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  • #1

    First Cystoscopy!

    Hello everyone I am new here in thr forum. Ive been coming to this site since Nov 2003. Finally I decided to go back to a urologist and they are doing a cystoscopy with hydro and biopsy and bladder wash! I am freaking out! I don't know why. I had surgery before! I am frking out to the point where I am dizzy. Okay so I bsically have a month to think which way to go. Regional or general anesthesia. Has anyone everrrrrrrr had one with the regional (spinal). Ive been suffereing with frequesncy, urgency and inflammation near my urethra since 2003. The microspic blood (hematuria) is there. My urologist and my gyne and my family doc have told me I might have IC. Now all they need to do is look inside my bladder. arggg!

    Okay I will calm down.

    So which anesthesia is better?

    Thank you!
    Tags: None
  • #2
    My personal choice is spinal anesthesia. I have a problem with nausea with drugs and it's not as bad as with a general. I will be seeing my uro next Wednesday and will most likely be scheduling my 42nd hydrydistention.

    Donna
    Stay safe


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    • #3
      Oh, the anesthesia was what had me freaked out, too. It really drove me nuts trying to decide and just worrying about it in general.

      I had general anesthesia, but as Donna said others have used a spinal. I think you probably have to go with your gut on which would be best for you.
      Kim

      Diagnosed August 2001

      Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)

      Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

      I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

      *****************************

      “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

      “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

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      • #4
        I think this would simply come down to whether or not you care if your awake. General you would "sleep" through it. Reginal, you would be "awake" but completley numb. I think there are also less risks assesed with regional.

        Erika

        BTW i can't spell reginal to save my life
        IC diagnosed officially via cysto/urodynamics 1/26/07

        Grade II Endometriosis diagnosed via lap 12/11/07

        "Fall down seven times, Stand up eight."

        "Life is a tragedy for those who feel and a comedy for those who think."

        Current Treatments:
        Interstim Since 5/25/07!
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        • #5
          You can have a spinal and if you want to be "under" they can use something in the IV that will fix that..like valium or something. General makes me sick as a dog so I try to avoid it if at all possible.
          TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
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          Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
          Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
          I post to encourage and offer total support for rescue instillations.
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          Louann

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          • #6
            I had general for my hydro/cysto. I don't have any problems with anesthisa though. I don't think I would have wanted to be awake for that but that's something that you're going to have to decide which is best for you.
            Christine



            I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
            1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
            2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
            I have tried every oral medication as well as rescue instills and DMSO.

            I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

            Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
            Also proud mom to the best Bullmastiff on earth, Claus

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            • #7
              I usually have a general but I don't have any problems with anesthesia(?), but it would be your choice.

              Comment

              • #8
                I wanted them to do general anesthesia.But they tricked me the last minute and did an epidural(spinal) I was really mad.But the advantage with the spinal is that you can see everything thats going on.They can actually hook up a monitor and you can see the inside of your bladder and see them do the biopsy.
                It took them along time to find the right point in the spine for the epidural.My back was sore for about 3 months.Im not sure if I would ever let them do it again.The good part about is that you can go home in about 4 or 5 hours later when you start feeling your legs again.
                GoldSeals
                54 year old male
                Diagnosed with IC in 1994
                Had symptoms since 1992
                Three cystoscopies.One biopsy with hydrodistention.
                This is what I have tried,Dmso cocktail,Elavil,Atarax,Hytrin,Detrol,Pyridium,Elmiron,Allegra,Augmenti n,Flomax,Ditrapan,Vesacare.
                Sent urine samples about 10 years ago to the famous Dr Fugguzatto.Went through plenty of Dr's which took about 2 years for an IC diagnosis.I am considered having one of the worst IC conditions known to my doctors.
                Thanks to reading the great info on this board I am presentally trying 3 more natural remedies.Msm,Glucosamine,and Quercetin

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                • #9
                  Man, when I had the cystoscopy with the bladder biopsy and all that, I had general anesthesia and I was vomiting soooo much the next day. It just depends on how well you do with those kinds of things, I know I can't handle it.

                  Also, mentally prepare yourself for some pain afterwards. They all told me I would be fine and I would feel "slight discomfort". So I was pretty upset that I wasn't feeling just "slight discomfort".

