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  • #31
    I sincerely appreciate your kind help, Donna.

    I am also glad and thankful that you appear to have beaten cancer.


    "Tums can be a substitute for the soda and it usually helps me"

    Is Tums as good as Prelief?


    "if you're having bladder spasms, a smooth muscle antispasmodic might help"

    If I feel pressure in the bladder area and also feel the need to urinate even right after voiding, does this mean I might be having a bladder spasm?
    Also, is Flomax/Tamsulosin considered to be a smooth muscle antispasmodic? Are there any antispasmodic drugs that I ought to ask my doctor to prescribe to me?

    I see that peppermint oil and bamboo shoots are considered to have smooth muscle antispasmodic effect.


    "I'm sorry to have rambled on here."

    I am very thankful to be able to talk to someone who knows this condition well. I hope you never develop tinnitus/ear ringing, but if you do, I will gladly return the favour. I learned a lot about that condition when I developed it back in 2017.


    Does getting rid of the triggers reduce the chance that one's IC symptoms get worse during the first five years, or is that inevitable?

    Right now my only symptom is a persistent urge to urinate (even after voiding). I guess the medical label for that is "urgency and frequency". Sometimes it gets better and I just constantly feel some pressure and discomfort in my bladder area, but at other times it feels like my bladder is bursting all the time. So I can't really ask for a painkiller (although perhaps it would work?) Does anything else that one could ask for to treat "urgency and frequency" come to mind?

    Thank you, Donna!



    Comment


    • #32
      There are some ICers who are helped by flomax (there are also other medications that have similar action, such as hytrin, if you have a problem with flomax. That urge to urinate could easily be caused by bladder spasms. Prelief should be taken with the first bite, or swallow, of food or drink, especially if it's something you feel is questionable. It reduces the acid in the digestive system. Tums is usually taken for upset stomach. One good think about Tums is that it has calcium, which many people need to supplement.

      Try not to worry about getting worse --- some of us have stayed pretty much the same from the outset. I'm actually much better than when I was diagnosed --- I strongly suspect it's because I've learned which things are a problem for me.

      You're very welcome.

      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment


      • #33
        Thank you so much, Donna!

        I will try to use Tums only during flares.

        Today I found out that when my urgency intensifies, I have 150-200 ml (5-7 oz) of urine in my bladder... As disturbing as it gets...
        Last edited by BillB; 01-28-2021, 12:56 AM.

        Comment


        • #34
          I went to bed at 1 am only to be woken up by a strong urge to urinate at 2 am. I produced 40 ml of urine, and the sensation hasn't gone away. It is strong enough to make sleeping impossible (but not stronger).

          I thought that as long as I stopped ejaculating, I would be able to sleep and to function. It looks like I was wrong about that. Yesterday I ate some cabbage and pumpkin seeds and drank cashew milk.

          The only other thing that might have caused the flare that comes to mind is that I drank too little water yesterday - about 1 liter or 34 ounces. What do I make of this? Could it be that I am getting a flare as a result of something I ate 3 days ago? Might it be the case that I can get flares due to consumption of cabbage, pumpkin seeds, or cashew milk? The flare occurred 6-12 hours after I had consumed those things...

          Or does this mean that my flares just take place randomly and that there is nothing that can be done?

          I am kicking myself for not buying Tums yesterday. I will definitely buy them today. I wonder if that can be used at 2 am to stop a flare in an hour or two and to be able to get some sleep. Is there anything else one can do at 2 am when one is woken up by a flare, to allow one to sleep?

          Thank you, Donna.

          Comment


          • #35
            You might try taking the amitriptyline earlier. What else did you have to eat and drink? You might want to take Prelief with the first bite of every meal. That could help prevent the frequency. Tums or soda can take hours to help. Do you always urinate such a small amount? If so, I strongly suggest keeping a voiding diary to share with your doctor at your next visit. Normal bladder capacity is around a pint.

            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment


            • #36
              It's evening. IC hasn't been bad today. Unfortunately, it is bad now. I am getting flares at night...

              For those of us who feel like our bladder is bursting (even though we know there's less than 5 ounces of urine in there), is it a good idea to not void for as long as possible (say for at least three hours)? Or is this actually bad for the bladder?

