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Cysto/Hydro Scheduled: wondering whether to do it. If diagnosed, what will change?

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  • Cysto/Hydro Scheduled: wondering whether to do it. If diagnosed, what will change?

    Hello,
    I have a diagnostic cystoscopy/hydrodistension scheduled for next week. My flare is finally starting to settle down with a strict diet and I'm worried about 2 things:
    1--will the procedures make me flare again?
    2--So what if the cysto shows IC? It's not like there's a real cure yet. What will change? What is to be gained by this procedure?

    Seriously, once someone is officially diagnosed with IC by a cystoscopy, what changes? The medical and diet protocol is still going to be finding what foods/meds help calm the urethra and bladder, right?

    Is there something I'm missing?

  • #2
    I have had over forty hydrodistentions in my 36 years with IC --- and each has given me relief for at least several months. I had my last on on May 16 of this year --- it had been 18 months since the previous on in October of 2009.

    I was diagnosed by hydrodistention in 1975 and that's when I discovered I am among those who benefit.

    I usually plan to take it easy for three to five days after having one done, but I feel better the day after than the day before. When I was working I returned to work five to six days post op.

    I hope it goes well for you.

    Warm hugs,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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