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Cystoscopy done today, diagnosis is unclear...

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  • #16
    They are working on a test that will work by simply testing our urine. I am not sure of the details but it is something that is in our urine that is not in other people's urine that don't have IC. I don't think this test is too far away from use in offices.

    Maybe someone else will know more about it and post.

    Sandra
    Link to the patient information, everything from What is IC? to Disability
    http://www.ic-network.com/patientlinks.html

    American Urological Association Clinical Guideline
    Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
    http://www.auanet.org/content/guidel...ent_ic-bps.pdf

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    • #17
      I believe it is called Anti-proliferative factor or something like that. I just read that it's a substance or something that keeps cells from repairing themselves. Don't quote me though.. I just remember reading that they had found that in a high number of IC patients' urine.

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