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  • diagnostic Cystology and results

    Today, much earlier, I had cyst & hydro to finally see if I have IC. The doctor told my husband that it looks like I do. Of course I am not happy about being having it but as you know it is nice to finally know!!
    Right after cysto I have pain when I pee, not totally severe pain, but pain. When I left recovery room I speficially asked if I was getting anything for pain. The nurse said no but I could take OTC. We all know how well those work. Now it is Friday night and I am wondering how long your pain during peeing lasted. Do you have any home remedies that might work?
    ty!
    Pam
    -Pammylynn Rose
    Wishing everyone a pain free bladder day!


    Painful symptoms start in May 2011
    Diagnosed with IC in Aug 2011

    MEDICATIONS
    Elmiron
    Axert (only for rare migraines)
    Strict IC diet
    Gluten/dairy/egg free diet



  • #2
    Pam, I hope you get to feeling better. I'm just a little curious, I am suppossed to be having this procedure done ASAP. Do you knock you out for it? Or are you awake? I'm scared that its going to be painful. I'm already in enough pain as it is. How do they know for sure that you do have IC when they do this? Sorry so many questions you don't have to answer..I'm just overwhelmed with all this.

    Thanks,
    Beverly

    Comment


    • #3
      I am so glad you have a diagnosis! Even though it's not one that we want to have.

      I think it's odd they wouldn't give you a pain medication. Was this your Uro (or who performed the procedure) or the hospital staff? My Uro had given me a prescription for Nucynta 3 days prior and was very specific after my Cysto that I was 'allowed' to take those for that.

      I never had any pain urinating until the third and fourth day after. Then I experienced some discomfort more than pain when I would urinate. Just like it was tender so I can't help you there.

      That's sad that you don't have a pain medication though. If it were me I would call up my Uro and ask for one. The only thing I can think of OTC is that they want you take Ibuprofen but that's usually harsh and creates its own set of problems for IC patients. On my fourth day I tried Tylenol over the Nucynta to see if it would just take the edge off without needing a narcotic but it didn't work at all.

      Comment


      • #4
        Originally posted by Beverly001 View Post
        Pam, I hope you get to feeling better. I'm just a little curious, I am suppossed to be having this procedure done ASAP. Do you knock you out for it? Or are you awake? I'm scared that its going to be painful. I'm already in enough pain as it is. How do they know for sure that you do have IC when they do this? Sorry so many questions you don't have to answer..I'm just overwhelmed with all this.

        Thanks,
        Beverly
        The actual proceedure was quite easy. The did put me under (which was totally fine).I was terrified, but my very nice anesthiologist talked me through it all. I am just having pain afterwards. I was reading this site and it seems as most people get some sort of pain presciption. I did not. I am going to buy AZO and try the lowest does to get some relief.
        Just ask your dr. for pain medication afterwards. You can use me as an example!
        -Pammylynn Rose
        Wishing everyone a pain free bladder day!


        Painful symptoms start in May 2011
        Diagnosed with IC in Aug 2011

        MEDICATIONS
        Elmiron
        Axert (only for rare migraines)
        Strict IC diet
        Gluten/dairy/egg free diet


        Comment


        • #5
          Originally posted by Beverly001 View Post
          Pam, I hope you get to feeling better. I'm just a little curious, I am suppossed to be having this procedure done ASAP. Do you knock you out for it? Or are you awake? I'm scared that its going to be painful. I'm already in enough pain as it is. How do they know for sure that you do have IC when they do this? Sorry so many questions you don't have to answer..I'm just overwhelmed with all this.

          Thanks,
          Beverly
          I would call and ask. Do you have an appointment already? If you do it worries me they haven't told you what they plan to do yet; if not it still wouldn't hurt to ask ahead of time. There are 2 ways they do Cystos. One is under general anesthesia (usually if there's a Hydro also involved they do it this way as that can be extremely painful on an awake patient). Another way is with you awake and you're giving numbing gel/shots.

          If I had the choice I would always vote for going under. I have an extremely hard time being catheterized so I can't imagine being awake for a Cysto but that's just be. Going under general anesthesia is a more complicated procedure though so you and your doctor have to weigh your own risks.

          Either way I hope it goes well for you!

          Comment


          • #6
            My urologist always prescribes pain medications for me for after a hydrodistention. I rarely need them beyond the first or second day.

            I think it would be a good idea to call your uro if you're painful. Beverly, I would definitely ask about this when you schedule your procedure.

            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment


            • #7
              I don't have an appointment for it yet. My doctor called yesterday and told me they are having me got to a GYN specialist on Monday to see if they think that I need any other procedurs done cause they would like to do it all at the same time. Than I go back to my Urogoloist on Tuesday and she said they wanted me to have this done ASAP. I know she will talk to me more about it but I was just curious.

              Thanks,
              Beverly

              Comment


              • #8
                Originally posted by ICNDonna View Post
                My urologist always prescribes pain medications for me for after a hydrodistention. I rarely need them beyond the first or second day.

                I think it would be a good idea to call your uro if you're painful. Beverly, I would definitely ask about this when you schedule your procedure.

                Donna
                I wish I could,, it's Friday night! I slept most of the day so I didn't have a chance to call
                -Pammylynn Rose
                Wishing everyone a pain free bladder day!


                Painful symptoms start in May 2011
                Diagnosed with IC in Aug 2011

                MEDICATIONS
                Elmiron
                Axert (only for rare migraines)
                Strict IC diet
                Gluten/dairy/egg free diet


                Comment


                • #9
                  Do you have a emergency clinic nearby? It might be worth it to go in if you do and explain your situation and see if they can't give you something until you're able to speak to your Uro. My only other suggestion would be the ER if it gets too bad but then you have to weigh the cost to the benefit. I probably wouldn't have went for my pain but if it's too bad for you I might.

                  I am sorry they didn't give you meds.

                  Comment


                  • #10
                    You should be able to reach either your uro or someone on call for him even outside of office hours --- I know one time I had a problem after surgery and it was something like 11:00 pm and I got a call back from one of my uro's partners within an hour --- and he was able to help.


                    Donna
                    Stay safe


                    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                    Have you checked the ICN Shop?
                    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                    Patient Help: http://www.ic-network.com/patientlinks.html

                    Sub-types https://www.ic-network.com/five-pote...markably-well/

                    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                    [3MG]

                    Anyone who says something is foolproof hasn't met a determined fool

                    Comment

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