Announcement

Collapse
No announcement yet.

first cysto/hydro

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • first cysto/hydro

    Hi, I'm having my first cysto/hydro on Friday. Really not looking forward to it! I've read the good,the bad & the ugly about this. I probably shouldn't have read anything!! Please say a prayer for me or wish me luck! Thanks, Grace
    Last edited by grace 2; 05-02-2006, 03:54 AM.
    When I am afraid, I will trust in you. Psalm 56:3

  • #2
    I just had my first one on 3/4/04... I was diagnosed with IC that day. It's actually not that bad, so don't worry too much (if that's possible

    I was out cold for the whole thing, and was given pain meds for afterwards. There was some burning/pain the first few times I peed afterwards. And also, be prepared to see a little blood in your urine as well... that is normal after cysto/hydro.

    Other than that, good luck!!! You'll do great

    Sending encouraging hugs,

    Jen
    grouphug grouphug
    ****
    Jen

    *Diagnosed with severe IC in 2004
    *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
    *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
    *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

    **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Comment


    • #3
      Hi Grace,
      I had my cysto/hydro done 3-04-04 ... I had wonderful nurses. They gave me pain med's right away and as Jen said it burned alittle to urine afterwards and slight blood too. Good luck and I'll say a prayer for you!
      KELLY
      To the world you might be one person but to one person you might be the world..
      I am a newbie Angel ~IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      Comment


      • #4
        Hi Grace,

        It will not be bad, you will be knocked out and when you wake up you'll know the results!! I had mine done over a year ago, and trust me, I would do it all over again if need be.

        Hugs and love,
        Jess
        Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!

        Comment


        • #5
          I hve had many hydrodistentions and for me at least they are not bad --- not my favorite way to spend a day, but definitely not horrible.

          The first few times you urinate, you need to be prepared for it to feel like you are turning inside out, but that's the worst part of it. I plan to take it easy for a few days after a hydro, but I can do things like make dinner and go for walks within a day or two.

          And sometimes people get a lot of relief from the procedure --- I know I do. I hope you will also find it helps.

          Warm healing thoughts,
          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

          Comment


          • #6
            Hugs to you will be thinking of you.. let us know how it goes grouphug
            Brat
            'The will of God will never take you where the Grace of God will not protect you.'

            Comment


            • #7
              Thanks for the encouragment! Grace
              When I am afraid, I will trust in you. Psalm 56:3

              Comment

              Working...
              X