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I'm a 38 yr female that just had a total adominal hysterectomy on March 5. Started having terrible pressure when urinating & pelvic pain at 5 wks post op. I called My gyno & he called in something for a UTI with no success...pain is worse now 9 wks post op. Went in to see gyno yesterday and he checked my urine & found nothing. He did a pelvic & said he was afraid it was IC. He is sending me to a Urologist. I've only had 1 Uti in my entire life so now I'm wondering if the hyster could have damaged or caused IC? I'm really scared. Everybody said I'd feel better than ever after the hyster but I'm still waiting. Somebody please help !!! Gina H...Georgia
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I would love to help. The most I can say is I'm sorry your going thru this.
Before you freak--get a postive diagnosis. Then you can move on to treatment. Like our grandma's always say "don't borrow trouble". -
THanks Angie...I'm still pretty hormonal from the hyster I guess. My appointment with the urologist is May 22 so I'll know more then.Comment
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It could be IC but I'm not a dr. There are many theories as to what causes IC and one of them is trauma like from an abdominal surgery. I hope that it's not IC but if it is we're all here for you.Christine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
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I'm one who developed IC right after a hysterectomy. I had a combination of adhesions and IC --- it was a pretty horrible time for me. Once I had the adhesions taken care of and I had a hydrodistention things began to look at little brighter.
DonnaStay safe
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
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Hey Donna! How long after your hyster were you diagnosed with IC?
thanks GinaComment
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Gina,
I am a firm believer that sugeries can cause IC to come alive.. I think that it lays there just waiting for someone to come along and aggrivate it.. My IC started right after I had kidney stone sugery..So I do believe there is a connection.. I know there is some out there who have not had a sugery but has IC so I believe another stress on the body has caused that..I also know that depression and anxiety do not help IC at all..Well good luck finding out please let us know...Hugs
Ronda
ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!
Link to Patient Handbook:
http://www.ic-network.com/handbook/
Diet Reference Sheet:
http://www.ic-network.com/diet/icndi...tsheet0909.pdf
Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring
Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure
Meds I have Tried:
Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
Lexapro< Bad reaction to this med!
Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..
Dx With IC in Nov 2006 with Hydro/Cysto
Hydro/Cysto Caused Bladder to Rupture.
Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.
ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985
Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
I post to encourage and offer total support for rescue instillations.
Find me on facebook: L. Clark Thomas
LouannComment
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I had my IC before I had my hysterectomy; however I was in remission. ( I was in remission for 5 years).After I had my surgery though, my remission was history. Never really been in remission since-sure I have good days where I have either no pain or very little - but its manageable. If you have this, sorry, but we're here to help you out.Comment
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