Post hydro pain for first time! Help!

[britneybert]

Hi! My name is Britney I am 27 and will be getting married in 17 days! Yay! So I thought..... I decided it would be best to have a hydro done before my wedding and honeymoon because it has been a little over a year sense the last one. I do not want to be miserable on the biggest day of my life. All of the other times I have had this done I felt almost 100% better the next day. This time is a totally different story. I had it done yesterday and I thought I would be able to work today like I usually have. I work for clinique so I am on my feet all day. It all started going wrong last night I was up until 4 am going to the bathroom in a little bit of pain but not soooo bad. I got up this morning felt normal for the day after a hydro some pain bit not to much. Took my daughter to school and got ready for work. Before I even got out of my car to walk in I had this horrible pain felt like te worst flare up ever but it felt like my bladder was going to explode and needles were going to come out of it. I made it thru work all of one hour. Mind you 45 min of that I was in the bathroom. I can not squeeze the pee out to feel relief like normal so each trip took about 6 min. Still no relief. I am taking hydroxyzine and my 7.5 percocets as well as prosed ds. Nothing is helping! Does anyone know what i should or could do? I am so scared that I will miss more work and maybe even my wedding will be a miserable flare up. I am lost.

[sully02]

The hydroxyzine could be making the urine retention more of a problem. Of course you should call the DR. Maybe a heating pad, ice pack or tens unit, if you have one. Percocets can have urine retention effect also I think. I am so sorry this is happening to you. Please let me know how you are coming along. Don't think about your wedding now, it will only make it worse. STRESS Everything will be fine very soon. You have a good history so this time something must be different, don't worry until you talk to the Dr and find out what is going on. I know, easier said than done. I am awful at letting the worry pile up on me and take me further into pain. But, I know it is good advice if you can manage it.
sully

sully

[britneybert]

Thank you! I have a appt in a couple of hours. I just want it to stop hurting. I am positive that this will go away. I am going to ask him to maybe give me another pain med. Any ideas?

[ICNDonna]

It sounds like you may have an infection. I had one after a hydro once. I hope you feel better very soon.


Donna

[sully02]

I have the bladder instills done when I am in such acute pain but this is probably not the time for them. Maybe it is an infection. I take vicodin when I have to but percocet is stronger I believe so I can't really help you with that. Try an ice pack and do you have any anti anxiety pills, like xanax or klonopin, valium? They might help also until you can get to the Dr. I am so sorry. Keep me posted.
God Bless
sully

[britneybert]

I will let you know what my doctor says. I am just trying to stay positive. I have had so many battles and I feel like everyone thinks I am crazy. No one can see our pain so they dismiss it. It makes me feel the need to back down and under play how I realy feel. I don't want my doctor to think I am just being dramatic. I am dreading telling my boss that I might not be able to work tomorrow too?! Once again it is a matter of you can't see our pain and I am young so people assume that I am making it up. It is so depressing at times. I want to have a sign hanging from me that says. Jist because I am smiling right now it does not mean that it is impossible for me to be in terrible pain any second. Please understand! Anyway I know it doesn't change anything complaining about it but it angers me!

[sully02]

Britany,
I understand your emotional and physical pain. You are not being dramatic, you are in pain! Try to cut yourself some slack. I feel the same way as you. This invisible illness that is stealing our lives. We live in fear of the pain that "might" come that when it does we immediately react. You are doing all the right things by getting the hydro so you will have a great wedding and honeymoon and still be able to work. You are doing everything that you can. If I were you I would take a description of IC to your boss with an much info as you can locate and request a meeing to do this. Explain what your plan was to prevent just this kind of flare up and it back fired. I would bet you the stress from all the wedding plans is adding to your pain. Ask them to have patience with you just until the wedding is over and everything, including this flare, will calm down. You said it is just a matter of a few weeks. Try not to worry about your job when your health is the most important thing. I know jobs are hard to come by but I am betting you are a great employee and that they don't want to lose you. I know exactly how you feel because I just had to cancel a free trip to Phoenix because I have been in a flare for 2 months and just can't get it under control. I knew I would be miserable if it went into overdrive and I was so far from home. I also get the part about smiling and looking fine so you must be fine, right? I even confused my Dr and Nurse who treats me the most because I try to stay positive and upbeat when around other people. Only my husband sees the real me because I just say no to all my friends now. I can't stand to have to pretend I am OK and hate it when I am in pain around other people so I put on a happy face as much as possibe. When at home I am in bed most of the time, feeling alone and frustrated. Sorry to go on so much about me but want you to know you are not alone, I am at the end of your fingers anytime you want to talk. Feel free to email me at home [email protected]. Let me know what the Dr says.

Sending you hugs and get well wishes.
sully

[britneybert]

Ok here's the report....

