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Does the ER do anything for IC?

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  • Does the ER do anything for IC?

    Sorry, I'm a worrywart and I'm just wondering if I get really bad and have to go to the Emergency Room, do they know what to do for IC? Does anyone know what they usually give you, such as an instillation? Thank you.

  • #2
    I've never gotten an instillation for IC at the ER. But, they have given me Percocet or a shot of Dilaudid. (pain medications)

    Mostly I go to the ER when I have an infection. I usually know before I get there, because I keep UTI test kits at home.

    The good news is that the last 3 times I've gone to the ER, the nurses & doctors have known what IC is & have treated me well.

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
    Source - Pinterest

    Current treatments:
    -IC diet
    -Elavil 50mg at night
    -Continuous use birth control pills (4-5 periods/year)
    -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
    -Pyridium if needed,
    -Pain medicine at bedtime daily, as needed during the day several times per week
    -Antibiotic when doing an instillation to prevent UTI
    -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
    -Dye Free Benadryl 50 mg at bedtime
    -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
    -Managing stress= VERY important!
    -Fur therapy: Hugging the cat!


    • #3
      I know years ago ER did absolutely nothing for me. I was told I was just probably alittle irritated down there. Don't use bubblebath soap, and wear cotton underwear. Well that was not the problem, I always done that. Also I always kept bubblebath away from my children and alway bought white underwear for them. It was embarrass enough and then got sent home with no help.

      But maybe now IC is more open, maybe they can help. But not to long ago I went to the ER because of chest pains. I told them I have IC, but they seem at a lost. I just told them then, that I have a bladder disease that causes me to go to the restroom alot. So they did put me near to a restroom. They were nice about it. Sometimes you have to explain it for them to understand.

      Sending hugs, Trishann


      • #4
        That's what's so scary to me, everyone I tell about it doesn't know what it is...there was also an article in Family Circle (March 2007) about chronic pelvic pain, and it mentioned everything under the sun except many people may have it and not be getting treated.


        • #5
          It depends on the ER. Most ER docs are not really trained in treating IC, but many will help with getting pain under control --- and if you have an infection, they will treat that. If you can't urinate, they will order a catheter; and if you wish, they will usually telephone your uro for instructions --- and sometimes arrange for you to have an early appointment with your urologist.

          If you're in severe pain, it's worthwhile to go.

          Stay safe

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          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

          Anyone who says something is foolproof hasn't met a determined fool


          • #6
            Yes, I figured they would probably just give you pain relieving drugs. I was more or less wondering if they would do a so-called "rescue instillation", since I do not have these available at home, as some people on the board do.


            • #7
              I have gone to the ER for IC pain and they have given me some pain meds. Not all of the ER doctors know about IC, but the ones that do always say, "I hear that is very painful." Well, Yep!!
              Meds I take:
              Elmiron, Elavil, Vagifem- for IC
              Albuterol, Flovent, Atrovent- for Asthma and lung problems
              Paxil, Clonazepam- for depression and Anxiety
              Atenolol- for rapid heart rate
              Nexium- for Gerd
              Levothyroxin- for Hypothyroidism
              Lasix, Pottasium- for edema
              Lipitor- for High Cholesterol
              I coated aspirin
              02 at bedtime


              • #8
                It depends on the ER like Donna said, I found that out by a friend of mine. I was in so much pain one day, but I stayed home in bed all weekend long and called the doctor on the following Monday, when he asked me why I didn't go to the ER I told him that they probably wouldn't know and he said if I went to the hospital behind his office that they would of, but if I went to the one by my house, no or any other one for that matter. So now I know which one to go to if this happens again.


                • #9
                  Each time i have gone no help. They want to do all sorts of tests to. Made them mad one time because I said no. It was my bladder and nothing else wrong. They sent me home with what was supposed to be a pain pill. After taking it no help at all. Went back a week later to Uro's and he told me it wasn't for pain. It was an antiobotic which I didn't even have a UTI. I don't have to much faith in ER's anymore.


                  • #10
                    I don't bother going because I got no real help the one time I went. *sigh*

                    *Diagnosed with severe IC in 2004
                    *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
                    *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
                    *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

                    **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


                    • #11
                      I know, that's what I'm afraid of, getting no help...


                      • #12
                        When I used to the ER (about 9 months ago was my last visit) this would be my process:

                        1. Check in--lady would take vital ect.
                        2. If I was in enough pain (and tears) they would send me right back.
                        3. More vitals.
                        4. I would explain IC to the nurse, get and IV going and get some sort of pain meds.
                        5. The doctor would come in about 20 minutes later, "encourage" me to pee in a cup so they could dip test me.
                        6. Keep me for about 12 hours to monitor my pain and wait for the urine culture.

                        On one occassion, I was ment by my uro's physician assistant in the ER and he admitted me for a day and a half to get my pain under control and to clear up a UTI w/ IV antibiotics(and there I was thinking it was a flare).

