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  • Didn't help

    I had a hydrodistension done on the 23rd. And it didn'thelp much. The dr told me that he filled it up twice and that I should be good, but it wasn't very helpful. I was really hoping that it would be better, it didn't help much at all.
    So now I am extremely depressed, I am not sure what to do I am feeling like I am not ever going to feel better. I am taking vicoden and percocet daily, morphine wasn't helpful at all. I really could use some advice, what else can I do I don't know what to do about the pain and how to get rid of it.
    Any advice would be helpful.
    Started Vaginal Valium Suppositories April 2014
    Hysterectomy April 2003 (for abdominal pain),Diagnosed with IC August 2003
    Diagnosed with Pelvic Floor Disorder 2004,Had right ovary and fallopan tube removed 2005
    Diagnosed with diverticulosis 2006,Interstim December 2006,Home Instillations 2007-not effective
    Diagnosed with Fibromyalgia November 2007,Appendectomy February 2008,
    Interstim repair December 2008,Removal of the Interstim August 2011,
    6 Hydrodistentions from 2003-2009 Diagnosed with restless leg syndrome March 2014
    Diagnosed with Raynaud's Syndrome November 2013
    Ambien 5mg for sleep.
    Elivil 50 mg at bed
    Lisinopril 20mg in AM
    Effexor 225 mg
    Oxycodone 10 mgs 2 x a day for pain
    Baclofen 20mg 3x a day
    Phenazopyridine 200 mg as needed
    Omeprazole 20 mg at night
    Lyrica 450 mg daily
    Requip .50 mg at night
    Ketorolac 10 mg as needed for migraines

  • #2
    You may still feel better. It's only been a little over a week. Sometimes it takes longer than that to recover.

    I hope it ends up helping.

    Donna
    Stay safe


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    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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    • #3
      i was going to say what Donna said. He filled it up twice, which I think would be fairly rough on the bladder. It takes me roughly 2-3 wks to recover fully from a cysto/hydro and my uro only fills mine up once.

      Comment


      • #4
        There are many, many other treatments available for IC, besides the cysto-hydro. Different things work for different people. I would advise you to read the Patient Handbook on this site, try the IC diet (discussed in the patient handbook), and if things aren't better within a couple of weeks, go back and discuss treatment options with your uro. If he is telling you the cysto/hydro is the only thing he has to offer, it's time to find a different uro!
        Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
        Wishing you happiness and good health, and all the best out of life.

        Peace, Carolyn
        ___________________________________________________

        Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


        On the Beach with IC

        Comment


        • #5
          what worked for me was 12 dmso treatments from the urologist, the hydro did not work for me either so dont feel bad

          i also took percocet, neurontin, zanaflex, elmiron

          i watched my diet and used a tens unit

          i am now in remission for almost a year and you will be too

          hugs
          portia
          NEW YORK YANKEES ROCK THE HOUSE. 26 WORLD SERIES CHAMPIONSHIPS, THE MOST EVER\

          GO YANKEES
          :woohoo: :woohoo:

          Comment


          • #6
            Have tried alot........

            I was diagnosed with Ic in 2003, I have had 3 hydrodistentions and I have done rescue instillation, as well as self cathing, I have tried all kinds of drugs for the pain, I have had the interstim installed in me. I feel that I have tried alot of things for this pain and that there really aren't alot of other options. I have read the handbook, and I haven't found any releif with the different things I have tried.
            Started Vaginal Valium Suppositories April 2014
            Hysterectomy April 2003 (for abdominal pain),Diagnosed with IC August 2003
            Diagnosed with Pelvic Floor Disorder 2004,Had right ovary and fallopan tube removed 2005
            Diagnosed with diverticulosis 2006,Interstim December 2006,Home Instillations 2007-not effective
            Diagnosed with Fibromyalgia November 2007,Appendectomy February 2008,
            Interstim repair December 2008,Removal of the Interstim August 2011,
            6 Hydrodistentions from 2003-2009 Diagnosed with restless leg syndrome March 2014
            Diagnosed with Raynaud's Syndrome November 2013
            Ambien 5mg for sleep.
            Elivil 50 mg at bed
            Lisinopril 20mg in AM
            Effexor 225 mg
            Oxycodone 10 mgs 2 x a day for pain
            Baclofen 20mg 3x a day
            Phenazopyridine 200 mg as needed
            Omeprazole 20 mg at night
            Lyrica 450 mg daily
            Requip .50 mg at night
            Ketorolac 10 mg as needed for migraines

            Comment

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