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Cystoscopy Fri am SCARED Help!!

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  • Cystoscopy Fri am SCARED Help!!

    Hello All! I am a wreck right now! I went into the new doctor two weeks ago. I have had the Ct Scan and Pelvic Ultrasound already done. He also did a scan while I was in the office. According to him I have IC. He started me on all the medications and has me scheduled to return for a (in office Cyst), this FRiday. I am a wreck over it. All of this has been to much on me. He does not take my insurance, so I am paying cash also. I told my regular doctor that I have been under so much and my pain is so intense, that the thought of this procedure is overwhelming. She suggested that I tell him to give me a sedative prior, so that I don't tense and I can relax. I called there and they said that he is not going to do that. They said they will use numbing gel. Well that is not going to get me to make me not tense. I don't know what to do?? I know I need the procedure to make sure nothing else is going on as well as the IC, but the emotional and physical pain I am already in is too much some days. So any advice would be great. I cannot afford Cysto/ w/ Hydro--no way. Please help!! I just don't know what to do?

  • #2
    I took my pain medication before the test so Iwould be in alot of pain after. The test made me very nervous too but you got to look at it this way. In the end this test will help you and finally diagnose you with IC. (if you have it) It's a good thing to have this test done. Just keep your chin up and try not to worry so much about it. Worrying might make you flare from being so stressed out. Go take a bath and try to relax and get your mind of it. We are all here for you if you need to vent or be calmed down. Good luck sweetheart!!! Lots of huggs!!


    Dance like no one is watching
    Love like you've never been hurt
    Live today like it's your last

    Dxd with IC in June '06


    • #3
      I am so sorry to hear that you are in so much pain and so nervous about the cysto. I had one done in Feb I think. I am not going to lie, it was uncomfortable but I did okay and I was scared to death. First of all they do use numbing gel which does help with the discomfort. The one thing the nurse told me to do was to make sure I was breathing OUT when he put the scope in, she told me when it was going to go in. She had me do this because it is not possible for your muscles to tense up if you are breathing out. This really did help a lot, much better than the first one I had a couple of years ago. If I told the dr that I was uncomfortable then he did whatever he could to ease it and finish quickly.
      The other advise that I can give you is if you work, you may want to take the day off, I was really sore and had a lot of burning afterwards so I was glad I did. And once you get home start drinking LOTS of water, that is the only way to help the burning stop fast, it totally worked for me. Good luck!

      I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
      1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
      2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
      I have tried every oral medication as well as rescue instills and DMSO.

      I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

      Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
      Also proud mom to the best Bullmastiff on earth, Claus


      • #4
        Being scared is normal and I think everyone has been there. I hate those things. Most doctors (uros) dont prescibe anything for pain or to help with the tension during the in office cysto. I was given a small script for antibotic afterwards but nothing else. The thing that hurt the most for me was the first time going to the bathroom afterwards.

        Maybe since your regular doctor said maybe they could give you something to help you relax, maybe you can call her back and tell they said no and ask if she could help you.

        Hugs to you and I hope all goes well.
        God grant me the serinity to withstand the days ahead!!!

        My myspace link...


        In Memory of My Father (Lawerence) 1/25/2007

        Interstim Sept 2001
        1st InterStim Removal May 2005
        2nd Interstim Implanted May 2005
        2nd InterStim Removed March 2007
        Hysterectomy 1999
        Tubes Tied 1997
        C-Section 1996

        Me and my kids

        Taylor (my daughter) Me and my daughter My son Cody and Taylor


        • #5
          Is it too late to get your regular doc to prescribe you some Valium or something in the morning, just to keep you calm. I know if I have an MRI or something that she knows will make my claustrophobia kick in she has me well prepared. I hate it when Drs don't realize how nervous we are about these procedures and the possibility of pain. There is really so much more that they could do to help.
          I was born with one ureta not attached to it's kidney, I've been poked and prodded for so long. I never had "private" parts. I had constant infections and took low dose preventive antibiotics into my teens.

          DX with IC July 1993 after seeing 3 different Uro's and finally switching Primary care doctors and affiliated hospitals.

          I have 2 beautiful daughters, the oldest has been in heaven since she was 14 when she was hit by a car The youngest is 20 now. She has had one UTI. She went into complete panic that she would end up like me. Now she has some idea of what the pain is like. Poor kid has been forced to know where every bathroom in Disney World is.


          • #6
            I've had two cysto's in the office and, compared to the more intense hydrodistention, these were a breeze. It's basically just a quick looky loo using a cystoscope... gives the doc a chance to view your bladder.

            I agree with the previous suggestions. Lidocaine jelly makes it more comfortable. Breathing out! Afterwards, I went and soaked in a warm bath that had some baking soda in it for some soothing effects.

            I've found that I do better if I drink a glass of water afterwards so that when it's time to urinate the first time, I have a good volume so that I can just bite my lip and let it go in a solid stream. Dribbling urine out seems to make the urethral burning last a tad longer IMHO. But, after a few voids, that should improve dramatically!

            Good luck!

            Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality.

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            Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.


            • #7
              I insisted on being sedated for my last cystoscopy. The first in office one I had was just to painful. Not all uro's do this test awake, especailly with IC patients because it is too painful. Yet there are some that do just fine with it. You may be one of those who have no poblem.
              Try not to worry yourself sick over it. If you have any ativan or anything at home, you could take one before you go. Or ask your regular doc to prescribe you something to help you relax before the test.
              Good Luck and Big hugs to you.


              • #8
                I find that if I concentrate on breathing slowly and evenly and relaxing as much as I can, it's much easier --- uncomfortable, but not horrible, and it only lasts a very few minutes.

                Stay safe

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                I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                Anyone who says something is foolproof hasn't met a determined fool


                • #9
                  It all depends on who does the procedure. My first uro was not gentle and didn't wait for the lidocane to kick it, so yes it was painful, although quite breif. My second uro who I love did it, but waited for the lidocane to kick in. I felt the pressure of the scope entering and exiting, but not a twinge of pain. He numbed my urethra all the way up, so it didn't even pinch when it went past the bladder neck! :woohoo: I have a whole new out look now on those. The office cysto hurt less than being cathed! Dont worry about it you will do fine!

                  IC diagnosed officially via cysto/urodynamics 1/26/07

                  Grade II Endometriosis diagnosed via lap 12/11/07

                  "Fall down seven times, Stand up eight."

                  "Life is a tragedy for those who feel and a comedy for those who think."

                  Current Treatments:
                  Interstim Since 5/25/07!
                  Birth Control


                  • #10
                    Regular Dr Said "NO WAY"

                    Well after a worried and wreck week, my regular doctor called me late yesterday afternoon nad made me cancel the appt. She said that, if he said he was not going to make feel at ease, that there was no way possible that I can do it. She agreed to find me another doctor who is more understanding and is willing to do pre-pain management. This doctor told me that he does not believe in "masking the pain!!" , so I have enough meds, "thank you GOD!!" , so she is finding me a new DR, AGAIN-- , but when I do this it will be done right and by a compasionate DOCTOR-- Thanx all , your support gave me this decision to stand up for me- that meant the world Tami


                    • #11
                      That's great that you have such a good relationship with your regular doc! That is going to make things a lot easier as you go down Diagnosis Road -- with her on your side, it sounds like this road won't have so many bumps on it!

                      *Diagnosed with severe IC in 2004
                      *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
                      *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
                      *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

                      **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.