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  • tigger_gal
    replied
    Lori
    hugs I hope you find a great doctor who is willing to listen toyou and take action to help you thru this. I hope you don't have IC, but, you might.. I am glad you found us there is a wealth of infor thru these pages
    Brat

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  • ICNDonna
    replied
    I know you are in a really tough spot --- right in the middle where you can't get any help with health problems.

    I hope you feel better very soon.

    Sending warm healing thoughts,
    Donna

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  • Britgal
    replied
    Hi Lori Jo and welcome, you certainly have been through so much, and starting at such a young age. I am glad you have joined us, and hope that we all can help you with support, love and compassion. This is a wonderful site for information, and to make new friendships with gals, and some guys, who are all dealing with bladder problems in so many ways. IC is definitely one pain in the butt, and other several places, but there are always so many good people to share the bad days and the good. Be more than happy to help you in any way I can, welcoming hugs Iris. hi grouphug

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  • dixiefireball
    replied
    Lori I pm you threw the icn. hope you email me back. kissing grouphug
    Your story seems alot like my as in uti's and surgerys

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  • Sarojini
    replied
    I'm sorry to hear that you've been through so much I hope you don't have IC... but like Jess said, if it is you have certainly come to the right place.

    I was just diagnosed last Thursday and have found these message boards to be a lifesaver... lots of really great information, and lots of loving support!

    Good luck with your search for answers... and I hope you are not in too much pain tonight grouphug grouphug

    Jen

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  • ICNJess
    replied
    Hi Lori Jo,

    It sounds like you have been through quite a bit. I hope you get some answers soon on what is bothering you, and I truly hope it's not IC!! But if it is, we're here for you and there are treatments to help you. Just hang in there!

    Hugs and love, and welcome!
    Jess grouphug kissing

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  • lori jo
    started a topic My Story

    My Story

    I have been reading these boards for weeks now and thought that I should finally introduce myself to all of you wonderful amazing people. I will post my story here because I have not been diagonosed with IC. But I am 100% sure that this is what has been tormenting me for years. I am 46 years old. I started getting UTI's when I was 6 mo. old and got them many times every year, about 15 years ago is when I think the UTI'S weren't UTI'S any more. I have had 2 bladder surgeries to repair a ureathal reflux. The first one when I was 6 years old was the first surgery of it's kind to ever be done in the US. But the materials that were used to reimplant the valuves desolved and I had to have the valuves replaced again when I was 18. Oh and they had to do 3 valuves each time because I have three kidneys. Which sounds good but I have lost huge chunks of them from the bladder infections that could travel up the uritures when the valuves were gone. I also had a horrible surgery called "widening the bladder neck" when I was very young, I'm not sure what the purpose was supposed to be. I found out years later that it is a barbaric thing that they used to do to women and involved sniping the muscle in your bladder that opens to alow you to pee! So now I have a slight leakage problem. grrrr I'd love to get my hands on that stoopid Dr!! Anyway for the last 15 years I have seen Dr. after Dr. for the infections and no one could tell me why I kept getting them, what to do about them or if they were actually infections. They would say "not the typical infection", "urine shows MAYBE SLIGHT signs" , "here take this medicine". Id take all the meds and it just never went away. They gave up on me so I simply stopped going to the Drs. Then about a month ago I was having the upteenth day of very painful pain, just sitting in the tub crying to my 23 year old daughter about how depressed I was from being tortured by my bladder for so many years and not knowing why. Well she and I got on the computer and found this site. I just bawled reading all of your stories and stuff. None of the stories are just like mine but if you take a little bit from each, it is me excatly. I have learned so much here and feel relieved that there are things that I can do to help myself. I started the elimination diet the next day. It has been frustrating and so far I don't know what foods trigger my flares, except catsup...OUCH! But I will keep at it. And yes I know that I need to find a good Dr and get a diagnosis but I am self employed with no health insurance. I make too much money to qualify for the Oregon Health Plan but only enough to barely get me through the month. I really can't make more than do now, but am really pushing through the pain and working a second job that is building a business that will pay really well eventually, but not yet. So for now I am on my own with this bladder hell. Sorry this is sooo long , but it really is my life story. Thanks to all of you out there who are reaching out to others who are hurting too.
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