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Bladder Necrosis after hydrodistention for IC

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  • Bladder Necrosis after hydrodistention for IC

    http://www.medicalnewstoday.com/medi...&nfid=rssfeeds

    Thought some of you might be interested in reading this interesting article.
    hugs,
    Janie

  • #2
    Very interesting. I feel even more confidence in my uro because he doesn't instill anything caustic in my bladder after a hydro.

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

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    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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    • #3
      I remember sometime back we had a member here who had some kind of really catastrophic bladder damage after a hydro but can't remember if she had any kind of instillation during the procedure. Can't remember the member's name either but her posts certainly left an impression on me. I hope she is doing well now.
      hugs,
      Janie

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      • #4
        I have a feeling that, since only three patients were involved, and two of the three had chlorpactin (66% of the very small sample size -- where, oh, were have the statisticians gone??) the danger was in the chlorpactin treatment rather than the hydro itself. Of course, there is always the risk of bladder rupture during any cystoscopic procedure, but bladder necrosis (death) is something I would expect to see after a chemical treatment rather than a stretch.
        ****
        Jen

        *Diagnosed with severe IC in 2004
        *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
        *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
        *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

        **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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