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  • #1

    Didn't help

    I had a hydrodistension done on the 23rd. And it didn'thelp much. The dr told me that he filled it up twice and that I should be good, but it wasn't very helpful. I was really hoping that it would be better, it didn't help much at all.
    So now I am extremely depressed, I am not sure what to do I am feeling like I am not ever going to feel better. I am taking vicoden and percocet daily, morphine wasn't helpful at all. I really could use some advice, what else can I do I don't know what to do about the pain and how to get rid of it.
    Any advice would be helpful.
    Started Vaginal Valium Suppositories April 2014
    Hysterectomy April 2003 (for abdominal pain),Diagnosed with IC August 2003
    Diagnosed with Pelvic Floor Disorder 2004,Had right ovary and fallopan tube removed 2005
    Diagnosed with diverticulosis 2006,Interstim December 2006,Home Instillations 2007-not effective
    Diagnosed with Fibromyalgia November 2007,Appendectomy February 2008,
    Interstim repair December 2008,Removal of the Interstim August 2011,
    6 Hydrodistentions from 2003-2009 Diagnosed with restless leg syndrome March 2014
    Diagnosed with Raynaud's Syndrome November 2013
    Ambien 5mg for sleep.
    Elivil 50 mg at bed
    Lisinopril 20mg in AM
    Effexor 225 mg
    Oxycodone 10 mgs 2 x a day for pain
    Baclofen 20mg 3x a day
    Phenazopyridine 200 mg as needed
    Omeprazole 20 mg at night
    Lyrica 450 mg daily
    Requip .50 mg at night
    Ketorolac 10 mg as needed for migraines
    Tags: None
    • #2
      You may still feel better. It's only been a little over a week. Sometimes it takes longer than that to recover.

      I hope it ends up helping.

      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.       [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

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        • #3
          i was going to say what Donna said. He filled it up twice, which I think would be fairly rough on the bladder. It takes me roughly 2-3 wks to recover fully from a cysto/hydro and my uro only fills mine up once.

            Comment

            • #4
              There are many, many other treatments available for IC, besides the cysto-hydro. Different things work for different people. I would advise you to read the Patient Handbook on this site, try the IC diet (discussed in the patient handbook), and if things aren't better within a couple of weeks, go back and discuss treatment options with your uro. If he is telling you the cysto/hydro is the only thing he has to offer, it's time to find a different uro!
              Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
              Wishing you happiness and good health, and all the best out of life.

              Peace, Carolyn
              ___________________________________________________

              Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


              On the Beach with IC

                Comment

                • #5
                  what worked for me was 12 dmso treatments from the urologist, the hydro did not work for me either so dont feel bad

                  i also took percocet, neurontin, zanaflex, elmiron

                  i watched my diet and used a tens unit

                  i am now in remission for almost a year and you will be too

                  hugs
                  portia
                  NEW YORK YANKEES ROCK THE HOUSE. 26 WORLD SERIES CHAMPIONSHIPS, THE MOST EVER\

                  GO YANKEES                   :woohoo: :woohoo:

                    Comment

                    • #6
                      Have tried alot........

                      I was diagnosed with Ic in 2003, I have had 3 hydrodistentions and I have done rescue instillation, as well as self cathing, I have tried all kinds of drugs for the pain, I have had the interstim installed in me. I feel that I have tried alot of things for this pain and that there really aren't alot of other options. I have read the handbook, and I haven't found any releif with the different things I have tried.
                      Started Vaginal Valium Suppositories April 2014
                      Hysterectomy April 2003 (for abdominal pain),Diagnosed with IC August 2003
                      Diagnosed with Pelvic Floor Disorder 2004,Had right ovary and fallopan tube removed 2005
                      Diagnosed with diverticulosis 2006,Interstim December 2006,Home Instillations 2007-not effective
                      Diagnosed with Fibromyalgia November 2007,Appendectomy February 2008,
                      Interstim repair December 2008,Removal of the Interstim August 2011,
                      6 Hydrodistentions from 2003-2009 Diagnosed with restless leg syndrome March 2014
                      Diagnosed with Raynaud's Syndrome November 2013
                      Ambien 5mg for sleep.
                      Elivil 50 mg at bed
                      Lisinopril 20mg in AM
                      Effexor 225 mg
                      Oxycodone 10 mgs 2 x a day for pain
                      Baclofen 20mg 3x a day
                      Phenazopyridine 200 mg as needed
                      Omeprazole 20 mg at night
                      Lyrica 450 mg daily
                      Requip .50 mg at night
                      Ketorolac 10 mg as needed for migraines

                        Comment

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