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  • Back from urodynamics testing...DSD?

    I just got back from urodynamics. My bladder showed normal compliance during filling(although my capacity is low) but During voiding I showed a "stacatto" pattern and this is not good. My bladder and urethral sphincter dont communicate correctly I guess. Does anyone know what this means? I only saw a nurse today. She said it wasn't normal. The image on the computer showed an up and down pattern during voiding that resembled a EKG when they monitor your heart. I'm concerned and I don't really know what this means or is. Any information would be great! Thanks!

    Erika
    IC diagnosed officially via cysto/urodynamics 1/26/07

    Grade II Endometriosis diagnosed via lap 12/11/07

    "Fall down seven times, Stand up eight."

    "Life is a tragedy for those who feel and a comedy for those who think."

    Current Treatments:
    Interstim Since 5/25/07!
    Birth Control

  • #2
    I pulled this off of this web page http://www.medscape.com/viewarticle/546017_3 ... "Staccato voiding is characterized by bursts of pelvic floor activity during voiding, which leads to a rhythmic voiding pattern with incomplete bladder emptying and prolonged urinary flow."

    I have no idea if this is correct... hope it helps
    ~Diane
    dx: Spastic Bladder, chronic hematuria (that went away?), kidney stone... possible IC

    Medical History:
    c-sections: 1988, 1991, 1997
    Viral Arthritis 1998 (Like RA, but went away!! )
    Pterygium & Dry Eyes since 2005
    Hysterectomy (Fibroids) 2006

    ~~~~~~~~~~~~~~~~~~~~~~~~~

    Me & Jerry ~ Sammy & Ryan
    ~~~~~~~~~~~~~~~~~~~~~~~~~

    Comment


    • #3
      thats what I was going to say too. bladder spasms during a void, it may not be normal for a normal bladder, but be normal for and ic bladder. Did she give an idea what your bladder held?
      'The will of God will never take you where the Grace of God will not protect you.'

      Comment


      • #4
        Bladder spasms is one possibility.

        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment


        • #5
          Hi Erika.
          I am not sure what all that means, but I am glad you made through ok. Was the test real bad, or painful? I will likely end up having to do this test at some point also I am afraid.
          The only bad thing is, I will not be able to pee with someone in the room or even knowing someone is waiting for me. I am a very shy pee'er I was going to do this test a while back, but after the doc told me that I would have to pee infront of a nurse and with a cath inside me, I just forget it, it is not going to happen. And I did not want to go through a test that was very expensive that I could not even complete and would likely not get great results if I could not complete it.
          But I think I may eventually have to go through it. Maybe they will just have to skip the peeing part for me, I dont know.
          Anyhow, I am glad you made it through and hope you get some answers.
          Jen

          Comment


          • #6
            I had the same thing upon voiding when I had a urodynamics testing -- usually that pattern means either bladder spasms, pelvic floor spasms, straining to void, or a combination of all of these. So yes, the bladder muscle, sphincter muscle, and pelvic floor muscles are all working out of sync. This is common in ICers and those with PFD.

            It's absolutely not the worst thing you could have found out, especially since your bladder filling was pretty normal.

            My doc's first line of treatment for that staccato pattern is pelvic floor physical therapy -- to try to teach those muscles to communicate properly again.
            ****
            Jen

            *Diagnosed with severe IC in 2004
            *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
            *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
            *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

            **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

            Comment


            • #7
              Hey Erika!!! That test is new to me. I havent heard of that before but maybe have your real uro take a look at the results of the test so he can pinpoint the exact problem. I'm glad they found it out... always think things could always be worse. I know it stinks. Do they have meds to help control the flow of urine or the spasms?? I hope your doing ok!!! Sending you huggs. Did your boss give you a hard time about going for testing??

              Rach
              ***Rachel***

              Dance like no one is watching
              Love like you've never been hurt
              Live today like it's your last

              Dxd with IC in June '06

              Comment


              • #8
                i had the same problem (and i had the test done TWICE...UGH), although 2 doctors SWORE up and down that my bladder/urethra WEREN'T spasming (my current urogyn got my results and assured me, yes they are. i'm not nuts!). i have severe spasming and incomplete emptying...i saw the computer screen and it was all over the place!! you're definitely not alone.
                (Added by ICNMgrJill on 5/19/08. I am sad to share that Verdicries (aka Tracy) lost her life in a tragic accident just a few days ago. We will miss her support, her encouragement, her sense of humor and, of course, the joy that she found as a mother and wife).

                Tracy ~ 29 years old with Toxoplasmosis (from birth), Fibro/CFS (since age 13...ouch), severe IC, IBS-D, severe PFD (surgery made it even worse), vulvodynia, hiatal hernia, GERD, ulcers, severe gastritis, numbness/tingling in extremeties, pelvic nerve damage--mainly urethral, urinary retention, pelvic reconstruction 7.10.07 (fixed rectocele, rectal prolapse, lifted bladder, urethra, uterus, and repaired vaginal walls), Raynaud's, 2 severely herniated discs in neck and one in low back, anemia, PCOS, anxiety/depression/panic attacks (since forever). Still having major bowel problems (inability to empty rectum...any ideas?? ).

                I'd like to be on House, MD as a medical mystery.

                Married to Craig, a saint amongst men...who puts up with me and my eccentricities...

                Connor & Mommy by the tree:


                Connor with Santa...so happy!


                I take: LIQUID Atarax, Flomax, Soma (yet again), acidophilus, Glucosamine/Chondroitin with MSM & collagen, d-mannose. MAJOR flare from Cystoprotek! Re-trying freeze dried aloe vera w/some decent results!

