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  • Had cystoscopy this morning -- feeling fine!

    Hi everyone,

    Like many other people on this board who have read some of the unfortunate troubles that some people have had with their cystoscopy, I was feeling really nervous (read: terrified) about my procedure.

    Well, I had a cystoscopy this morning under general anesthesia at the hospital. I had already been consulted in full about the procedure last week, so I knew what I was to expect this morning. My bladder was feeling decent the past few days and now it feels pretty much the same.

    I had no blood in my urine - neither right after when I peed at the hospital nor anytime in the 6 hours since I've been home. The worst pain I experienced was in my urethra on my first 3-4 trips to the bathroom. Now there is barely any pain. I have some discomfort (like pressure pain) from drinking a lot of water (I've been drinking steadily since I got back) mostly, but in terms of IC pain .... my regular flaring is much worse.

    I would describe my pain today at about a 3/10 or 4/10. I would rate my usual flare anywhere from 6/10 to 10/10.

    I was given no pain meds and have only taken two ibuprofen for a headache (not a lot of sleep + stress + anesthetic = headache). And that's it.

    I'm going to keep drinking water and keep resting as lying down does feel better on my bladder/urethra than sitting at my computer chair!

    Good luck to everyone who has a cystoscopy coming up.
    Last edited by klite; 02-25-2011, 03:53 AM.
    Me: Canadian. 31.

    IC symptoms: Cramping, burning, frequency. Pain!

    Pain management: Ibuprofen. AZO. Marijuana. Prelief. The IC Diet.

    My IC-safe, Gluten-free, Lactose-free food blog:
    Good for Your Guts

  • #2
    Good for you!!!!

    I'm so glad it went well!! Just keep resting and drinking and peeing!!!
    Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
    Lexapro-20 mg
    Aciphex
    Ambien-as needed
    Percocet-7.5 up to 3 per day as needed
    Valium-10 mg x2 per day
    Phenergan-1 at night
    Prelief w/everything
    Now recovering from acute pancreatitis

    Currents treatments that help somewhat:
    Heating pad
    Hot baths
    Ice
    Being VERY still while lying down with legs elevated

    Comment


    • #3
      I too am glad to hear it went well for you!
      Hugs,
      Tracey
      How do you eat an elephant? One bite at a time...

      Harry arrived 2/23/09!



      *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      IC Diet Cheat Sheet:
      http://www.ic-network.com/diet/2009icdietlist.pdf



      Dx's:
      IC dx'd Nov 2004
      Lymphocytic Colitis dx'd July 2005
      Possible IBS
      Current IC Meds
      Vistaril 25mg in the evening
      Previous IC Meds taken:
      Cystoprotek - 2 caps 2x's a day
      Elmiron, 100mg 3x's a day
      Ditropan, 5 mg 3x's a day
      Others:
      Wellbutrin 150mg 2x's a day for Anxiety/IBS
      Pepcid 40mg a day for GERD
      Zytrec for Nasal Allergies
      Align Probiotic daily for IBS

      Comment


      • #4
        Thanks for the support!

        I just wanted to add that what I had done yesterday was a cystoscopy with hydrodistention. I don't know what the results are until I talk with my urologist in a few weeks (he is one of the busiest urologists in the city, but worth the wait I think).

        I had an in-office cystoscopy done with gas two years ago ... and that was a terrible experience for me. That procedure, done by a horrible doctor, caused me A LOT of pain. I actually ended up filing a formal complaint against that doctor because he left out a lot of info about what was being done to me and just had an incredibly rude and dismissive manner. I know now that if I don't like or trust the doctor -- get a second opinion right away!

        (My urologist basically told me that he thinks that the in-office cystoscopy with gas is outdated and not good for patients with IC).

        That previous experience also added to my anxiety about the cystoscopy yesterday. I was worried that my bladder would be beaten up today, but I have awoken this morning feel totally fine. And I only got up to pee once in the night! Amazing considering how much water I drank yesterday and that I usually get up a lot more.

        I'm going to be taking it easy today (watching Freaks and Geeks!), but I feel confident that I made the right decision to undergo the procedure yesterday.