              Comment


              • #37
                I have to get up at night personally I am so afraid of wetting the bed. I would ask your urologist when you see them next but for now, I would just go when you need to. I'd imagine if I held it, I wouldn't sleep good. Bladder training is typically done with a Urologist

                Comment


                • #38
                  "just go when you need to"

                  The problem is that I feel like I have to all the time, even right after urination.

                  "I'd imagine if I held it, I wouldn't sleep good"

                  I've always had trouble falling asleep. Feeling like I am attempting to fall asleep while ignoring a full bladder is making falling asleep a lot harder...

                  Comment


                  • #39
                    This is really far out, but you might try using an incontinence product to see if that will help you relax in bed. When I can't sleep, I usually watch TV or read for a while --- if that doesn't work for you, I suggest you talk with your doctor about this.

                    Donna
                    Stay safe


                    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                    Have you checked the ICN Shop?
                    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                    Patient Help: http://www.ic-network.com/patientlinks.html

                    Sub-types https://www.ic-network.com/five-pote...markably-well/

                    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                    [3MG]

                    Anyone who says something is foolproof hasn't met a determined fool

                    Comment


                    • #40
                      "This is really far out, but you might try using an incontinence product"

                      You mean wearing that "Depends" product to bed? It's an option I will keep in mind, but it would work only when I start getting any relief right after emptying my bladder.

                      Comment


                      • #41
                        For the first time I haven't slept at all this last night. In the past I would get 1-4 hours of sleep, but not this time. Last night I slept poorly. I wonder how many nights I will need to not sleep in order to be able to pass out while feeling my bladder about to burst (while being empty) like I do now.

                        It would appear that chronic nonbacterial prostatitis is in some ways worse than IC. IC patients can do bladder instilations. I don't believe those would work for prostatitis, if that's what I have.

                        Comment


                        • #42
                          Have you had a second opinion? If your current urologist isn't willing to look at other possibilities, I think that might be a good idea for you --- you could either verify or discard the prostatitis diagnosis. If you scroll to the top of this page and click on ICN Front Page, you'll find a link to finding a professional --- there may be someone listed there who has been recommended by another IC patient.

                          What tests have you had?

                          Donna
                          Stay safe


                          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                          Have you checked the ICN Shop?
                          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                          Patient Help: http://www.ic-network.com/patientlinks.html

                          Sub-types https://www.ic-network.com/five-pote...markably-well/

                          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                          [3MG]

                          Anyone who says something is foolproof hasn't met a determined fool

                          Comment


                          • #43
                            I live in Canada. I was told that I will get to see a urologist in two months. In an attempt to get the doctors to expedite this, I went to the ER and told them my symptom interfering with my sleep. The ER doctor has given a prostatitis diagnosis to me and told me that there is no rush to see a urologist, that I should take antibiotics for prostatitis first.

                            Earlier today I went to a walk-in clinic (which was administered over the phone), and got a prescription for Pyridium. Hopefully it could take the edge off and allow me to sleep. The problem is that one is not to take it for longer than 2 days(!)

                            I've had an ultrasound done (no abnormalities, and my prostate isn't enlarged), a digital prostate exam (the doctor believes my prostate is inflamed), and a urine test done (no nitrates, white blood cells, and other signs of an infection).

                            I will be seeing my family doctor on Thursday. I doubt I will be able to get him to expedite my appointment with a urologist.

                            Comment


                            • #44
                              You could ask your family doctor if he/she will order a smooth muscle antispasmodic or uribel to help get you through the time you wait for your urology appointment. I'm so sorry you are having such a difficult time.

                              Donna
                              Stay safe


                              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                              Have you checked the ICN Shop?
                              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                              Patient Help: http://www.ic-network.com/patientlinks.html

                              Sub-types https://www.ic-network.com/five-pote...markably-well/

                              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                              [3MG]

                              Anyone who says something is foolproof hasn't met a determined fool

                              Comment


                              • #45
                                Thank you!

                                "You could ask your family doctor if he/she will order a smooth muscle antispasmodic"

                                I already have Flomax/Tamsulosin. I know that it relaxes smooth muscles. Is it one of the "smooth muscle antispasmodic" medications that you were talking about above?

                                Comment

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