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My pelvic pain dr. said because I'm having this problem passing urine when I have my period it might be a good idea to have a cystoscopy done. Can everyone please post what to expect, if I should ask for any chill pills, how to handle the burning feeling I'm sure I will have after when I pee for the first time. I'm still not sure if it's necessary for me to have this test. I do not have any urgency/frequency issues. I pee maybe 7x total per day and don't get up in the night. I'm not sure what benefit this test would have - sure doesn't seem on the surface based on my symptoms that it's IC.
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I can't decide for you whether you need this test or not, but I have had several cystos in my doctor's office and they are not fun, but not horrible. If you've ever had a catheter inserted, that's pretty much what it feels like. I find that if I relax, it goes much easier. If you're not feeling confident about what you are being told, I suggest you see a different doctor for a second opinion.
Warm hugs,
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined fool -
Everyone is different I get cathed quite often and it don't hurt at all.
Maybe it depends on the size of the cath and the nurse who doe's it.
They use a small one on me i have no problems so far.<center>
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I've never had a cath or anything else put up my urethra - I'm pertified! Can you ask for alot of meds so you are out of it and don't even realize what's going on? It's also not that I"m not confident with what I"m being told, just afraid of this test and not sure if I "really" need it if my symptoms are only around my period. He wants me to see a uro/gyne next if the pelvic physical therapy doesn't work.Comment
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You can always ask ahead of time for mild sedation. I had asked for Versed which is what they give you when you have a colonoscopy and endoscopy and I don't remember anything about the procedure at all. I remember the beginning and the end but nothing during. It wears off very quickly so you aren't drugged up later on. I had some pretty bad burning right after but they gave me pyridium right away, and in 20 minutes I was ok.Comment
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to endogirl2 ask for a small cath and just take a deep breath and try to relax if the nurse is use to doing caths all the time she will be gentle. You will be just fine i too was scared the first time, i barely felt anything. No pain whats so ever just try to relax and trust in your doc. Let us know how things go for you, I wish you the best.<center>
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Are you guys saying that you don't get put to sleep for this? I thought that was unheard of when you had ic? I am in a huge flare from my last cyst/hydro horrible pain. I hope everything goes well for you! I would def consider asking to be put to sleep if you even think it might be ic and you are having a cyst/hyrdo. Please keep us posted. Best wishes!
Confirmed IC in December 2004
InterStem placement November 2007
InterStem removed and replaced May 2011
Fibromyalgia confirmed 2005
PFD 2005
Endemetriosis confirmed 2005
Positive outlook confirmed 2007 immediately after my InterStem placement. I realized that the one day of "peace" that I prayed for EVERY day and night had been granted. If I can keep that moment of pure bliss stored in my memory I can get through anything!
I know that I can fight this terrible situation I am in! I have to..... I have a 7 year old daughter who needs me and a soon to be husband that need me to be strong and optimistic. First and foremost I have to live my life the best way possible for myself. Things could always be worse. I have to remind myself that often but it is true!Comment
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A cystoscopy is a quick look into the bladder without stretching it --- it doesn't usually require anesthesia other than a surface analgesic. I have had several without being asleep. It's no worse than a catheter.
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
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only a cystro they do not put you to sleep, if you have a hydro/cystro they do put you to sleep.Are you guys saying that you don't get put to sleep for this? I thought that was unheard of when you had ic? I am in a huge flare from my last cyst/hydro horrible pain. I hope everything goes well for you! I would def consider asking to be put to sleep if you even think it might be ic and you are having a cyst/hyrdo. Please keep us posted. Best wishes!<center>
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thanks for all the info everyone! Well, I'm not at that point yet. This has been a very frustrating process for me. I don't understand what it is with my period that causes me to have such trouble peeing. This literally happened overnight 6 mths ago and now every singe period I cry on the toilet trying to get the pee out. It's like my entire belly swells and everything goes crazy. Odd though, seems if I can pass a stool then i can pee easier. I'm sending hubby to get some colace for my next period and I'll take that and see if that helps at all. I tried the vaginal valium rectally last night because I was having this awful dull ache in that area...not sure if it reallly helped or not. I don't think so. I wish I knew what an actual IC flare felt like. If I ice my lower back I feel better....If I sit in the bath I feel better.....sometimes my bladder feels like it weighs 20 lbs. No urgency or frequency though. No burning. So confused....
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