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Hydro with Capsacian

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  • Hydro with Capsacian

    Hi -
    I posted awhile back on this but *sigh* I get it one Wed. I am freaked! I have had 2 hydros that were note therapeutically helpful and I think fully stretched I could only hold 600-700 cc but that last one was 7 yrs ago. Basically according to the new AUA guidlines I am like a Class 5 IC, all the more experamental stuff. SO---anyone had this done with capsascian or any other instill? My options after this are a botox study, botox or cyclosporin. Grrr.

    Anyway. I am getting a spinal and happy drugs and have to go home with a HUGE 14 fr cath that night (I use a 8 fr to cath at home)> I am scared and could use some fluffing. Thanks
    I am blessed to have an Indiana Pouch now
    IC since childhood, finally diagnosed at 31 yo
    PFD/Pelvic Pain,SI joint and LBP
    Low Back Pain s/p spinal fusion at 19 with more nastiness in back
    Hydrodistension 2001, 2005, 2011 w capsacian, 2011 with botox/ super pubic tube
    Interstim trial and removel 2002,C-Section 2007 and 2010, Post Partum Depression, post partum hypertension, Idopathic hypothalmic amenorrhea
    Radical Cystectomy with Indiana Pouch 2/3/12--->multiple complications and revision of ureters in pouch due to a giant ball of scar tissue in 8/12, occasional pylo, L kidney small and scarred, low flow
    Hysterectomy 2/3/12 w one ovary removed
    Dry Eyes
    L radical nephrectomy 1//3/14 after a long "what if " the conversation, kidney working 4 %, path said full of absesses
    Still have issues, still take meds.

    I have worked some, been doing pilates, just got a post masters in nursing, learning to pace myself.
    Learning things I can't do, learning things that I need to take a LONG time to master and regain myself, but mostly just so happy to be bladder free.:

  • #2
    I usually have a catheter overnight and I think it helps me to sleep well --- plus the pain is mostly gone when I remove the catheter the following day. I've never had capsacian instilled, but have heard it helps some people.

    I hope it goes well for you.

    Stay safe

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    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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