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Hydro Feb 4th

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  • #1

    Hydro Feb 4th

    Hi all,
    went to the uro today and i have pfd and will be starting therapy on the 13th lucky me its a Friday..
    Also I am having a Hydro on the 4th so he can look in my bladder for himself and see if my bladder is shrinking also to look for a fistula...
    I am no longer taking Elmiron I didn't feel any better on it or off it.. so thats a savings every month.. not to mentio it gave me headaches!
    Brat
    'The will of God will never take you where the Grace of God will not protect you.'
    Tags: None
  • #2
    I'll cross my fingers that the hydro helps your symptoms as much as it does mine.

    Gentle hugs,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.     [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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    • #3
      Hi Cindy,

      Hope it's not a fistula and that your bladder isn't shrinking.

      Hugs and love,
      Jess
      Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!

      Comment

      • #4
        Oh cindy i hope he doesnt find anything wrong. I also have PFD. My uro said i had that as soon as he told me i had ic from my systoms but he has never done anything for a treatment i dont guess he has anyway what are they going to do can they fix PFD?
        good luck and keep us posted on what is going on grouphug kissing
        Medicine taken daily or as needed:
        1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
        2. MS.Cotin 100mg 3x daily
        3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
        4. Fentanyl 100 mg Change every 48hrs.
        5. Gentamicin 80mg install after each rescue treatment
        5 Leviquin 500mg self start as needed.
        6. Klonopin 1 or 2 daily as needed.
        7. Prosed/DS as 1 every 6hrs as needed.





        I have IC, but IC doesn't have me anymore!

        Comment

        • #5
          grouphug grouphug grouphug will be praying for you Cindy. Let us know how you are doing and feeling. kissing
          Hang in there , There is hope.
          There is hope. Prayer works.

          Love, Debbie

          Comment

          • #6
            Rhonda,
            I don't know even what pfd really is I have to look it up..
            thanks you gals
            Brat
            'The will of God will never take you where the Grace of God will not protect you.'

            Comment

            • #7
              Hi Cindy,

              PFD is very common in ICers. Did you ever notice pain after orgasm? PFD is a main contributor. I think with massages and exercises you could probably get your PF strengthened. Anyway, if you want to talk about PFD I'm your lady! lmao
              You know how to get me!

              Huggies and love,
              Jess
              Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!

              Comment

              • #8
                Hope all goes well with you BratI will be thinking of you. grouphug
                I have my hydro on Thursday please keep me in you thoughts grouphug
                Be grateful when you are feeling good,and graceful when you are feeling bad

                Comment

                • #9
                  Debra and Brat,
                  I hope all goes well for you both next week and the answers you are looking for will be found.
                  Smile and look into the sky and know that there are people out there who care.
                  Best of everything to you both!
                  JessicainArkansas

                  Comment

                  • #10
                    HI Debra
                    its friday... how was you hydro? hope you didnt go into a flare.. let me know
                    Brat
                    'The will of God will never take you where the Grace of God will not protect you.'

                    Comment

                    • #11
                      Hi Cindy and Debra,

                      I hope you both go into remissions!!!

                      Thinking of you both on those days...

                      Hugs and love,
                      Jess
                      Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!

                      Comment

                      • #12
                        Will be thinking about you, hope that everything goes well, hugs Iris. hi grouphug
                        Today and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.

                        Comment

                        • #13
                          Cindy good luck with your hydro. I know that initially after the hydro I feel awful for a couple of days and then my IC feels so much better.

                          I also have PFD and do therapy so if you have any questions feel free to ask. grouphug
                          Louise
                          West Virginia Interstitial Cystitis/Prostatitis Support Group Leader
                          [email protected]

                          Comment

                          • #14
                            Brat I will be thinking of you keep smiling hi
                            Mine is this coming Thursday its my second but Im still very nervous :p
                            Jessica Thanks blink
                            Be grateful when you are feeling good,and graceful when you are feeling bad

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