        Again, good luck to everyone waiting for their own cystoscopy. Talk to your doctor and make sure that you are doing what feels right for you!
        Me: Canadian. 31.

        IC symptoms: Cramping, burning, frequency. Pain!

        Pain management: Ibuprofen. AZO. Marijuana. Prelief. The IC Diet.

        My IC-safe, Gluten-free, Lactose-free food blog:
        Good for Your Guts

        Comment


        • #5
          I'm glad it went well for you.


          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

          Comment


          • #6
            Congrats! Glad all went well for you. Sometimes the anticipation is the worst part, think sometimes get so worked up it makes it worse. So happy for you, and what did they find? Jill, wife of Bob

            Comment


            • #7
              Glad everything went ok with you. Sounds like you will be fine. I have had quite a few and never did have any problems (some major bleeding with one time that went on for a few days and the doctor didn't do anything said it would stop (now mind you I am on coumadin (a blood thinner) and I couldn't be on my meds while bleeding; needless to say I am not seeing this doctor anymore). But other than that, I am usually fine the next day (usually have my done on Thursday and like I said by Friday I am ok, of course I take it easy the rest of the weekend and for the most part I can go to work the following Monday, providing if I take it easy.

              Comment


              • #8
                Finally found out my results!

                Thanks for all positive wishes everyone!

                After waiting a month (!), I finally met with my urologist to discuss the findings of my cystoscopy. Turns out that my bladder, while looking quite irritated, does not show any signs of ulcers or bleeding. That is definitely a relief to hear. The urologist told me that I have what he would call an "irritable bladder." He also said that my bladder was unusually large (apparently large bladders run in my family ... my grandmother had a notably large bladder too. Funny!) and that I drink too much water during the day.

                So I guess I have what some people call "mild IC" or just "my bladder freakin hurts sometimes!" I'm trying to keep in mind that it is not the name I give my pain that matters, but that I focus on dealing with the symptoms in positive and productive ways.

                My plan of attack now is to keep following the IC diet and continue to get more exercise. I am also going to keep a close track of how much water I drink during the day and how it affects my urgency. I do think that a lot of my problem stems from prolonged anxiety and stress (grad school was not kind to me) and that the more I relax and recover mentally, the more I will heal physically. I am certainly in a better place today than I was 6 months ago.

                I am so glad that I decided to go through with this cystoscopy, even though I was terrified after my first in-office with gas cystoscopy. My urologist this time wasn't amazing (too busy to really talk with the patient), but I trust his findings.

                Knowing that my bladder is not severely damaged is a relief. I'm trying not to get too excited, but maybe one day I will be able to have orange juice again!
                Me: Canadian. 31.

                IC symptoms: Cramping, burning, frequency. Pain!

                Pain management: Ibuprofen. AZO. Marijuana. Prelief. The IC Diet.

                My IC-safe, Gluten-free, Lactose-free food blog:
                Good for Your Guts

                Comment


                • #9
                  Glad you got results from your hydro. I fall into the same category as you - mild IC. My hydro did not show any ulcers, etc. either, but it did show "irritation".

                  I am careful of what I eat and take some Prelief if I'm not able to discern all of the spices or ingredients that I will be eating, or if I'm eating something that could be an irritant.

                  Some of those things for me are pineapple juice, lemonade, tomatoes, chili peppers and paprika. I still eat tomatoes, but in very small amounts at a time. I've cut back alot on the amount of tea that I drink and only steep my decaf tea bag for about 1 minute these days.

                  Good luck - I don't know if I'll ever dare to drink a citrus juice ever again. Really a bummer after discovering my favorite drink was pineapple and Malibu !
                  Colleen

                  * ITP - autoimmune blood disorder - spleen removed 1978 and in remission since
                  * MS- diagnosed Jan-2010
                  * IC - confirmed by cysto and hydro Nov-2010 - currently taking no medication
                  * possible adenomyosis - suspected by urogyno May-2010
                  * low Vitamin D levels - taking 2000 IU daily
                  * sleep issues - 1/2 alprazolam

                  Comment


                  • #10
                    Can the cystoscopy be done with local anethesia and sedation? I have one coming up but don't want general anesthesia or spinal block. I'm terrified!!
                    Dg. with IC 2/15/10

                    Other conditions: depression, ADHD, lactose intolerance, celiac disease, chronic fatigue syndrome, IBS-C.

