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Cysto went well!

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  • Cysto went well!

    After 6 in office instills I had my follow up. My pain is gone in the last 3 weeks and it seems related to diet the most. My uro said we can do a cysto in the future.... but I said Now, please!

    She did it with a Pediatric scope and found no glomerations (sp) or Hunners Ulcers. I thought this was great until she quoted a small Swedish study that found these two benchmarks in normal pregant women (n=20).

    She said we could do another set of instills (6) but she said we could just wait and see how I do with my OBA and vaginal valium when I need it.

    She mentioned that self cath may be the way to go if it gives good symptom relief, but I find my cocktail (prydrium, heprin, lidocane and elmiron) gives me a nasty flare the whole rest of the night.

    Any Input? Should I seek out someone with other options? I did say "I don't think I'm where I want to be with treatment yet"
    Joslyn
    IC symptoms in May 2011
    Mild IC dx by Cysto July 2011
    Symtoms decrease 80% by September 2011!






    Tums 100mg
    fish oil 3-5 grams
    Probiotic 5 billion
    Magnesium
    Bladder Ease
    Unda Drops
    Mediclear Plus Protein Shake

    Physical Therapy Graduate!
    Meditation 2x a day
    Running
    Castor oil pack
    Teas (nettle leaf, linden flower, camomile, marshmellow root)

    Have tried
    In office instills (pridium, heprin, lidocain, elmiron)
    Cystoprotec
    Desert Harvest Aloe
    atarax 25 mg
    Vesicare
    Lexapro
    5HTP
    sanctura

  • #2
    Congrats, I'm glad you got some relief. I would say by looking at your list of meds and treatments you might think of narrowing it downs some as you find out what works and does'nt work. It takes time for all of us to find the right combiation of meds and treaments.

    Hang In There
    TexasHoney

    Let's keep praying for a cure.
    IC Symptoms began in early 2001
    Divorced : Sept 2002 (Partly due to IC)
    Diagnosed with IC in April 2004
    Most recent injury - Rupurtured Left Achilles Tendon
    Wed Jan 28 2009
    (Ice Storm Accident)
    2nd Achilles Tendon Surgery - May 28, 2009 after re-injury on May 17
    Other Injuries
    Broken Left Ankle - July 2004 ( fell off ladder)
    Broken Left Ankle (Again) - May 2005 (car accident)
    Sprained Left Ankle - November 2006 ( fell off my aunts porch on Thanksgiving Day)

    CURRENT MEDS
    Elmiron, Pyridium

    Comment


    • #3
      Meds

      Thanks, TexasHoney-

      I'm hoping to work with a naturpath starting in two weeks. I kinda took everyones recommendations and ran with it. Do you self cath? How does it do for you? How often? any flares after?

      Thanks!
      Joslyn
      IC symptoms in May 2011
      Mild IC dx by Cysto July 2011
      Symtoms decrease 80% by September 2011!






      Tums 100mg
      fish oil 3-5 grams
      Probiotic 5 billion
      Magnesium
      Bladder Ease
      Unda Drops
      Mediclear Plus Protein Shake

      Physical Therapy Graduate!
      Meditation 2x a day
      Running
      Castor oil pack
      Teas (nettle leaf, linden flower, camomile, marshmellow root)

      Have tried
      In office instills (pridium, heprin, lidocain, elmiron)
      Cystoprotec
      Desert Harvest Aloe
      atarax 25 mg
      Vesicare
      Lexapro
      5HTP
      sanctura

      Comment

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