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  • #31
    I know that this is an old post, but I am very interested in having an IC bracelet. I noticed ther were none in the IC shop. If not, then where can I buy one. I also want to buy other bracelets for other causes.


    Thank you,
    Mel
    Meds I take:
    Elmiron, Elavil, Vagifem- for IC
    Albuterol, Flovent, Atrovent- for Asthma and lung problems
    Paxil, Clonazepam- for depression and Anxiety
    Atenolol- for rapid heart rate
    Nexium- for Gerd
    Levothyroxin- for Hypothyroidism
    Lasix, Pottasium- for edema
    Lipitor- for High Cholesterol
    I coated aspirin
    02 at bedtime

    Comment

    • #32
      i can't find them. computers are not my thing
      Current: -pelvic floor therapy, -weekly uracyst instills

      Comment

      • #33
        I can't find them either
        Hugs
        Machele


        Diagnosed w/ IC Oct 98 via Hydro
        Migraines,IBS,VV,PFD,Endometriosis,
        insomnia,depression
        Disability in 99 very easy
        Hysterectomy in 2000 left in ovaries
        Right ovary out in March 03 Cysts
        Too many Hydro's to count

        Meds,
        Lortab
        Amitriptyline Up to 100mg
        Lorazapam. stopped useing.Trying benadryl for sleep
        Imitrex when needed plus injections if needed for migrains,


        Dance as if no one is watching.Laugh as much as you can.Live as if there's no tomorrow

        Comment

        • #34
          Jill had the bracelets made years ago. I believe they sold out rather quickly. I don't think she has placed another order for them since...Sorry
          Sharon

          Shopping??? Did someone mention shopping? I'll get my hat... ;-)

          Where I can be found most days.



          Link to the ICN Patient Handbook:
          http://www.ic-network.com/handbook/

          Link to the IC Diet:
          http://www.ic-network.com/diet/


          IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

          Comment

          • #35
            I am just wondering where I can buy them. Does anybody know?
            Meds I take:
            Elmiron, Elavil, Vagifem- for IC
            Albuterol, Flovent, Atrovent- for Asthma and lung problems
            Paxil, Clonazepam- for depression and Anxiety
            Atenolol- for rapid heart rate
            Nexium- for Gerd
            Levothyroxin- for Hypothyroidism
            Lasix, Pottasium- for edema
            Lipitor- for High Cholesterol
            I coated aspirin
            02 at bedtime

            Comment

            • #36
              i didn't realize this post was so old. obviously paying attention isn't my thing either hehehe... is there any possibility that jill could order them again? 3 years was a while ago, i'm sure there are lots of new icers that would love one...i know i'm one of them
              Current: -pelvic floor therapy, -weekly uracyst instills

              Comment

              • #37
                I have asked Jill about this. And she did look into it. But I believe the place she was looking was to expensive.
                Hugs
                Ronda

                ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


                Link to Patient Handbook:
                http://www.ic-network.com/handbook/

                Diet Reference Sheet:
                http://www.ic-network.com/diet/icndi...tsheet0909.pdf

                Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                Meds I have Tried:
                Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                Lexapro< Bad reaction to this med!
                Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                Dx With IC in Nov 2006 with Hydro/Cysto
                Hydro/Cysto Caused Bladder to Rupture.

                Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


                ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                Comment

                • #38
                  They are like a $1000 a pop to order in quantity so I'd need to know that there was real demand for them. (i.e. that we'd be able to sell atleast a thousand to make up for the cost.)

                  Jill
                  Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality. http://www.icnsales.com/icn-personal-coaching/

                  Looking for books, magazines & reports on IC? Please visit the ICN Shop at: http://www.icnsales.com: Your ICN subscription & purchases in our shop support these message boards, chats and special events. BECOME AN ICN ANGEL TODAY!

                  Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.






                  Comment

                  • #39
                    Thanks Jill! I found a site that sells them. I will not recommend them until I get the wristbands in the mail and then I will find out how much they cost in bulk. We will see what happens. I am only out almost 9 dollars, which most of it is shipping costs, if things don't pull through.

                    Mel
                    Meds I take:
                    Elmiron, Elavil, Vagifem- for IC
                    Albuterol, Flovent, Atrovent- for Asthma and lung problems
                    Paxil, Clonazepam- for depression and Anxiety
                    Atenolol- for rapid heart rate
                    Nexium- for Gerd
                    Levothyroxin- for Hypothyroidism
                    Lasix, Pottasium- for edema
                    Lipitor- for High Cholesterol
                    I coated aspirin
                    02 at bedtime

                    Comment

                    • #40
                      Thanks Jill I'll wait with Mel53H and see what they are
                      thanks Mel
                      Hugs
                      Machele


                      Diagnosed w/ IC Oct 98 via Hydro
                      Migraines,IBS,VV,PFD,Endometriosis,
                      insomnia,depression
                      Disability in 99 very easy
                      Hysterectomy in 2000 left in ovaries
                      Right ovary out in March 03 Cysts
                      Too many Hydro's to count

                      Meds,
                      Lortab
                      Amitriptyline Up to 100mg
                      Lorazapam. stopped useing.Trying benadryl for sleep
                      Imitrex when needed plus injections if needed for migrains,


                      Dance as if no one is watching.Laugh as much as you can.Live as if there's no tomorrow

                      Comment

                      • #41
                        I would definetly buy them. I am sure lots of others would also.
                        Diagnosed: November 07
                        Medications:
                        toprol 50mgs(high blood pressure & fast
                        heart beat)
                        Elmiron 100mgs 3 x day
                        Ativan .05 mgs when needed
                        Zegerid 40mgs for gerd
                        Allegra for seasonal allergies
                        Hydrocodone when needed

                        Supplements:
                        Take on and off Bladder Q & MSM Glucousamine.



                        Have a wonderful husband and 3 darling children and precious sheppard named Peppie who are all my true angels Dedicating this for my Mom who also had IC and is now my in heaven.

                        Comment

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