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Cysto--2 years old....no hydro...no medicine-helo

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  • Cysto--2 years old....no hydro...no medicine-helo

    Hi friends:

    I had a cysto done 2 years ago with no hydro...my choice on the no hydro....

    But, my urologist came to the conclusion that I have IC -mild based on my symptoms....frequent urination and bladder pressure.......no infection and microscopic blood in urine.

    She offered me Elmiron and Elavil, but I said no I wanted to try and heal my body naturally.......

    So it's been 2 years and I feel that I've really gotten better. watching what I eat, I do yoga and I go to a massage therapist.......

    I do still flare on and off....but nothing like it used to be....it has gotten so much better...and I just stopped the birth control pill after 12+ years.........

    My question is:......could I be hurting my bladder not going on medicine?

    I just have heard so many stories of the hydrodistension being very controversial.....some say yes to get it and some say no..........so I didn't.....

    I guess in the back of my mind, I"m always wondering....is that really what I have?

    But, what else could it be????

    Anybody else here just have the cysto -no hydro and gone the natural route?

    I want to have children in the next year or so, so I really don't want to get on any medicine....

    I just had sex though for the first time in 3 months and used Trojan -extra strength....lubricated --no spermicide and I'm in a terribe terrible flare...

    So now I"m back at square one....I felt like I was in remission for over a year and now I have extreme frequency and pressure......

    My husband said he could not feel anything during sex due to the condom....so I got on top and he could feel it better, but we did it for a longer time and since I was on top it was going deeper .....

    and now I'm flared bad bad....like I used to be 2 years ago.....I feel that my remission is gone...

    I'm so sad and upset about my bladder and SEX.....

    thanks for listening friends
    bunni

  • #2
    Unfortunately, with IC there are some sometimes tough decisions to make. I chose the medical route, complete with hydrodistentions and medications. I know there are some people who can completely control symptoms with diet alone.

    The best advice I can think of is to explore all your options, then make the decision you think is best for you.

    Sending an encouraging hug,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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