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ICN Announcements
Read the latest announcements about the Interstitial Cystitis Network here. From new site additions to newsletter releases, this is the place to get the latest ICN news!
Topics: 1,843 Posts: 9,039
Last Post: New book
1,843 9,039
ICNDonna
ICNDonna
ICN Staff
by ICNDonna
Sub-Forums:
Jill's Journal (324/4,157)
Patient Stories
Chronic Infection - Fungal/Bacterial
There is considerable debate and discussion about the role of chronic infection in IC. Whether you are a fan of Dr. Fuzzy or Dr. Malone-Lee, please feel free to share your story here.
Topics: 9 Posts: 105
9 105
PJoy
PJoy
ICN Member
by PJoy
Elmiron / Eye Discussions
Researchers at the Emory Eye Center have discovered maculopathy in SOME patients with IC who have taken Elmiron for long periods of time. Share your story here.
Topics: 28 Posts: 280
28 280
philip77
philip77
ICN Member
by philip77
Introduce yourself and share your story
Share Your Interstitial Cystitis Story Here. When did it start for you? How did it begin?? What interstitial cystitis treatments worked for you?
Topics: 6,780 Posts: 46,589
6,780 46,589
Pain Care Challenges (Share Your Story!)
With pain care now greatly limited, we're collecting stories from patients who are struggling to find pain care and/or who are treated with disrespect. Please tell us your story!
Topics: 53 Posts: 291
Last Post: 8 Month IC Flare
53 291
Barbara M
Barbara M
ICN Member
by Barbara M
Newly Diagnosed With Interstitial Cystitis
Introduce Yourself and share your interstitial cystitis story here!
Topics: 7,184 Posts: 56,662
7,184 56,662
IC Success Stories
Share your Interstitial Cystitis Success Story Here
Topics: 1,203 Posts: 12,857
1,203 12,857
ICNDonna
ICNDonna
ICN Staff
by ICNDonna
IC Veterans (5+ years living with IC)
This forum is for patients who have been living with IC for more than five years, who have wisdom to share but who also need support and encouragement
Topics: 38 Posts: 199
38 199
Men with Interstitial Cystitis
Are you a newly diagnosed man? Meet others here!
Topics: 483 Posts: 3,541
Last Post: Aloe Vera
483 3,541
ICNDonna
ICNDonna
ICN Staff
by ICNDonna
My Interstitial Cystitis Is In Remission!
Yes, remission happens and happens often for interstitial cystitis patients. If you're in remission, please share your story and success tips here!
Topics: 418 Posts: 5,030
418 5,030
AnnieBel
AnnieBel
ICN Member
by AnnieBel
Diagnostic Methods For Interstitial Cystitis
General Diagnostic Questions
Ask questions about the diagnosis of IC, PFD and pelvic pain here!
Topics: 3,168 Posts: 19,099
3,168 19,099
Sub-Forums:
Not Diagnosed Yet with Interstitial Cystitis?
Do you suspect you have interstitial cystitis but haven't been diagnosed yet? Post here!
Topics: 2,591 Posts: 19,128
2,591 19,128
Topics: 4,133 Posts: 31,708
4,133 31,708
Treatment Options
Medical Marijuana and CBD
Share your experience using medical marijuana and/or CBD oil to relieve your symptoms.
Topics: 14 Posts: 160
Last Post: Travelling with CBD
14 160
MoralPhoebe
MoralPhoebe
ICN Member
by MoralPhoebe
Oral Medications
Oral medications are usually the first treatment options suggested for patients with mild to moderate bladder symptoms and/or pain.
Topics: 6,362 Posts: 40,657
Last Post: Uqora
6,362 40,657
LinKay
LinKay
ICN Member
by LinKay
Sub-Forums:
Bladder Instillation Therapy
Bladder instillations are often performed for mild, moderate and, in some cases, severe IC.
Topics: 2,207 Posts: 16,039
2,207 16,039
ICNDonna
ICNDonna
ICN Staff
by ICNDonna
Sub-Forums:
Topics: 1,311 Posts: 9,409
1,311 9,409
joejohn_33
joejohn_33
ICN Member
by joejohn_33
Topics: 1,869 Posts: 14,871
1,869 14,871
icnmgrjill
icnmgrjill
ICN Founder
by icnmgrjill
Sub-Forums:
T.E.N.S Therapy (224/1,382)
Nerve Blocks (103/629)
Surgical Interventions
Surgery is only considered after a patient has tried all of the other traditional therapies and is reserved for the most severe cases.
Topics: 1,089 Posts: 13,393
1,089 13,393
jeanniebug
jeanniebug
ICN Member
by jeanniebug
Sub-Forums:
Bladder Removal (623/8,627)
Nerve Ablation (24/258)
Experimental or Controversial Treatments
Experimental therapies for interstitial cystitis (IC/PBS) are those currently being explored in research studies around the world. Their clinical trial results may not be available or are the result of a smaller, less credible study. We've included antibiotics in this discussion area because the role of bacteria in IC remains controversial at best. We have little conclusive evidence that IC is bacterial in nature.
