Announcement

Collapse
No announcement yet.

Office Cysto tomorrow morning

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • #16
    I'm glad the cysto at least confirmed your suspicions and hopefully your doc can get you treated. Keep us posted on the second urine sample and what it shows.

    ~Claudia

    "A heart is not judged by how much you love; but by how much you are loved by others."
    ~ The Wizard of Oz

    "If I ever go looking for my heart's desire again, I won't look any further than my own
    back yard. Because if it isn't there, I never really lost it to begin with!" ~ Dorothy


    Comment


    • #17
      I was thinking about you, too, and 'glad things went well. Did he say how many cc's of water your bladder held while he was doing the test? That's supposed to be a good indicator of irritation also.

      Comment


      • #18
        Im so glad it was not to bad... I know the feeling when you are hurting and you dont know the cause, Its a relief to get some answers...
        Well heres a hug(((((((((((((hug)))))))))))) I know you have had a rough morning...If you need anything just let me know....
        Hugs
        Ronda

        ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


        Link to Patient Handbook:
        http://www.ic-network.com/handbook/

        Diet Reference Sheet:
        http://www.ic-network.com/diet/icndi...tsheet0909.pdf

        Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

        Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

        Meds I have Tried:
        Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
        Lexapro< Bad reaction to this med!
        Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

        Dx With IC in Nov 2006 with Hydro/Cysto
        Hydro/Cysto Caused Bladder to Rupture.

        Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



        ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        Comment


        • #19
          Thanks all,
          After drinking lots of water most of the burning has gone away. Now I'm just feeling kinda out of it from the antibotic he gave me. It says it can make you dizzy and drowsy, like I need to be anymore dizzy or drowsy, lol.
          He didn't tell me how many cc's my bladder held. I just know that he filled it up and all of the sudden it got really uncomfortable and felt like I had to pee right away but he never told me how much it held. Guess I'll find that out if he schedules a hydro after my follow up in six weeks.
          Christine



          I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
          1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
          2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
          I have tried every oral medication as well as rescue instills and DMSO.

          I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

          Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
          Also proud mom to the best Bullmastiff on earth, Claus

          Comment

          Working...
          X