                Tried and failed: Elavil, Ultram, Prosed DS, Benadryl, Bentyl, Valium, Ativan, Zanaflex, Librax, Sanctura (all caused retention among other things), bladder instills (owwwwww!), Elmiron (allergic-throat tightening). Failed Interstim-no feeling in sacral nerves...

                I'm allergic to penicillan, sulfa, reglan, quinolones, clindamycin, and now LATEX!

                Comment


                • #9
                  Thanks guys! The test for me was moderatly painful. THis is uncommon. I do think the IC made things worse. They gave me prosed samples once the test was over along with an antibiotic. I felt fine once the blue pee thing started. I'm concerned mostly becuase physical therapy has proved to be a waste of time and money for me(almost been a month now since I started.) Although for some it is a miracle! The exercises I do at home make me sore, and I still can't relax my pelvic floor on command. I'm doomed. Oh well.

                  Erika
                  IC diagnosed officially via cysto/urodynamics 1/26/07

                  Grade II Endometriosis diagnosed via lap 12/11/07

                  "Fall down seven times, Stand up eight."

                  "Life is a tragedy for those who feel and a comedy for those who think."

                  Current Treatments:
                  Interstim Since 5/25/07!
                  Birth Control

                  Comment


                  • #10
                    One month of physical therapy isn't usually enough to make much difference.

                    Donna
                    Stay safe


                    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                    Have you checked the ICN Shop?
                    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                    Patient Help: http://www.ic-network.com/patientlinks.html

                    Sub-types https://www.ic-network.com/five-pote...markably-well/

                    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                    [3MG]

                    Anyone who says something is foolproof hasn't met a determined fool

                    Comment


                    • #11
                      Good. At least I still have hope Donna! I don't know if I am still a canadate for interstim anymore, although the nurse did mention that occasionally he did use them for voiding problems despite limited bladder contractions on filling. My awake capacity is about 300mls-and yes I waited alot longer than I would have if I ws home. I let the nurse know that. I was standing in an absorbent pad with no undies, so I wasn't scared to pee myself! HAHA! My question is, to anyone who has the interstim(Jen 'im thinking of you in particular) did the procedure help you pee more normally? I just wonder if the surgery would be unnessacary now. I do know that it is approved for dsd under the billing codes. How long should give the pt before I look into more invasive treatment? I'm thinking like 3 months, is that reasonable? Thanks for your help.

                      Erika
                      IC diagnosed officially via cysto/urodynamics 1/26/07

                      Grade II Endometriosis diagnosed via lap 12/11/07

                      "Fall down seven times, Stand up eight."

                      "Life is a tragedy for those who feel and a comedy for those who think."

                      Current Treatments:
                      Interstim Since 5/25/07!
                      Birth Control

                      Comment


                      • #12
                        Hi... it's me

                        My voiding was quite abnormal on urodynamics testing; in fact, if it's possible to fail that test, I did! My bladder capacity was something like 237 cc and that was also waiting way longer than I should have.

                        Anyway, after the test, since I'd had PT in the past for months on end, my doc presented the InterStim as an option, but didn't force it on me. After several months of thinking, I went for it... and lo and behold, I pee more normally!

                        While I've not had a urodynamics test post-op, I do know that I can hold it much longer (frequency is down to 6-12 times a day from 25-35) and when I do go, the "staccato" pattern has mostly disappeared. I get it occasionally during my first morning urination because my bladder is angry and spasming from holding urine all night (I don't get up in the night anymore), but the rest of the time I sit down and pee with a much stronger, continuous stream.

                        Definitely wait until you have an appointment with your doctor to discuss what your urodynamic results mean -- he will explain what he thinks is going on, present his recommendations, and the two of you should go from there. It's possible he may still recommend the InterStim, but possibly not. There are a lot of factors they look at during that testing that the nurse didn't discuss with you, so it will be interesting to see what the doc's conclusions are

                        However, a urodynamic study is pretty much required with a lot of insurance companies before they will pay for the Stim these days, so at least you have that over and done with in case you do decide to go that route.
                        ****
                        Jen

                        *Diagnosed with severe IC in 2004
                        *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
                        *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
                        *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

                        **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                        Comment


                        • #13
                          Hahaha! Its so funny you said that Jen! My uro, who is God BTW told me that if I wanted ins. to pay for the procedure, I HAD to have the testing or they wouldn't even consider. I was scared by the results, becuase they could indicate a more seriuos neurological condition. I'm happy the stim works for the voiding problem too. :woohoo: I am however, not sure if that option is still offered at the next visit I would still consider it until I have more pt. Like donna said, 4 weeks isn't enough to notice a difference. I do know that the nurse said my pressures on voiding WERE high enough to cause permanent kidney damage and reflux. That makes me wonder if sooner treatment is better than waiting. Well I do seem to be in a bit of a pickle here. I can't wait for my appt! The nurse said he would go over the results with a magnifiying glass! I know him and he will too! Well thanks for your prompt response Jen! And for everyone else who is helping me with the decision I have here. I will update you all next Wed. after I sit down with my Uro about the results. Thanks agian everyone!

                          Erika
                          IC diagnosed officially via cysto/urodynamics 1/26/07

                          Grade II Endometriosis diagnosed via lap 12/11/07

                          "Fall down seven times, Stand up eight."

                          "Life is a tragedy for those who feel and a comedy for those who think."

                          Current Treatments:
                          Interstim Since 5/25/07!
                          Birth Control

                          Comment


                          • #14
                            I had a hard time with PT but it did help when I figured out what muscles to let go. I've even had to go back for a refresher. Try to stick out a little longer or if that doesn't help maybe you need another PT??

                            Comment

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