Topics: 3,457 Posts: 28,339
3,457 28,339
ICNDonna
ICNDonna
ICN Staff
by ICNDonna
Sub-Forums:
Alternative Therapies (1,443/10,591)
Cyclosporine (60/919)
Botox (298/2,570)
Other Treatments (958/6,421)
The IC Diet
General Diet Questions
Ask questions about diet and interstitial cystitis IC/PBS here!
Topics: 6,629 Posts: 46,118
6,629 46,118
Sub-Forums:
IC Diet: Recipes
Share your favorite IC friendly recipes and menu ideas here!
Topics: 1,321 Posts: 3,215
1,321 3,215
ICNDonna
ICNDonna
ICN Staff
by ICNDonna
Sub-Forums:
Main Dishes (151/496)
Casseroles (12/55)
Salads and Soups (80/212)
Desserts (152/394)
Hot Drinks (84/409)
Cold Drinks (81/286)
Cookies & Candy (50/190)
Cocktails (3/27)
Topics: 62 Posts: 195
Last Post: Start with Chicken
62 195
Bladderella
Bladderella
ICN Member
by Bladderella
Sub-Forums:
Breakfast (7/32)
Dinner (4/15)
Lunch (4/28)
Holidays (12/91)
Self-Help For Interstitial Cystitis
PMS, Perimenopause, Menopause
Are you struggling with hormonal changes?? Are they bothering your bladder?? Need to vent about your body changing?? Do it here!
Topics: 294 Posts: 1,941
Last Post: Advice needed
294 1,941
ICNDonna
ICNDonna
ICN Staff
by ICNDonna
Topics: 187 Posts: 1,125
187 1,125
Depression & Anxiety
Discuss your thoughts and concerns about depression and anxiety here.
Topics: 1,231 Posts: 12,409
1,231 12,409
philip77
philip77
ICN Member
by philip77
Topics: 590 Posts: 4,568
590 4,568
ICNDonna
ICNDonna
ICN Staff
by ICNDonna
Topics: 480 Posts: 3,601
480 3,601
Managing Interstitial Cystitis Flares
Pain Management For Interstitial Cystitis
Discuss pain management strategies here!
Topics: 2,763 Posts: 23,734
2,763 23,734
Help! I'm in an interstitial cystitis flare!
Are you in a flare? Need support? Post here!
Topics: 3,800 Posts: 28,766
3,800 28,766
Flare Coping Strategies For Interstitial Cystitis
Please share your best interstitial cystitis flare coping strategies here! This is NOT to post questions about treatments, therapies or managing flares. We JUST want to hear great techniques for handling flares!
Topics: 648 Posts: 5,750
648 5,750
ICNDonna
ICNDonna
ICN Staff
by ICNDonna
Related Conditions to Interstitial Cystitis
IC & Other Related Conditions
Research has demonstrated a clear connection between IC, IBS, vulvodynia, prostatodynia and other related conditions. Discuss them here!
Topics: 4,426 Posts: 30,985
4,426 30,985
ICNDonna
ICNDonna
ICN Staff
by ICNDonna
Sub-Forums:
Fibromyalgia (92/604)
Vulvodynia (942/6,885)
Dry Eyes/Dry Mouth (141/906)
Fungal Infections (339/2,762)
Other Related Conditions (1,888/13,835)
Pregnancy and Parenting With Interstitial Cystitis
Topics: 1,215 Posts: 6,836
1,215 6,836
Sub-Forums:
I'm Pregnant! (692/6,378)
Infertility (63/397)
Parenting with IC
When a mother or wife develops IC, it can often impact how she feels about her abilities in those roles. Talk about it here!
Topics: 481 Posts: 4,111
481 4,111
HRJ
by HRJ
Health Insurance & Disability Benefits
Health Insurance
Is this a can of worms or what?? Ask questions or discuss any issues you might have with your health insurance coverage
Topics: 34 Posts: 141
34 141
Pillowfight
Pillowfight
ICN Member
by Pillowfight
Sub-Forums:
Topics: 272 Posts: 1,629
272 1,629
waterflow
waterflow
ICN Member
by waterflow
Sub-Forums:
Social Security Disability Q&A
Are you considering applying disability insurance? In the Appeals process? Post your questions here.
Topics: 805 Posts: 5,904
805 5,904
ICNDonna
ICNDonna
ICN Staff
by ICNDonna
Social Life - Family, Friends, Dating
Topics: 223 Posts: 1,669
223 1,669
Sub-Forums:
Dating with IC (49/363)
Topics: 1,408 Posts: 12,693
1,408 12,693
ICNDonna
ICNDonna
ICN Staff
by ICNDonna
Sub-Forums:
GREAT DEBATES
What do you think causes Interstitial Cystitis?
While research hasn't found one specific cause of interstitial cystitis, there are several strong opinions out there. What do you think about the cause of IC? Any ideas? Debate them here!
Topics: 402 Posts: 3,885
Last Post: Tms
402 3,885
Bevity
Tms
Bevity
ICN Member
by Bevity
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