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If AZO/Pyridium doesn't help, does this mean that what I have is PFD and not IC?

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  • If AZO/Pyridium doesn't help, does this mean that what I have is PFD and not IC?

    I took a total of 4 AZO tablets, and it made no difference to my urgency. Azo is supposed to numb the bladder. If my bladder is numb and I still experience urgency, does it make sense that my problem has to do with the muscles near my bladder, and not the bladder itself?

  • #2
    Pyridium can be a huge help if the problem is irritation of the bladder lining --- sometimes it's a huge help, especially if there's infection present. The fact that it didn't help may be a clue, and definitely tell your doctor at your appointment, but doesn't necessarily rule out IC. When I have a flare, I have bladder spasms, which involves the bladder muscles.

    Having a medical problem and not having a diagnosis is awful --- I understand --- my absolute worst time with IC was before diagnosis.

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      I got some relief about 6 hours after I took the second set of two pills. Perhaps its effect got delayed. Very strange.

      Comment


      • #4
        Sometimes the pelvic floor can contribute to IC. I had IC, pelvic floor dysfunction and pudendal neuropathy. Physical therapy who deals with pelvic floor problems helped me tremendously.

        Comment


        • #5
          Originally posted by Barbara M View Post
          Sometimes the pelvic floor can contribute to IC. I had IC, pelvic floor dysfunction and pudendal neuropathy. Physical therapy who deals with pelvic floor problems helped me tremendously.
          Recent studies are providing information to help ICers identify which subtype fits best. Thank you for sharing your success with physical therapy.

          Warm hugs,
          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

          Comment


          • #6
            Originally posted by ICNDonna View Post

            Recent studies are providing information to help ICers identify which subtype fits best. Thank you for sharing your success with physical therapy.

            Warm hugs,
            Donna
            Hello, Donna

            How have you been?

            About a year ago I began suffering from IC. After about six months it mostly went away for several months, but unfortunately then the urgency and frequency came back. I wake up every 2 hours.

            I tried pelvic floor exercises. Then somehow I ended up not doing my exercises for a month, and it was Then when I got my remission lasting several months. So I am no longer sure about those exercises.

            It is very difficult to figure out what sets it off. Foods like cucumbers seem to be bad. It is almost like what is happening is that whenever my bladder fills too fast (e.g., if I eat a lot of salad that has a high water content), a crack in my bladder wall gets stretched out leading to irritation and a bad night.

            Donna, have you heard of this type of IC - urgency and frequency following the sufferer drinking too much and too fast or eating foods with high water content? I am still at a loss of what I can do to feel better...

            Thank you, Donna!

            Best wishes,


            Bill

            Comment


            • #7
              It's great to hear from you. I'm doing pretty well other than a severe case of boredom and tired of wearing a mask.

              It's not unusual to have more frequency from drinking too much too quickly --- I do better if I take small drinks throughout the day. If you're also drinking anything along water foods I suspect that could do the same. The fact that you had a remission that lasted for months says that you can get there again. Did you have any medical treatments before the remission?

              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help: http://www.ic-network.com/patientlinks.html

              Sub-types https://www.ic-network.com/five-pote...markably-well/

              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
              [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

              Comment


              • #8
                Originally posted by ICNDonna View Post
                It's not unusual to have more frequency from drinking too much too quickly --- I do better if I take small drinks throughout the day.
                Thank you for confirming that there might be something to the pattern that I was able to finally identify. I should have also mentioned that I might eat cucumbers and drink water at noon, and that would be enough to give me frequency at night (12-18 hours later...)

                I will try to be strict about drinking only small amounts of water.

                Originally posted by ICNDonna View Post
                tired of wearing a mask.
                I had to switch to a mask that loops around my entire head, instead of looping around my ears. The back of my ears were getting irritated.


                Originally posted by ICNDonna View Post
                The fact that you had a remission that lasted for months says that you can get there again. Did you have any medical treatments before the remission?
                I got my insurance company approve Elmiron instillations. But then I kept postponing doing the instillations. So I haven't really done any medical treatment. I changed my diet...

                I suspect that one cause of flares for me is cheese. This is really bizarre - cheese isn't acidic...