It is funny you say that about bringing the info to my boss my mom said the same thing. Anyway I went to the doctor and to my surprise they were very understanding and gave me some high strength pain meds and b&o suppositories. I have to wait until the morning to get the suppository because my pharmacy had to track them down. The doctor told me they were afraid this was going to happen apperently my bladder appeared to be alot worse than normal and they used some big words that at this point I was not longer listening because I was somewhat angry that they did not tell my fiancé yesterday what they had discovered! Anyway, 4 mg of dilaudid did not even touch my bladder pain! Unbelievable! Hopefully tomorrow after the suppository I cam get some relief. I am just trying to be as positive as humanly possible and think that when this is all over my wedding day will be pain free and this will not last long. Idk that all we have is positive thinking in this situation because the doctor can't tell you what the outcome will be;( I have tried to sleep but that is not working out so well. Anyway thank you for your compassion! It is nice to know someone else knows what this terrible diesease can do to a person at times but also knows that we do have great days in between it all. Anyone who deals with this with an open mind is a strong person. That is what we all are. Strong. For that I am happy. Anyway feel free to email me at britney_ [email protected]

[britneybert]

Here is a small tid bit of my IC history!


[

[Snowden1]

Question

Britney,
I really admire your strength. I wish I had half of it. I am also praying for peace everyday because this horrible pain is so scary that it takes away all my joy and I wake in such fear as I make it to the bathroom and the pee pain cycle starts all over again for the day. I can't take a anti depressant that I really need becaus the horrible pain it causes and it reacted to the Diluadid.

One question, was the 4 mg of Diluadid through a shot or IV or was this in pill form? I take an 8 mg exteded release diluadid called (Exalgo) but then often take 2 mg of Diluadid for breakthrough pain. I am finding that it is helping less and less with the pain. I want to get off of the Diludid so I can try to take another anti-depressant so they don't interact and stop me from peeing totally. I can't take Fentynal, Percoset, or Morphine - I am allergic or have severe reactions to all of them. I can take Vicodin but it was really making my acid reflux worse and my nausea. I had to take more and more everyday. I can't have BM at all with all these pain meds and if I try to take anything for it (I have tried it all) by bladder reacts with such pain. Since I had a trial for a pain pump they hurt my back and I am walking with a cane hoping that at least that pain will someday heal.

I am at a loss and don't know why I posted this here. I am sorry you are feeling so badly. Do you have severe IC? I am scheduled for a hydro and fear I just can't take any more pain from any other areas. I have enough already.

Any suggestions? I don't know what do anymore to help this.

[sully02]

Britany,
So did the Dr say it was not an infection but rather your IC was worse than normal? Ya right that will make you feel better........NOT! Did he say you had hunners ulcers that he cauterized maybe? It seems there should be some reason that this time you are in so much pain. It sure scares me more to think of getting a hydro to try to make my conditon better. Another procedure that scares me is the spinal block. I am going to a pain clinic soon, just waiting to hear when I have an appt, and that is something they may suggest. I wonder why your interstim is not helping? The dialudid did not help? Did you go to work today? Has the B & 0 suppository helped today? You probably have to stay in bed for them to not leak out. What a pain in the ass, pun intended! With all this new pain meds hopefully you will take a turn for the best and start going back uphill instead of downhill. Please remember that stressing about your job and wedding will only make this worse so take it hour by hour and your family and fiance' will pick up the slack for you because they love you.
Sending you hugs and praying for a speedy recovery. Keep me posted.
sully

[sully02]

Snowden,

I feel your desperation and frustration too. We try everything and either it makes it worse or the side effects are not worth it either. You sound like you have tried lots of drugs for sure. Have you tried a TENS unit? I just got one and I think it helps, at least while it is on. It works like an interstim. Another option is the spinal block. Have you been to a pain clinic yet? Sounds like you probably have if you are on these strong drugs. How about Elmiron? I am in my first week of it. Still have hair :-) I read constantly about this illness and I just get more and more frustrated and all I want to do is stay in bed and whine, if only I could have some wine with that whine..........yes, things could always be worse, just reading these messages tells me that. If vicodin works can you take it with a prilosec to help with the acid reflux? I know some people do that. I am not a DR just throwing how possibilities in the hopes for giving you some strength to get through yet another difficult day. I have had my share of depression before this illness hit me so I know how difficult and depressing IC can make us. Hang in there and keep telling yourself "this too will pass".


Hugs
Sully

[britneybert]

I will answer all of these questions later tonight or tomorrow. I just wanted to say quickly how much it means to me to have people who know how I am feeling it is such a breath of fresh air. I just feel like a bourden to anyone else I have to tell this to. Because I am sure they have no idea.
Thank u guys so much
Seriously
Britney

[Snowden1]

Hi Sully,
I wrote a really long post last night and before I could reply my computer went down. So, I will try again later when I feel better.

[sully02]

Snowden,
Don't you just hate that? Just adds to the pain and frustration. I hope you feel better soon. I have been having a couple half way normal days so there is hope always! I know it is just under the surface, you know what I mean? But, I am not in bed today so that is major good! YAY!
God Bless you and give you a couple good days to catch your breath.
sully