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  • anyone have prolapsed urethra

    Hi...
    I have an appointment on 12/19 with my uro. I have had IC for 9 years (Hunner's ulcers and glomulerations). I have a Interstim for urinary retention that is working fine but needs to be reprogrammed every few months. I have had alot of vaginal and rectal discomfort/pressure and was found to have a prolapsed urethra and bladder. I am seeing the uro Friday to discuss my upcoming surgery for repair. I also had a complete hysterectomy 6 years ago.....I am really nervous
    about this. Has anyone else experienced this problem or had surgery for repair like this? I could sure use some support and insight from my IC buddies.....thanks, Tina C.

  • #2
    I had surgery on November 11 to put my abdominal organs back where they belong --- my bladder was visible in my vagina.

    I had my usual reaction to pain medications and my uro found more to do than he had planned, but I'm now almost fully recovered. I still have some time to go before I can do any lifting, but that's not bad at all.

    For me, it's well worth it.

    Sending an encouraging hug,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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    • #3
      Thanks for the info.....wishing you a speedy recovery! My appointment is tomorrow and I am a nervous wreck! Tina eek

      Comment


      • #4
        grouphug grouphug grouphug I will be praying for you. I had a bladder supension done in sept. It has worked for me. Let us know how you make out at the drs. I never had prolapsed uretha. The dr had to alot of work too that he hadn't planned on doing, alot of scar tissues in my uretha and bladder.
        Hang in there , There is hope.
        There is hope. Prayer works.

        Love, Debbie

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        • #5
          {{Tina}}
          I'll be thinking of you tomorrow! I hope it all goes well and whenever they decide what day your surgery falls on, we'll be here for you! {Whether some of us know your pain or not!} wink grouphug
          Tons of support,
          Jaime

          IC angel helping families in need for the holidays. [email protected]

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          • #6
            Hi Tina, I have the bladder and the rectum to get fixed, but I am not ready to do that yet, I keep trying to put it off. I know Donna had that done before and she said it was not too bad, guess you just have to listen and not lift until you are completely healed up. My one sister in law had to have it done three time until it finally stayed up where it was to be. Guess it all depends how bad it is and how good your doctor is at doing the fixing. Good Luck to you and let us know when you are being done. I will keep you in my prayers also.
            Sue o41 hi
            Sue

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            • #7
              Dec. 30 is the big day...wish me luck.....tina grouphug

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              • #8
                tina, that is my birthday that you are having surgery on. I will be thinking of you and praying for you. Let us know how you are doing. Merry Christmas.
                Hang in there , There is hope.
                There is hope. Prayer works.

                Love, Debbie

                Comment


                • #9
                  hi..went for my preop today today...and all is a go for Tuesday. I thank you for your support and your kind words. Tina C. grouphug

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                  • #10
                    grouphug grouphug grouphug
                    Hang in there , There is hope.
                    There is hope. Prayer works.

                    Love, Debbie

                    Comment


                    • #11
                      Hi there,
                      The surgery seems to be a success. It is the problem of bladder spasms that I am dealing with now. I still a a suprapubic catheter to drain the urine and I am going to the doctor tomorrow. The doctor started me on Ditropan and Flomax but I do not see any difference with these medications. I also shut off my Insterstim device thinking that it was the reason for the spasms...nope! Anyone else taking these medications? Tina C.

                      Comment


                      • #12
                        I'm so glad your surgery is over with. And glad it was successful. I'm almost two months post-op now and feeling well. I had an IC flare, but much better now.

                        Warm healing thoughts,
                        Donna
                        Stay safe


                        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                        Have you checked the ICN Shop?
                        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                        Patient Help: http://www.ic-network.com/patientlinks.html

                        Sub-types https://www.ic-network.com/five-pote...markably-well/

                        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                        [3MG]

                        Anyone who says something is foolproof hasn't met a determined fool

                        Comment


                        • #13
                          Donna, we had been discussing prolapses a while back...I had a severe rectocele. Well, turns out it's a perineocele. It's a grade 3 and apparently rare. I also have a grade 1 rectocele and grade 1 urocele. The CRNP had said she thought I would need a complete pelvic floor reconstruction but the doctor says since the others are just grade one she just wants to get the perineocele fixed at this point since my bladder is doing very well. Sigh. I also have had chronic salivary gland infections since Christmas. Everytime I stop the antibiotic it comes back three days later. ENT is not available til 2/2. Sound familiary?

                          GO EAGLES

                          Comment


                          • #14
                            For Patrice: It does sound like you have lots going on. Have you scheduled your surgery yet? Will your urologist be doing the surgery? I was soooo glad my urologist would do mine. I've been going to him for so many years and have so much confidence in him that I wasn't even afraid --- just a little nervous about how much it might hurt, but I'm a little cowardly.

                            I hope that infection goes away quickly --- I know it takes ages to get in to see some of the specialists.

                            Sending healing thoughts,
                            Donna
                            Stay safe


                            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                            Have you checked the ICN Shop?
                            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                            Patient Help: http://www.ic-network.com/patientlinks.html

                            Sub-types https://www.ic-network.com/five-pote...markably-well/

                            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                            [3MG]

                            Anyone who says something is foolproof hasn't met a determined fool

                            Comment


                            • #15
                              Donna, She wants me to see the gastro first because I had blood in my stools a few weeks ago (attached to it). I see her the 22nd. Then she wants me to see the ENT about my glands before having surgery that will dry me out first. That's not til the 2nd. And I have to have a pelvic MRI which isn't til the 11th. If it were a complete reconstruction I was going to see someone else but I know my uro (Dr. Whitmore)will take my bladder into consideration and is a good surgeon so she'll do it. Thanks for your support.

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