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  • What a day!!

    Hi All,
    Well I got to the hospital this am for my hydrodistention. First off they had the parking lot we were supposed to use blocked off and made us park wayyyyy far away in another garage.

    Then as we walked to the registration area, we see like 8 fire trucks and they say there is a situation in the hospital............................hummmmmmmmmmmmmmmmm so I am thinking what kind of a situation and do I EVEN want a procedure done here today??? Also what the heck is going on here??? No one would say anything.

    So we proceeded and they said that every thing was fine then and my surgery was a go but they had cancelled prior surgeries. Seems some people got sick in the elevator and on a certain floor of the hospital and they were thinking someone had brought in sometime of biological warfare!!! Come to find out it was an ammonia leak from an ice machine!!!!!! What a mess!!

    So everything got backed up and I got my hydro but ended up waiting awake and ready to go in recovery for over 3hrs!!!URGGGGGGG I was about to take out my own IV and leave!!! I know it was not the workers fault but if they had of called me prior, I would have def had it another day!!

    Glad it is over even though my bladder has shrank 300cc.
    thanks
    leeshel

  • #2
    Sorry, you had such a hard day. I hope you are resting now and not in too much pain.

    Comment


    • #3
      I hope you're not in too much pain Leeshel and that you are getting some rest. At least you got it over with. I had my first hydro on Wednesday and still have no idea what's going on.
      Christine



      I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
      1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
      2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
      I have tried every oral medication as well as rescue instills and DMSO.

      I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

      Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
      Also proud mom to the best Bullmastiff on earth, Claus

      Comment


      • #4
        Wow! What a day you had! That must have been very unnerving! At least it is over now, and hopefully you will be able to get some rest this weekend. I hope that you will get alot of relief from it.

        I hope that you have a smooth recovery and are back on your feet soon and will feel better!

        Hugs,
        Amy

        Comment


        • #5
          Thanks all

          Thanks for all the well wishes,
          I am doing pretty good as I am an old pro at this. I am still hurting some but I have to heal before I can feel the benefits. I am just glad it is over, like you all said!!!

          Griffs mommie,
          How are you doing with yours?

          Thanks to all again
          leeshel

          Comment


          • #6
            I'm also glad it's over again for you. Try not to worry about how far they were able to distend your bladder --- I know I have had at least one where they could only go to 400+ cc, but others where they got to 800. I have no idea why.

            Sending gentle hugs,
            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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            • #7
              I'm okay Leeshel, thanks for asking. I'm still a little bit sore and still really tired for some reason. Other than that I'm okay, planning on going back to work on Monday
              Christine



              I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
              1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
              2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
              I have tried every oral medication as well as rescue instills and DMSO.

              I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

              Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
              Also proud mom to the best Bullmastiff on earth, Claus

              Comment


              • #8
                ME Too!!

                Griffs mom,

                I feel the same way also. I am beat. I was gonna have Easter Dinner here but just called my sister and said I can't do this tom so she is calling mom and if mom doesn't have it at her house then I guess we won't have Easter because of me.
                thanks
                leeshel

                Comment


                • #9
                  Glad to hear that!

                  Donna,
                  I sure am glad to hear that!! It eases my mind.
                  thanks
                  leeshel

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