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  • Posting Doctors that have helped us

    For those struggling because their doctor isn't good enough, maybe we should have a place to rate doctors on things to help others find doctors that have helped an one of us. I know there is a list, but we could hlep that list to grow if we add the doctors that have helped us somewhere on the message board.
    Faith, Hope, and Love,
    Katrina


    I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back!

    IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    or find me on facebook http://www.facebook.com/kat671?ref=profile
    Be the Miracle! & Pay it Forward!

    [email protected] please contact me...I am here to help!

  • #2
    Great idea.
    Ginny

    Comment


    • #3
      If you go to http://www.ic-network.com/md/submit.html you will find a form you can complete to recommend a physician. It does take a while because we contact the physician to request permission before listing on our site.

      If you go to the pull-down menu "browse our site" at the top of this page, you will find Physician listings there.

      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment


      • #4
        And like I said the message board would be very different then that. Only our, the patients would recommend doctors, we could rate them, so we could also give warnings on bad ones.
        1-5
        1=bad
        5=good
        Rate on different things.
        Something that does not need the doctors permission. Soemting that is meaningful to us, because it was made by us.
        Faith, Hope, and Love,
        Katrina


        I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back!

        IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        or find me on facebook http://www.facebook.com/kat671?ref=profile
        Be the Miracle! & Pay it Forward!

        [email protected] please contact me...I am here to help!

        Comment


        • #5
          I don't think it would fly b/c you can't say something bad about a doctor by name on these boards. You can do it in PM or e-mail, but not publicly on the boards.
          Kim

          Diagnosed August 2001

          Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)


          Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

          I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

          *****************************

          “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

          “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

          Comment


          • #6
            No doctor is contacted and asked for permission to be listed on the IC Network without first being recommended by another IC Patient.

            And posting negative statements about physicians would put the IC Network in legal jeopardy.

            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment


            • #7
              oh well then
              Faith, Hope, and Love,
              Katrina


              I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back!

              IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
              or find me on facebook http://www.facebook.com/kat671?ref=profile
              Be the Miracle! & Pay it Forward!

              [email protected] please contact me...I am here to help!

              Comment


              • #8
                How do you get a doctor's name off the list?

                Ginny

                Comment


                • #9
                  Ginny: Are you asking how to have a doctor's name removed from the list? If so, what you need to do is to email either me or Jill with specific details as to why the doctor's name should be removed.

                  Donna
                  Stay safe


                  Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                  Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                  Have you checked the ICN Shop?
                  Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                  Patient Help: http://www.ic-network.com/patientlinks.html

                  Sub-types https://www.ic-network.com/five-pote...markably-well/

                  Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                  AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                  I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                  [3MG]

                  Anyone who says something is foolproof hasn't met a determined fool

                  Comment


                  • #10
                    Hi-
                    This is what I did when I wanted to know about a doctor. The doctor is well'known and is on the list. I asked in the forum for private messages about this doctor and I was able to decide for myself. Maybe we could have a such a board where we post requests for info to be sent only by PM.

                    Christa

                    Comment


                    • #11
                      You also can call the doctors office and request a copy of there credentials.... you can look them up in the bbb.
                      Brat
                      'The will of God will never take you where the Grace of God will not protect you.'

                      Comment


                      • #12
                        Donna:

                        And if my dr is from México, can I recommend too?

                        Comment


                        • #13
                          Flore, you can recommend a doctor in Mexico.

                          Donna
                          Stay safe


                          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                          Have you checked the ICN Shop?
                          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                          Patient Help: http://www.ic-network.com/patientlinks.html

                          Sub-types https://www.ic-network.com/five-pote...markably-well/

                          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                          [3MG]

                          Anyone who says something is foolproof hasn't met a determined fool

                          Comment


                          • #14
                            You can't really depend on other's experiences. I went to a doctor who was listed as being very good with ic. Maybe he was having a bad day, but I felt like he blew me off. My friend went to the same doc, she thinks he is wonderful! I am glad she is happy, but I won't go back. My PC is great though, he does not know alot about ic, but he listens to me and respects my opinon on what treatment I think I may need!
                            peace

                            Comment


                            • #15
                              Great ic doctor.

                              There is a great ic doctor in Baltimore Maryland, he just moved from Kansas University Med, I miss him alot because the uro I have now is aweful.
                              Grace

                              Of all the things I've lost, I miss my mind the most!

                              ic diagnosed july 2002
                              chronic sinusitis diagnosed april 2006
                              common variable immunodifciency diagnosed July2006
                              adheasions disease diagnosed October 1990
                              Asthma forever
                              allergies forever
                              insomnia forever
                              fibromyalgia diagnosed Feb 1994
                              interstim implant Nov 2003
                              depression and anxiety diagnosed 1992
                              pfd diagnosed 1995
                              glaucoma diagnose 2007

                              meds:
                              remeron
                              trazadone
                              ativan
                              prosed ds
                              allegra
                              hydrocodone
                              naselcort
                              ditropan
                              hydroxzine
                              lisinopril-hctz
                              estrogen
                              retoril

                              Comment

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