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IC newbie:What is your advices?I'm about to call a bladder expert!

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  • IC newbie:What is your advices?I'm about to call a bladder expert!

    I'm a male with pubic pain and irritable bowel.Since years of battling IBS didn't help much,i'm ready to see a BLADDER SPECIALIST.

    I HIGHLY SUSPECT MY PUBIC PAIN/SENSITIZATION HAS STARTED WITH A BLADDER INSULT(waiting too long to urinate).NSAIDS screw up my sigmoid colon afterward.

    As soon as the clinic open i'm gonna call the super-urologist for treatment.
    I'm interested in rescue instillation since it directly target pubic pain.What is DMSO?What is the 100% safe "coktail?I don't want to be worst.


  • #2
    HI I can't answer your questions......but I just wanted to wish you luck with all that you are going through. IC and IBS are SO hard to deal with together! I hope you find a good dr. and he is able to relieve your pain. Take care...Roxie

    Double Spinal Cord Stimulator surgery 8/09
    Unsuccessful MiniArc sling surgery 12/07
    Dx'd Hypothyroid
    Dx'd Chronic Axonal Neuropathy & Myopathy
    June 2007
    Dx'd IC May 2006 (after suffering for 25+ yrs!)
    First Cysto 1979
    First Hydro 1981 (Many treatments since then!)
    Collagin"Durasphere" injections for urethra
    Gall bladder surgery Aug. 2004
    Gastric Bypass Dec. 2004
    Dx'd: Barrett's Esphogus July 2004
    Dx'd: Vaginal Atrophy 2005
    Bladder surgery 2000
    Dx'd: IBS 2000
    Hysterectomy (fibroids) 1999
    Laminectomy 1989
    Dx'd: Degerative Disk Disorder 1989

    For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
    I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

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    • #3
      My mother used dmso many years ago, she use to call them janator in a drum. It had sometihng to do with one ingreadent used for a cleaning supliment, or something lol. She smelled very badly like garlic and could taste it too. I think that has changed by now. I do know there was a write up that it can cause more harn then good long term with the bladder, also it can cause you to lose eye sight if you are dibetic.
      'The will of God will never take you where the Grace of God will not protect you.'

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      • #4
        Tip for IBS

        I too suffer with IBS and IC, along with PFD and vulvodynia. One thing that I learned about IBS along with diet and Zelnorm is that Beano as a theraputic dose helps keep my bloating under much better control. I take a theraputic dose of two Beano tablets in the morning. Also, should I be going somewhere that I know I am going to eat something that may possibly cause bloating, I take Beano before a meal. Good luck!

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        • #5
          What is MSM Cream

          What is the MSM cream? I am currently trying to get relief from pelvic floor dysfunction as well as vulvodynia. I have not heard about MSM cream. Please let me know what this is and how it works.

          Thanks

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          • #6
            skrix,Zelnorm is banned from now on.
            I'm sorry.

            here:
            http://ibsgroup.org/groupee/forums/a...61/m/730103203

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            • #7
              The urologist was in another province.Apparently i need an approbation from my own province.That's what the uro-nurse told me.I don't know if this is true.

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              • #8
                Roxie,thanks for your understanding.Yeah people with IC and IBS suffer a lot from it.

                I wonder if anybody has ever cured both of these condition(at the same time).My IBS is predominant but my bladder maybe the root of my problem since my pubic burning is permanent.I hope i will fix the burning to eventually calm my bowel at the same time.

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                • #9
                  Tip, so many IC'ers also have IBS - the two diseases seem to go almost hand-in-hand.

                  Some researchers say there is one central nerve area that regulates both the bowel and the bladder, and if that area gets diseased or gets inflammed, you can get both IC and IBS. So that is one theory about how it is that this disease happens together so frequently.

                  There is so very much research being done these days. Hundreds of millions of dollars is finally pouring into research for this - for many decades it was totally ignored, no one researched - so I really think it is only a matter of a little bit more time before they discover the secret behind both of these diseases and find cures or at least good remedies for both.

                  Blessings,
                  Lori

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                  • #10
                    IClori,if you have an internet link about this "nerve" i'm all ears lol

                    My case is complicated and simple at the same time.

                    I have irritable bladder and irritable bowel.
                    BUT just under my pubic skin there is a "small spot" that creat pressure.I have puborectalis spasm from it.This little spot is burning and seems to disrupt my sigmoid colon.

                    What is ridiculous is that pelvic echography is "normal" as well as barium studies The most ridiculous thing is that's just under the skin and they don't find anything.

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