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  • #1

    Office Cysto tomorrow morning

    Okay,
    So I have my office cysto tomorrow morning. This is the first step the uro that I just started seeing wants to do because I am a "complex case." Had endo in my bladder in the past and I guess because that can act a lot like IC he wants to make sure there isn't anything that he can see from the office cysto that is abnormal. I am totally freaking out about this because I am having a flare right now and I am soooo afraid this is going to irriate my bladder more. It is pretty bad at this point, I was already having pain and then I had a customer who would not get off the phone w/ me today. After 45 minutes and feeling like I had pee up to my eyeballs he finally got off the phone and I had to walk to the bathroom bent over because it hurt to much to stand up. Ugh! Does anyone know, will having this done and having a flare me it worse?
    Last edited by GriffsMommy; 02-26-2007, 02:05 PM.
    Christine



    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
    I have tried every oral medication as well as rescue instills and DMSO.

    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
    Also proud mom to the best Bullmastiff on earth, Claus
    Tags: None
    • #2
      I would talk to the uro about that before he does the cysto. I couldn't say whether it will irritate your bladder anymore. Personally, I did not enjoy the office cysto - stating it mildly. (Not that I enjoyed the one at the hospital).

        Comment

        • #3
          I was in full-blown untreated IC when I had my in-office cysto done. It was uncomfortable, I had pain for a few hours afterwards. But, Pyridium & an ice pack helped & I was back to my previous state by that evening.

          Hope it goes smoothly for you tomorrow.
          Kadi

          -------------------------------------------------------------
          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          ------------------------------------------------------


          New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
          Source - Pinterest
          "

          Current treatments:
          -IC diet
          -Elavil 50mg at night
          -Continuous use birth control pills (4-5 periods/year)
          -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
          -Pyridium if needed,
          -Pain medicine at bedtime daily, as needed during the day several times per week
          -Antibiotic when doing an instillation to prevent UTI
          -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
          -Dye Free Benadryl 50 mg at bedtime
          -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
          -Managing stress= VERY important!
          -Fur therapy: Hugging the cat!

            Comment

            • #4
              I had one a few years ago (before I was dx with IC) and it was uncomfortable but not unbearable.....they gave me something to help with the pain and spasms, of course I was not having the pain (at that time) like you are now. I would let your doctor know what is going on and maybe they can give you something to help with the pain. Do you have someone taking you in case they give you something that might make you sleepy? Please let us know how you do tomorrow. I will say a little prayer for you
              Miss Bessie

              Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

              Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

              Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

                Comment

                • #5
                  Oh that is so good to know Kadi!! I really want to do this tomorrow because I already took the day off but I was really worried that it was going to kill me to do it. I wasn't expecting it to be fun but as long as I won't be in pain for days. Thanks Kadi, that made me feel a lot better.
                  Christine



                  I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                  1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                  2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                  I have tried every oral medication as well as rescue instills and DMSO.

                  I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                  Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                  Also proud mom to the best Bullmastiff on earth, Claus

                    Comment

                    • #6
                      (((((((((hugs)))))))))..I will be praying that everything goes ok and it does not leave you in any pain and the doctor finds what he is looking for...
                      Hugs
                      Ronda

                      ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


                      Link to Patient Handbook:
                      http://www.ic-network.com/handbook/

                      Diet Reference Sheet:
                      http://www.ic-network.com/diet/icndi...tsheet0909.pdf

                      Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                      Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                      Meds I have Tried:
                      Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                      Lexapro< Bad reaction to this med!
                      Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                      Dx With IC in Nov 2006 with Hydro/Cysto
                      Hydro/Cysto Caused Bladder to Rupture.

                      Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


                      ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                        Comment

                        • #7
                          Thanks for the support Octoberfarm. I'm going to take myself because hubby will be at home with Griffin and the last thing I want is to worry about a 2 1/2 year old during this whole process. Maybe I'll ask if he can give me something for afterwards if it's really uncomforable. I will let everybody know how it went when I get back, like I said I took the whole day off from work just in case I was in pain so I wouldn't have to worry about going to work afterwards.
                          Christine



                          I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                          1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                          2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                          I have tried every oral medication as well as rescue instills and DMSO.

                          I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                          Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                          Also proud mom to the best Bullmastiff on earth, Claus

                            Comment

                            • #8
                              An rx for Urelle really helped me a lot for any discomfort I felt afterward. grat stuff!

