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Hunner's ulcer?

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  • whip06
    replied
    Hi, I have had Hunner's Ulcers for 29 years. I have had them fulgurated, treated with DMSO and Chlorpactin irrigations, taken oral Amicar and every urinary antibiotic known to man, and even had a partial cystectomy. I have EC(eosinophilic cystitis) not IC but have been treated with the same medications, irrigations, treatments, and surgical procedures used to treat IC. Nothing has worked for me. The ulcerations I have bleed so badly that I suffer from severe anemia. My hemoglobin ranges between 3.7 and 5.2 ( it should range between 12 to 14). The severity of my condition is somewhat rare from what I understand. Hopefully others suffering from Hunner's ulcers will benefit from treatment.

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  • tcbc1989
    replied
    hi....i have had them for more than 10 years and they have been treated as the rest of my IC has been treated....DMSO, Elmiron, hydrodystention...etc.....from the reading I have done only 5% of IC patients actually have Hunner's ulcers visible....I hope this post finds you feeling well. IC stinks!!!! But the support here is great!!! Good Luck...tina hi

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  • ICNDonna
    replied
    I have them and in my case, the treatment is the same as for any other IC patient.

    Donna

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  • dixiefireball
    replied
    I have three hunners they use DMSO treatments to try to get rid of them i asked my doctor to take them out but he said he didnt want to do any surgery to me that could hurt me more then help me he didnt want to damage my bladder anymore then what is was.

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  • dminton
    started a topic Hunner's ulcer?

    Hunner's ulcer?

    Has anyone been diagnosed with a Hunner's ulcer? What did they do for it? If it was lasar-treated, how did you do with the procedure? Did it help?
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