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If IC diet helps a lot, still need to go to urologist to rule out other problems?

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  • Katrina
    replied
    Hello and welcome Elaine , Welcome to the boards!!! Glad you are seeing a Uro knowledgeable on IC. I hope you find the relief you need. Best of luck to you, and welcome to the family.

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  • Britgal
    replied
    Hello Elaine and welcome to the boards and the IC family. Glad to know you have an appointment, let us know how you are doing, welcoming hug Iris. hi grouphug

    Leave a comment:


  • JAF
    replied
    Elaine,
    I wanted to add my welcome and I am also glad you have that appointment. Good Luck.

    Jolene hi

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  • auntiedeb
    replied
    Hi Elaine and welcome to the boards. You will find loads of support and love and caring here. That is wonderful that you are going to see a urologist that knows ic and is willing to help you. please let us know how you make out. gentle hugs and healing thoughts. Happy NewYear.

    Leave a comment:


  • ICNJess
    replied
    Hi Elaine--

    That's great that you are going to see a uro who specializes in IC. Let us know how you do!

    grouphug grouphug

    Leave a comment:


  • Zebra15
    replied
    Hello Jess, Brat, Donna, and Success...

    Thank you for your advice and insights...it helps me in what I more or less figured I have to do---see a urologist.

    Have an appt. with one who I have heard is wonderful with IC patients, so will keep the appointment.

    Hugs to all!

    Elaine bunny

    Leave a comment:


  • havingsuccess
    replied
    I have to agree with the others on this. You need to see a urologist and the fact that the IC diet has helped you may help the uro in his diagnosis.

    Keep us updated.

    Success

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  • ICNDonna
    replied
    I have to agree. It's far better to know what your problem really is so you can treat it appropriately.

    Sending an encouraging hug,
    Donna

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  • tigger_gal
    replied
    HI Elaine,
    I agree with Jess, If you think you may be dealing with IC its best to get it treated asap, there is no cure but it can be somewhat controlled. there are other things that mimic ic.
    Brat

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  • ICNJess
    replied
    Hi Elaine--

    I sympathize with the whole dislike of the exams and possibility of a future with IC. But I must say, that if you think you are dealing with IC, you will need medication. Not too many people can survive on just diet alone. Some need that combination with Elmiron and other meds and such.

    I have had no hospital stays since being diagnosed, and have had 3 surgeries. So that's not a big issue. The cystoscopy/hydro is not bad at all, and if I had to, I would do it all over again.

    Please consider meds if you are dealing with IC, because I started out with just frequency and a little urgency, and then 3-4 years later I was in bed for a long time from pain. I wish I had gotten meds when it first began!

    Hugs and health,
    Jess

    ~If you'd like to chat sometime, feel free to PM me~

    Leave a comment:


  • If IC diet helps a lot, still need to go to urologist to rule out other problems?

    Hi to everyone,

    I am new to this chat room.

    I have had frequency since I was a child...eating too many oranges, would get a UTI. Just thought it was normal, going to the bathroom often.

    As years went by, intense tea/coffee drinking, love of spicy foods, rich desserts were not helping, but I did not know the connection.

    A urologist diagnosed me with overactive bladder in 1998 (shortly after my mother passed away, and I was living in the bathroom practically). At time, I had no health insurance, so he did not have other tests done he thought he should use (possibly he suspected IC).

    In the last 8 months or so, I was on a long temporary job and getting a double-shot iced espresso everyday. I had lower pelvic pressure and soreness on right and left side in May or April. I cut out the coffee totally and did cranberry tablets for awhile. Things seemed better. Then I slipped back into my old habits. Then in August, I flared again. I went to walk-in clinic---small am't of bacteria in urine, so doc put me on antibiotic. It helped, but there was a company "potluck" for the end of the project. I ate different things, some spicy sausage, cheese, eggs with tabasco, bacon, and small amount of desserts. It knocked me out the next day. Went back to the walk-in clinic---no bacteria this time.

    Since then, went to a gynecologist to find out if need Estrace cream (since postmenopausal and had total hysterectomy in 1997). Doc gave me Metrogel for vaginal infection from viewing area, and prescribed Estrace cream for atrophic vaginitis. They both helped. The Metrogel was only a 5 day course (no pelvic discomfort during it), but not something to stay on. The Estrace cream has no effect on pelvic discomfort from what I can tell.

    During this time, came across IC websites with the lists of foods to avoid and the OK to try foods.

    I have noticed a big improvement with the diet. But, if I stray a little for 2-3 days, the pelvic discomfort comes back.

    After all the reading I have done (and can stomach), I just wonder if all these other conditions that urologists rule out before they give you the test for IC, would respond well to the IC diet too.

    It just doesn't seem to me that cystocele, rectocele, bladder cancer, urethral cancer would fluctuate to the IC diet. Maybe urethral diverticulosis would.

    Just wondering...as dread the scary testing, esp. hospital stay, and the huge expense when it may be that better off sticking with the IC diet and Prelief from time to time.

    Probably have to go to urologist, but just wondering if anyone has been in a similar situation or wondered the same way I am thinking.

    Thanks for any helpful ideas...!

    Elaine
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