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ICN Announcements
Read the latest announcements about the Interstitial Cystitis Network here. From new site additions to newsletter releases, this is the place to get the latest ICN news!
Topics: 1,845
Posts: 9,042
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Patient Stories | ||||||||||||||||||
Chronic Infection - Fungal/Bacterial
There is considerable debate and discussion about the role of chronic infection in IC. Whether you are a fan of Dr. Fuzzy or Dr. Malone-Lee, please feel free to share your story here.
Topics: 10
Posts: 107
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10 | 107 |
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by icnmgrjill
07-16-2022, 11:55 AM
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Elmiron / Eye Discussions
Researchers at the Emory Eye Center have discovered maculopathy in SOME patients with IC who have taken Elmiron for long periods of time. Share your story here.
Topics: 29
Posts: 286
Last Post:
First cases going to trial in September
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Introduce yourself and share your story
Share Your Interstitial Cystitis Story Here. When did it start for you? How did it begin?? What interstitial cystitis treatments worked for you?
Topics: 6,785
Posts: 46,612
Last Post:
Carolanne
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Pain Care Challenges (Share Your Story!)
With pain care now greatly limited, we're collecting stories from patients who are struggling to find pain care and/or who are treated with disrespect. Please tell us your story!
Topics: 56
Posts: 306
Last Post:
Pain relief
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Newly Diagnosed With Interstitial Cystitis
Introduce Yourself and share your interstitial cystitis story here!
Topics: 7,186
Posts: 56,668
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IC Success Stories
Share your Interstitial Cystitis Success Story Here
Topics: 1,203
Posts: 12,862
Last Post:
Freedom from frequency and urgency!!!
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IC Veterans (5+ years living with IC)
This forum is for patients who have been living with IC for more than five years, who have wisdom to share but who also need support and encouragement
Topics: 38
Posts: 199
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Men with Interstitial Cystitis
Are you a newly diagnosed man? Meet others here!
Topics: 488
Posts: 3,557
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488 | 3,557 | ||||||||||||||||
My Interstitial Cystitis Is In Remission!
Yes, remission happens and happens often for interstitial cystitis patients. If you're in remission, please share your story and success tips here!
Topics: 420
Posts: 5,037
Last Post:
Accutane after IC
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Diagnostic Methods For Interstitial Cystitis | ||||||||||||||||||
General Diagnostic Questions
Ask questions about the diagnosis of IC, PFD and pelvic pain here!
Topics: 3,169
Posts: 19,099
Last Post:
Prolapse question
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Not Diagnosed Yet with Interstitial Cystitis?
Do you suspect you have interstitial cystitis but haven't been diagnosed yet? Post here!
Topics: 2,592
Posts: 19,130
Last Post:
IC or something else? 39 year old male
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Topics: 4,135
Posts: 31,715
Last Post:
Protein in urine
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Treatment Options | ||||||||||||||||||
Medical Marijuana and CBD
Share your experience using medical marijuana and/or CBD oil to relieve your symptoms.
Topics: 14
Posts: 160
Last Post:
Travelling with CBD
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Oral Medications
Oral medications are usually the first treatment options suggested for patients with mild to moderate bladder symptoms and/or pain.
Topics: 6,370
Posts: 40,672
Last Post:
Can Elmiron help me?
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Bladder Instillation Therapy
Bladder instillations are often performed for mild, moderate and, in some cases, severe IC.
Topics: 2,208
Posts: 16,039
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2,208 | 16,039 |
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by an0bgobeloba
07-27-2022, 05:56 PM
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Topics: 1,311
Posts: 9,409
Last Post:
great video I found about PFD and PT
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Topics: 1,869
Posts: 14,872
Last Post:
Have had success— Have question
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Surgical Interventions
Surgery is only considered after a patient has tried all of the other traditional therapies and is reserved for the most severe cases.
Topics: 1,090
Posts: 13,403
Last Post:
Please Help!
