New Doctor -Hydrodistention - 175 ml bladder

[cwood]

I was Dx'd with I.C. in Mar 2005 with Cysto -Hydrodistention -biospsy. I was given the I.C. diet and prescribed Cysta-q by my Uro. Being a male the Uro's have a tendency to zero in on the prostate. My latest doctor who is one of the leading urologist in the field suggested a hydro-distention and found out that my bladder was 175 ml under anesthesia. I was totally shocked to find this out because I have been under a urologist care every since my diagnoses. The only person that suggested that my bladder had shrunk was a nurse practitioner. She suggested drinking lots of water and over a period of time the bladder would get larger. That didn't work....I was drowning in water. Does anyone else have a bladder this small. I have been trying to find out more information about small bladder sizes and what is usually done. Does anyone else have this problem ? Any help, comments, or suggestions would be extremely appreciated. I definitely don't want to have the bladder removed. Don't think I could make it through all that ...then the maintenance involved seems like a full time job.
Charles

Tried and failed: Elmiron, nausea
Amatrypiline heart racing. I have tachychardia
Hydroxozine Trouble urinating.
I haven't tried the installations because local anesthetics aren't strong enough to get the catheter into the bladder. Cysto's have to to be done under a general

Still trying: Hot baths
Sometimes a heating pad works
pain meds
cysta-q
prelief

[cwood]

Update to original message

After the procedure My volume has been a little less then 4 oz at a time....with an average of 3 1/2 oz.

My original volume was a little more than 4 oz. and that was 5 years ago. It has gradually gotten smaller until just before the procedure I was peeing less then an ounce. In this respect things have gotten better and I can drink a lot more water.


The only things that work are hot baths, pyridium, which I use sparingly because of side effects prelief , cysta-q and pain meds. It would be helpful to hear from anyone else that has a small bladder. I tried the search on the forum and I can't find anything that pertains to "a small bladder". Small bladder capacity yes...but not small bladder.

Anyway...thank you in advance if you have any information. I am trying to do as much research as possible and there is no better place then this forum.

Charles

[Toto]

I'm sorry, I don't have much to contribute to this post but wanted to say that my bladder is too very small and I was told the capacity is 3oz. Not sure what that means exactly. I am able to hold that amount of liquid before having to pee. I should have asked more about that but frankly I didn't want to hear the answer.

The problem with a small bladder is that not much liquid can be drunk at a sitting. So I drink smaller amounts. When I drink a whole glass of water my bladder will spasm for sometimes two hours. What's a worse problem is that I get kidney stones. I'm supposed to drink a lot but don't and that's a problem. Do you get kidney stones?

I anticipate replies.

Hugs!

[cwood]

Thank you Toto

I appreciate your comments. When I hear someone else has the same problem I don't feel so alone. My bladder capacity under anesthesia was 175 ml or divide by 30 is about 6 oz. Not very big.

The first reaction the doctor had when talking to my family while I was "out" was removal. I went through as much literature as I could and found out that I didn't think I can do it. They even have vids posted on YouTube + plus what I have read here. I saw him a week later and he didn't say a word about it and I sure wasn't going to bring it up.

My wife is disabled to and we have to depend on each other. Actually she has to depend on me. We are all different and while some people prefer to just have it out I don't think I can go through the operation and then have to go through the maintenance and care of an ostomy bag. Right now I am peeing a little over 3 oz. on average and that depends on how much I drink.

I have the same problem. If I drink a lot of water at a time my bladder goes into spasms and IT HURTS !!! I stand there for sometimes as long as 4-5 minutes whiles I wait for the spams to quiet to a point where I can pee. It sucks ! I am keeping track of my intake...the uro wants to see 8 glasses. Well the 8 glasses happened for a while and I am around 6-7 glasses. I try and drink a glass when I eat then I sip throughout the day. I know...just a party animal but thats all I have for now.

The spasms are starting to go away now ....and I think they were there largely because I went into a major flare about 2 weeks after my operation which was June 13. At the end of June I had the classic signs of a flare and it lasted until about a few days ago. I am feeling better now and I think the hydro-distention worked if only I can drink water now without having to hang around the restroom. I also don't have the urgency that I had. Still there but not as frequent. I hope this helps you even in some small way.... and if you have any more information please pass it on my way.
Thank you again for your reply
Charles

[cwood]

Update 8/19

Hello All and I hope this is a good day. I spoke to my Brother yesterday who is a hospital administrator. I mentioned to him that I have decided to keep my bladder.

My Brother had informed me that I have to make that clear to the Dr. I suppose up until now I was somewhat naive about the process and was expecting him to come up with a solution. Until my brother actually said the words I didn't realize it was basically my decision. I suppose I knew this in the back of my mind but was not aggressive enough to say anything except discuss the usual things. Staying away from anything that I might not want to hear. Not a good thing.

I will see him next week and plan to discuss this with him and what needs to be done. My problem is that I don't get along with most of the I.C. meds. Have tried most of them at one time or another. The only thing that seems to work is Cysta-q, prelief warm baths and sometimes heating pad. Sometimes the pad makes it worse. Pyridium gives me a rash and I was borderline anemia the last blood test and will mention this as well. Pyridium worked well for me. Norco works well too. Thats about all I have in to work with. Anyway...I thought I would post this hoping I can find someone in the same position. Again I have to thank Toto and I did forget to mention that I haven't had any stones. Any comments, suggestions would be most appreciated.
cwood