                                Comment

                                • #9
                                  Christine,
                                  I hope your cysto goes well. Hopefully your doctor will give you something to help ease the pain afterwards and you can just go home and rest for a while.

                                  ~Claudia

                                  "A heart is not judged by how much you love; but by how much you are loved by others."
                                  ~ The Wizard of Oz

                                  "If I ever go looking for my heart's desire again, I won't look any further than my own
                                  back yard. Because if it isn't there, I never really lost it to begin with!" ~ Dorothy

                                    Comment

                                    • #10
                                      Thanks Claudia, that is sure what I'm hoping for, how much can I rest with a 2 year old though, lol
                                      Christine



                                      I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                                      1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                                      2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                                      I have tried every oral medication as well as rescue instills and DMSO.

                                      I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                                      Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                                      Also proud mom to the best Bullmastiff on earth, Claus

                                        Comment

                                        • #11
                                          Burn, Baby, Burn, Urethra Inferno

                                          I just got back from my office cysto and boy is my urethra burning!!!!
                                          I think it went pretty well though. It was uncomforable but because they used ladocaine (sp?) it wasn't too bad.
                                          So here's what I found out. The first appointment he took a urine sample and sent it to have it cultured. He told me that they found some bacteria in it but it was a mixture and this didn't seem to show an infection. In fact he thought that it might have been contaminated, not sure how this would happen. So before he did the cysto he took a sample of urine directly from my bladder to have that cultured to see if that shows anything different.
                                          He said that when he did do the cysto that he did find areas of chronic inflammation. :woohoo: Whoever knew that I would be happy about this but at least it shows that I'm not crazy and this is really real. He said that he wants to try to give me an antibotic, I don't remember the name of it, micro something or other, I already took it to Walgreens to get it filled. He said that it's really good for the bladder. He wants to make sure that the chronic inflammation is not caused by some chronic bacterial infection. So he wants me to take it twice a day for 10 days and then once a day and I'm supposed to go back and see him in six weeks. The office will call me with the results of the new culture that they are sending out today and if the antibotic doesn't help and I still feel the same symptoms when I go back in 6 weeks then he'll schedule me for a hydro.
                                          I am so happy that I found a good doctor who is looking at this from every possible angle and isn't making me feel like I'm crazy! :woohoo:
                                          Thanks for everybody's support last night and this morning. It really helped me to stay calm this morning.
                                          Christine



                                          I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                                          1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                                          2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                                          I have tried every oral medication as well as rescue instills and DMSO.

                                          I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                                          Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                                          Also proud mom to the best Bullmastiff on earth, Claus

                                            Comment

                                            • #12
                                              Glad you are o.k.
                                              I have been thinking about you this morning and wondering how you were doing. It sounds like your doctor is checking everything out. Did he give you anything to help with the burning?? I think they gave me Urelle (the one that turns your pee blue) after my procedure. It did help with the burning and spasms. Try and get some rest and hopefully that antibiotic will kick in and help you get some relief.
                                              Miss Bessie

                                              Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

                                              Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

                                              Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

                                                Comment

                                                • #13
                                                  Thanks Octoberfarm, so nice that you were thinking of me. I asked if I could take AZO because I already had that at home and he said that was fine so I took that as soon as I got home along w/ some pain meds my gyn prescribed for me last week so hopefully that will help. I started chugging water and I can already feel things cooling off.
                                                  Christine



                                                  I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                                                  1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                                                  2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                                                  I have tried every oral medication as well as rescue instills and DMSO.

                                                  I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                                                  Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                                                  Also proud mom to the best Bullmastiff on earth, Claus

                                                    Comment

                                                    • #14
                                                      I'm so glad it's over and it wasn't too bad Now you can just rest easy and baby your urethra all day ...

                                                      It IS great that you've found a doctor that is willing to help! It's not always so easy to do, and I'm happy for you
                                                      ****
                                                      Jen

                                                      *Diagnosed with severe IC in 2004
                                                      *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
                                                      *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
                                                      *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

                                                      **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                                                        Comment

                                                        • #15
                                                          glad to hear they found something.. (well not really) at least you now know that you're not crazy, like they seem to make us feel at times.
                                                          try to get some rest...
                                                          'The will of God will never take you where the Grace of God will not protect you.'

                                                            Comment

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