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Had hydro on 31st of Jan - question...

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  • Had hydro on 31st of Jan - question...

    I've noticed in the last week that I can drink as much as I want and sometimes well over 2 litres and have no pain from that when prior drinking 2 litres sent me into agony.

    Is this the type of result you would expect to get if you're going to benefit from a hydro? It makes sense to me.

    Although the gyn saw no signs of glomerulations, it seems wierd that I'd get this benefit and kind of too coincidental for it just to have happened as I recovered from the hydro/cysto/biopsy.

    Will see a uro tomorrow. First uro/gyn thought PBS but based only on symptoms.

    Does this result seem indicative of PBS/IC? Thanks
    Holly

  • #2
    I think that it helps to have your bladder stretched out because it gives you more capacity when it works well, then the contents won't hurt so much or so soon.

    I thought I was going to have that kind of relief because for the first two days afterwards I had tremendous capacity and no pain, but it all came back and worse. So I really hope you did benefit from it. That would be a real blessing.
    http://www.TheCraftyEwe.etsy.com

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    • #3
      It sounds like the hydro may have helped. Only time will tell.

      Warm hugs,
      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

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      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

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      • #4
        Does sound like it may have helped Hopefully the relief you describe will continue!!
        ****
        Jen

        *Diagnosed with severe IC in 2004
        *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
        *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
        *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

        **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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        • #5
          Sounds like it did help you. Hopes it continues to do so.

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          • #6
            thanks everyone. I felt horrible initially but I also had a gyn procedure at the same time. I think it took about 2 weeks for things to calm down and to get a benefit.

            Moonheart, I'm sorry it didn't work out for you:-(.

            Gawd, waiting for my cushion to come in the mail. I'm on my knees at the computer!! won't be on for long! All problems are not solved. That's for sure. Is it pelvic floor that makes sitting painful???

            Holly

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