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Had my Potassium test, today....
Was SO nervous! I was shaking like a leaf...my legs were shaking so bad we had to stop in between. The catheter hurt, but not as bad as I was preparing myself for. The potassium burned, but almost hurt worse was the water AFTER the potassium. She said it felt worse because the potassium irritated the hell out of my bladder. she also put heparin in my bladder, but i peed it out, directly after, so it didn't do much good. She started me on elmiron, atarax, and elavil. I finally feel like I'm getting somewhere with this. Thanks to everyone for listening to me freak out about everything! <img src="graemlins/grouphug.gif" border="0" alt="[grouphug]" />
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~*Miss Morgie*~ -
{{{{{Morgan}}}}}
I'm glad that it's over and that your uro has started you on some promising treatments. Now, rest up and take good care of yourself. And let us know how things go with your new meds.
[img]smile.gif[/img] Melanie J."The sun shines not on us, but in us." John Muir
Living a happy life in spite of IC! http://www.ic-network.com/patientstories/melanie.html -
Oh Morgan - glad it is over with and that you survived!!! And now you are moving forward with treatment! You will be on all the meds I am on - but I am on Detrol, too. Good luck!!!!! <img src="graemlins/kissing.gif" border="0" alt="[kissing]" />Kim
Diagnosed August 2001
Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)
Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)
I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.
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“We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl
“You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian TracyComment
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Thanks, gals. <img src="graemlins/kissing.gif" border="0" alt="[kissing]" /> I am feeling a bit more hopeful, now. [img]smile.gif[/img]
P.S..I used to be on Detrol, but it caused retention - that was no fun....
And they told me if, after a while of trying these drugs, it just isnt helping, then we'll think about self cathing and dmso treatments. Yikes. So if that ever happens, I'll be here, freaking out, again!!! <img src="graemlins/toilet.gif" border="0" alt="[toilet]" />~*Miss Morgie*~Comment
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Hey, if I ever have to self-cath or do DMSO I will come along for the freak out, too. [img]wink.gif[/img]Kim
Diagnosed August 2001
Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)
Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)
I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.
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“We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl
“You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian TracyComment
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Freak out!! Le Freak - So chic! lol <img src="graemlins/lmao.gif" border="0" alt="[lmao]" />~*Miss Morgie*~Comment
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<img src="graemlins/lmao.gif" border="0" alt="[lmao]" /> I will join you in freaking out if I ever have to have another DMSO!!!
yeah Morgie! You made it through it!!! yeah!!! [img]biggrin.gif[/img]
Sending hugs
<img src="graemlins/grouphug.gif" border="0" alt="[grouphug]" />
CatThink of all the beauty still left around you and be happy.
-Anne FrankComment
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Before you get to the "freak out" point about self catheterization, let me know so I can give you a pep talk. <img src="graemlins/baby.gif" border="0" alt="[baby]" /> It's really not difficult.
<img src="graemlins/grouphug.gif" border="0" alt="[grouphug]" />
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
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I agree with Donna, its not that bad once you set your mind to it. I have been self cathing for about a year I think, It hurts a heck of alot less when you do it yourself than when they do it. Plus you can take your time, do the instills when its conveinient for you , and be able to empty if you are retaining. You can do it! If you need us, we will have some suggestions for you. Hugs, ICNNINAComment
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Thanks, everyone. [img]smile.gif[/img]~*Miss Morgie*~Comment
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