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  • after cysto/hydro

    Hi, Just thought I'd let you know how it went. Very smoothly really. My bladder pics. confirme IC. I'm having more burning and pain, but not as bad as I imagined. All the pain meds. slow me down and I have been fighting constipation I guess it's too soon to tell if the cysto will help yet. My dr. has me on elmiron. Any suggestions on what to take for the pain that won't constipate?? I've cut way back on what they sent home with me. Thanks for your support! Grace
    When I am afraid, I will trust in you. Psalm 56:3

  • #2
    Hi Grace,

    I'm sorry to hear it is IC, but at least you know now and can start getting adequate treatment. grouphug

    As for constipation, my cysto/hydro was a week ago, and I am just getting over the constipation the pain meds caused NOW. Donna and Kathi on these boards suggested taking the stool softener Colace (the one without the chemical laxatives in it), and that combined with stopping the narcotic pain meds seemed to get things moving again for me.

    Jen
    ****
    Jen

    *Diagnosed with severe IC in 2004
    *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
    *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
    *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

    **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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    • #3
      Hi glad you came through it ok--glad you have an answer--maybe try some citrucel? best of luck to you--Cathy
      Last edited by cathyada; 03-19-2004, 01:43 PM.

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      • #4
        Grace, I am glad you got through it and now you know for sure about the IC and can start treatment. I can't help much with the constipation problem. For me eating a high fiber diet helps but everyone is so different. Make sure you are drinking enough, that may help also.
        Hugs coming your way. grouphug
        Jolene

        "Life is what happens when you are making other plans" John Lennon

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        Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

        "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

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        • #5
          For short term use I find the thing that works best for me is plain old milk of magnesia. It's what my doctor suggested. I prefer something that doesn't cause cramping and it doesn't. Another suggestion is to be sure you are drinking enough water.

          Sending healing thoughts,
          Donna
          Stay safe


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          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

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          • #6
            GRACE,
            Sorry you have IC ! I am sorry I cant help with the constipation either ! I just had my cysto/hydro/ last week ! Boy oh boy was I constipated but I cant take any of that stuff it doesnot agree with my stomach ! I had to wait it out ! Hope something works for you! grouphug
            To the world you might be one person but to one person you might be the world..
            I am a newbie Angel ~IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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            • #7
              Grace

              i had my cysto/hydro in jan. and was constipated for 5 days .. i found that if i didnt take the pain medication for a day it was all better, you might, if you not in a lot of pain like i was.. go off the pain meds for a day if you dont wanna take any more medications to relieve the contsipation..


              ~Rachel
              Courage is doing what you're afraid to do. There can be no courage unless you're scared.
              Eddie Rickenbacker

              The best way to predict the future is to invent it.
              Alan Kay

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