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Read the latest announcements about the Interstitial Cystitis Network here. From new site additions to newsletter releases, this is the place to get the latest ICN news!
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Posts: 9,054
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Dec 2018 - Please share any problems or bugs you've encountered while trying to use this new, updated software!
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Researchers at the Emory Eye Center have discovered maculopathy in SOME patients with IC who have taken Elmiron for long periods of time. Share your story here.
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Posts: 64
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Share Your Interstitial Cystitis Story Here. When did it start for you? How did it begin?? What interstitial cystitis treatments worked for you?
Topics: 6,647
Posts: 46,114
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With pain care now greatly limited, we're collecting stories from patients who are struggling to find pain care and/or who are treated with disrespect. Please tell us your story!
Topics: 16
Posts: 74
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Introduce Yourself and share your interstitial cystitis story here!
Topics: 7,169
Posts: 56,958
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Share your Interstitial Cystitis Success Story Here
Topics: 1,176
Posts: 12,727
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This forum is for patients who have been living with IC for more than five years, who have wisdom to share but who also need support and encouragement
Topics: 17
Posts: 91
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Are you a newly diagnosed man? Meet others here!
Topics: 464
Posts: 3,470
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Yes, remission happens and happens often for interstitial cystitis patients. If you're in remission, please share your story and success tips here!
Topics: 414
Posts: 5,034
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| Diagnostic Methods For Interstitial Cystitis | ||||||||||||||||||
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Ask questions about the diagnosis of IC, PFD and pelvic pain here!
Topics: 3,126
Posts: 19,366
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Do you suspect you have interstitial cystitis but haven't been diagnosed yet? Post here!
Topics: 2,570
Posts: 19,040
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Topics: 4,092
Posts: 31,770
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Share your experience using medical marijuana and/or CBD oil to relieve your symptoms.
Topics: 6
Posts: 106
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Oral medications are usually the first treatment options suggested for patients with mild to moderate bladder symptoms and/or pain.
Topics: 6,286
Posts: 40,811
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Bladder instillations are often performed for mild, moderate and, in some cases, severe IC.
Topics: 2,182
Posts: 16,026
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Topics: 1,299
Posts: 9,448
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Topics: 1,864
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Surgery is only considered after a patient has tried all of the other traditional therapies and is reserved for the most severe cases.
Topics: 1,087
Posts: 13,370
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Experimental therapies for interstitial cystitis (IC/PBS) are those currently being explored in research studies around the world. Their clinical trial results may not be available or are the result of a smaller, less credible study. We've included antibiotics in this discussion area because the role of bacteria in IC remains controversial at best. We have little conclusive evidence that IC is bacterial in nature.
Topics: 3,441
Posts: 28,362
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| The IC Diet | ||||||||||||||||||
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Ask questions about diet and interstitial cystitis IC/PBS here!
Topics: 6,574
Posts: 46,350
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Share your favorite IC friendly recipes and menu ideas here!
Topics: 1,296
Posts: 3,200
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Topics: 61
Posts: 194
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| Self-Help For Interstitial Cystitis | ||||||||||||||||||
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Are you struggling with hormonal changes?? Are they bothering your bladder?? Need to vent about your body changing?? Do it here!
Topics: 284
Posts: 1,896
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Topics: 181
Posts: 1,110
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Discuss your thoughts and concerns about depression and anxiety here.
Topics: 1,219
Posts: 12,419
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Topics: 575
Posts: 4,515
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Topics: 475
Posts: 3,602
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| Managing Interstitial Cystitis Flares | ||||||||||||||||||
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Discuss pain management strategies here!
Topics: 2,754
Posts: 23,977
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Are you in a flare? Need support? Post here!
Topics: 3,740
Posts: 28,654
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Please share your best interstitial cystitis flare coping strategies here! This is NOT to post questions about treatments, therapies or managing flares. We JUST want to hear great techniques for handling flares!
Topics: 644
Posts: 5,734
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| Related Conditions to Interstitial Cystitis | ||||||||||||||||||
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Research has demonstrated a clear connection between IC, IBS, vulvodynia, prostatodynia and other related conditions. Discuss them here!
Topics: 4,403
Posts: 31,295
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| Pregnancy and Parenting With Interstitial Cystitis | ||||||||||||||||||
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Topics: 1,211
Posts: 6,839
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When a mother or wife develops IC, it can often impact how she feels about her abilities in those roles. Talk about it here!
Topics: 480
Posts: 4,112
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Is this a can of worms or what?? Ask questions or discuss any issues you might have with your health insurance coverage
Topics: 33
Posts: 135
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Topics: 272
Posts: 1,631
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Are you considering applying disability insurance? In the Appeals process? Post your questions here.
Topics: 804
Posts: 5,907
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| Social Life - Family, Friends, Dating | ||||||||||||||||||
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Topics: 220
Posts: 1,672
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Topics: 1,402
Posts: 12,748
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| GREAT DEBATES | ||||||||||||||||||
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While research hasn't found one specific cause of interstitial cystitis, there are several strong opinions out there. What do you think about the cause of IC? Any ideas? Debate them here!
Topics: 398
Posts: 3,890
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