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  • Cystoscopy testing?

    I'm new to all of this, and not all that sure if I have IC. I've been feeling pretty decent the past week or so, now tomorrow I'm scheduled to have a cystoscopy test. Does this test potentially make people feel worse, and if so, for how long?? Thanks..!

  • #2
    Personally I took off the whole day for the cysto. It hurt a little and afterwards it burned a lot when I urinated. I upped the water that I drank so that I could flush out my bladder as quickly as possible which helped the burning go away more quickly. I also laid on the couch with my heating pad on a good part of the day. I was still uncomfortable for the next couple of days, which the nurse said is normal for someone who has IC but I was able to go back to work because I have a desk job.
    Christine



    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
    I have tried every oral medication as well as rescue instills and DMSO.

    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
    Also proud mom to the best Bullmastiff on earth, Claus

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    • #3
      OK- good to know. Just hoping it doesn't make things worse for long!

      If you don't mind, I'm wondering what the symptoms of endomit. were for you? Is it similar at all to IC?

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      • #4
        Some of it is yes, when it was growing through my bladder I had painful urination. I also had a lot of pelvic pain. They can have very similar symptoms and both are very hard to diagnois. I honestly think more of my pain is from my bladder now that I know what is going on and can pay more attention to my body. I'm always happy to answer any questions that I can
        Christine



        I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
        1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
        2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
        I have tried every oral medication as well as rescue instills and DMSO.

        I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

        Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
        Also proud mom to the best Bullmastiff on earth, Claus

        Comment


        • #5
          When I had mine, It did hurt some, especially after going to the bathroom the first few times, but I was able to go back to work afterwards.

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