i just joined your group. I have been diagnosed with IC fir 3 years now.
I had a hysterectomy 3 weeks ago, and I am having very painful spasms of the bladder and the urethera. The pain will bring me to my knees, along with the pain of the hysterectomy this is very painful [everyday } Has anyone had a hysterectomy out there, with IC, and had pain constantly? Will it get any better? I just need sombody to talk to and tell me her experience. I often cry out of frusteration and I feel alone. The surgeon got frusterated with me post-op, gave me some flavoxate, ( that never works past and present) 1 week of pain med and said, ADIOS, and good luck! It seems Dr.'s are annoyed with us with IC. They can't fix it, they get annoyed, give us urispas or bladder relaxants,, and send us to somebody else. I have been to a couple of urologists, but there is nothing that has worked I tried the elmiron antidepressants ,instills, everything available. I am very fortunate to have the same primary care doc for 25 years, and he is kind, and he helps me with my pain meds as needed. If anybody can help, please reply to my post!
Thanks! G
I had a hysterectomy 3 weeks ago, and I am having very painful spasms of the bladder and the urethera. The pain will bring me to my knees, along with the pain of the hysterectomy this is very painful [everyday } Has anyone had a hysterectomy out there, with IC, and had pain constantly? Will it get any better? I just need sombody to talk to and tell me her experience. I often cry out of frusteration and I feel alone. The surgeon got frusterated with me post-op, gave me some flavoxate, ( that never works past and present) 1 week of pain med and said, ADIOS, and good luck! It seems Dr.'s are annoyed with us with IC. They can't fix it, they get annoyed, give us urispas or bladder relaxants,, and send us to somebody else. I have been to a couple of urologists, but there is nothing that has worked I tried the elmiron antidepressants ,instills, everything available. I am very fortunate to have the same primary care doc for 25 years, and he is kind, and he helps me with my pain meds as needed. If anybody can help, please reply to my post!
Thanks! G

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