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  • Going to Uro for the first time

    Where to start....I'm very nervous at this point. This new GYN that DX me with the IC won't give me any more pain meds because I owe him 614.00$. I owe him that because he did the irragation of the bladder 2xs and it has fallen to my out of pocket insurance. Needless to say that has really and truly not helped me either. So He now says that I need to go see a Uro. Which I agree with him also on this. I just am not sure what questions to ask him. My main concern is can he or will he give me some pain meds or just referr me to a pain clinic. I have some Soma left but I truly can't take care of my kids when I take that. The tramadol DOESN'T help much at all. The vicodon does help I would say most of the time, but sometimes not.

    I have been trying my best to follow the IC diet....it is very hard. I love food. lol I have found that mashed potatoes, wheaties, and grean beans seem to be alright for me.

    I have asked my other 2 doctors to fax over all my records so he has my long hx with my 1st doc and the dx from this new doc. Any suggestion??? Thanks for listing. Oh my appt is this friday @ 8:30. I will post when I get home what he said. Thanks to all ahead of time if u reply
    Live your life to YOUR best, and Love to YOUR best!!!



    DX in 03 with Shingles
    Removal of Left ovary due to Cyst in 2005,
    I have had cyst since I started my period as a child age 12
    Hysterecotmy December 06
    IC DX March 07 by PST
    2 "rescue" instills in March 07
    Cyco May 07 confirmed IC
    Uro study June 07
    1st Pain Block July 17,08
    Hydro/Cysto Nov 11, 2008
    12-11-08 was told I had alot of inflamation

    Meds: Allergic to 6 things
    Premarin......taking the gen cause I get it at Walmart for 4$$
    Presique for my drepression :woohoo:
    Abilify for my depression
    Adderall ...found out I'm ADD...makes sense now
    Kolopin for anxiety
    Noroco for my pain
    Valtrex for my shingles as needed

    Sorry if my spelling is off on the meds [/FONT]


    http://community.webshots.com/user/s...host=community

  • #2
    Just wanted to check and see how things went.
    TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
    My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

    Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
    Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
    I post to encourage and offer total support for rescue instillations.
    Find me on facebook: L. Clark Thomas
    Louann

    Comment


    • #3
      Went to the Uro and Now I'm so confused!!!!

      Ok well I went to the URO for the first time today and this man tells me that he doesn't believe that I have IC. The reason being is because he feels that the only way to DX IC is to do a Biop of the bladder. He Laughed when I told him the way the other dr DX me. Which was to put a cath in put saline in my bladder then this med that HURT LIKE HELL. Then he put in the resuce med and all was better. Then I went back the next week and had another instill done. He Laughed I'm glad that he thought is was funny, cause I did not.

      So He wants to run a few test before the Biop cause I looked at him CRAZY when he said that. The first is just a basic blood work and pee test. Then he wants to do this IVP. Which he explains to me is basically putting med in my bladder and then taking an X-ray. And at first he wanted to put in Cath and do it that way and I looked at him CRAZY

      So Now I'm concered.....cause I'm not sure about having a Biop done. That scares me. I really am not sure about this doctor. I told him that I was out of my pain meds...which I am and I was very honest with him about what I have been taking. This man gave me darvacet and he only gave me 5 pills. He gave me just enough for 1 a day until my next appt. I truly wonder if he has ever treated someone with this condition. Also he told me that the Elmeron should have started to give me some relief..."the elmeron is the best thing out there for this and if it is not helping u that much then maybe u truly don't have IC"

      If anyone has any thoughts on this Please Please help me I truly need it as I have this appt to see him and get the IVP done on Tuesday. Thanks for listing
      Live your life to YOUR best, and Love to YOUR best!!!



      DX in 03 with Shingles
      Removal of Left ovary due to Cyst in 2005,
      I have had cyst since I started my period as a child age 12
      Hysterecotmy December 06
      IC DX March 07 by PST
      2 "rescue" instills in March 07
      Cyco May 07 confirmed IC
      Uro study June 07
      1st Pain Block July 17,08
      Hydro/Cysto Nov 11, 2008
      12-11-08 was told I had alot of inflamation

      Meds: Allergic to 6 things
      Premarin......taking the gen cause I get it at Walmart for 4$$
      Presique for my drepression :woohoo:
      Abilify for my depression
      Adderall ...found out I'm ADD...makes sense now
      Kolopin for anxiety
      Noroco for my pain
      Valtrex for my shingles as needed

      Sorry if my spelling is off on the meds [/FONT]


      http://community.webshots.com/user/s...host=community

      Comment


      • #4
        Gee I don't know but, I have not heard of diagnosing IC with a biopsy. I don’t think I would go back.

        Everything I have read here says hydro is the only "real" way to diagnose IC. (there is a board for hydro/cysto) My IC was visible Cystocopy but I was diagnosed by completing a survey of symptoms.

        I have done home instillations from the beginning. If my insurance covered second opinions or I could go somewhere else, I would. I’m not sure that he has really treated IC very much because there are a lot of treatments for IC. He laughed at the firstMD’s treatment for IC. and the instillation helped.
        TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
        My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

        Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
        Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
        I post to encourage and offer total support for rescue instillations.
        Find me on facebook: L. Clark Thomas
        Louann

        Comment


        • #5
          hi stac7,

          i am sorry this is been confusing for you whwen all you want is to feel better!
          Now, i do not have IC so have not had to go through dx tests.
          I have had IVP testt though.
          I am not sure just how he explained it to you,
          i had to do a prep like doing a colonospy to cleanse and nothing would obstruct the x-ray.
          The 'medicine' was a type of dye done i.v....they take many x-rays to see the function of your kidneys and flow of urinne throuhg your system . THey put some kind of a 'belt' and wedges around your kidneys so they can control when your urine passes to your bladder. Then you empty your bl;adder and they take more pics.... i think it was at least a dozen, maybe more all togeteher. I had mine done at the hospital with a tech and radiologist. It had been over 6 months i had blood work, so the radiologist made sure i had a panel done BEFORE he would alloow the dye.
          have you googled IVP?
          it reads Intravenous Pyelogram.
          I know others here have had the IVP, but i do not know if was in their dx stage.

          I am sorry thaat both thier 'attidues' to you.
          IMHO if you do not feel comfortable with what either of them are saying, get a third oppion... i truely undeerstand the energy it can take to do thaaat, but it is your health and body and you have hired them.... you need to be feeling you trust them.
          I wish you well!!!

          Comment


          • #6
            IVP evaluates Kidney function.

            Urodynamics evaluated Bladder function.

            Most of us have had urodynamics. I have never had an IVP but I have had 3 urodynamics.
            TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
            My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

            Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
            Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
            I post to encourage and offer total support for rescue instillations.
            Find me on facebook: L. Clark Thomas
            Louann

            Comment

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