                        I have had more positive experiences with my local ER and my age probably had something to do with it (was 15/16). Most of the people felt sorry for me (which anyoed the heck outta me). Oddly nobody in the ER ever questioned my pain (just my ironic?).

                        Medical "Issues":
                        Tachycardia(resting rate is 125-130 )
                        Tramadol-as needed (IC)-50mg
                        Elmiron 200mg twice a day
                        Levsin .125mg 1-2 pills 4 times a day


                        • #13
                          Like everyone else says, it depends on the ER...however, the 2-3 times I've gone they were NO help other than cathing me...didn't even give me PAIN MEDS (although I'm allergic/highly sensitive to nearly everything ).

                          I basically want nothing to do with my local ER. When I discovered my hiatal hernia, they said it was just acid reflux and gave me Maalox (YES, just Maalox )...never mind that I had been vomiting bile for 3 weeks and the pain felt like a heart attack! I went to another ER and they actually ran TESTS (made me swallow barium...ick. I threw most of it up!) and gave me serious meds. They sent me to a gastroenterologist who scoped me and found the hernia.

                          Anyway that's my $.02 on ERs. Everywhere is different however; there ARE good ERs out there!
                          (Added by ICNMgrJill on 5/19/08. I am sad to share that Verdicries (aka Tracy) lost her life in a tragic accident just a few days ago. We will miss her support, her encouragement, her sense of humor and, of course, the joy that she found as a mother and wife).

                          Tracy ~ 29 years old with Toxoplasmosis (from birth), Fibro/CFS (since age 13...ouch), severe IC, IBS-D, severe PFD (surgery made it even worse), vulvodynia, hiatal hernia, GERD, ulcers, severe gastritis, numbness/tingling in extremeties, pelvic nerve damage--mainly urethral, urinary retention, pelvic reconstruction 7.10.07 (fixed rectocele, rectal prolapse, lifted bladder, urethra, uterus, and repaired vaginal walls), Raynaud's, 2 severely herniated discs in neck and one in low back, anemia, PCOS, anxiety/depression/panic attacks (since forever). Still having major bowel problems (inability to empty rectum...any ideas?? ).

                          I'd like to be on House, MD as a medical mystery.

                          Married to Craig, a saint amongst men...who puts up with me and my eccentricities...

                          Connor & Mommy by the tree:

                          Connor with happy!

                          I take: LIQUID Atarax, Flomax, Soma (yet again), acidophilus, Glucosamine/Chondroitin with MSM & collagen, d-mannose. MAJOR flare from Cystoprotek! Re-trying freeze dried aloe vera w/some decent results!

                          Tried and failed: Elavil, Ultram, Prosed DS, Benadryl, Bentyl, Valium, Ativan, Zanaflex, Librax, Sanctura (all caused retention among other things), bladder instills (owwwwww!), Elmiron (allergic-throat tightening). Failed Interstim-no feeling in sacral nerves...

                          I'm allergic to penicillan, sulfa, reglan, quinolones, clindamycin, and now LATEX!


                          • #14
                            Before I had the rescue instills at home, my Dr. left standing orders for me at our "fast track" section of the ER. Then, when I was in a bad flare, they would do a urinalysis and if no infection was present, they'd give me a rescue instill and shot of pain meds.

                            Sometimes, they would do a shot of Torodol or something, or occasionally some other pain med. But, for the most part, they would not, before my Dr. had left the standing orders for me there.

                            Before I had my Dr. leave those orders at the hospital, when I would go in, they would simply test my urine, tell me their was no infection, and then send me home telling me to see my Dr. tomorrow. It took raising you know what with my Dr. about my "care" at the ER, to get him to leave standing orders for me.

                            But, even at the "Fast Track" of the ER, people frequently have to wait 4-7 hours to be seen! It is insane! I have to be half-dead before I would go to the ER now. But, fortunately, I have the instills that I can do at home now, and also pain meds at home now. I HATE the ER!

                            But, from what I have heard, it really does vary from one ER to another. I have heard that some have had terrible care, and some have had great care. For me, (before my Drs. orders were left there), it varied alot depending on what ER Dr. was on duty. There was one that would just test my urine and send me packing and would not do an instill even with me bawling and doubled over in pain. It was terrible.

                            After that, my Dr. gave me his cell phone number to call him if I ever had anything like that happen again. (He is a wonderful man who truly cares about his patients.)

                            I hope if you need to go, that you get quick, knowledgable and compassionate care at your ER.



                            • #15
                              Wow, Amy, that is such a good idea. I never even thought of getting the doctor to contact the ER and leave a standing order. I am like you now, I have rescue instills available at home and good pain meds, so I hope NOT to be in the ER any time soon, but I will remember to pass that advice along. You are SO smart!
                              Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                              Wishing you happiness and good health, and all the best out of life.

                              Peace, Carolyn

                              Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007

                              On the Beach with IC