                  That's my advice

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                  • #10
                    Thanks to everyone that has aresponded I appreciate. I am still freaking out. I had a CT scan and I kept moving. I think im doing general. Im just a chicken. I can't concentrate at work or school. I like how everyone described how they felt afterwards. I need to picture it to ask a good amount of days off. Thank you GOD bless you all!

                    Comment

                    • #11
                      no anesthesia

                      I just had my cysto last week and all my doctor did was rub a bit of anesthetic solution in my urethera before inserting the catheter tube. It hurt, but wasn't the end of the world. And this was after a month of intense bladder pain and spasming.

                      There's no need to be so frightened! I promise these types of procedures are done millions of times a day all over the world...you will be fine.

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                      • #12
                        thank you for response...is hard not to be afraid...i read some posts and now im freaking out more. lol.

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                        • #13
                          I had one done in the office with local anesthetic. It was very uncomfortable for me as my bladder filled and she probed around. I had another done with a biopsy for a bladder mass on 6/18 with anesthesia. I usually get sick but they did something through the IV that didn't bother me at all. The anesthesiologist referred to it as twilight sleep and told me it would be the best sleep I've ever had. It was true. I was so rested after that hour or however long it was. I only know what time it was when I woke up i recovery. All I know is that as soon as I woke up, I had to pee. I was given a bedpan. I had to pee MANY more times after that. Had to ask for a nurse to help each time because of the iv and they wanted to measue and record how much and when. Anyway, my answer is that being asleep was much better for me. I woke up bright eyed and bushy tailed. I needed that sleep! Good luck!
                          [FONT="Comic Sans MS"
                          Lisa
                          Mom to:
                          Matthew & Christopher-13 1/2 years old
                          Ryan-9 1/2 years old
                          Wife to John since May 4, 1996

                          DX with IC after PST 10/18/07
                          Lithotripsy for L Kidney stone-8/14/07
                          Cystoscopy & Biopsy-6/18/07 Mass in non-cancerous
                          CT Scan-6/5/07 F/U for bladder mass and kidney calc
                          Cystoscopy-5/30/07 Doctor found bladder mass
                          Pelvic and Renal U/S-5/15/07 Calcification of L kidney
                          Hypothyroidism DX 10/95
                          Possible SLE, currently diagnosed as Undifferentiated Connective Tissue Disease as of 4/10

                          Currently taking: Synthroid 88mcg, 1000iu Vitamin D3


                          [/FONT]

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                          • #14
                            (I think mschick is nervous b/c what she is having done is the cysto with hydrodistention - which is very different than just the cystoscopy.)
                            Kim

                            Diagnosed August 2001

                            Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)

                            Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

                            I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

                            *****************************

                            “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

                            “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

                            Comment

                            • #15
                              I have had several surgeries other than this cystoscope with hydrodistention and to me, the pain was worse with this than with the gallbladder removal and all. I would definitely say go with a general and ask for something in your I.V. for nausea and to relax you so you don't care before the procedure. My heartrate always tells the story. I have a lot of anxiety though and am usually really, really agitated so when the anesthesiologist came by to interview me, he said he already had some "happy drugs" in a syringe in his pocket. It took me all of a minute to relax once he injected that in my I.V. He said it was the beginning of some great sleep and he was right.

                              However, unless your Urologist has had a hydro before, I would not believe this junk about "minimal pain.." I was lucky in that I am already under the care of a pain management doctor because my uro thought I was kidding afterwards when I said I was hurting and in pain and could not pee until after I was given some medication. The recovery nurse was less than sympathetic when her 20 something year old self came over and told me I had received a lot of medication in surgery and she did not think I needed anything. However, I read the orders myself and they allowed for 50mg of Demerol and 25mg of Phenergan before I was sent to the more "awake" recovery and I requested another nurse who did give me the medication because all was fine on the monitors and my Blood Pressure was elevated...which can indicate pain. An elevated blood pressure is a surefire way to tell if one's pain is a 10/10, for instance or whatever.

                              Good luck with the procedure. Just make sure you talk to your admitting nurse and urologist to make sure you're on the same page as far as pain management. Alot of times, I think the anesthesiologist makes the call on post-surgical pain relief though.

                              Please let us know how it goes.

                              April
                              Diagnosed in 2007, but had IC symptoms since 2002. My current regimen includes: home instillations of Marcaine, Heparin and Solu-Medrol plus vaginal valium suppositories nightly. I also use Tramadol for pain as needed.

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