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  • #1

    Nervous about up coming Cystoscopy & Hydrodistention and Laparoscopy

    So I am scheduled for a Laparoscopy and Cystoscopy and Hydrodistention 2/22/11. Orginially I was told that these are out paitent procedures and I will most likely only have mild discomfort and should be fine to return to work the following day. Then I went to my post operation appointment... I was given prescriptions for 3 different pain medication with numerous refills on each and was told that they are going to "make my life a living hell for 3 days." So which is it?!?!?

    I've been reading numerous post on here about the procedure and am still unsure of what may happen to me after and if I may need some additional time off work. It seems like some of you feel fine right away and are pain free for years and others of you are miserable for several months and only receive a short period of relief. I was so hopefull that this would be my chance for normality. That I would finally be able to do things that normal people do and most importantly be pain free for once in my life. Don't get me wrong I still plained on sticking to the deit as best as I can. No need to do anything that might reverse the procedure and put me in pain again.

    My other concern is that I am under the impression that I am not to have surgery if I am sick. Well, I got the flu last week Monday and am still slowly recovering. I am feeling much better than I was Monday and every day I continue to feel better than the last but I am still worried that it will not be completely gone by Tuesday. I also ended up with a bladder infection this week Wednesday. I have antibiotics but I am still in a lot of pain. Normally when I end up with an infection I feel better with in a few days of having antibiotics. I'm worried that the antibiotics aren't working or that the infection has caused me to go into a major flare. Or a combination of the infection and the stress over worring about the surgery has caused a flare. No matter what though I need to have the surgery on the day it is scheduled. I am a very busy person (school, work, volunteering) and do not have the time available to reschedule or the extra time to take off work after surgery.

    Lastly I am worried about the drive home after surgery. As it is I do not do well on long car rides and my specialist is a little over an hour away. I am worried that I will be in major pain after surgery causing this car ride to be particularly difficult. I am hoping that this will not be the case because I will go to sleep because I will still be kinda knocked out by the anesthesia.

    Please help! What should I expect after surgery/during surgery? This is my first ever surgery and I could really use some positive feedback/thoughts and prayers.
    Darcy
    Tags: None
    • #2
      I have had over 40 hydrodistentions in my 36 years with IC and have rarely needed pain medication after the first day. My uro has always prescribed then "just in case" but if I take it easy for a few days I do fine. When I was working (I'm retired) we would schedule me for a Tuesday or Wednesday and I would return to work the following Monday. I go to a surgery center now, which is only about 20 minutes away, but when I went to the hospital for my hydrodistentions, it was a 45 minute drive. I would be a little uncomfortable by the time we got home, but not horrible.

      I hope this helps you as much as it does me.

      Warm hugs,
      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.       [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

        Comment

        • #3
          Donna, how long do you get relief from the hydro? Months? weeks? I've seen different answers!
          Diagnosis: IC '09, vulvodynia '10, fructose intolerance '06, GERD '06, fibromyalgia '09, IBS '10 and TMJ '09, PCOS '11, genital herpes '12

          Current Meds: Butrans patch, welbutrin, lamictol, geodon, xanax, aldactone, linzess, topimax, trazadone and diflucan as needed.

          Meds tried before: Elmiron, elavil, antibiotics, welbutrin, cymbalta, prozac, nerve blocks, instills, nyastatin, flexerol, percocet, naproxen (which was what I was given for pain for years).

            Comment

            • #4
              I'm not sure if this will help you but I have had both procedures done. I had the laproscopic at age 13 and I think that one is worse than the cystoscopy. I didn't have a problem with either of them, recovery only took a couple of days just taking it easy... I only had some pain with the lapro because of how they get in there, they make tiny incisions and go through the belly button and that was a bit painful but not bad.
              I pray your mind is at ease if you do have the surgery tomorrow, as I see you said your sick with the flu and have a bladder infection.
              Diagnosis: IC '09, vulvodynia '10, fructose intolerance '06, GERD '06, fibromyalgia '09, IBS '10 and TMJ '09, PCOS '11, genital herpes '12

              Current Meds: Butrans patch, welbutrin, lamictol, geodon, xanax, aldactone, linzess, topimax, trazadone and diflucan as needed.

              Meds tried before: Elmiron, elavil, antibiotics, welbutrin, cymbalta, prozac, nerve blocks, instills, nyastatin, flexerol, percocet, naproxen (which was what I was given for pain for years).

                Comment

                • #5
                  My time between hydrodistentions varies. My last one was in October 2009. I have gone as little as six months and as long as 22 months, with an average of about a year.

                  Donna
                  Stay safe


                  Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                  Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                  Have you checked the ICN Shop?
                  Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                  Patient Help: http://www.ic-network.com/patientlinks.html

                  Sub-types https://www.ic-network.com/five-pote...markably-well/

                  Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                  AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                  I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.                   [3MG]

                  Anyone who says something is foolproof hasn't met a determined fool

                    Comment

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