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Do you have to be in "flare".....

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  • #1

    Do you have to be in "flare".....

    Hello,
    Very new here...just got referral from my OB/GYN to see a urologist because he strongly suspect IC. My symptoms flare up inconsistently at this point. If the urologist decides on a cysto for definitive dx...do I have to be in a symptomatic flare time in order to see those glomerulations? OR will the visual signs be there even if I feel fine? Thanks so much...trying to learn all I can.
    IC dx June 2003

    Pregnant with IC 2004-05....off all meds

    Elmiron 200 mg bid
    Elavil 25 mg nightly
    Ovcon 35 BCP
    IC Diet

    Tried but dc'ed: Neurontin, Lyrica, Claritin, Cystoprotek

    Dreaming of a grande non-fat mocha with extra shot!
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    • #2
      The gloumerations will be seen when the bladder is distended (the hydro) and I Don't think you have to be in a flare.
      Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!

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        • #3
          You do not have to be in a flare for the signs of IC to show --- and pain or lack of it will not effect the biopsies.

          Warm healing thoughts,
          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.           [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

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            • #4
              I was not in a flare when I was dx'ed with IC.
              Brat
              'The will of God will never take you where the Grace of God will not protect you.'

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                • #5
                  Thanks so much for the quick responses! It makes me feel better that I don't have to try and time symptoms with doing a cysto. Hopefully I can see the urologist relatively soon and plan a course of action.
                  IC dx June 2003

                  Pregnant with IC 2004-05....off all meds

                  Elmiron 200 mg bid
                  Elavil 25 mg nightly
                  Ovcon 35 BCP
                  IC Diet

                  Tried but dc'ed: Neurontin, Lyrica, Claritin, Cystoprotek

                  Dreaming of a grande non-fat mocha with extra shot!

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