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I had my Uro study done today!!!

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  • I had my Uro study done today!!!

    Well let me say that I had the uro study done today I'm in so much pain right now. First off let me start by saying that my doc and RN are wonderful!!! They have such a great bed side manner.

    I was on the table crying when they put the cath in. First they had to drain my bladder, then they took that one out and put in the other cath that is really small.....but it still hurt so bad. I was ready to come off the table. TO MAKE MATTERS WORSE....THE REALLY SMALL CATH WAS DEFECTIVE. So they had to take that one out and do it again. OMG I was upset, but it wasn't the doc's fault it was the devise. So I told them to make sure that whatever they wanted to work right before they put it inside my bladder.

    Before we even started the test he was showing me and the RN that I was having spasms already.

    When the test was done he showed me that I was still having the spasms, and he said that I have a good case of it. So I asked him mild, mod, or sev. He said on the high end of Moderate. He said he will know more when he reveiws everything. I go back next Thursday.

    I hope everyone has a great weekend and I just had to vent.....I'm really in sooooo much pain. To top it off my 9month old has an ear infection and my 3yr just had tubes put in this past tuesday and I really dont feel good now!!! I wish I could blink my eyes and all would be better!!! Take care
    Live your life to YOUR best, and Love to YOUR best!!!



    DX in 03 with Shingles
    Removal of Left ovary due to Cyst in 2005,
    I have had cyst since I started my period as a child age 12
    Hysterecotmy December 06
    IC DX March 07 by PST
    2 "rescue" instills in March 07
    Cyco May 07 confirmed IC
    Uro study June 07
    1st Pain Block July 17,08
    Hydro/Cysto Nov 11, 2008
    12-11-08 was told I had alot of inflamation

    Meds: Allergic to 6 things
    Premarin......taking the gen cause I get it at Walmart for 4$$
    Presique for my drepression :woohoo:
    Abilify for my depression
    Adderall ...found out I'm ADD...makes sense now
    Kolopin for anxiety
    Noroco for my pain
    Valtrex for my shingles as needed

    Sorry if my spelling is off on the meds [/FONT]


    http://community.webshots.com/user/s...host=community

  • #2
    Ouch Stac, that doesn't sound like fun! I hope you start to feel better soon.
    Christine



    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
    I have tried every oral medication as well as rescue instills and DMSO.

    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
    Also proud mom to the best Bullmastiff on earth, Claus

    Comment


    • #3

      TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
      My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

      Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
      Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
      I post to encourage and offer total support for rescue instillations.
      Find me on facebook: L. Clark Thomas
      Louann

      Comment


      • #4
        I am so sorry! Hopefully you will feel better soon. Pyridium or urelle will help with the burning! Mine was not pleasant either! It gives the uro lots of info though, it is a great test for the doctor to use to treat you better. If I didn't get this test, I would have never been able to get the interstim.

        Erika
        IC diagnosed officially via cysto/urodynamics 1/26/07

        Grade II Endometriosis diagnosed via lap 12/11/07

        "Fall down seven times, Stand up eight."

        "Life is a tragedy for those who feel and a comedy for those who think."

        Current Treatments:
        Interstim Since 5/25/07!
        Birth Control

        Comment


        • #5
          Oh thanks ladies....yes I also believe that it is a great test for the doc to get info on us.....but I saw we should get to go to sleep or something.

          I know I know they can't tell when u are sleeping, just a wish u know. lol

          Thanks again
          Live your life to YOUR best, and Love to YOUR best!!!



          DX in 03 with Shingles
          Removal of Left ovary due to Cyst in 2005,
          I have had cyst since I started my period as a child age 12
          Hysterecotmy December 06
          IC DX March 07 by PST
          2 "rescue" instills in March 07
          Cyco May 07 confirmed IC
          Uro study June 07
          1st Pain Block July 17,08
          Hydro/Cysto Nov 11, 2008
          12-11-08 was told I had alot of inflamation

          Meds: Allergic to 6 things
          Premarin......taking the gen cause I get it at Walmart for 4$$
          Presique for my drepression :woohoo:
          Abilify for my depression
          Adderall ...found out I'm ADD...makes sense now
          Kolopin for anxiety
          Noroco for my pain
          Valtrex for my shingles as needed

          Sorry if my spelling is off on the meds [/FONT]


          http://community.webshots.com/user/s...host=community

          Comment


          • #6
            Hi Stac.
            I am sorry you went through all that. I hope you get to feeling better real soon. I was reading your list of meds you take, and was wondering what is mobic? Does this prevent you from getting UTI's?
            I am very prone to getting UTI's , but cannot tolerate antibiotics very well because I have severe stomach issues. Is mobic and antibiotic, and what class is it in? Thanks.
            Jen

            Comment


            • #7
              Jen-

              I believe that's what it is for. To be honest I'm not real sure if it is an antiboditic. I know that it is one of the few things I can take when I do have a UTI cause I'm allergic to 6 things. I think so. I'm sure if you do a goggle you could get a bunch of info on it. Sorry I couldn't help
              Live your life to YOUR best, and Love to YOUR best!!!



              DX in 03 with Shingles
              Removal of Left ovary due to Cyst in 2005,
              I have had cyst since I started my period as a child age 12
              Hysterecotmy December 06
              IC DX March 07 by PST
              2 "rescue" instills in March 07
              Cyco May 07 confirmed IC
              Uro study June 07
              1st Pain Block July 17,08
              Hydro/Cysto Nov 11, 2008
              12-11-08 was told I had alot of inflamation

              Meds: Allergic to 6 things
              Premarin......taking the gen cause I get it at Walmart for 4$$
              Presique for my drepression :woohoo:
              Abilify for my depression
              Adderall ...found out I'm ADD...makes sense now
              Kolopin for anxiety
              Noroco for my pain
              Valtrex for my shingles as needed

              Sorry if my spelling is off on the meds [/FONT]


              http://community.webshots.com/user/s...host=community

              Comment

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