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  • You Have got to be kidding me --this is terrible

    You Have got to be kidding me--I am scedualed for a hyrdo cystoscopy Feb 26th--I am told it takes about 15-20 minutes in "lalaland"--you mean to tell me that I will be in pain for week??? I am cancelling my appt--Im not going through weeks/months of pain after--why is there pain????? I wasnt told that there would be all this pain after. Can someopne enlighten me? I am now afraid..Im having fentanyl and versaid they said. Can some one help me please--thanks Cathy

  • #2
    Cathy,
    I had a cysto-hydro in July.. I was put under for it. I woke up and was ready to eat and ready to go!!!
    There was a bit of burning first pee.. In an hour I was let go. I had to have a driver. The hydro did not help me but the best thing was I found out what was wrong and could get on with finding things that will work for me..I am on Elmiron and it has helped me..I still get flares but I have only been on it since end of Sept.
    Some people do get relief from hydros!!
    All the best..
    ~~Pam~~
    God brought me to it, He will bring me through it!!!

    Diagnosed 2003
    by cysto/hydro
    Elmiron took almost a year- made me sick, caused diarrhea
    Pyridium -Made me sick
    Detrol and Ditropan, Toviaz and Mrrbetriq- caused constipation and head ache.
    Tried DMSO instill- had 5 out of 6
    Started Oxytrol Patch-stopped using them after 3 months-- skin was getting irritated
    Cysto/hydro April 6th 2011-- on expansion only hold one cup
    IBS/ IC
    High blood pressure meds and Crestor
    Metformin (prediabetic)
    Sinequan (depression)

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    • #3
      I had a few days of slight burning after my hydro but that was all. Anything was better than the IC pain.

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      • #4
        I posted my hydro experience sorry that I scared you we are all different..Brat
        'The will of God will never take you where the Grace of God will not protect you.'

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        • #5
          I had my first hydrodistention to diagnose my IC back in 1975 and have now ha the procedure done 35 times. I go at least six months, and usually a year or more, between hydros. When the pain hits again and won't stop, then we schedule another hydro.

          My doctor keeps me in the hospital overnight for pain control and a continuous irrigation and by the time I go home, I feel much better than at admission.

          I read an article in my doctor's office that said something like 50% of ICers experience relief from hydrodistention. I feel fortunate to be one of those.

          I do have to admit that the first few times I urinate after a hydro I feel like one solid goosebump.

          And my doctor always orders pain medications for me, but I rarely need more than one or two after I go home.

          Sending an encouraging hug,
          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

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          • #6
            Hello, I had one done Feb 28 of last year. It was so not bad at all. I was scared at first, then they give me a shot, and I woke up and it was done...I had abit of blood in my urine. My bladder felt abit weird a few days after..then I was fine. I didn't have more or less pain.. i'm here i you ever need to ask some question.
            Kiyoka

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            • #7
              Dont be scared its different for everyone My Dr said its depends on ones bladder some are worse than others.
              I had my Hydro last Thursday I am still alittle sore feels like a deep bruise and I still burn some when I pee.
              I just remember the releif I felt after the bloating and burning when away last hydro wink
              Think about it read everything you will see we are all different grouphug
              Be grateful when you are feeling good,and graceful when you are feeling bad

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              • #8
                HYDROS AFFECT EVERYONE DIFFERENTLY. I HAD ONE IN JAN. AND MY FIRST WEEK WAS NOT TOO GOOD. MY SECOND WEEK WAS BETTER. ALTHOUGH I HAVE TO SAY I HAVE STILL HAD PAIN AND FLAIR UPS. I BELIEVE I WILL NOTICE THE FULL AFFECT FROM THE HYDRO IN ANOTHER MONTH OR SO. THIS IS WHAT HAPPENED TO ME BEFORE. I HAVE HAD FOUR HYDRO'S.

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                • #9
                  I had my first cysto/hydro last year when I was diagnosed and it gave me my life back. I was better almost immediately. I told my docor I was cured. He of course shook his head and laughed knowing of course I wasnt but it was months befor I even had a mini flare. The next big one I'll be right back in there having another. Sue

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