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    For my first ever cysto!

    Wish me luck...kind of nervous. Also my first time EVER going under anesthesia.
    DX: IC, V, VV, PFD, Generalized Anxiety Disorder, PN (just chronic inflammation of the nerve, not an entrapment), Depression

    Current Treatments: Effexor XR, Gabapentin, Oral Valium, Methadone, Lidocaine, ice/heat packs, sometimes vaginal valium suppositories, Vicodin

    My Pelvic Pain Blog

    FB Fanpage for My Pelvic Pain Blog

  • #2
    Good luck!!!

    Oh, I hope everything went great!! Let us know. My best wishes are with you!!
    Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
    Lexapro-20 mg
    Aciphex
    Ambien-as needed
    Percocet-7.5 up to 3 per day as needed
    Valium-10 mg x2 per day
    Phenergan-1 at night
    Prelief w/everything
    Now recovering from acute pancreatitis

    Currents treatments that help somewhat:
    Heating pad
    Hot baths
    Ice
    Being VERY still while lying down with legs elevated

    Comment


    • #3
      Fingers crossed for you!

      Vicki
      "The happiest people don't necessarily have the best of everything; they just make the best of everything they have."

      Comment


      • #4
        Good luck! Please give yourself ample time to recover and lots and lots of rest. It can take a good while to recover from this surgery. Take care of yourself!

        Comment


        • #5
          Hi-

          Went pretty well.

          My throat is very sore and dry ever since I woke up and I am very groggy.

          My urethra is a hot mess right now I cry every time I pee or wipe. But he gave me vicodin, so I am hoping this is just a passing thing.

          No signs of cancer or other odd lumps : )

          They did discover that I have an abnormally small and narrow urethra.

          He just wants me to continue on Elmiron for three months and then check back in with him. He says stretching my urethra is something we may want to consider in the future, but he doesn't think it is necessary right now.

          This was just a regular cysto. He doesn't make patients do the hydro, he diagnoses IC based on symptoms, potassium test, infectious tests coming back all negative, medical history etc.

          I know some people get the regular cysto done awake, but since I suffer from so many pelvic pain problems he thought it was best not to attempt it.
          Last edited by VCNJ84; 02-02-2011, 12:53 PM.
          DX: IC, V, VV, PFD, Generalized Anxiety Disorder, PN (just chronic inflammation of the nerve, not an entrapment), Depression

          Current Treatments: Effexor XR, Gabapentin, Oral Valium, Methadone, Lidocaine, ice/heat packs, sometimes vaginal valium suppositories, Vicodin

          My Pelvic Pain Blog

          FB Fanpage for My Pelvic Pain Blog

          Comment


          • #6
            I'm sorry you're in pain. Hopefully the Vicoden will kick in soon. You might try an ice pack on that area, it usually helps me. Also, when I had my cysto/hydro it really hurt for the first day, then after that I was just sore for about 4-5 days. Then I was back to my normal "whatever". Just take it easy and try to relax and let the meds work. I hope you're feeling better soon.
            Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
            Lexapro-20 mg
            Aciphex
            Ambien-as needed
            Percocet-7.5 up to 3 per day as needed
            Valium-10 mg x2 per day
            Phenergan-1 at night
            Prelief w/everything
            Now recovering from acute pancreatitis

            Currents treatments that help somewhat:
            Heating pad
            Hot baths
            Ice
            Being VERY still while lying down with legs elevated

            Comment


            • #7
              Originally posted by KatieB View Post
              I'm sorry you're in pain. Hopefully the Vicoden will kick in soon. You might try an ice pack on that area, it usually helps me. Also, when I had my cysto/hydro it really hurt for the first day, then after that I was just sore for about 4-5 days. Then I was back to my normal "whatever". Just take it easy and try to relax and let the meds work. I hope you're feeling better soon.
              Thanks so much

              I really want to use some of my ice supplies, but I have my stupid period so it's difficult b/c of the whole pad in the way situation. I can't use tampons b/c of my PFD.
              DX: IC, V, VV, PFD, Generalized Anxiety Disorder, PN (just chronic inflammation of the nerve, not an entrapment), Depression

              Current Treatments: Effexor XR, Gabapentin, Oral Valium, Methadone, Lidocaine, ice/heat packs, sometimes vaginal valium suppositories, Vicodin

              My Pelvic Pain Blog

              FB Fanpage for My Pelvic Pain Blog

              Comment


              • #8
                hi
                glad you made it thru ok: wow, it sounds like you have a most compassionate doctor. i hope you make a speedy recovery!

