posts: 4,515
575 4,515
Topics: 475 Posts: 3,595
475 3,595
Managing Interstitial Cystitis Flares
Discuss pain management strategies here!
Topics: 2,752 Posts: 23,963
2,752 23,963
Are you in a flare? Need support? Post here!
Topics: 3,738 Posts: 28,634
3,738 28,634
Please share your best interstitial cystitis flare coping strategies here! This is NOT to post questions about treatments, therapies or managing flares. We JUST want to hear great techniques for handling flares!
Topics: 644 Posts: 5,734
644 5,734
Related Conditions to Interstitial Cystitis
Research has demonstrated a clear connection between IC, IBS, vulvodynia, prostatodynia and other related conditions. Discuss them here!
Topics: 4,401 Posts: 31,283
4,401 31,283
Sub-Forums:
Fibromyalgia (92/611)
Vulvodynia (936/7,076)
Dry Eyes/Dry Mouth (141/909)
Other Related Conditions (1,881/13,890)
Pregnancy and Parenting With Interstitial Cystitis
Topics: 1,211 Posts: 6,839
1,211 6,839
Sub-Forums:
I'm Pregnant! (689/6,382)
Infertility (63/396)
When a mother or wife develops IC, it can often impact how she feels about her abilities in those roles. Talk about it here!
Topics: 480 Posts: 4,112
480 4,112
Health Insurance & Disability Benefits
Is this a can of worms or what?? Ask questions or discuss any issues you might have with your health insurance coverage
Topics: 33 Posts: 135
33 135
Sub-Forums:
Topics: 272 Posts: 1,631
272 1,631
Sub-Forums:
Are you considering applying disability insurance? In the Appeals process? Post your questions here.
Topics: 804 Posts: 5,907
804 5,907
Social Life - Family, Friends, Dating
Topics: 220 Posts: 1,672
220 1,672
Sub-Forums:
Dating with IC (46/356)
Topics: 1,402 Posts: 12,748
1,402 12,748
Sub-Forums:
GREAT DEBATES
While research hasn't found one specific cause of interstitial cystitis, there are several strong opinions out there. What do you think about the cause of IC? Any ideas? Debate them here!
Topics: 398 Posts: 3,890
398 3,890

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IC Patient Support Forum - Interstitial Cystitis, Bladder & Pelvic Pain Statistics

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