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Hydro with Capsacian

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  • #1

    Hydro with Capsacian

    Hi -
    I posted awhile back on this but *sigh* I get it one Wed. I am freaked! I have had 2 hydros that were note therapeutically helpful and I think fully stretched I could only hold 600-700 cc but that last one was 7 yrs ago. Basically according to the new AUA guidlines I am like a Class 5 IC, all the more experamental stuff. SO---anyone had this done with capsascian or any other instill? My options after this are a botox study, botox or cyclosporin. Grrr.

    Anyway. I am getting a spinal and happy drugs and have to go home with a HUGE 14 fr cath that night (I use a 8 fr to cath at home)> I am scared and could use some fluffing. Thanks
    I am blessed to have an Indiana Pouch now
    IC since childhood, finally diagnosed at 31 yo
    PFD/Pelvic Pain,SI joint and LBP
    Low Back Pain s/p spinal fusion at 19 with more nastiness in back
    Hydrodistension 2001, 2005, 2011 w capsacian, 2011 with botox/ super pubic tube
    Interstim trial and removel 2002,C-Section 2007 and 2010, Post Partum Depression, post partum hypertension, Idopathic hypothalmic amenorrhea
    Radical Cystectomy with Indiana Pouch 2/3/12--->multiple complications and revision of ureters in pouch due to a giant ball of scar tissue in 8/12, occasional pylo, L kidney small and scarred, low flow
    Hysterectomy 2/3/12 w one ovary removed
    Dry Eyes
    L radical nephrectomy 1//3/14 after a long "what if " the conversation, kidney working 4 %, path said full of absesses
    Still have issues, still take meds.

    I have worked some, been doing pilates, just got a post masters in nursing, learning to pace myself.
    Learning things I can't do, learning things that I need to take a LONG time to master and regain myself, but mostly just so happy to be bladder free.:
    Tags: None
  • #2
    I usually have a catheter overnight and I think it helps me to sleep well --- plus the pain is mostly gone when I remove the catheter the following day. I've never had capsacian instilled, but have heard it helps some people.

    I hope it goes well for you.


    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.     [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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