                Comment


                • #9
                  Originally posted by Briza View Post
                  hi
                  glad you made it thru ok: wow, it sounds like you have a most compassionate doctor. i hope you make a speedy recovery!
                  Thanks.

                  Yes, I really like this doctor.

                  The reason I probably did not get IC help sooner was b/c my old URO was a jerk. The old uro made me feel like a drug addict b/c my V doc had me on 40mg of Elavil.

                  I gave up with that URO and when I was ready to find a new one my fiance recommended this new one.
                  DX: IC, V, VV, PFD, Generalized Anxiety Disorder, PN (just chronic inflammation of the nerve, not an entrapment), Depression

                  Current Treatments: Effexor XR, Gabapentin, Oral Valium, Methadone, Lidocaine, ice/heat packs, sometimes vaginal valium suppositories, Vicodin

                  My Pelvic Pain Blog

                  FB Fanpage for My Pelvic Pain Blog

                  Comment


                  • #10
                    Ice pk and period

                    I put my ice eg froozen water bottle, plastic encased reg ice pk, or bag of crushed ice, in and old cotton sock, or wrap up in an old tea towel, face cloth, put between pad and you, depending on how heavy your period is you may have to change it often, but you still get the effect of the cool ice.

                    You could also just use a light day pad on ice pk but they tend not to sick to the froozen pk too well.

                    Hope this doesn't last too long, I also find feezing ont, ont last longer than gel, I use the 5% kind, it helps for this kind of thing, burn when you first put it on but worth the releif.


                    MG
                    My are with you all. May you all find a way to peace and joy in your lives.

                    Comment


                    • #11
                      Blog

                      I really enjoyed your blog. Thanks for posting. I hope you fill better soon.
                      Diagnosis: Endometriosis, IC, PID, PCS, PFD, PN/PNE, VV, fibro, Pelvic Adhesions, DDD, Hysterectomy at a young age. Unable to take estrogen, causes pain—extremely bad pain.

                      Thankful: For all the support and comfort I receive on this site.

                      Comment


                      • #12
                        Originally posted by Mothergoose View Post
                        Ice pk and period

                        I put my ice eg froozen water bottle, plastic encased reg ice pk, or bag of crushed ice, in and old cotton sock, or wrap up in an old tea towel, face cloth, put between pad and you, depending on how heavy your period is you may have to change it often, but you still get the effect of the cool ice.

                        You could also just use a light day pad on ice pk but they tend not to sick to the froozen pk too well.

                        Hope this doesn't last too long, I also find feezing ont, ont last longer than gel, I use the 5% kind, it helps for this kind of thing, burn when you first put it on but worth the releif.


                        MG
                        Thanks for the tip : )
                        DX: IC, V, VV, PFD, Generalized Anxiety Disorder, PN (just chronic inflammation of the nerve, not an entrapment), Depression

                        Current Treatments: Effexor XR, Gabapentin, Oral Valium, Methadone, Lidocaine, ice/heat packs, sometimes vaginal valium suppositories, Vicodin

                        My Pelvic Pain Blog

                        FB Fanpage for My Pelvic Pain Blog

                        Comment


                        • #13
                          Originally posted by Thingone View Post
                          I really enjoyed your blog. Thanks for posting. I hope you fill better soon.
                          Thanks so much!! I really appreciate it. This is the year I am going public with my health problems to fight for women
                          DX: IC, V, VV, PFD, Generalized Anxiety Disorder, PN (just chronic inflammation of the nerve, not an entrapment), Depression

                          Current Treatments: Effexor XR, Gabapentin, Oral Valium, Methadone, Lidocaine, ice/heat packs, sometimes vaginal valium suppositories, Vicodin

                          My Pelvic Pain Blog

                          FB Fanpage for My Pelvic Pain Blog

                          Comment

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