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  • #1

    Cysto/hydro only hold 1 cup

    Home from Cysto/hydro.. it went well but they broke a vein putting in the IV so had to be pricked again --Ouch..
    Urologist said my bladder is very tiny and even with expansion can only hold 1 cup... I will see him again in May. He said a normal bladder can hold 4 cups..Oh my land I can't even imagine that lol...

    I was so dopey did not think to ask any questions.. I already know I have IC and I have a small bladder

    I still have a bit of bleeding but it has let up .. Said if it continued for more then 48 hours to call my family Dr..
    God brought me to it, He will bring me through it!!!

    Diagnosed 2003
    by cysto/hydro
    Elmiron took almost a year- made me sick, caused diarrhea
    Pyridium -Made me sick
    Detrol and Ditropan, Toviaz and Mrrbetriq- caused constipation and head ache.
    Tried DMSO instill- had 5 out of 6
    Started Oxytrol Patch-stopped using them after 3 months-- skin was getting irritated
    Cysto/hydro April 6th 2011-- on expansion only hold one cup
    IBS/ IC
    High blood pressure meds and Crestor
    Metformin (prediabetic)
    Sinequan (depression)
    Tags: None
  • #2
    I am glad the your hydro went well, other than the vein problem. I hate it when that happens!! Sorry to hear that your capacity is so low. Were they doing the cysto to see where you are now? I hope that you don't have anymore of the bleeding and recover soon.

    Are you and your Dr planning to change your treatment plan? I hope things go well for you while recovering.

    Sandra
    Link to the patient information, everything from What is IC? to Disability
    http://www.ic-network.com/patientlinks.html

    American Urological Association Clinical Guideline
    Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
    http://www.auanet.org/content/guidel...ent_ic-bps.pdf

    Comment

    • #3
      Hi, I had it done to check on things and hopefully get a bit of relief but with one cup that is not going to happen.. I did 5 dmso treatments before surgery..
      I am really sensitive to meds.. I can't take Elmiron, pyridium, Detrol I can take when needed but it constipates me..
      The bleeding has stopped-- still hurts to pee and my throat is still sore but that is all normal..
      I guess I will find out more when I see uro again in May..
      thanks for your reply
      God brought me to it, He will bring me through it!!!

      Diagnosed 2003
      by cysto/hydro
      Elmiron took almost a year- made me sick, caused diarrhea
      Pyridium -Made me sick
      Detrol and Ditropan, Toviaz and Mrrbetriq- caused constipation and head ache.
      Tried DMSO instill- had 5 out of 6
      Started Oxytrol Patch-stopped using them after 3 months-- skin was getting irritated
      Cysto/hydro April 6th 2011-- on expansion only hold one cup
      IBS/ IC
      High blood pressure meds and Crestor
      Metformin (prediabetic)
      Sinequan (depression)

      Comment

      • #4
        Even if your capacity is small, it could still help with pain levels. I hope you recover quickly so you'll know.

        Warm hugs,
        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.         [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

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