Hello all!
Well, I finally had my first cystoscopy with hydro and biopsy yesterday, in the hospital. I am so upset though, one because I am in quite possibly... the WORST pain that I have ever been in my whole life; and two, my doctor said that he didn't see any current cuts/bleeding/lacerations. He did say that he saw IC related inflammation, and I am still waiting on results from the biopsy. I am so mad though, because I really do not think that he did a thorough job, I mean... I was having a bad flare yesterday, and I had not had anything to eat or drink since the night before. I woke up from the procedure, crying and screaming from the pain. I was given 4 shots of morphine, but that really didn't help very much, though it never really does. I am home now, still in crucial pain, and I am seeing my primary IC doctor in an hour because she wants me to come in for an emergency instill. I cried to her on the phone last night, because I felt as though I would be labeled as "crazy" because the cysto/hydro didn't show definitive findings. But she reassured me... "You're not crazy! You have IC! The cysto/hydro don't always show it, it depends sometimes on what type of flare you are having."
Also, this same doctor has done a sono and countless urine tests. She found moderate inflammation all in my bladder, plus she ALWAYS finds bladder skin cells in my urine along with blood.
I just wanted to be reassured by my fellow IC-ers :-) And I also wanted to see if anyone here has ever had the same problem with a cysto/hydro.
Thank you everyone :-)
Well, I finally had my first cystoscopy with hydro and biopsy yesterday, in the hospital. I am so upset though, one because I am in quite possibly... the WORST pain that I have ever been in my whole life; and two, my doctor said that he didn't see any current cuts/bleeding/lacerations. He did say that he saw IC related inflammation, and I am still waiting on results from the biopsy. I am so mad though, because I really do not think that he did a thorough job, I mean... I was having a bad flare yesterday, and I had not had anything to eat or drink since the night before. I woke up from the procedure, crying and screaming from the pain. I was given 4 shots of morphine, but that really didn't help very much, though it never really does. I am home now, still in crucial pain, and I am seeing my primary IC doctor in an hour because she wants me to come in for an emergency instill. I cried to her on the phone last night, because I felt as though I would be labeled as "crazy" because the cysto/hydro didn't show definitive findings. But she reassured me... "You're not crazy! You have IC! The cysto/hydro don't always show it, it depends sometimes on what type of flare you are having."
Also, this same doctor has done a sono and countless urine tests. She found moderate inflammation all in my bladder, plus she ALWAYS finds bladder skin cells in my urine along with blood.
I just wanted to be reassured by my fellow IC-ers :-) And I also wanted to see if anyone here has ever had the same problem with a cysto/hydro.
Thank you everyone :-)
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