Hi all,
I've had a very bad flare up for the past 7 days (well, really 3 weeks with a brief respite for a few days). I've never experienced anything so bad and this is the first time I've been house-bound b/c of it.
I'm going every 10 minutes (though I could go more if I let myself)...the worst part of it is that even when I just go, I only get relief for a few seconds & as soon as I stand up, there's that feeling of "having to go" again. I'm going for my first hydro this Tues & am just hanging in until then, praying I'll be lucky & it will work for me.
The big question I have on my mind is:
How many of you have ever had this symptom (the "needing to go" feeling being there all the time) and urgency and have gone for a hydro and have been helped?
Also, what did you do if those were your sympotoms & the hydro didn't help??
(ugh). I've done DMSO, atarax, Elmiron, pyridium, had a catheter in the other day (still felt like I had to go even though my bladder was emptying!)...
I've very very frightened by the possiblity that this won't help b/c I'm literally just hanging in there, so if anyone has had symptoms like mine and has found that it helped for them (or didn't) I would love to hear from you.
Thanks everyone, its wonderful to be able to turn somewhere for advice!
Shelley
I've had a very bad flare up for the past 7 days (well, really 3 weeks with a brief respite for a few days). I've never experienced anything so bad and this is the first time I've been house-bound b/c of it.
I'm going every 10 minutes (though I could go more if I let myself)...the worst part of it is that even when I just go, I only get relief for a few seconds & as soon as I stand up, there's that feeling of "having to go" again. I'm going for my first hydro this Tues & am just hanging in until then, praying I'll be lucky & it will work for me.
The big question I have on my mind is:

How many of you have ever had this symptom (the "needing to go" feeling being there all the time) and urgency and have gone for a hydro and have been helped?


I've very very frightened by the possiblity that this won't help b/c I'm literally just hanging in there, so if anyone has had symptoms like mine and has found that it helped for them (or didn't) I would love to hear from you.
Thanks everyone, its wonderful to be able to turn somewhere for advice!
Shelley
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