                    Medications I'm on: Vyvanse 70mg, Xanax 1 mg as needed, Wellbutrin XL 150 mg, Vicodin 5/500 as needed for pain, Microgestin 1/20 continuously.

                    Supplements I'm taking: Chondroitin Sulfate, N-acetyl-glucosamine, MSM 3gr/day, Pancreatin, B-5, Ester-C, and marshmallow root tea

                    Comment


                    • #11
                      Hi Runner, do you mean cysto with hydro? If so, maybe ask your doctor if they can do it with a local as doctors usually have strong opinions about this and might think you would have breakthru pain or something with a local, thus the reason for doing a spinal? Not sure. I just had the regular cysto so had no pain meds or anything and it didn't hurt. Can't imagine having my bladder over-filled without being out or having an epidural or something. Maybe if you explain your reasons they will discuss it as an option with you.
                      Cindi


                      Gelnique for frequency/urgency - works great
                      Macrobid after sex
                      Prilosec, continuous birth control pills
                      synthroid .088mg, mucinex-d, restasis

                      Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

                      Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

                      IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
                      AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
                      AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
                      Great treatment flowchart on page 19 of the pdf

                      Comment


                      • #12
                        Cysto with hydro I had under general anesthesia. No pain, no memory of it. No problems after with the anesthesia or any pain, thankfully.

                        Had two recent cystos in surgical room at local clinic to remove two kidney stents and had no anesthesia. Not as bad an experience as I thought it would be. Stent removal was most painful part and you wouldn't be having that.
                        Colleen

                        * ITP - autoimmune blood disorder - spleen removed 1978 and in remission since
                        * MS- diagnosed Jan-2010
                        * IC - confirmed by cysto and hydro Nov-2010 - currently taking no medication
                        * possible adenomyosis - suspected by urogyno May-2010
                        * low Vitamin D levels - taking 2000 IU daily
                        * sleep issues - 1/2 alprazolam

                        Comment


                        • #13
                          Originally posted by 425runner View Post
                          Can the cystoscopy be done with local anethesia and sedation? I have one coming up but don't want general anesthesia or spinal block. I'm terrified!!
                          They usually use local and Valium for regular scopes. If it's a hydro you don't want to be awake.
                          • 27 year old student
                          • Had symptoms since I was 5
                          • Been on forums since '07, knew I had this since then, received mild treatment without true diagnosis due to anxiety. Diagnosed by symptoms on 4/08/11.
                          • Had first horrible flare in 07, bad doctors, had to research IC myself to clue in onto what it was. After following the diet I went into remission.
                          • Big flare in 09 due to an untreated bladder infection. Went back into remission in 2012.
                          • Symptoms returned 4/1/15. All of my remissions have ended in April-May or September-October. It sounds like a connection to seasonal allergies to me..


                          Currently: Continuous Birth Control, vaginal valium (10/6/11), Elmiron (4/08/11), UTA (4/08/11), continuous Trimethoprim for infections (10/6/11), Heating pad, Benedryl, harsh diet

                          What I know works: Benedryl, diet, birth control, UTA, valium, ditropan, soma

                          What didn't work: Elavil, vistaril (12/22)

                          Comment


                          • #14
                            I agree with the above posters ... I had the option to have general or local anesthetic and went with general because I was scared of the potential pain and really didn't want to have another memory of having my bladder prodded at!
                            Me: Canadian. 31.

                            IC symptoms: Cramping, burning, frequency. Pain!

                            Pain management: Ibuprofen. AZO. Marijuana. Prelief. The IC Diet.

                            My IC-safe, Gluten-free, Lactose-free food blog:
                            Good for Your Guts

                            Comment


                            • #15
                              Just a thought, have you been tested for urinary retention?

                              I have a very lg bladder capacity, but it is from haveing retention for so long it has streached out.

                              This maybe part of your problem.

                              They can easily test for this with an ultrasound.

                              MG
                              My are with you all. May you all find a way to peace and joy in your lives.

                              Comment

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