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Experimental or Controversial Treatments
Experimental therapies for interstitial cystitis (IC/PBS) are those currently being explored in research studies around the world. Their clinical trial results may not be available or are the result of a smaller, less credible study. We've included antibiotics in this discussion area because the role of bacteria in IC remains controversial at best. We have little conclusive evidence that IC is bacterial in nature.
Topics: 3,457
Posts: 28,339
Last Post:
LDN (low dose Naltrexone)
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The IC Diet | ||||||||||||||||||
General Diet Questions
Ask questions about diet and interstitial cystitis IC/PBS here!
Topics: 6,634
Posts: 46,151
Last Post:
Tonic water/soda water
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IC Diet: Recipes
Share your favorite IC friendly recipes and menu ideas here!
Topics: 1,321
Posts: 3,217
Last Post:
Packaged or canned snacks for IC?
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Topics: 62
Posts: 195
Last Post:
Start with Chicken
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Self-Help For Interstitial Cystitis | ||||||||||||||||||
PMS, Perimenopause, Menopause
Are you struggling with hormonal changes?? Are they bothering your bladder?? Need to vent about your body changing?? Do it here!
Topics: 295
Posts: 1,943
Last Post:
Flare up/Hormonal Fun
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Topics: 187
Posts: 1,125
Last Post:
Coping with all that's going on in our world
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Depression & Anxiety
Discuss your thoughts and concerns about depression and anxiety here.
Topics: 1,233
Posts: 12,417
Last Post:
I just don't understand
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Topics: 590
Posts: 4,568
Last Post:
estriol helped with vaginal dryness
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Topics: 480
Posts: 3,601
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Managing Interstitial Cystitis Flares | ||||||||||||||||||
Pain Management For Interstitial Cystitis
Discuss pain management strategies here!
Topics: 2,763
Posts: 23,734
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2,763 | 23,734 |
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by ICNDonna
01-08-2022, 05:39 AM
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Help! I'm in an interstitial cystitis flare!
Are you in a flare? Need support? Post here!
Topics: 3,804
Posts: 28,796
Last Post:
Flare intensifies
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Flare Coping Strategies For Interstitial Cystitis
Please share your best interstitial cystitis flare coping strategies here! This is NOT to post questions about treatments, therapies or managing flares. We JUST want to hear great techniques for handling flares!
Topics: 648
Posts: 5,750
Last Post:
lower abdominal swelling
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Related Conditions to Interstitial Cystitis | ||||||||||||||||||
IC & Other Related Conditions
Research has demonstrated a clear connection between IC, IBS, vulvodynia, prostatodynia and other related conditions. Discuss them here!
Topics: 4,428
Posts: 30,991
Last Post:
Coconut Oil
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Pregnancy and Parenting With Interstitial Cystitis | ||||||||||||||||||
Topics: 1,217
Posts: 6,842
Last Post:
Pregnant and miserable
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Parenting with IC
When a mother or wife develops IC, it can often impact how she feels about her abilities in those roles. Talk about it here!
Topics: 481
Posts: 4,111
Last Post:
Statistics for our kids getting this?
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Health Insurance & Disability Benefits | ||||||||||||||||||
Health Insurance
Is this a can of worms or what?? Ask questions or discuss any issues you might have with your health insurance coverage
Topics: 34
Posts: 141
Last Post:
Does MediCal cover Elmiron?
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Topics: 272
Posts: 1,629
Last Post:
This post is for you Donna :-)
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Social Security Disability Q&A
Are you considering applying disability insurance? In the Appeals process? Post your questions here.
Topics: 805
Posts: 5,904
Last Post:
Live Disability Application Journey
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Social Life - Family, Friends, Dating | ||||||||||||||||||
Topics: 223
Posts: 1,669
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223 | 1,669 | ||||||||||||||||
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Topics: 1,408
Posts: 12,693
Last Post:
Wife with severe IC needs Chemotherapy
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GREAT DEBATES | ||||||||||||||||||
What do you think causes Interstitial Cystitis?
While research hasn't found one specific cause of interstitial cystitis, there are several strong opinions out there. What do you think about the cause of IC? Any ideas? Debate them here!
Topics: 402
Posts: 3,885
Last Post:
Tms
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402 | 3,885 |