                Comment


                • #9
                  I have both hearing aids and glasses so the ear bands don't work at all for me --- every time I took off the mask I would have a hearing aid on the floor and they are soooo expensive. I make most of mine with elastic that goes below my ears behind my neck. Since we've seen such a huge increase in cases where I live, I've gone to the N95 ones and I purchased some plastic things that attach to the ear bands and fit around my neck.

                  Donna
                  Stay safe


                  Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                  Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                  Have you checked the ICN Shop?
                  Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                  Patient Help: http://www.ic-network.com/patientlinks.html

                  Sub-types https://www.ic-network.com/five-pote...markably-well/

                  Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                  AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                  I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                  [3MG]

                  Anyone who says something is foolproof hasn't met a determined fool

                  Comment


                  • #10
                    Originally posted by ICNDonna View Post
                    I have both hearing aids and glasses so the ear bands don't work at all for me --- every time I took off the mask I would have a hearing aid on the floor and they are soooo expensive. I make most of mine with elastic that goes below my ears behind my neck. Since we've seen such a huge increase in cases where I live, I've gone to the N95 ones and I purchased some plastic things that attach to the ear bands and fit around my neck.

                    Donna
                    I began using N95 masks as soon as they became available. The discomfort is the same but there is a chance that one gets greater protection. Having said that, it is my understanding that Omicron is significantly less deadly than the previous variants (as it usually affects the upper respiratory tract, instead of the lower respiratory tract).

                    Comment


                    • #11
                      I've read the same. My daughter is an avid researcher who does everything she can to keep me safe and there were over 500 new cases in our county for two consecutive days this week. I suspect it's the result of festivities over the holidays?

                      I just ordered some N95 masks that have elastic around the neck and over the top of the head --- they should be here within about two days. I've been wearing the N95 with the neck gizmo, but it's not very comfortable --- hoping the new ones will be better. I wish I had shares in Amazon! I'll post when I get the new ones.

                      Donna
                      Stay safe


                      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                      Have you checked the ICN Shop?
                      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                      Patient Help: http://www.ic-network.com/patientlinks.html

                      Sub-types https://www.ic-network.com/five-pote...markably-well/

                      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                      [3MG]

                      Anyone who says something is foolproof hasn't met a determined fool

                      Comment


                      • #12
                        Originally posted by ICNDonna View Post
                        I'll post when I get the new ones.
                        Please do! I am always on the lookout for masks that are effective and comfortable.

                        About 10 years ago I had a chance to visit Japan. Back then many Japanese have already been wearing masks in public. I thought that I might as well buy myself one of these masks, just in case. I found one that said 99.9% on it. The package had 2 masks in it and was selling for the equivalent of $10. Looking at one of those masks NOW, I see that it is just a regular surgical mask(!) It definitely Doesn't filter 95% of those smaller particles, let alone 99.9%... What a scam!!!

                        Comment


                        • #13
                          WOW --- ten years ago --- I wonder if it was this same virus --- I had assumed it was a newer mutant than that.

                          I just checked for my incoming mail (usps informed delivery) and the new masks are scheduled to be delivered today.

                          Donna
                          Stay safe


                          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                          Have you checked the ICN Shop?
                          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                          Patient Help: http://www.ic-network.com/patientlinks.html

                          Sub-types https://www.ic-network.com/five-pote...markably-well/

                          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                          [3MG]

                          Anyone who says something is foolproof hasn't met a determined fool

                          Comment


                          • #14
                            Originally posted by ICNDonna View Post
                            WOW --- ten years ago --- I wonder if it was this same virus --- I had assumed it was a newer mutant than that.
                            No, in Japan they had it socially acceptable to wear masks in public (and possibly socially unacceptable to have a cold or flu and be out in public without a mask) for many decades now. I read that some women would wear a mask when they didn't feel like wearing makeup.

                            Comment


                            • #15
                              I have to admit that wearing a mask can cover things like wrinkles and those days when I don't want to bother with makeup. I do wish everyone would mask up until this is over.

                              Donna
                              Stay safe


                              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                              Have you checked the ICN Shop?
                              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                              Patient Help: http://www.ic-network.com/patientlinks.html

                              Sub-types https://www.ic-network.com/five-pote...markably-well/

                              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                              [3MG]

                              Anyone who says something is foolproof hasn't met a determined fool

                              Comment

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