Announcement

Collapse
No announcement yet.

Cysto/Hydro/Fulguration/IVP/Urerthra & Ureter Dilation

Collapse
X
Collapse
 
  • Page of 1
  • Time
  • Show
Clear All
new posts
Previous template Next
  • #1

    Cysto/Hydro/Fulguration/IVP/Urerthra & Ureter Dilation

    Hello! On Thursday 5/27 I am having lots of procedures, and I am hoping someone has experience and advice for me! I am having a cystoscopy with hydrodistension and possible fulguration (burning off hunner's ulcers) along with possible urethral dilation since we have trouble inserting catheters. I also show a hydroureter on ultrasound, so while I am under anesthesia, I will also have a IVP (intra-venous pyleogram - Xrays) and then a possible ureter procedure to clear a blockage, insert a stent, or remove a stone or whatever they find.

    I have pretty severe IC - with lots of pain on a regular basis. I also have severe retention issues. I know that these procedures can and hopefully will help the pain and retention. I'm also really, really nervous that I'll be in such tremendous pain afterwards. The last two times I've had general anesthesia I've been unable to urinate for days - so I have needed a catheter with a bag for about a week.

    Any suggestions or experiences with these procedures to share? Although I've had IC for 7 years now, I've never had a cysto/hydro. Any guess at how long I will need off work, and then how long it will be until I recover? Thanks!
    Conditions:
    IBS 4/04; IC 8/05; Vitamin B-12 Deficiency 7/06; Asthma 9/06; Citrus, MSG, Sulfate/Sulfite, Nitrate/Nitrite, Sodium Benzoate Allergy diagnosed 9/06; Fibromyalgia 6/07; Pelvic Floor disfunction 2007; Hysterectomy 10/08; Fallopian Tube Cyst removed 5/10; Chronic Diarrhea since 12/10 ; Ulcerative Colitis 4/12

    Medications
    Elmiron 3x day
    Trazadone at bedtime
    Tramadol as needed for pain
    Monthly B-12 injections
    Continuous Birth Control (even though I had a hyst, to control cysts)
    heating pad, hot epsom salt baths, strict IC diet
    Interstim implant 9/11
    Ulcerative Colitis Meds - Remicade, Azathioprine, Lialda, prednisone several times a year

    Failed Bladder Treatments
    Lyrica, Elavil, Detrol, Detrol LA, Ditropan, Sanctura, Flomax, Prelief, Pyridium & Urelle (allergic!), Lidoderm patches, long term antibiotics - Macrobid and others, instillations (ouch!), CystaQ, pelvic floor therapy, fulguration, bladder injections, bladder stretching
    Tags: None
    • #2
      It sounds like you are having quite a bit done, I would allow at least a week to recover and then that will depend on how much they actually do.

      They should give you pain control for this, I would hope they would rx you some before you go home.

      goodluck MG
      My are with you all. May you all find a way to peace and joy in your lives.

        Comment

        • #3
          The IVP is X-rays - shouldn't cause any pain. They hydro with fulgeration and possible dilation may cause some pain for a few days. I suggest you plan for a week of taking it easy. I had my last hydro one week ago today and I have only mild discomfort this morning --- not nearly as bad as before the hydro.

          It's normal to feel some anxiety before a surgical procedure. After more than forty hydros, I'm still nervous every time.

          Warm healing thoughts,
          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.           [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

            Comment

            • #4
              Just wanted to provide an update - I feel way better after the procedures than I was expecting. I did have a urethra dilation, distension, and burning off multiple hunner's ulcers. I did not need a stent in my ureter - thank goodness!

              After the procedure I had some burning with urination - definitely not the worst I've ever had with this disease, so it was tolerable. I have some more general achiness and fatigue, but overall, I feel pretty darn good. If I have lasting relief, I would not hesitate to go through this again.
              Conditions:
              IBS 4/04; IC 8/05; Vitamin B-12 Deficiency 7/06; Asthma 9/06; Citrus, MSG, Sulfate/Sulfite, Nitrate/Nitrite, Sodium Benzoate Allergy diagnosed 9/06; Fibromyalgia 6/07; Pelvic Floor disfunction 2007; Hysterectomy 10/08; Fallopian Tube Cyst removed 5/10; Chronic Diarrhea since 12/10 ; Ulcerative Colitis 4/12

              Medications
              Elmiron 3x day
              Trazadone at bedtime
              Tramadol as needed for pain
              Monthly B-12 injections
              Continuous Birth Control (even though I had a hyst, to control cysts)
              heating pad, hot epsom salt baths, strict IC diet
              Interstim implant 9/11
              Ulcerative Colitis Meds - Remicade, Azathioprine, Lialda, prednisone several times a year

              Failed Bladder Treatments
              Lyrica, Elavil, Detrol, Detrol LA, Ditropan, Sanctura, Flomax, Prelief, Pyridium & Urelle (allergic!), Lidoderm patches, long term antibiotics - Macrobid and others, instillations (ouch!), CystaQ, pelvic floor therapy, fulguration, bladder injections, bladder stretching

                Comment

                • #5
                  So glad your feeling better.
                  IC diagnosis 3 weeks ago.
                  Vesicare 10 mg once daily
                  IBS and Gerd-Zegerid
                  IC diet
                  Elmiron 100 mg three daily
                  Hydroxyzine 25 mg at night
                  Amitriptyline 10mg at night
                  Diovan 60/12.5 daily
                  Topral 50 mg daily
                  Zoloft 100 mg at night
                  Klonopin .5 twice daily

                    Comment

                    • #6
                      I am glad to hear it went well for you.

                      MG
                      My are with you all. May you all find a way to peace and joy in your lives.

                        Comment

                        Previous template Next
                        Working...
                        X
                        😀
                        🥰
                        🤢
                        😎
                        😡
                        👍
                        👎