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  • #16
    My uro told me afterwards that they took 2 biopsy's, and found some pin point bleeding that I think they fixed AND something on the base of my bladder they burned off something or things.
    Now she told my husband everything looked good and my cervix didn't look too bad. So he took that as my bladder had no problems.
    He didn't know about the other things until I told him.
    Maybe it is HIPPA that they just can't say too much of what was done. I don't know?? I think this is were the problem is with they tell the patient 1 thing and family a different??
    mom to 3 wonderful kids


    IC symptoms 7/03,
    hysterectomy 11/04,
    prolapse cervix 7/07
    diagnosed: IC 2007
    IBS 2008

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    • #17
      They usually do talk to the family members after surgery even with HIPPA. My guess is they want to wait until your post-op appt when you are not under influence of anesthesia to really explain things. I know I didn't remember half of what they told me about my stomach when I had an endoscopy and I had to wait a month for my follow up. It sounds like your uro is very thorough but I'm just confused as to why they burned stuff off in your urethra but are saying that your bladder is not the problem? Hopefully now that your urethra has been worked on it will help with the bladder pain? I just talked to my rheumatologist and he said the sharp pains in my urethra need to be checked out. I'm just wondering what if anything they will see in there. If they found something like your uro found that they could burn off then maybe it would be helpful for me?? My rheumatologist said to take more Ativan to see if that helps relax my muscle pain but he doesn't think the urethral pain is related to fibromyalgia at all. So I'm kind of back at square one.
      The combo of things that brought me out of remission were artificial sweetners, liquid vitamins with citric acid, tight pants, lower body workouts and stopping all my allergy meds cold turkey during height of allergy season. I wish I knew back then what I know now about IC
      First IC symptoms Spring of 2000; In-office cystoscopy 2002 -negative; Remission until 2007 (yeah!!); Negative PST spring of 2007; IC diagnosed via Cystoscopy and Hydrodistention 7/24/07; Another In-office cystoscopy 4/9/10 with biopsy showed inflammation
      Treatments for my IC/PFD: Elmiron 400 mg per day; walking, Zyrtec, Claritin, Singulair, Neurontin 100 mg per day; Ice packs and laying down; About to try Cytotec
      Tried and Failed: Heat (always makes me worse!), Heparin instills -too painful for my urethra; Atarax (interfered with my quality of sleep first time, second time dried my bladder out; Elavil makes me sick, lidocaine patches (just plain don't work), Cystoprotek (only tried a couple months but didn't seem to do much), Aloe Vera caps, pelvic floor therapy, trigger point work flared me worse, Lyrica (bad stomach pain)
      Other Diagnoses: PFD 2009; Fibromyalgia 2006, Osteopenia 2012, GERD 2006, Gastroparesis (delayed gastric emptying) Anxiety: Other medications: Ambien, Dexilant, Ibuprofren, Necon 1/35, Voltaren gel for tailbone
      BABY GIRL 10/28/08 *** BABY BOY 7/8/11

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      • #18
        I think that she (uro) just wanted to reassure my husband. I don't know what she burned off but she did say it was on the base of the bladder. I don't think she did anything with the urethra. But I will find eveything at at my post op appt.
        All I know is that it is done with.
        mom to 3 wonderful kids


        IC symptoms 7/03,
        hysterectomy 11/04,
        prolapse cervix 7/07
        diagnosed: IC 2007
        IBS 2008

        Comment

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