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Read the latest announcements about the Interstitial Cystitis Network here. From new site additions to newsletter releases, this is the place to get the latest ICN news!
Topics: 1,830 Posts: 9,054
1,830 9,054
Sub-Forums:
Jill's Journal (323/4,177)
Dec 2018 - Please share any problems or bugs you've encountered while trying to use this new, updated software!
Topics: 3 Posts: 4
3 4
Patient Stories
Researchers at the Emory Eye Center have discovered maculopathy in SOME patients with IC who have taken Elmiron for long periods of time. Share your story here.
Topics: 5 Posts: 64
5 64
Share Your Interstitial Cystitis Story Here. When did it start for you? How did it begin?? What interstitial cystitis treatments worked for you?
Topics: 6,647 Posts: 46,114
6,647 46,114
With pain care now greatly limited, we're collecting stories from patients who are struggling to find pain care and/or who are treated with disrespect. Please tell us your story!
Topics: 16 Posts: 74
16 74
Introduce Yourself and share your interstitial cystitis story here!
Topics: 7,169 Posts: 56,958
7,169 56,958
Share your Interstitial Cystitis Success Story Here
Topics: 1,176 Posts: 12,727
1,176 12,727
This forum is for patients who have been living with IC for more than five years, who have wisdom to share but who also need support and encouragement
Topics: 17 Posts: 91
17 91
Are you a newly diagnosed man? Meet others here!
Topics: 464 Posts: 3,470
464 3,470
Yes, remission happens and happens often for interstitial cystitis patients. If you're in remission, please share your story and success tips here!
Topics: 414 Posts: 5,034
414 5,034
Diagnostic Methods For Interstitial Cystitis
Ask questions about the diagnosis of IC, PFD and pelvic pain here!
Topics: 3,126 Posts: 19,366
3,126 19,366
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Do you suspect you have interstitial cystitis but haven't been diagnosed yet? Post here!
Topics: 2,570 Posts: 19,040
2,570 19,040
Topics: 4,092 Posts: 31,770
4,092 31,770
Treatment Options
Share your experience using medical marijuana and/or CBD oil to relieve your symptoms.
Topics: 6 Posts: 106
6 106
Oral medications are usually the first treatment options suggested for patients with mild to moderate bladder symptoms and/or pain.
Topics: 6,286 Posts: 40,811
6,286 40,811
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Bladder instillations are often performed for mild, moderate and, in some cases, severe IC.
Topics: 2,182 Posts: 16,026
2,182 16,026
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Topics: 1,299 Posts: 9,448
1,299 9,448
Topics: 1,864 Posts: 14,869
1,864 14,869
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T.E.N.S Therapy (224/1,387)
Nerve Blocks (103/630)
Surgery is only considered after a patient has tried all of the other traditional therapies and is reserved for the most severe cases.
Topics: 1,087 Posts: 13,370
1,087 13,370
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Bladder Removal (622/8,591)
Nerve Ablation (24/260)
Experimental therapies for interstitial cystitis (IC/PBS) are those currently being explored in research studies around the world. Their clinical trial results may not be available or are the result of a smaller, less credible study. We've included antibiotics in this discussion area because the role of bacteria in IC remains controversial at best. We have little conclusive evidence that IC is bacterial in nature.
Topics: 3,441 Posts: 28,362
3,441 28,362
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Alternative Therapies (1,441/10,611)
Cyclosporine (59/920)
Botox (294/2,544)
Other Treatments (952/6,440)
The IC Diet
Ask questions about diet and interstitial cystitis IC/PBS here!
Topics: 6,574 Posts: 46,350
6,574 46,350
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Share your favorite IC friendly recipes and menu ideas here!
Topics: 1,296 Posts: 3,200
1,296 3,200
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Main Dishes (149/497)
Casseroles (12/51)
Salads and Soups (79/216)
Desserts (152/396)
Hot Drinks (83/408)
Cold Drinks (64/268)
Cookies & Candy (50/190)
Cocktails (3/27)
Topics: 61 Posts: 194
61 194
Sub-Forums:
Breakfast (6/29)
Dinner (4/14)
Lunch (4/29)
Holidays (12/93)
Self-Help For Interstitial Cystitis
Are you struggling with hormonal changes?? Are they bothering your bladder?? Need to vent about your body changing?? Do it here!
Topics: 284 Posts: 1,896
284 1,896
Topics: 181 Posts: 1,110
181 1,110
Discuss your thoughts and concerns about depression and anxiety here.
Topics: 1,219 Posts: 12,419
1,219 12,419
Topics: 575 Posts: 4,515
575 4,515
Topics: 475 Posts: 3,602
475 3,602
Managing Interstitial Cystitis Flares
Discuss pain management strategies here!
Topics: 2,754 Posts: 23,977
2,754 23,977
Are you in a flare? Need support? Post here!
Topics: 3,740 Posts: 28,654
3,740 28,654
Please share your best interstitial cystitis flare coping strategies here! This is NOT to post questions about treatments, therapies or managing flares. We JUST want to hear great techniques for handling flares!
Topics: 644 Posts: 5,734
644 5,734
Related Conditions to Interstitial Cystitis
Research has demonstrated a clear connection between IC, IBS, vulvodynia, prostatodynia and other related conditions. Discuss them here!
Topics: 4,403 Posts: 31,295
4,403 31,295
Sub-Forums:
Fibromyalgia (92/611)
Vulvodynia (936/7,076)
Dry Eyes/Dry Mouth (141/909)
Fungal Infections (339/2,826)
Other Related Conditions (1,882/13,895)
Pregnancy and Parenting With Interstitial Cystitis
Topics: 1,211 Posts: 6,839
1,211 6,839
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I'm Pregnant! (689/6,382)
Infertility (63/396)
When a mother or wife develops IC, it can often impact how she feels about her abilities in those roles. Talk about it here!
Topics: 480 Posts: 4,112
480 4,112
Health Insurance & Disability Benefits
Is this a can of worms or what?? Ask questions or discuss any issues you might have with your health insurance coverage
Topics: 33 Posts: 135
33 135
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Topics: 272 Posts: 1,631
272 1,631
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Are you considering applying disability insurance? In the Appeals process? Post your questions here.
Topics: 804 Posts: 5,907
804 5,907
Social Life - Family, Friends, Dating
Topics: 220 Posts: 1,672
220 1,672
Sub-Forums:
Dating with IC (46/356)
Topics: 1,402 Posts: 12,748
1,402 12,748
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GREAT DEBATES
While research hasn't found one specific cause of interstitial cystitis, there are several strong opinions out there. What do you think about the cause of IC? Any ideas? Debate them here!
Topics: 398 Posts: 3,890
398 3,890
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